Quick help please
 

Can you show me the threads on the bad antibiotics, I can't find it. I need to have information written down in case my side pain is Diverticulitus. It happened three years ago and I was given Leviquin. I think that was possibly the cause of my Autonomic Neuropathy. My POTS began after that.:(

I know about Levaquin, Floraquinones, no macobid...I stay away from ALL mycins and micins like Gentamycin. Ototoxic. Long story there....

I need to write this info all down. The only pain med I can take is Toradol. That is an NSAID. I can take nothing else. When I have had surgeries in the past I took nothing. It is horrible.

I appreciate your help for all info on neurotoxic meds.

Hi Sallysblooms,
hope this is some help from PN tips and resources
MEDICATIONS~~ That May Cause Peripheral Neuropathy

Flagyl and Tindamax... are typically used for diverticulitis.

So are Levaquin and Cipro.

This link is still evolving:
http://neurotalk.psychcentral.com/thread122889.html

It is difficult to find complete lists. I've searched for many hours over the years. They change and evolve.

Thanks, all four are bad...What do I do with the next Diverticulitis attack? So far, I am ok. What a mess.

I wrote down some of the meds listed. I couldn't find a lot on antibiotics. Did I miss it? I looked on all of the pages.

When I was young, a child, I remember being so happy that an antibiotic would help infections of the ear, throat, etc. But now, I just fear them.

Now my pain is back. I sure hope I do not spend the night in the ER. Hubby will be home soon at least.

Is Keflex OK? I have to get some ideas of "better" ones for Diverticuitus. I don't think Durifef is used for that. I can take Durifef better than others.

There are times when one has to take something they don't want to take, if the condition is serious and warrants it.

Here is a link with suggestions:
http://www.globalrph.com/antibiotic/diverticulitis.htm

Thanks, bad list there... I hate all of those,but thank you. Gentamycin just should not be used, Levaquin either. Sure wish better meds were possible. Less toxic. Just a DREAM.

Yes, sometimes there is no choice. but Levaquin sure messed me up. You pay forever.

I feel better so I hope tonight will be ok. Hubby came home and we didn't need to go to the ER. Thanks for the help. I need to get a good list finished.

This attack is following your use of Duricef for that UTI?

I'd consider a good probiotic or Kefir, to enhance rebuilding the flora in your GI tract. Antibiotics kill off good bacteria in the bowel.

Antibiotics work on bacteria/infection by disrupting cell walls and the DNA of the organism. So many will affect the mitochondria of the patient as well, because mitochondria are relatives of bacteria.

Not Duricef. Three years ago I had Diverticulitis and they gave me Levaquin. A few months later I had Autonomic neuropathy and PN.

I take an excellent probiotics every other night.

My PN and Autonomic Neuropathy are improving so much, a very slow process and lots of supplements, low carbs and no bad sugar.

Wish I hadn't used Levaquin but i was so I'll, I did no research first.

Has anyone been able to make the direct correlation between your use of Levaquin and your PN?

I just did a lot of reading about it. Lots of problems with many antibiotics and that one is one that a lot of people have problems with, just my feeling.

We have had some posters here over the years. They typically do not stay long. But they have shared links to other places on the net like this:
http://fqvictims.org/fqvictims/index.htm

This is Homer's story from here:
http://neurotalk.psychcentral.com/sh...luoroquinolone

This one of Wing42, involves Cipro:
http://neurotalk.psychcentral.com/sh...luoroquinolone

http://neurotalk.psychcentral.com/sh...luoroquinolone

http://neurotalk.psychcentral.com/post181419-9.html

http://neurotalk.psychcentral.com/sh...luoroquinolone

Here is a medical article I found:

http://www.medlink.com/medlinkcontent.asp

I found this part of the study interesting:

Onset may be insidious, subacute, or acute, and symptoms typically progress if the antibiotic is continued. In most cases, symptoms improve or resolve after the drug is discontinued. This, as well as the temporal correlation of symptom onset and the use of the medication, serves to strengthen the causal association. In some cases, as with isoniazid, recovery can be slow and incomplete, especially after prolonged use.

Isoniazid causes a "neuropathy" due to the fact it depletes B6.

When B6 is given with it (which it almost always is), this neuropathy does not manifest.
http://en.wikipedia.org/wiki/Pyridoxine

Interesting. I was on isoniazid as a child for a few years because my mom had TB when she was young, and she could never be convinced that she wasn't contagious anymore. Interestingly she took B-6 with it, but I didn't.

Found this and thought it was intereseting.


http://www.livestrong.com/article/43...sis-treatment/

I was diagnosed with Ileocecal TB in 2000 or 2001. I was on treatment supposedly for 6 months but because of nausea and vomitting, my dosage was adjusted up and down depending on my tolerance. So, the whole course was extended to 9 months.

I forgot the name of the antibiotic I was on.

Assuming the TB medication is the cause of my PN, does it take 10 years to show the symptoms of the damage?

I cannot see the link.

