NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   The Stumble Inn (https://www.neurotalk.org/the-stumble-inn/)
-   -   Please allow me to re-introduce myself! (https://www.neurotalk.org/the-stumble-inn/169693-please-allow-re-introduce.html)

Sparky10 05-13-2012 12:58 PM

Please allow me to re-introduce myself!
 
Hello Everyone! Some of you know me but I haven't been an active member here for many years. A lot has happened to my world in the last few days. Hope I'm welcome here! (if I get no responses I'll know the answer:winky:) I'm going through one of the most difficult times I've ever experienced, enough to aggravate my SPMS which has been stable for 12 years.

Last week I was forced to resign from a position I'd held for 8 years. My access was removed with no notice. I had been expecting this to happen for about a year but I remained because I loved my job.

The company continues to erroneously and publicly portray my presence. I have not entered the premises since late last week. There are problems being created by the people who took over the company and they want their, um, clients to think I'm causing the trouble.

Other than this current situation, I'm in good shape for having been diagnosed with MS in '00. I'm 52 y/o and quite active. Ampyra helps my walking. I get really weak if I do too much (of anything).

I've never dealt with this kind of unhappiness and stress before. I'm having trouble sleeping because I can't make my brain turn off the horribleness of it all, and frequently feel nauseous. Suggestions to get through this are greatly appreciated!

Dejibo 05-13-2012 01:25 PM

I am so sorry that you were treated so unfairly. I know you dedicated many years of your life, not to mention hours of your day unflinchingly to a place that I opened the door and ran from. I had some awful conversations with several in the higher arena and I chose to come here and be with folks that listened, cared, and were actually in my corner. It was a horribly hard choice to make, but one I have never regretted.

I hope you find the same warm welcome here that I found when I jumped the fence and asked for sanctuary. Altho I may not have the exact ideas on some subjects that come up, I am always treated fairly, respected, and heard even if I am on the other side of the fence.

Welcome from me. :hug:

SallyC 05-13-2012 01:35 PM

Sparkers!!! Of course you are welcome here!!!

I am so so sorry for your pain of having to leave a place you love. Especially since you were not even given a good reason. Can you sue them? :mad:

We can be a bit slow but sure here, so don't think just because you don't get a bunch of fast reponses, that we don't want you.

This is the only place I have always felt welcomed, even when I'm bad..:icon_twisted:, which is not very often, of course:rolleyes::D

Please stay and enjoy and fogeddabout "those who have betrayed you".:hug::hug:

Blessings2You 05-13-2012 01:35 PM

Sparky! Yes, I remember you! Ahhh, I'm so sorry to hear something crummy has happened to you. Wish I had an easy answer for dealing with stuff. Sometimes all I am able to do is lean on the Lord and wait for it to be over. You don't want to hear any platitudes, I know. But you're in a good place here, surrounded by people who care. And it WILL get better. It won't rain always.

Sparky10 05-13-2012 02:28 PM

Thank you so much, Dejibo, Sally, and B2Y! It is getting easier to stomach every day. I'm not one to agonize over "Why?" about much, and I already know the answer to that question in this situation. Maybe they've done me a favor. I'll dig for that bright side!

Sally, the company has big lawyers and I have empty pockets. I've requested numerous times that they remove their signage of my presence but get zero response. Internally the company claims to promote communication to all, but in reality it is only communication between a select group of friends. I use the term "friends" loosely because the newest people have no clue what they've stepped into. They don't know any of the company's internal history.

It makes me sad to watch a once magnificent (at least on the outside) business behave this way, causing difficulty for many clients. They have fired or chased away everyone who had been there longer than myself, except one person. Creating a New World Order, I suppose.



CarolM 05-13-2012 02:36 PM

Hey Sparky,

I think we're a pretty tolerant and understanding bunch over here. Of course you're welcome!

You're going through the grieving process right now. Throw a few pillows, rage and complain all you want - we're here for you.

