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-   -   My TOS pain went from 10 to 0! Dr Jordan!!!! (https://www.neurotalk.org/thoracic-outlet-syndrome/166619-tos-pain-10-0-dr-jordan.html)

mitsy 03-15-2012 11:45 PM

My TOS pain went from 10 to 0! Dr Jordan!!!!
 
Hi everyone,
I have been suffering from chronic, painful, violent muscle spasms, that stem from TOS. I have been here a while now and have made a few friends. We have all seen the same Dr.'s in the L.A. area. I was one step away from a surgery and Dr. Sheldon Jordan saved me! I had seen him previously and had Botox injections, but that wore off on me rather quickly. Dr. Jordan has a new machine called Mc Rf. It's radio frequency, that penetrates the skin and stops the underlying muscle spasms! I have not felt this type of relief ever. Feels like my old self again.I was unsure about the procedure and was Dr. shopping. Even Dr. Hugh Gelabert at UCLA said that Dr. Jordan was a God at helping people who are suffering from TOS. I was trying to find a Dr in my network... Insurance has been absolutely horrible to me about this condition. They don't understand it. Please feel free to ask me anything about it or do yourself a favor if you are suffering from TOS. Go see Dr. Jordan!!!
Best, Mitsy

nospam 03-16-2012 12:40 AM

Is this it?

http://www.alphaorthopaedics.com/technology.php
http://relef.info/what-is-relef/

Jomar 03-16-2012 12:50 AM

Oh that's' probably similar.

Is it a souped up ultrasound of some sort?

mitsy 03-16-2012 12:53 AM

yes!!!
 
Quote:

Originally Posted by nospam (Post 861447)



I know the site doesn't give much info, but I promise you it's worth looking into.

Good luck!

mitsy 03-16-2012 12:56 AM

Much more
 
Quote:

Originally Posted by Jo*mar (Post 861449)
Oh that's' probably similar.

Is it a souped up ultrasound of some sort?

Nooo it actually penetrates the skin and gets at those rock hard muscles. I have been in pain for years without relief, until this. I would stick a pen in my neck to relieve the pain. This thing zapped all of them! GONE!!!

nospam 03-16-2012 01:20 AM

How long does Dr. J expect a treatment to last?

boytos 03-16-2012 03:15 AM

Are you serious ?

A thing that stop muscle spams is the graal..

boytos 03-16-2012 10:00 AM

we need more infos, how it work ? Did you ask ?

chroma 03-16-2012 06:42 PM

Thanks for sharing.

How $much?

Any and all details are always appreciated.

jkl626 04-14-2012 01:07 PM

Quote:

Originally Posted by nospam (Post 861447)

Did Mitsy say this was the machine that Dr.Jordan uses? Another Dr. was asking me and I want to make sure I give him the right info. thanks!

Jomar 04-14-2012 01:12 PM

Quote:

Originally Posted by mitsy (Post 861452)
Nooo it actually penetrates the skin and gets at those rock hard muscles. I have been in pain for years without relief, until this. I would stick a pen in my neck to relieve the pain. This thing zapped all of them! GONE!!!


Oh it was the machine linked to in earlier post.

Jomar 04-14-2012 01:15 PM

Quote:

Originally Posted by nospam (Post 861447)


Oh I didn't notice she said YES in the title line..
So this is the machine..

mspennyloafer 04-14-2012 02:56 PM

i wonder how this compares to laser therapy and shockwave

boytos 04-14-2012 04:03 PM

Infos :

http://www.painmed.com/uploads/9/5/7...letal_pain.pdf
http://www.healingwell.com/community...f=16&m=2016115

Anyway, the only way to know is to test.

If there is candidate..

nospam 04-14-2012 05:34 PM

Quote:

Originally Posted by boytos (Post 869917)
Infos :

http://www.painmed.com/uploads/9/5/7...letal_pain.pdf
http://www.healingwell.com/community...f=16&m=2016115

Anyway, the only way to know is to test.

If there is candidate..

I don't think the links you posted are the same thing as mcRF. I think RF ablation is the same or close to rhizotomy.

nukenurse 04-14-2012 06:42 PM

Misty,
any updates? Are you still doing great? --- Hope so. How much did it cost? How many times do you need the treatment?

jkl626 04-15-2012 12:06 AM

Quote:

Originally Posted by nospam (Post 869939)
I don't think the links you posted are the same thing as mcRF. I think RF ablation is the same or close to rhizotomy.

you are right marc it is not the same thing. The RF that Dr. jordan uses does not use a needle. I am waiting for info from Dr. Jordans office and will let everyone know for sure,but it sounds like the website that you found. If I dont hear back from them I will find out more on the 27th when I have my follow up with Dr. J.I think it is fairly new as I couldn't find much published about it. I did find an article that talks about success using it for tendinitis.

boytos 04-15-2012 01:18 AM

Quote:

Originally Posted by nospam (Post 869939)
I don't think the links you posted are the same thing as mcRF. I think RF ablation is the same or close to rhizotomy.

