After your permanent is placed: how often do you keep stim switched on?
 

Because of one thing and another I've not had my stim on high at all. Just low enough to cause that massaging thurm in my leg. If I turn it up a lot higher it causes my back to spasm as the sensation starts at my hip down.

I actually don't want to lose the sensation from my hip as it does feel like, though I'm obviously not having it high enough to do much about the pain.

To be honest, I'm quite ok with this as I know I won't get the coverage for me to come off meds or not to use crutches .. Particularly as I have drop foot in my left foot.

Do you all just turn the stim on and keep it at one sensation or play about with the strengths?

24/7 since implant
 

Hi Saffy- It runs continuously for me and I manipulate settings according to need.

Prayers 4 u,
Mark56:):hug:

yep
 

Me too. I usually just keep it on all the time. Sometimes I turn it off for a bit while I'm charging, to save time....but invariably the burning pain starts setting in within 15-20 minutes. There are times when the stimulation gets downright irritating, so i turn it way down. But for the most part I keep mine running at about 140.

I keep mine on 24/7....if I turn off burning starts within 15 minutes..the stim feeling is a dream come true.

And That's the Way it Is
 

This is Walter Cronkite, good night!

Ha, Ha, the old CBS evening news on the telly when I was youthful [long long ago] Walter would end every show the same exact way.

If I turn the device way down, the roaring burning pain it does address is RIGHT THERE. So, I run it 24/7..yup.

Happy Easter,
Mark56:hug:

I turn both of mine off to drive and sometimes at night. It is more intense when I lay down so I have special programs for bedtime, but by the wee hours it gets more intense so I end up shutting it off. By the time I get up in the morning, I need it back on. I have to switch it around, turning it higher at times...depends on my pain that day.

Saffy - I have this pressure/pain in the lower left side of my back when I turn up my thoracic stim. Because of that I was not getting the coverage I needed from my hips to my feet. My rep reprogrammed the device to a lower frequency and it helps much more. I still cannot turn it up very high, but I get decent coverage so it does help.

Hello!
 

Glad you found us 'Buzzer-Buddies' :p
I posted on your thread over on the PN forum. This is such a wonderful place for support and understanding. We're all in the same boat and it's so nice to be able to have a place like this to come to.

How long have you had your unit? I'm so glad you're getting such good relief. Yes, that pleasant 'buzzing' is a soothing relief from the horrid burn.

Rae
:grouphug:

I Keep Mine On
 

I keep it on nearly 24/7 at about 440. I have the Medtronics device if that matters. I'm OT 18 days post op and it only mildly addresses the leg pain, the back pain hasn't been getting great coverage yet. When I lay or sit certain ways, I get no coverage at all, which is so annoying! I'm told once my leads settle they will be able to program it for different positions.

I've only turned off once and my legs still felt like the stimulation was there initially. Almost like getting off of a cruise boat and still feeling like your cruising. :o

Tara

Always on
 

Unless I'm charging. Turn it up and down at times

Am I odd in that since this new op my battery site is sore if I press even gently .. And the leads hurt too.

Battery Site
 

No, I still can't press my site where the battery back is either. Makes me sick it hurts so bad. Everyone talks about feeling there leads, where are they? The spine area I suppose. I don't feel that at all.

How long ago was you surgery?

...Tara

Leads
 

Tara, people can feel my "wiring" but my battery is in my side and is tunneled to my back. On my low bacl I can feel where they meet my leads and go into my spine. I feel them more when I drop weight. My battery site can be sore at times mainly when I wear tighter jeans and it gets rubbed over more,
I think with my next battery change i will become a "butt buzzer" as my doc no longer places batteries in the side due to increased risk of infection (turning during surgery)
:hug:z:hug:z:hug:z