Burning Mouth Syndrome
 

I found this about a month ago. It confirms what I've been suspecting. My mouth constantly burns and is so painful. It seems to me that if I'm interpreting this right, burning mouth can be a symtom of small fiber neuropathy in the mouth.

http://www.icms.com.au/iaop2006/abstract/147.htm

Billye

Hi Silverlady
 

I don't know if I have burning mouth syndrome,but as a result of my SFPN I also have had my mouth,lips, & tongue affected at various times. It comes and goes, it's very migratory in my case but it could involve any part of the body, but not for very long.

A few times I had to eat frozen ice pops to numb my lips.

Hi Silverlady,
I too suffered burning mouth and my dentist and neuro just shrugged it off, since I started Lyrica two months ago I noticed that it has gone away. I take 75mg 3x a day and am titrating up. I don't like the short term memory loss but I love that my gums aren't on fire all the time, not to mention my feet feel somewhat better and my arms and hands are pain free. Might not last but I am happy for now.
P.S. I am so thrilled I found you all, thank goodness for Google!

Welcome
 

Jannaw,
Welcome to you. This is a great bunch of people and a lot of hard won and researched knowledge. Glad you found us.
Billye

some possible causes of burning mouth syndrome:
 

Hi Billye!

It's been awhile, since I had read some of your previous messages over at OBT (old/original BrainTalk), so forgive me if I've forgotten some things you wrote.

Did you check on possible gluten sensitivity, Vitamin B-12 deficiency, adverse reactions to toxic mold? (including how mold can release toxins &/or heavy metals, into the air, etc., from surfaces that mold is growing on)

I did a quick google check on burning mouth syndrome (BMS), and saw an interesting article, at this link:

http://www.agd.org/consumer/topics/b...mouth/main.asp

Here's a copy & paste of one section from this article, as food for thought:

"What causes BMS [burning mouth syndrome]?

The exact cause of BMS is difficult to determine. In 30 percent of cases it is caused by a variety of existing conditions that affect the oral and systemic health. Some conditions include the onset of menopause, diabetes, and deficiencies in such nutrients as iron, zinc, folate, thiamin, riboflavin, pyridoxine and cobalamin [Vitamin B-12], and complications to cancer therapy (radiation and chemotherapy) .

In 70 percent of cases, no specific diagnosis for the symptoms can be made. BMS symptoms may occur from xerostomia (dry mouth), tongue thrusting, bruxism (teeth grinding), irritating or ill-fitting dentures, and thrush (a common fungal infection characterized by a white discharge). Some research points to nerve disorders and damage; psychological factors, particularly depression and anxiety; allergies; acid reflux; and medications that cause dry mouth. It’s not unusual for a patient suffering from BMS to have more than one cause attributed to the ailment or to have health care providers fail to find any cause at all.

According to research from the American Academy of Family Physicians, about one-third of patients say BMS symptoms appeared shortly after a dental procedure, recent illness or medication course."

If you haven't ruled out all the causes mentioned above, it might be helpful to check on these. What do you think of the above info?

Carol
http://cantbreathesuspectvcd.com

Burning Mouth Article
 

Carole,
Thanks for your effort and it is good information. Unfortunately, we have ruled out everything in the article. I'm gluten free and take the B12 religiously, regular dentist checkups and he doesn't know why. That's why I posted the article about Burning mouth syndrome. I think mine is caused by the neuropathy I have. I have small fiber sensory neuropathy caused by Sjogren's Syndrome and Rheumatoid Arthritis. I see a good neuro and am going to Mayo in Dec. The Lyrica and Salagen seem to settle it down for a few hours each day. I'm hoping Mayo can find a way to stop or slow the Sjogrens (and burning mouth) when I go.

Thanks for posting.
Billye

some toothpastes...
 

and mouthwashes contain triclosan, sodium lauryl sulfate and glycols...and these are irritating to some people.
whether it is the triclosan or the additives... checking out the products you use in your mouth may be a solution.

Biotene
 

Hi Mrs. D,
I use nothing but Biotene products for the dry mouth, but I'll sure check to see if these products, (toothpaste, mouthwash and gel) have any of these ingredients in them.
Love,
Billye

Hi Billye,

Great advice from everyone!

OK, another few questions! Do you eat anything that does contain, or may contain, proteins from the following foods?:

corn (even corn syrup, etc. may have some stray residual corn proteins in it),

milk products (casein, whey & other milk proteins are found in cheese, ice cream, milk product substitutes, pizza cheese, cheesecake, etc.)

soy products

yeast-y foods

eggs

etc.

