Copaxone every other day?
 

Back a year or two ago there was talk about a study or studies either being done or having been done concerning taking Copaxone on a less than daily basis. Some were saying every other day, some three or four times a week, etc.

Has anyone heard any updates on that? I've only found reports from people who had put themselves on a schedule without input from their neurologists.

I've been on a "break" from Copaxone for a few months. I was having severe anxiety symptoms which coincidentally (?) went away when I stopped taking the shots for a while. I've tried twice to start up again. I keep wondering if gradually re-introducing it would make a difference, or if I'm daydreaming.

Hi B2Y

I really don't know - is some better than none??? Whichever way it goes, I hope you find something that helps you.

Lyn

I did it every other day for about a month, and then realized...I just dont want to do this anymore, and laid down my needles. I felt dramatically better. The MD was mad, and has been trying hard to get me to go back on the meds, but....I feel so much better off them...im not going back.

I hope you feel better. :hug:

I really wish these M.D.'s would realize the same med is not going to work the same in everyone. Just because it made miraculous improvements in one person doesn't mean it will in all of us. If that were the case why is there more than one DMD on the market? If you feel better without it I believe your body is trying to tell you something.

I've started listening to my own body and feel tons better for it. Makes the doctor mad but he's not the one with MS! :p

I have been on C eod for quite some time now. thankfully stable.

Maybe I'll call Shared Solutions and see what they say about every other day.

They'll tell you to take it every day. It's more profitable for them if you use it all up each month.

Good point.

i wonder if these reactions are actually a form of sensitivity or allergy.
you can be on a med and tolerate it fine, then develop an allergy, even tho it's more common for the allergy to happen right away. ummmm?

Yes I wasn't allergic to anything until MS, now I've developed allergies to some ABs....so it can happen.. Thanks.:hug:

I've been doing every other day, or less, for several years now. It had just gotten too expensive and also I was running out of body area that wasn't covered in huge whelps from the shots. I did have one exacerbation when I went too long without the C where I ended up back in the wheelchair, but other than that I've been about the same. It's against my dr's advice and of course the drug co and provider will not tell you to take less! But as long as I don't see an increase in symptoms, I plan to continue.

Teva is actually coming out, hopefully this year, with a Copaxone shot that has to be taken only three times a week rather than every day.

I didn't take shots for three years, wasn't a good thing. I'm back to everyday now, however, I do miss some days. I have a total of about two months from the last year I missed. I'm trying to do better this year.

If I have another relapse within six months my neuro may change my med.
The neuro I had for years died, so I am now with the neuro I stopped seeing after two visits...oh well, as long as he agrees with me, we'll get along just fine. lol