When you go to that link, you have to put in the search box in the upper left, "fluoroquinolones" . The first article that comes up is the one listing the drugs. That site has a strict copyright rule so we cannot copy that information here.

Some websites do not give individual addresses to their sub categories. This is one of those. The FDA.gov is another.

It would depend on what you took. Some of the drugs are harsher than others.
http://en.wikipedia.org/wiki/Rifampicin
This drug is often combined with isoniazid.

Oh my, I think thisis the medicine I took. I just dont remember if I took it along with isoniazid.

In that case Mrs.D, does it take this long to show its effects on my nerves?

What are the supplements that directly address the damage of antibiotics? Is it R-Lipoic, Acetyl L-Carnitine and CoQ10? I hope that if it was the TB medication, I hope I can still reverse some damage. I really hope so.....

Thank you.

What may happen is that the damage was done then, but the body can compensate for a while, until another thing comes along to do some damage. It might take a few hits to accumulate damage.
It used to be thought that PN was an old person's disease, meaning it came with age. Some doctors still treat it this way. Age means decline, so some internal decline may be there --mitochondrial aging-- which when mixed with early damage, may result in earlier symptoms. It is just really a complex thing PN.. There is no one answer for everyone.

PN appears to be an environmental type problem for many.

Some of us have metabolic triggers, but for others it is toxins, drugs, solvents, viruses, bacteria, vaccines, certain foods, etc. Things we come in contact with.

The supplements for mitochondrial support are:
Lipoic acid
acetyl carnitine
CoQ-10
Some mito supplements have biotin in them, too.

Here is one site with suggestions:
http://www.lef.org/magazine/mag2010/...-Damage_01.htm

Dear Mrs.D,

I am currently taking all 3 supplements for mito support. I wonder if I need to take R-Lipoic (100mg) and CoQ10 (100mg) 2x a day instead of 1x. Due to my shortness of breath issue, I take the CoQ10, R-Lipoic and SAM-e one after the other. But with this new information about TB medication, I am considering of doubling the dosage for the mito support. What do you think Mrs.D?

It says in your link that molecular decay and membrane injury begin to appear and can be detected nearly a decade before the onset of permanent damage to the DNA. Well, I want to interprete this in my favor to mean that my nerves can still be saved. I hope so....

From the time I had the whole course of TB treatment, the only medicines I remember taking on a regular "as needed basis" are meclizine, glucosamine, occasional Bactrim, 2- short courses of Prednisone, and the the only new thing I did for the past 3 consecutive years is the flu vaccine. At this point, there is no way of knowing if it was indeed the TB and flu vaccine that caused my PN. But, for my peace of mind, I still want to ask this question : Is there a test to confirm the suspicion on antibiotic induced PN?

Thank you Mrs.D.

What type of CoQ-10 did you get? Is it the new one--water soluble type? You need less of the water soluble type since it is better absorbed.

Are you taking Acetyl Carnitine too?

I'd keep the lipoic at 100mg a day, but you can increase the CoQ-10 if you decide to. CoQ-10 is a slow onset supplement. So give it time to work.

There is not test I am aware of yet, for drug induced damage to mitochondria.

There is a test for people with genetic mitochondrial issues.
But it is not commonly done for other reasons.
http://www.mitoaction.org/testing-fo...ease-disorders

My CoQ10 is 100mg- a soft gel in form. I bought it at Sams. I think this is the old version. I started it early March. I should now start taking the COQ10 together with the other supplements which I take 2x a day:

Acetyl L Carnitine 250mg
Benfotiamine 150mg
Omega 3,6,9

Okay, I will take the R Lipoic just once a day at 100mg.


Yes, I am taking the Acetyl L-Carnitine 2X a day at 250mg each. I am also taking Benfotiamine 2x a day at 150mg each.


Thank you so much.

That older version of CoQ-10.... if it lists oils as the carrier, you can take up to 300mg a day.

The water soluble ones, say so, and they need less, like 100mg a day.

Repairing mito functions or damage in general takes time. It is not a speedy result. 2-3 months average.

Going back to the antibiotics, is there ANY of them to have in case I need them in the future? I know they each treat difference bacteria of course. I am at a loss. I would love to have a little list of less toxic ones.

i use biaxin and zithromax for respiratory infection, without any apparant ill effects.

I think the CoQ10 I have has oil as the carrier. I can then take 3x a day.

I am now a little over 3 months taking Coq10 and 2 months for Acetyl L Carnitine and R-Lipoic. I dont mind waiting.....

Again, thank you.:hug:

Thanks for your ideas. Echoes. I cannot take Mycins.... Shoot. Thdy are both mycins.

I went to see the doctor today about the pain in my upper left side. I was hoping it would not be Diverticulitis again. It is in a higher area. He cannot know for sure. If I keep having problems we will get a scan. It comes and goes and we are hoping it will stop. Last time it was abrupt and severe. That is when I took Leviquin....

We talked a lot about meds for it and they are all bad as I knew. He is going to do some looking and hopefully find an option. Probably not. :(

I hope this goes away. Right now it is not bad, just here and then gone.