the rash
 

i was intersted in the content of one of the previous threads but did not want to post there ... way too much going on there .... but i would like to say that i get that rash on the upper chest and throat also. i would be interested in hearing how many others get that and if anyone had read anything on it or had a doctor tell them that it is rsd related.
joan

Hi Joan,

If I was you, I would keep a open mind. Have you done a search with RSD Infection? Hugs, Roz

I"m not sure what you meant, but i do have an open mind, and do quite a bit of research on my own, but i just happened to notice that someone mentioned the rash that comes and goes and is only on the neck and upper chest.
so, i was just questioning if that peson knew what it was or if a doctor has clarified it to them. joan

Hi Joan,

I am thinking maybe infection could be the cause of my RSD even though nothing black and white shows up.
http://www.rsdcanada.org/parc/englis...anderlaan.html

Although an injury is the usual trigger for RSD, infection, pressure on a nerve, heart attack, stroke or surgery may also be responsible.

http://www.bbc.co.uk/health/conditions/rds1.shtml

I am also at the later stages so I am not ruleing it out as maybe infection coming up later either.

http://www.rsdfoundation.org/en/en_gallery4.html

Hugs, Roz

Hi Joan.

I think you were reading my post and I had pics of what my rash looked liike. I did see my doc and he said bc its only on where my RSD is, that its most likely a pain rash and it appeared bc i was over doing and the change of weather. It was andn is nasty when i get it. I have had it about 2-3 times and it gets worse each time. I foud that if I sit in the hot tub that it does it wonders, and also dont put anytihng on it.. everything that i did put on it, only made it more angier!! My doc said it just really had to run its course unless it looked infected if it opened up to any sores. soo!! Hope you are doing well.. !!

~~Amber

i also get that strange rashlike looking thing on my arms. the pain clinic told me it's all related to the rsd. when the pain gets worse, the rash seems to become more prominant. what they also said to me was something to the effect that the blood is rising up to under the skin????????? :confused: what do i know................i just got on what they tell me........................oooooonly sometimes LOL.

My RSD has been flaring up a little worse this week :( But I've also noticed that I'm getting a rash on both of my legs. It is probably RSD related because it appears whenever my RSD is flaring up.

thanks for all the info, my rsd was from hip replacement surgery 10 years ago. it was lower left foot, then leg, then right foot ... and i have either reynaud's in my hands or rsd ... who knows??? no on can tell right now. and nothing is fixable so what the heck! my hands get red and itch under the skin until it hurts if they get cold and they do get cold .... but do not swell.
the rash however is neck and upper chest as if i had on a scoop neck shirt, that area ... but my rsd has effected my bp and heart rate and i am on meds for that so it could be related to that.

Blisters
 

Recently, I had a small but worrysome bout with blistering. They poped up in different places on my body... At first I thought it was shingles, but the doctor told me that shingles is confined to one nerve group and aree in large patches.

I had only one here and there. He told me not to worry, he did not know what they were, but to keep from scratching because of the possibility of spreading infection to the open sore.

They were small like a little burn, with clear fluid. They would itch for a bit, and burn and sting. Then the fluid would release and they would heal. But I was extremely careful not to scratch. They seem to have calmed now... I hope it stays as such.

Anyone had this happen to them with RSD?

Hugs,

Rain :hug:

:) Hello,I am a very rashy person for the most part too. Lots of times it is actually the meds which are causing many of our extra problems, so it is a unfortunately a case of being " caught between a rock and a hard place " Many meds that are used for BP and heart rate issues are Beta blockers and they do tend to make you rashy:confused: as they dilate the peripheral blood supply.
Many of our meds make us sensitive to sunlight too, I know that 1 minute in the sun will give me a bright red rash on exposed skin for a couple of weeks.
I find that a very gentle steroid cream helps my rash when it is extreme but it is different for everyone. I think that having a consult with a dermatologist was good for me as it reassured me there was nothing too serious going on but just another byproduct of this puzzling condition?

same rash
 

Joan... I'm so glad I saw your post. I've had the very same problem. My rsd is in my left leg but I keep getting a rash on my upper chest and under my arms. The doctor can't figure it out. I was so desperate that I stopped my meds for a while but it didn't make a difference. I don't think its related to the meds. The only other thing I have wrong with me is the rsd...it has to be that. I haven't found anything that makes it go away...it just seems to do it's own thing. Hope you're finding some relief...Take care.

