In the Er
 

Sitting in the ER now. .Having spasticity for the past 48 hrs, zero strength in my legs..all shaky now..hopefully i get relief..hoping for dx but don't expect one.

Praying for you, Cindy. Please let us know what happens. :hug:

praying for you. hang in there. :hug:

Cindy,

I hope they help w this! Oh my! And get you further along to diagnosing whatever it turns out to be.

Also a wee bit of brunch and maybe some tea?
ANN

Saying some prayers for you Cindy! I hope all goes well today and you get some answers and some relief. Hang in there!:hug: Check back in when you can.

((((Cindy))))..We are all with you. Hoping and praying for the best care for you.:hug:

:hug::hug: let us know what's up, okay? Worried about you...

Aww thanks Debbie,

I'm home now, I have to do 5 more days on iv steroids but they want me to call the ms clinic tomorrow morning asap.. maybe they can get me in sooner.

Thanks everyone for keeping my spirits up;)
You all truly understand what it's like..

Cindy

MHM- this is great news and some progress. 5 days of steroids, Ok, that's doable. Did they due anything for the spasms?

Get some rest,
ANN

I haven't seen any change in the spasticity yet, but i'm SO glad the ER doc was there to witness it..he said that I was having a MS attack and was shocked that i haven't been diagnosed yet and wanted to know what their reluctance to diagnose was? Told him clear MRI 3yrs ago..

Could not have asked for a better or nicer doctor..he contacted my neuro at the ms clinic and was instructed to give me steroids.. so happy I wasn't brushed off.

So glad i went because now it's documented..the neuro has my report so fingers crossed i will be in sooner than later.
Do they typically give steroids for an MS flare? I was surprised that they didn't just give a script and sent me home..or was I really just have a bad relapse? I know I was just wondering is all ..

good to hear you are being treated and (hopefully) on your way to "the answer". Here is to the 'roids breaking those spasms/flare quicker than just gutting it out. My only tip is get a box or 2 or lemon candy to cut the odd taste you may get inyour mouth and lock up all the food :D

Looking at all this from a silver lining viewpoint: if this finally makes them say "You officially have MS" just think... filling out all those pesky doctor office forms will be a lot shorter and simpler! Just 2 little letters vs. a host of symptoms (trying to inject a bit of humor to make you smile)

Steroids for flares are typically given IV. its IV solumedrol and its about 100 times stronger than those little pills they give you. Its meant to BLAST your immune system to tell it to CALM DOWN!

I wish the best for you. :hug:

Cindy, I am so glad the ER doctor saw what you are experiencing and that you are now being treated. Let us know how it goes at the MS clinic. Hang in there!:hug:

:hug:You may not notice a change for a few days yet on the steroids. But I think you made the right move!!!!

Thanks i do too..just resting now great friends and family helps too

Hope you're feeling better real soon, hon...it always helped me.

Funny...you get steroids, I get antibiotics for my spasms...my neuro believes my symptoms are a result of infections. Blech...I'd rather have the 'roids to feel better...

take care, eat a low sodium diet (no more than 2000mg/day) to keep the weight gain low, and rest...oh and drink lots of water.

Definitely don't forget the water on the 'roids. Helps loads. Hope you feel better soon! :hug::hug:

Make sure you get lots of potassium, too. The roids really deplete you of potassium. Google about foods high in potassium. I was surprised that bananas aren't the best. I don't like bananas so that is why I was looking for other things. I would typically eat dried apricots, lots of canteloupe and drink the V8 with Calcium (it has a lot of potassium and calcium).

Oh and you might feel worse before better. The crash after IVSM is kind of bad for some people. I typically would crash for a couple of days and then get progressively better for a couple of weeks.

I'm so glad you went, got a good doctor, got it documented, and got treatment that might help to end this flare. Good for you!

Fresh spinach is high in potassium, and this site has a list of potassium rich foods.

http://potassiumrichfoods.com/potass...ch-foods-list/

I have HypoKalemic Periodic Paralysis so the depletion of potassium makes it so that I can't use the steroids. I had a different page that listed more potassium rich foods but when a virus wiped out my computer I lost the link. This one has a pretty good list.

If you use fresh spinach in a smoothie with pineapple and strawberry with a little honey to sweeten it's great!

I hope you start feeling better soon!

Okay I just read some of the comments on that page and if you read them there is a link to a usda page that has 26 pages of potassium rich food!

Thanks everyone for the great tips!
Right now I just feel pretty weak, spasticity has eased up a bit thankfully.
Trying to eat well, loads of fruit and vegetable, plenty of calcium etc.
Glad I'm able to do my IV treatments at medical facility where I have an appointment and i'm in and out within 1 hr and 1/2.

Just really taking it easy, my leg is still pretty numb and weak as well..hubby and the kids are really spoiling me!

Thanks everyone for the great tips I never would have known what to expect

Cindy:)

Cindy - Glad to hear the spasticity has eased up some. I hope you continue to improve. Thanks for keeping us updated.:hug:

i'm glad you've gotten some actual intervention.
if it's been 3 + yrs since your mri they should order another one.
maybe some active lesions will show up which will help with a dx.

glad you're feeling a bit better.