C

nemsmom 05-13-2012 02:51 PM

Sparky,

I'm sorry, I don't have any words of wisdom for you.

Just a welcome back, an I'm sorry for what you're going through and a :hug:

I hope things start getting easier for you soon!

KarenR* 05-13-2012 03:25 PM

Content removed at request of KarenR

Sparky10 05-13-2012 07:06 PM

CarolM and nemsmom, thank you for the kind words! A couple days before this happened I told me BF to burn an old wooden plant stand. "Burn it, just burn it; it's falling apart!" I said. Then had tears in my eyes, realizing I was talking about the company I worked for. I knew everything was coming to a head. :(

Karenr, my department may self-destruct but I believe the company as a whole is here to stay. They provide a wonderful product! Unhappy people behind the scenes will keep quietly doing their job.

misshayleesmom 05-13-2012 07:31 PM

Sparky!

Hi I remember you!

So sorry you are going through this difficult time.. all I can offer is a kind word..hugs and know we're here for you.

Cindy

Mariel 05-13-2012 08:48 PM

Hi Sparky, I've been here intermittently, and I don't remember you, but glad to see you. I too have bad memories, some of them of work, but more of them related to family and university years. I pray God often to "heal my memories". Some days, they go away. Some days they come back suddenly; I'll remember a situation and see it clearly in my mind, and I may start to cry. And so much of these situations were directly related to my physical limitations--probably as in your case? (I don't know what your job was). Because I looked normal, apart from a slightly meandering walk, sympathy was not often forthcoming. I myself did not know what was wrong, and tended to believe reports that I needed mental readjustment. I tried hard to do that mental readjustment, and most of the trying was wasted, but I must say I did learn some things about myself and life through the "wasted" effort.
Hoping the bad memories go away soon and stay away. Yes you are grieving a big loss.
I hope BF is helpful in these times. My husband was so helpful when I was down, just by being there and on my side.

Beckyr 05-13-2012 10:20 PM

I too have been banished from that same company...
 
I know exactly how you feel....I have my moments where I say, chuck it all, there are also moments I weep for the reasons why, and think I might have done something wrong to deserve this.

I was here a long time ago, but I doubt I am remembered. Just wanted to chime in and say you are loved....(I know you you know this, coming from me, but it bears saying again)

;)

ewizabeth 05-13-2012 11:46 PM

Hey Sparky! Remember when you met me and my DH for that dinner in Chicago? Somebody else was there but I'm drawing a blank on that. Of course you are welcome here! I still go there once in awhile for their arcade but rarely anymore. I'm sorry they treated you unfairly. You did a lot of work for maintaining that website. :hug:

Sparky10 05-14-2012 04:07 AM

Misshayleesmom and Mariel, thank you for your kind words! I'm afraid my BF has the "get over it" attitude.

Wiz, look above your post! That was Beckyr you met! Remember that huge spotted eel?! I might even have those pics somewhere.

And Becky, my dear friend of 10 years...:)!

Dejibo 05-14-2012 08:14 AM

I think I left the area just after the mass exodus about moderating posts. Many folks were fired up and didnt want to have to wait for someone to read, approve of, then finally post their posting. It only took a few minutes, but it felt like censorship and it upset many. It was stated very clearly to me that its not what the site wanted, but was a demand of the MS society that it be done that way. I contacted the MS society and on several levels was told NO WAY was that their rule. The individual sites that represent them can set their own rules. That was just ONE of the many layers of half truths, and untrue things I found going on there.

I adored some of the people there. it was a wrench to let go and walk out that door. I was trying to tell some that I too have MS and its hard for me to sit at my computer for 6 hours to moderate postings. If I can sit for 6 hours, why wouldnt I get a job? it was a hard thing for me in the early days, but I was so information hungry. I read everything I could get my hands on. I worked hard to educate myself about this disease. From what the experts said to what the patients with the disease said.