I think that there can be a bad reaction (PN) as an auto-immune response, in people who eat the above proteins, and who are sensitive to any of those proteins.

Also, if you do find anything objectionable in your toothpaste, as Mrs. D. said above, you could try using baking soda (sodium bicarbonate)/NaHCO3, instead of toothpaste. I do this, and it works pretty well (along with unflavored dental floss).

Carol
http://cantbreathesuspectvcd.com

in everything
 

Carol,
I have a pretty limited diet due to the Sjogrens disease I have, and my extremely dry mouth. I looked at the items you listed above and if I cut them out, it will pretty much eliminate most of what I can eat. This mouth burning started about the same time the Sjogrens did. It was the first symptom that my doctor noted that cued him to finally diagnose the Sjogrens. I have to eat gluten free and the mouth problems force me to choose soft foods and sometimes Ensure for a meal.

I checked my toothpaste and it looks o.k. My mouth is too dry and painful for the soda and I need the enzymes from the Biotene toothpaste to protect my teeth. Sjogrens sufferers have major problems with their teeth decaying.

I appreciate your help tho.

Billye

Dr. Fine's very cave-person like diet, etc.
 

Hi Billye!

I had asked you if you eat foods that might have proteins from these foods:

corn (even corn syrup, etc. may have some stray residual corn proteins in it),

milk products (casein, whey & other milk proteins are found in cheese, ice cream, milk product substitutes, pizza cheese, cheesecake, etc.)

soy products

yeast-y foods

eggs,

and you wrote:

"I looked at the items you listed above and if I cut them out, it will pretty much eliminate most of what I can eat."
-----------------------

I know that it has to be frustrating to even consider possibly being sensitive to your favorite foods, especially when your diet is so limited as it is! So disregard the following questions (and hit me with an organic carrot), if it's too much of a hassle, at this time:

Are you a vegetarian? If not, can you eat any meats, fish, fowl?

Can you eat any beans (like lentils, etc.)?

Nuts of any kind?

Vegetables?

Fruits?

Seeds? (sesame, sunflower, pumpkin, etc.)

You might be interested in reading about the very basic cave person type diet that Dr. Kenneth Fine eats (he's a gluten-free, milk-free vegan), that is free of all grains, all milk products, etc. See his website, at http://www.finerhealth.com

I mention all this, just in case you may be sensitive to proteins in corn, soy, milk products, yeast, eggs, etc., which you are still eating.

EnteroLab does some stool sample testing, for possible sensitivities to proteins in some of those foods.

Carol
http://cantbreathesuspectvcd.com

Diet
 

Carol,
I can't eat a lot of what you listed in Dr. Fine's diet. Everything has to be cooked chopped and mushy, no spices, vinegars, no nuts, no fruit (because of acid). It's pretty much a babies diet but more restricted because of gluten. I just feel that if I change my diet anymore, it will make my health even worse, because I am so limited in what I can eat. I could pretty well list on the fingers of one hand what I can eat.

Most people don't realize what severe dry mouth does. It makes you lose teeth, and it causes your mouth to be very sore. It takes saliva to start the digestive process so without it you are talking an unhealthy throat, esophagus, stomach, and bowel. You get all the problems related to that. It even causes cancer. Some people live on liquid diets just like our Kmeb here. Sorry, I'm about to get on a soapbox because of the attitude of some of our doctors about Sjogrens. Anyway, I'd rather live with the mouth burning than limit my diet any more than it is.

But thank you very much for caring enough to post.
Billye

more causes & treatments for BMS/Burning Mouth Syndrome
 

Hi Billeye,

Here are several articles I found by "googling", with some information that may be helpful, regarding causes of, and treatments for, BMS/Burning Mouth Syndrome. See below, and see what you think about this, regarding your own case of BMS.:

Carol
http://cantbreathesuspectvcd.com

************

http://forums.about.com/n/pfx/forum....tag=ab-healing

Several things from this interesting thread/topic (from about.com) about Burning Mouth Syndrome (BMS) include:

1) One patient got it from pesticide exposure

2) Another patient got it from a dental procedure

3) Another patient may have got it from a Candida yeast infection in her mouth ("thrush"), since in her case, yogurt (probiotics) helped. Look for a milk-free, gluten-free powdered bifidus &/or acidophilus formulation. Mix with room temperature spring water.

