PN is on Yahoo today
 

I was looking at yahoo and found this. Interesting. I thought I would share.

http://health.yahoo.net/news/s/hsn/m...ondition-study

Melody

Well, neither of those tests would have found my PN back when.

Hypothyroidism won't show up on either test.

Kind of a superficial article IMO.

Nerves need T3?

Hypothyroid leads to deposition of a tissue factor along the wrists and ankles and leads to compression neuropathy. It was a very painful long time for me back then!

T3 is needed by all tissues in the body...not just the nerves.

I got carpal tunnel in both wrists shortly before PN in my feet. I'd wake up every night and my hands would be numb. Is this often an early sign?

Yes it can be. I use wrist splints when my hands get bad.

Usually they are ok, but if I use them alot, or say my right one alot I have to go back to my splints for a while. (I've been doing a sewing project...very small but enough to set off my right hand).

I am curious to know if it was and insurance company who provided the grant for this research. Does anyone know?

Mrs. D.

Sitting next to me at the PN Support Group meeting last thursday was this brand new member. She has been diagnosed with Idiopathic Peripheral Neuropathy. She wore wrist braces. Half her body is numb, she has had foot surgeries. She wears these Darko wound oft loading shoes (that were only $129.99 and impressed us to no end and they were solid shoes, not cushiony things). And they have no idea why this person has this condition.

I asked her "do you know your B-12 Level?" and she said "I have no idea, they never tested me, I'll speak to my doctor about that"

See how you help people Mrs. D.

Everybody at that meeting will soon know their B-12 levels.

Not that this is a done deal, but at least they might be able to rule out B-12 deficiency.

Melody

Melody do you mind telling me what state you live in. I would love to be able to go to a support meeting. I can't find one anywhere around me.

I live in Brooklyn, NY. Where do you live. I'll try and find one that's as close to you as possible.

Melody

It is amazing if her doctor did not give good blood tests. She also needs all of the supplements that our nerves need for health. Coq10 etc. I do hope she can get her B12 test and maybe find a good doctor.

I'm sure she will get tested. She was amazed at what she learned by attending our meeting. Lots of good info at these meetings. We all learn something new all the time and in next month there is a pain management doctor coming to speak at the meeting.

Mel

I live in PA outside Philadelphia. I have not found anything less than an hour from me.:)

You found a meeting an hour away? You are in better shape than I am.

We take two hours to go and two hours to get home (bad traffic sometimes).

But we get there early, have dinner with members and then go up to the meeting. We don't drive. We use the Access a ride.

Do you think you might attend that meeting (that's one hour away)? or will that be impossible?

Melody