I have found this place to be more inclusive, and more compassionate and anyone from any forum can jump in anytime and just hug you, or wipe your tears, or calm your fears, or share their experiences, or simply say how happy they are to see you. Even posts such as "where are you?!" or "what have you wiggled in public today?" Funny things to make us laugh and draw us together. There are no lines drawn in the sand to say "you cant speak directly to another patient, you must say it thru me." (that was another site). I tried on many MS websites for size, and this one suits me just fine.

After leaving my post, I was shell shocked, over worked, over tired, overwhelmed and it was an adjustment to not sit at the computer for hours and hours and hours. I was just able to concentrate on MY needs, and being helpful and friendly without the iron glove on. I hope you find the peace, and the rest that I have found in this place. it truly has been a healing well for me to sit and think, or drink, or whine, or cry on MY schedule. its come to be a home for me. I hope it can be the same for you.

Kitty 05-14-2012 08:17 AM

Welcome to NeuroTalk, Sparky! We welcome everyone here and hope you continue to come to this website and share your experience with us. We're a really nice group. :)

SallyC 05-14-2012 10:42 AM

Sparky, your plight brings back a sad memory for me, of a similar situation I was in with another Company. I was not let go completely, but was asked to step down and take a demotion. I left, hurt, never to return.

So I know what betrayal and petty jealousies can do to a person and a Company.:rolleyes::(:mad:

Please feel better and thanks for joining our happy sick little group.:D

tkrik 05-14-2012 11:18 AM

Hi Sparky! Welcome to NT!

I remember you. I'm so sorry about how you were treated. :mad::( Although, when many of us left the company, we left for a different reason. I'm glad you found us over here and look forward to reading your posts and input.

Debbie D 05-14-2012 02:38 PM

Sparky,
I remember you also...been awhile!!

This place is so great for us...info, hugs, laughs, tears, whine, cheese...the whole works. Occasionally we get a tiny little slap on the wrist when we get too political, but it's to keep us all close knit, IMHO.
That other world I used to inhabit? I got tired of the lock-step attitude...I began to worry about my posts all the time. And being pre-approved before being posted got under my skin big time.

Keep us up to date on how you're doing...:hug:

Jules A 05-14-2012 03:23 PM

As has been mentioned in the past perhaps it is prudent to remain focused on this community so we can preserve our long standing atmosphere of friendly support and respect for diversity.

Sparky10 05-14-2012 03:46 PM

I agree, Jules!

Jules A 05-14-2012 03:56 PM

Quote:

Originally Posted by Sparky10 (Post 879282)
I agree, Jules!

It is really nice here, kind of laid back but supportive and tolerant of different experiences and points of view. :)

Snoopy 05-14-2012 04:09 PM

Quote:

Originally Posted by Sparky10 (Post 878995)
Hope I'm welcome here!

Hi Sparky,

As you should know, everyone is welcome at NeuroTalk ;)

Sometimes the best way to deal with those things causing stress is to step back and put some distance between yourself and whatever is causing the stress.

You can sometimes get a better perspective and calm when stepping away from the source. Finding things that occupy your mind and body helps.

Sparky10 05-14-2012 04:49 PM

Good ideas, Snoopy! Wish I could distance myself from my brain at times. It's the worst when trying to sleep. I try to sing songs in my head but they turn into snide memos, hypocritical phone calls, all the things I wish I'd done differently, etc.

Woke up at 3am this morning and the only thing that helped me get back to sleep was my kitty, curling up under the covers and purring in my ear. Very calming.

Sparky10 05-14-2012 04:53 PM

Kitty and tkrik, thank you for the welcomes!

Debbie, it is getting easier every day. :)

Snoopy 05-14-2012 04:58 PM

Quote:

Originally Posted by Sparky10 (Post 879306)
Wish I could distance myself from my brain at times. It's the worst when trying to sleep.