I Have Always Just Assumed The Rash Was From The Rsd, And Again I Get To Say .... There Is Nothing We Can Do To Fix It! Ha! It Seems That Is The Answer For All The Rsd Problems. Mine Comes And Goes For No Particular Reason And Feels Hot But Does Not Itch. So Be It ....
Whoops Sorry If I Offeneded But I Typed In Capitals Again, It Is A Habit But I Am Too Tired To Redo It .... Joan

Hey,

I get them too. They are annoying as they ruin the look of tops..! it goes bright red and hot.. haven't found anything to help. Just had to accept that some days are not low cut top days....!!!!

Frogga xxxxxxxxxxxx

Joan, my doctor said it is a pain rash
 

Joan, my doctor said they have no scientific reason, no explanation, but it is a pain rash, mine is recurring. on my back, and neck sometimes upper chest.Can be severe or mild. On my back seem to always be just under the surface.Take care,, cz

isn't it always a relief to know other have the same problems? i don't care if i have the rash, i wear v necks anyhow .... i figure, i have a cane, a brace and a purple foot so who will notice??? ha! joan

What you are describing sound like RSD blisters. I had em same as you - different places on my body but not on one nerve so it wasn't shingles but looked simlar.

do a google search on rsd blisters and you should be able to find some pictures.

Mine were diagnosed by Dr. Daniel Carr who was an RSD researcher as well as a respected RSD doctor, so I believe that his diagnosis was correct( for that anyways)

I only got them once but one of them left a scar on my face of a tiny red dot for the longest time. It's still visible, but very faint.

Peace and hope,
Lisa

with the blisters. does anyone find they occur where the circulation is worst? My feet are very black but I have boiling blister like things over them.

thanks

froggsy.xxxxxxxxxxxxxxxxxxx

Frogga,
YES, Yes, Yes. Love, Roz xxx

But Why???? Hugs, Roz xxx

are they black and red?

because they are annoying and are going through a cultural and racist labelling issue... maybe it's late teenage rebellion?? my feet are trying to develop their own cultural identity?

or maybe they are trying to hint at all the film roles I could get with dead legs (just think, everytime the heroine dies there could be a shot of dead legs and feet).

sorry, only pulling your leg

hope your eye is doing better!!!!! Froggaxxxxxxxxxxxxxxxxxxxxxxxx

Dear Frogga,

I know my circulation is involved. Which has alot to do with the lymph system.

If are circulation is even compromised we are at risk for severe infections. Their is a Dr Andrew Wright in the UK, I have heard he is hard to get in, but you need to be a top priority. Rosie you have your whole life ahead of you, forget your Brit manners be pushy. Doc's that are hard to get in are usually good.

I beg of you not to feel bad. This horrid RSD is not a matter of shaping up or putting one foot in front of the other. I have dear friends who are healthy RN's who do not have a clue.

I know I haven't met you face to face, but you are one of the most beautiful, lovely person's I have ever known. Hugs, Roz xxx

Rash
 

In my first and second year of RSD, I had a chest rash. It started out as a little circle on my upper rib cage and eventually spread up to my neck. Dr. said it is RSD. Then! About 6 months ago it disappeared! Maybe, because meds are working...Dr. didn't know for sure.:)

Thanks
 

I thought it was attached to the RSD, but since none of my doctors could figure it out and did not seem to worried, I tried not to worry too. As it nagged at the back of my mind.

The only advise they had was not to itch and cause infection. Alot of help when they would start to itch. LOL

Thanks for the advice and the answers!

Gentle Hugs,

Rain :hug: :hug: