For Us who havent misused Opiates
 

Join Date: Mar 2007
Posts: 26

Default Doctors in Calif
hi I live in Oregon and have a great doctor I lived in tennessee and had a great doctor are you the gabby who told me of the Doc in Johnson city ? I worked as prescribing nurse for a pain Doctor in California some days he would have over 70 patients (I only worked one day a month for him but he pioneered letting people decide what they wanted
You see I shot myself and guns are worse than opiates but opiate misuse makes it hard on us all ,what works for one person doesnt for another .I shot myself in heart making my RSD worse if possible because of the just say no Reagan mentality and with no meds I went to a Hospital for drug addicts for the "Cure" (treated worse than Mierda)instead of my RSD being treated the Doctors would say I can't see you you are a Drug Addict (I was a RN 15 years and was never an addict by taking extras or selli ng meds I knew the importance of being perfect with my meds)
I couldnt bare the pain i had RSD since 1968 I saw no way out but my rifle although I think God is great to make our decisions other people should make their own decisions ask for help but not try to decide for me,
It is unbearable ,I have lost friends to RSD or lack of decent treatment whatever it was they needed.Meds had taken the edge off for me and I pray all get the help from this monstrous disease .
Hey I wrote a poem a few well you can look under rsdno I guess before judging me (probably not very good but I try
Gentlest Hug rsdno

Sorry I am not the Gabby you suggested the doctor in TN. Wish I could be of more help.

Gabbycakes

RSDno,
Although pain is a constant reminder of days gone bye it is important to remember that God is the ultimate provider. He and he alone can make or break our decision and our wills.
I read your poem, it was beautiful as a sunrise. I wish you peace and good health in all of your days and remember that you have all of us here at neuro-:hug:talk to be your friend in both good and bad.

God is love
 

Sorry to hear your desperation RSDno, I too am at the same stage. A fear that I cant stop as it's part of me causes rsd external and internal. Remember God is love and won't judge you harshly.I survive minute by minute but the combination of a brain malfunction and rsd doesn't give me long.I hope you will find comfort soon and get the strength to keep going.

gentle hello rsdno
 

You may always post here. This is a compassionate group of people. I have no idea really how to help you. I sure can hear your cry with what you did, and the pain of RSD. You need a physician who will treat you, no matter what you did in the past. I don't want you to go to round two, because you can't stand the RSD pain. Is there a Psych you could go to, that might have compassion and allow you the medicines to control your pain? There has to be an answer, and I hope you get some other posts to help direct you. I am here for you if you ever need to talk. I care about you, and I am sorry for your pain, your hurt, your sorrow over your condition. I hope you keep reaching out for help. You will be in my thoughts, and from now on always in my prayers ginnie

Dear rsdno
 

feel free to PM me. You won't get judged ever. ginnie

Thank You for Reading
 

I appreciate how you all feel especially with each Doctor giving you different Therapy ,if I can ever help
GH rsdno

hello rsdno
 

[I have not stopped thinking about you. I have a little noahs ark tin, in which I place your name and condition. That way I don't forget people. Are you OK? have you been able to find some help? I do care, and hope to hear from you. ginnie

I too have not misused any drugs - the only time I get any are when my arm develops yet another major infection, then only enough for usually a week or two at most.

I also go through the wishing my pain and spasms would stop every day, I just so far am able to keep the thoughts to just wishing a lot I could just have my dang arm removed and enjoy pain free life again. See this arm has had su many injuries over the years, I literally have had to go many times months to year or more without using it... Is that bad thinking? I really don't know...

Hi Kheldar
 

I am sorry your arm has given you such pain over the years. I don't really blame you for wanting to get rid of it. Don't do it though. We all feel like wanting to get rid of pain in what ever limb it happens to hit. I hope you are getting enough help to deal the pain. Do go to a pain specialist if it gets to be too much. It comes down to quality of life. That is where I draw the line. If my pain gets so bad, I do speak up. Even if it takes more than one doctor. I wish you all the best. ginnie

Yeah...definitely don't get rid of the arm. I know the thinking is that you will be pain free if you get rid of it but that's not how it works with RSD. I know you have other issues with the arm above and beyond the RSD...but RSD pain is such that even if you cut off the limb with RSD the pain is still there. I tend to explain it to others (those without RSD who just ask casually about it) as there's really technically nothing wrong with my ankle (just as an example) but rather it is my nervous system that is damaged so even though the initial injury in the ankle healed, I'm still getting pain signals saying it hurts. Even if you chop it off...still gonna get those pain signals...and probably worse because you have just caused your body MORE trauma which of course flares the RSD. If there was even a remote chance...50/50 of cutting the limb off working I bet most of us would try it after everything else has failed...but it just doesn't work at all and it does no good to think that way. I know there are stories of people who completely and totally lost use of the limb for YEARS and they are able to get it back once they find a treatment that works for them and the right doctor....so don't give up hope.

Thanks. I have been trying for almost 2 years to get to a pain doctor to get some relief and i call doctors almost daily to see if they will see me without workers comp approval first. Finally found 1 that will, and when they see my history of meds, won't be no mis-use of drugs lol, maybe drinking too much though! right now that's the only way i get any temporary relief and sometimes sleep 6 hours or more.

keep fighting kheldar
 

Don't stop in your search for a compassionate pain doctor. When My current pain doc. failed to listen to me, I went back to the doctor I knew the best PCPand had HIM call my pain specialist and intervene. I got the relief. Sometimes you have to go all out, to get what you need to help. fight for it! ginnie

Hi I Hope I'm Writing Ginnie But Hi Anyone Else
 

Thank You for the kind words I wish I had seen them sooner I live up in Sp[ringfield Oregon ,have a beautiful apartment on housing (no daughtersd step daughters or grandaughters live with me ,I never had m\my own apartment wow I think 3rd floor is highest . I finally got my RSD dxed while at the Nut House at UCLA (for being a faker claiming i hurt like on fire )well a German Neurosurgeon came by gave me lots of tests so after 8 yrears of being called every derogitory name in 1968 oh wekll I guess I did hurt . By then I had Fibrositis recently RA but tryinng Remicade . Anyway I would like to talk to you Ginnie and anyone else my addy is rsder@comcast.net .This was the first non E Group RSD Center I ever saw and to me it remains thee best we all are different so the pain hurts us differently ,you wouldnt believe my difference (no its not that Im a dog that uses Dragon Natural Speak )
People hurt then they get angryu because I wrote something aftter being up 3 days that was misunderstood(just Hypothetical) but still I cant take much negativity but if you wan t to say hi at my e mail or here ,wow kit would be a cherished gift. (I wrote a poem for hhere once but no one read it didnt bother to even say it was awful. I just try tpo be careful
But I hope all lof you are getting all you need if I can ever help /or read my poem I cant find it )
I wish all of you peace and love ADDY IS rsder at gmail dot com
GH rsdno
Gemntle Hug