5 days until my surgery and the weather.
 

I have 5 days until my surgery. I have to be there at 11:30 on Wed. Fortunetly I have been too busy to worry about it. We are having my yard sale today and tomorrow.

I am all moved in and had so much junk we still didn't get it all pulled out of the shed. Hopefully as things sale today we can pull more out.

The weather has been crazy here and today it's cold. My right arm and hand is the one I started with RSD in from the TOS surgery and it has been going nuts here lately. Also my pelvic area got worse also.

The bad part for me is that summer is just as bad as winter. I sweat more and I am so uncomfortable and my pain can get worse with the discomfort.

My right hand stays like ice most of the time. I do pretty good with my RSD until the weather goes haywire. Here lately it is so haywire that the weather men can't even predict it. They have missed more days here lately, and it is really noticeable how bad they have gotten at predicting the weather. You don't know how to dress here.

Ada

Best wishes with your surgery
 

Ada,
Best wishes with your surgery. Keep us posted. Sorry the weather is affecting you now. Yes - I agree it is certainly cold for this time of year. I bothers my knees, ankles , face, back. Well I guess really everything.
We'll be thinking of you. Post us and let us know how you are doing.
Thinking of you,
Sydney

Good luck with the surgery, Ada - I do *so* hope it all goes well, it could really change your life. Take care,

all the best :)

Hi Dreambeliever--The VERY BEST for your surgery!! Hang in there with the weather changes--they DO change, and hopefuly, your RSD will be more comfortable when the weather stabilizes! (where I live the saying goes--"if you don't like the weather, wait 5 minutes"!!!)

BEST thoughts and PRAYERS to you!!! :hug:

Borkenwings

Hi Good Luck for your surgery hope all goes well:)

Thank all of you for the good wishes. This is going to be a very hard week for me. I have been very depressed today and missing Bill like crazy.

Tomorrow being Easter, we always had it out at our place and the boys did their hunt out there. This year they are too old they say. I honestly don't care how old they got, I see grownups hunting eggs at some hunts.

My surgery is just 4 days off and Bill and I would have been married 35 years next Saturday. My kids have an anniversary this month along with my friend that lost her husband on the day of Bill's funeral. It's going to be a bittersweet month. I am dreading it.

Ada

Hi Dreambeliever-- i can Honestly say that i can relate to a LOT of your sentiments and "dread" about Holidays (easter, etc), now that you don't have you r beloved husband and the MEMORIES of how holidays WERE, now that he has passed.

I had a very good friend , when depressed, etc, about this scenario,and she told me something that has ALWAYS stuck in my "brain", and it has helped me a LOT (she was appealing to my "artistic side", so I hope this makes SENSE):

Rather than DREADING the holidays, or a situation, because there is just NO WAY they are EVER going to be the same--and rather than TRYING to make them "the same"--(because they NEVER WILL BE)---try HONORING SOME of the "tradition", BUT--add a little 'something new to the mix"--somehting that YOU and EVERYONE else can look FORWARD TO, and "incorporate" into a "newly revised tradition". My friend called theis "reframing" what we think is a NEGATIVE/Painful experience into a more "Positive" experience, into one that we can actually LOOK FORWARD TO.

At first, it sure did NOT MAKE SENSE TO ME!! BUT,--after beating myself against the proverbial "brick wall", I gave it a try! Ya know what?? Year after YEAR of trying to "make things the same" was NOT WORKING. So, I just decided--I am giving this "re-framing stuff a try"--and INCORPORATED a desire that I had to make a holiday "special" to ME--BUT, NEVER could do because of WHATEVER ..

It never occurred to me that OTHERS had their "special desires" as well, but just didn't speak up because of "family tradition" and thinking that if THEY did
something "different", it would be "upsetting the apple-cart", so to speak...

It was a MAJOR 'BREAKTHROUGH" to take my Gram's Thanksgiving Turkey and stuffing Recipe, (Same recipe EVERY Thanksgiving), and just decide to EMBRACE IT, but WITH NEW "TWEAKS" (Small example of "re-framing, and quite inconsequential, given your loss, Dreambeliever)..Now, we in the family, are all on the "look-out" for ways to make the "turkey recipe" and Thanksgiving something to LOOK FORWARD TO--we ALL have out "opinions" of just what to add, what NOT to add...and WHAT TIME WE WOULD LIKE TO EAT!!

Please understand the 'spirit" in which I say this, Dreambeliever...I guess what i am TYRING to say is tLife CHANGES, but just because YOU need to adapt in order to make a Holiday or something (your move, fo example), more bearable and actually PLEASANT, it is NOT "dishonouring" in ANY WAY, the times and traditions that you once shared with your loved one.

After all, all they would REALLY want for us is to BE HAPPY. They will be there waiting in Heaven when the time is right*....