"it can be used as a pulsed radiofrequency to cause a prolonged depression of the nerve function"

nospam 04-15-2012 11:03 AM

Quote:

Originally Posted by boytos (Post 870034)
"it can be used as a pulsed radiofrequency to cause a prolonged depression of the nerve function"

http://www.cdiradiology.com/Default.aspx?tabid=257

Quote:

Radiofrequency Rhizotomy.
Radiofrequency (RF) rhizotomy or neurotomy is a therapeutic procedure designed to decrease and/or eliminate pain symptoms arising from degenerative facet joints within the spine. The procedure involves destroying the nerves that innervate the facet joints with highly localized heat generated with radiofrequency. By destroying these nerves, the communication link that signals pain from the spine to the brain can be broken.

boytos 04-15-2012 12:40 PM

pulsed mean <45° so it does not damage the nerve.

tosser 04-15-2012 06:25 PM

Quote:

Originally Posted by boytos (Post 870164)
pulsed mean <45° so it does not damage the nerve.

I was scheduled to undergo the RF procedure on my neck but did not go through with it yet. The one I was scheduled for burns the nerve and it can grow back, but meantime it is supposed to offer pain relief. It is considered outpatient surgery. The dr. did facet joint injections under ultrasound guidance first, and then I had to call in and report my pain levels and symptoms to him within I believe 3 hours and 5 hours. Based on those finding the RF was scheduled. I can't say the injections were a great relief but the pain dr. I was seeing didn't offer too much else for me (a specialist did the injections), preferring to work on "one area at a time." I am happy it worked for you.

jkl626 04-16-2012 12:43 PM

Quote:

Originally Posted by tosser (Post 870244)
I was scheduled to undergo the RF procedure on my neck but did not go through with it yet. The one I was scheduled for burns the nerve and it can grow back, but meantime it is supposed to offer pain relief. It is considered outpatient surgery. The dr. did facet joint injections under ultrasound guidance first, and then I had to call in and report my pain levels and symptoms to him within I believe 3 hours and 5 hours. Based on those finding the RF was scheduled. I can't say the injections were a great relief but the pain dr. I was seeing didn't offer too much else for me (a specialist did the injections), preferring to work on "one area at a time." I am happy it worked for you.

Hi Tosser, can you post the dr. that does the rf and if you know what kind of machine it is? A website for it. ?It is fairly new and there seem to be different kinds . I am trying to get the info on my end (L.A.) and will post it when i get it. Thanks!

nukenurse 04-16-2012 01:11 PM

http://www.orthohealing.com/2012/04/...n-in-the-knee/

Dr. steven sampson in santa monica does RF and also does neural prolotherapy with dextrose

I saw him and considered prp injections, but didn't do it because of the cost and also thought it might not work. He does a lot of cool stuff and is a great guy.

jkl626 04-16-2012 01:30 PM

Quote:

Originally Posted by TOStrojan (Post 870477)
http://www.orthohealing.com/2012/04/...n-in-the-knee/

Dr. steven sampson in santa monica does RF and also does neural prolotherapy with dextrose

I saw him and considered prp injections, but didn't do it because of the cost and also thought it might not work. He does a lot of cool stuff and is a great guy.

Thanks. I see Dr. Aufiero at Orthohealing who is covered by my insurance as well as Dr. Jordan who is not. This is a different than kind of Radiofrequency that Dr. Jordan uses. His does not use a needle. I will post it as soon as I find out,but I will ask Dr. Aufiero about it. She also suggested Neural Prolotherapy which is not as invasive as reg. PRP if my botox and Trigger pts dont work.

nukenurse 04-16-2012 02:48 PM

I am aware that it is different than what Dr.J uses. As you suggested, there are different RF procedures being done and I thought I would let you and others know about this variation --- for all us TOSers in socal.

