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-   -   Statin as a treatment for TOS (https://www.neurotalk.org/thoracic-outlet-syndrome/168355-statin-treatment-tos.html)

boytos 04-18-2012 07:16 AM

Statin as a treatment for TOS
 
As you know, epo can "cure" tos 1 time out of two by inducing neural differentiation.

http://www.doctorellis.com/Lecture.html

Statin can induce neural differentiation too, mainly Atorvastatin.

Anyone has tried ?

boytos 04-18-2012 08:49 AM

By the way, it would be cool to make a sticky post about dr ellis research.

jkl626 04-18-2012 11:46 AM

Dr.E
 
Quote:

Originally Posted by boytos (Post 871188)
By the way, it would be cool to make a sticky post about dr ellis research.

Interesting Article. Dr. Ellis seems to be the only dr. that still uses Heparin. Dr. Jordan says it is outdated and there are many more studies on the effectiveness of botox,although having had the botox myself it had a similar effect as I am still having pain in certain muscles and my arm hurts with any kind of use.

I am a little concerned about experimenting on patients with EPO (that has a block box warning, I had a bad experience with an antibiotic-Levaquin -which now has a black box warning that gave me tendinitis and who knows if it has something to do with my TOS) with so little knowledge about it. I am curious about what he has found since 2009 since he wrote the article. Things are moving very quickly with new treatments.

Even so he seems very knowlegable eeven though a bit out of the main stream.I have been thinking of going to n.ca at some pt to have a consult with him and dr. edgelow. Has anyone here seen Dr. Ellis? I know he also wrote an artcle on Scalenctomy only which I am interested in pursuing.

boytos 04-18-2012 11:55 AM

botox is very limited.

Epo have cancer concern. Antibiotics-induced tendonitis have nothing to do with epo.

Jomar 04-18-2012 12:14 PM

Dr. Ellis's website link is listed in the 1st post of the sticky thread-
Our Useful Links - Websites, Articles & Polls - under the TOS info websites:

post #1 useful sticky thread -
http://neurotalk.psychcentral.com/post388-1.html

nukenurse 04-18-2012 12:35 PM

Tried them both.
EPO helped about 10% (maybe). You have to inject multiple spots once a week. 1,000 units per spot -- no more than 2000 units per week (just to be safe). EPO is very safe at these doses especially when injected subQ or IM --- leads to a more localized effect. I don't do it anymore at the moment because EPO is expensive and injecting once/week can be painful.

Used statins because they have anti-inflammatory properties and there are some studies showing they might be useful for neuroinflammation. They didn't do anything for my TOS.

I have tried MANY things that may be considered "unconventional". Many things didn't work, but some have and have been very helpful for me.

jkl626 04-18-2012 12:40 PM

Quote:

Originally Posted by TOStrojan (Post 871233)
Tried them both.
EPO helped about 10% (maybe). You have to inject multiple spots once a week. 1,000 units per spot -- no more than 2000 units per week (just to be safe). EPO is very safe at these doses especially when injected subQ or IM --- leads to a more localized effect. I don't do it anymore at the moment because EPO is expensive and injecting once/week can be painful.

Used statins because they have anti-inflammatory properties and there are some studies showing they might be useful for neuroinflammation. They didn't do anything for my TOS.

I have tried MANY things that may be considered "unconventional". Many things didn't work, but some have and have been very helpful for me.

Hi, thats good to hear .Was that with dr. Sampson? What has helped you the most?

boytos 04-18-2012 01:05 PM

Quote:

Originally Posted by TOStrojan (Post 871233)
Tried them both.
EPO helped about 10% (maybe). You have to inject multiple spots once a week. 1,000 units per spot -- no more than 2000 units per week (just to be safe). EPO is very safe at these doses especially when injected subQ or IM --- leads to a more localized effect. I don't do it anymore at the moment because EPO is expensive and injecting once/week can be painful.

Used statins because they have anti-inflammatory properties and there are some studies showing they might be useful for neuroinflammation. They didn't do anything for my TOS.

I have tried MANY things that may be considered "unconventional". Many things didn't work, but some have and have been very helpful for me.

What statin ?

Jomar 04-18-2012 02:54 PM

I can say Lipitor multiplied my symptoms & muscle pain.
Felt much better after stopping it.
Haven't tried any of the others for the high cholesterol.
And probably won't unless dr actually insists on it..:( hopefully they won't.

[The statin labels will also now reflect reports of certain cognitive effects such as memory loss and confusion experienced by some patients taking the drugs, the agency said. It said those reports generally have not been serious and the symptoms were reversed by stopping use of the statin.]
I had this side effect really bad for awhile.
http://news.yahoo.com/fda-adds-diabe...185559690.html

mspennyloafer 04-18-2012 04:21 PM

i hate to sound preachy but seriously guys statins are TERRIBLE DRUGS. if you have inflammation you need to figure out why, dont just take a drug to lower your cholesterol. (good) cholesterol is good for you and makes sex hormones which will help with pain

Jomar 04-18-2012 04:55 PM

I agree, there are threads about statins on our Medications forum.

mspennyloafer 04-19-2012 08:15 AM

yeah like tostrojan said i think neuroinflammation would be different than regular inflammation, unless we're all diabetics with atherosclerosis.

( even then i would not take a statin )


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