I REALLY HOPE this makes "sense", Dreambeliever.

I hopre your surgery goes well so that you are feeling a LOT better! my prayers are with you!! :hug:

Most VERY sincerely,

Brokenwings

* *And I am fully prepared to face my Gram on the turkey recipe changes! I betcha see says-- GEEZE--I NEVER thought of changing it because I thought that was THE WAY YOU ALL WANTED IT!!! (Again, very small illustration about "re-framing")..

Dearest Dreambeliever128,
I will be thinking of you. My est wishes I will be there through my thoughts especially through your surgery. And I understand your feeling about your lose and the holidays Im feeling the almost samething .Im feeling bad and depressed because of my divoced and wanting things to be great for my son .Im still sad and depressed and I guess in away Im different in the way because my teen wants an Easter and an egg hunt and coloring eggs its hard for me so he did it with my mom at her house and Sat. he is coloing egges with his friend at his friends house I just dont have the engery and he wants to find eggs on Easter morning so I have to do that and he still gets a basket and Im making brunch for us and than a Easter dinner for him and me .But we all understand I think in a different way we all do.......

I willl be thinking of you. Please let us alll know how you are as soon as you can.

Bless you...I'll be thinking of you......Thank you for all the help you have done with me. Even though Im still having alot of despression You have helped me alot. Thank you again.

GOOD LUCK............I WILL BE THINKING OF YOU ................PLEASE LET ME KNOW HOW YOU ARE DOING AS SOON AS YOU CAN............... Karen

My dearest Brokenwings,
I will be emailing you soon. I just wanted to let you know I am going to be have the feeding tub in my stomach and 2 other suergies son. I will know more Monday hopfully at least I was told that. I will let you know as soon as I do . I want to wish you a Happy Easter............................ Thinking of you and all the help and ideas you have given me............. Thank you......... Karen

Inhishands
 

I just wanted to wish you an Happy Easter, and say thank you for emailing me I will be emailing you back this week I hope. I will find out Monday about the 3 different surgeries Im going to have. I will let you know as soon as I know what is going on.

I really wanted to tell you how wise you are. Thank you for helping me and undertsanding and you are just so ise and hw do you deal with RSD at your age, I'm not dealing well and I am just impreset by you. I thin my son is strong with his medical problems and the drs finally put him on heart meds to help him and all his other medical problems and he is dealing with my RSD too but you give me something different even more I think because I'm stuggleing so much with the pain and the last month or more of depression and now dealing with needing 3 surgeries because things dont look good for me with or without it. But thank you and Happy Easter and I hope you have good dreams ....................I will be emailing you as soon as I have more info. and to check on you to..

Best wishes. Karen (rsd kitti)

To everyone I want to wish Happy Easter &thank you
 

HAPPY EASTER to everyone and thank you for everyone that has been helping me trying to help me get through my pain and depression from the pain and I'm going to be having 3 different surgeries. I will let you know when.

Blesss everyone .................Happy Easter !!!!!!!!!!!!!!!!!!!!!!!!!!!!

Karen (rsd kitti)

If you dont mind me asking... What are you having done?

Hi Bronco4586,
Of course I don't mind thank you for asking if I mind. I need to have a huge amount of scare tissure removed even though it will come back but right now it is in lumps ,right now it is in my side into my ribs under my ribs I had a morphine pump but I had a spinal leack from when they put it in for 8 months the 2nd one is a feedind tub in my stomach I had a cut in my small intestins when I had a hysterphmy in 1995. the dr knew he did something but didnt take the time to look I almost died I was on feeding tubs in my chest in my vains for 5 yrs. I had infections every month and stoped breathing I was on a vent. I was put back on the chest tub feeding about 8 months ago but the RSD was burning my vains and turning my chest red and the pain was so bad so they are going to try in my rtomach but Im unable to hold food in thats way it couldnt been done before and it still isnt going to work very well but Im not even 100lb. Im undur weight but because of the first illness and the RSD I cant keep weight on and the 3rd is If I want to try again a stimaltor in my base of my neck and skull but the lower back I had didnt work . I have stage 3 RSD. Im in a wheelchair and still in my first cast from June 2003. I havnt walked in 4 yrs. The pain specialsist I have is the top RSD Dr. in my small area and I found out with in about 3 monhs that I had RSD and it just took off and that was one way they found it along with the systems. The surgeries are going to be hard but at least two of them are very important the dr says. I hope that is what needs to be done especially the feeding tub.......I hope that answered you if not or you need more infor plase let me know. How are you? My pain level is so high that anymore they would need to have me in the hospital staying because even meds and blocks and machines havent helped .What point are you at if you dont mind me asking? If I can help in anyway just ask....... Karen (rsd kitti)

Good Luck
 

Best wishes for your surgery and recovery! Keep us posted

Debbie