I tried neural prolotherapy on myself and may have gotten some relief, but nothing tremendous. That isn't saying much though as I am not trained in the technique and only tried it once. I will give it a shot in the future, but need to order another bag of 5% dextrose. I lost my last bag at work. Injected it superficially with 30g needle and mixed with some DMSO for greater penetration.

jkl626 04-16-2012 04:39 PM

McRf
 
Success! This is the Relef (McRf) Machine that Dr. Jordan uses. It looks like Dr. Williams at Kerlan Jobe uses it too.Dr. J uses it for the muscle spasms that have not responded to Botox or Trigger pt injections. I dont what Dr. W uses it for,but I will check since he is covered by my plan

It does say there can be painful side effects minutes to weeks after.
Studies have showed success on using it for Tendinitis. I dont think there are any studies yet for TOS use. I will find out.

http://www.alphaorthopaedics.com/technology.php

I have more info but cant seem to load the pdfs. Even though I divided it up into smaller groups. Help?

tosser 04-16-2012 06:16 PM

Here is a good link to the procedure-

http://www.advancedorthopain.com/pai...rhizotomy.html

This is the doctor who wants to do my procedure. Not close to you at all.
Dr. Michael Gauthier
Chesapeake Bay Pain Medicine
4813 Shell Rd
Virginia Beach, VA 23455

jkl626 04-16-2012 06:33 PM

Quote:

Originally Posted by tosser (Post 870559)
Here is a good link to the procedure-

http://www.advancedorthopain.com/pai...rhizotomy.html

This is the doctor who wants to do my procedure. Not close to you at all.
Dr. Michael Gauthier
Chesapeake Bay Pain Medicine
4813 Shell Rd
Virginia Beach, VA 23455

Thats ok. All info is good. I think I will start a new Thread for RF and Conservative Treatment. Keep us posted if you decide to do it. You might want to check into the other type McRF I posted in the last postl. They have a link to find Dr's in your area.

nospam 04-16-2012 07:41 PM

Quote:

Originally Posted by jkl626 (Post 870535)
Success! This is the Relef (McRf) Machine that Dr. Jordan uses. It looks like Dr. Williams at Kerlan Jobe uses it too.Dr. J uses it for the muscle spasms that have not responded to Botox or Trigger pt injections. I dont what Dr. W uses it for,but I will check since he is covered by my plan

It does say there can be painful side effects minutes to weeks after.
Studies have showed success on using it for Tendinitis. I dont think there are any studies yet for TOS use. I will find out.

http://www.alphaorthopaedics.com/technology.php

I have more info but cant seem to load the pdfs. Even though I divided it up into smaller groups. Help?

Are you scheduled to have it done? Are you still seeing Dr. Williams, or just Dr. Jordan now?

jkl626 04-16-2012 08:02 PM

Quote:

Originally Posted by nospam (Post 870589)
Are you scheduled to have it done? Are you still seeing Dr. Williams, or just Dr. Jordan now?

Hi Marc,

Not yet just researching it, but am planning to do it if I dont get results.I just had my Trigger Pt. Injections last Week. But my Traps and Arm(with use) still hurt. I am still seeing Dr. J and dont have plans to go back to Dr. W. But his name showed up on the docs I couldnt upload even though they came from dr. J's office, so if he does it I may go back to him to save the money since it is not invasive.

My other Dr. is Dr. Aufiero at Orthohealing who I like very much and is on my plan. I will probably have her do my second round of Trigger pts if I need them I will ask her if they have that machine too. i see them both net week. They are Cutting Edge and they have the RF Ablation one. (See posts below)

Also I found that Relafen is working much better for the muscle pain then Mobic or Flexeril. Do you know if there is a nerve med that you can take as needed?

Are you still on schedule with your Surgery?

nospam 04-16-2012 08:13 PM

Quote:

Originally Posted by jkl626 (Post 870594)
Also I found that Relafen is working much better for the muscle pain then Mobic or Flexeril. Do you know if there is a nerve med that you can take as needed?

Are you still on schedule with your Surgery?

I believe all of the nerve meds have to be taken regularly to get into your system and cross the blood/brain barrier, not as needed. Talk to your doc about it.

I'm still on schedule for 4/19!

jkl626 04-17-2012 04:22 PM

Study on the Pulsed RadioFrequency
 
http://www.ncbi.nlm.nih.gov/pmc/arti...pain-25-52.pdf

jkl626 04-17-2012 04:23 PM

Quote:

Originally Posted by nospam (Post 870600)
I believe all of the nerve meds have to be taken regularly to get into your system and cross the blood/brain barrier, not as needed. Talk to your doc about it.

I'm still on schedule for 4/19!

Good Luck to you! Keep us posted.

boytos 07-12-2012 05:18 AM

any news ?

i got :

http://www.panmedic.com.my/sonotron/...-Syndromes.pdf
http://koreamed.org/SearchBasic.php?...h+Pain+Med%22+[JTI]++AND+2012+[DPY]+AND+Apr+[DPM]


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