There are times, awake or trying to sleep when my thoughts go places I would rather not go. For my own sanity I use Klonopin (a Benzo) at those times.

KarenN 05-14-2012 06:59 PM

I remember you Sparky! Glad to see you hear, I think you'll find quite a few old friends!:grouphug:

Twinkletoes 05-14-2012 08:16 PM

Hiya Sparky! I remember your pickled brain avatar, lol!

Welcome here! Make yerself comfy. I hope you remembered to close the door!

:)

Sparky10 05-14-2012 09:05 PM

Thanks, KarenN! And Twink, I was so happy to see my bubbling brain again! :D

Snoopy, I'm about to take a Valerian Root capsule and go to bed. :Yawn:

Beckyr 05-15-2012 09:55 AM

I hope the Valarerian Root worked, hon! Love you, my friend!!

:hug:

Grammie 2 3 05-15-2012 12:08 PM

Sparky, so sorry this has happened to you :(
When life gives you lemons make lemonade-since my husband threw me away a little over a year ago I've been making lemonade-it's getting better :)

Hang tough
Linda (incolorado)

Beckyr 05-15-2012 02:37 PM

I apologize for talking about other forums...I was angry, and hurt, it won't happen again.

Becca44 05-15-2012 10:29 PM

Hi Sparky!
 
Wow! Nice to 'see' you! :)
I can ONLY imagine what went down ...but just for a second: you've got friends to connect and reconnect with, here; that's a better thing to focus on. Walk away from the drama wherever it was, take the positive with you and leave the rest behind for the others to gnaw on if that's how they want to spend their time (and you know some of them do, poor souls). I'm just tickled you're here! You're a delight in my book, always have been.

Becca44 - friend from way back. :O)

Tawanda 05-15-2012 10:44 PM

What goes around, comes around!!!
 
M.S. is such an isoloating disease. Being kicked when your already down is a horrible thing. I know as I recently suffered a similar fate :mad:!

Dejibo 05-16-2012 07:30 AM

I hope this thread has shown both of you that you are welcome. :grouphug:

Sparky10 05-16-2012 08:02 AM

Becca! :Wave-Hello: You and your blue avatar! Good to see you both.

Tawanda, I just know you were able to bounce back from your experience and regain your good standing. :)

It does, Dejibo!

Tawanda 05-16-2012 01:10 PM

Quote:

Originally Posted by Sparky10 (Post 879791)

Tawanda, I just know you were able to bounce back from your experience and regain your good standing. :)


Unfortunately, you cannot unring the bell once it's already been rung.

I should not have had to regain my good standing as I did nothing wrong in the first place. It was demeaning. However, with so few lifelines when it comes to M.S. support, I swallowed my pride and did what I had to do and need not be congratulated.

Here's hoping with all find the support we need :).

Be Well,
Tawanda

NurseNancy 05-16-2012 02:55 PM

spark, so good to see you. welcome to NT.
one thing that helped me when i left my career was to let myself grieve for the loss. my leaving was under less than stellar circumstances.

maybe you could write a letter (but not mail it) to the company and spill out everything you feel.

and maybe you are suffering from some PTSD surrounding these circumstances. would some really short term counseling help?

just some ideas that helped me.

Ptwo 05-24-2012 05:13 AM

Hey Sparky, sorry to hear that the company treated you so poorly after your years of service. Jocelyn has told me several times that she would have appreciated at least a "thank you very much" when she got finished her tenure. She of course got bupkis.

I think of you every spring when the hummingbirds head north. I still use the link you sent me to watch the migration. :D

Sparky10 05-24-2012 09:45 AM

NurseNancy, I did something similar to what you suggested, and it did do me a bit of good!

Ptwo, good to see you! How nice that you still follow the hummingbird migration. I was able to put a dot on that map once! That year my 1st hummer was the 2nd most northern report in the state of Mississippi. :yahoo:


All times are GMT -5. The time now is 01:44 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.