4) Another pt. found that a very low dose of a tranquilizer got rid of most of the pain, without having a tranquilizing effect.
__________________________

http://www.aafp.org/afp/20020215/615.html

This interesting article includes many possible causes of burning mouth syndrome, even some causes that the authors don't think are likely, but that should be considered anyway.

One example of a long shot, is "... chemical irritation and allergic reactions to dental materials and galvanic currents between dissimilar metals [in the mouth]..."

The authors include many possible treatments, too.

Here's some info from this article:

"OTHER POSSIBLE CAUSES"

"Case reports have linked burning mouth symptoms to the use of angiotensin-converting enzyme (ACE) inhibitors.23-25 Once these medications were reduced or discontinued, oral burning was found to remit within several weeks. Interestingly, loss of taste sensation has also been reported with the use of ACE inhibitors.23 "

[I READ THAT LOSS OF TASTE SENSATION, CAN CAUSE AN INCREASE IN PAIN RECEPTOR FUNCTION]

"Candidal infections [YEAST INFECTIONS] are also purported to cause burning mouth syndrome. Although candidiasis can cause burning pain, its prevalence has not been found to be increased in patients with the disorder compared with control populations.5,8 "

________________________

http://www.mayoclinic.com/health/ace-inhibitors/HI00060

is the link to an article that talks about ACE inhibitors.

"ACE inhibitors treat a variety of conditions, such as high blood pressure, scleroderma and migraines."

Some examples of ACE inhibitors include:

"Benazepril (Lotensin)
Enalapril (Vasotec)
Lisinopril (Prinivil, Zestril)

Uses for ACE inhibitors

Doctors prescribe ACE inhibitors to prevent, treat or improve symptoms in a variety of conditions, such as:

High blood pressure
Coronary artery disease
Heart failure
Certain mild kidney diseases
Heart attack prevention
Scleroderma
Migraine prevention

Side effects and cautions

Side effects include dry cough, increased blood potassium level, rash, dizziness, lightheadedness, changes in taste and reduced appetite over long intervals. In rare cases — but more commonly in blacks and in smokers — ACE inhibitors can cause your tissues to swell (angioedema). If it occurs in the throat, that swelling can be life-threatening...."

_________________________

http://www.dentalplans.com/Dental-He...h-Syndrome.asp

Here are some quotes from this interesting article:

"Are underlying medical conditions associated with burning mouth syndrome?"

"Certain conditions such as Sjögren's syndrome [You already mentioned this], diabetes [Melody knows much about this], thyroid disease and liver dysfunction have been associated with burning mouth syndrome, ..."

"...most people with Sjögren's syndrome have very dry mouth and almost all of them have a yeast infection as a result. When the majority of Sjögren's patients are treated with antifungal medication, they no longer have burning mouth."
___________________

http://www.healthy.net/scr/Column.asp?Id=651


Alpha lipoic acid is an antioxidant which has been shown to be beneficial for diabetic neuropathy. Another study showed that it was also helpful in "burning mouth syndrome". This syndrome is characterized by chronic pain on the tongue and sometimes the anterior palate and lips without any visible lesions. It is most often seen in postmenopausal women and has characteristics of being neuropathic pain. In a study of 60 patients, half received 200 mg of lipoic acid 3 times a day or placebo for 2-5 months. 97% of the patients improved versus 40% of those in the placebo group. 13% had complete resolution of their pain and another 74% had "decided improvement" where none of the placebo patients had this level of improvement. Almost all the patients showed some improvement by two months with 73% still showing benefit at the end of 12 months despite having stopped the treatment. That lipoic acid helps in several kinds of neuropathies suggest that it is worth trying in others as well, as it is quite benign and not very expensive."
_________________________

But, there can be some pretty bad side effects of Alpha Lipoic Acid, so see following article that lists these adverse effects!

The benefits may not be worth the risk!

http://lpi.oregonstate.edu/infocenter/othernuts/la/
"Adverse Effects [of alpha lipoic acid, "LA"]

In general, LA supplementation has been found to have few serious side effects. Intravenous administration of racemic LA at doses of 600 mg/day for 3 weeks (53) and oral racemic LA at doses as high as 1800 mg/day for 6 months (56) and 1200 mg/day for 2 years (55) did not result in serious adverse effects when used to treat diabetic peripheral neuropathy.

Two minor anaphylactoid reactions and one severe anaphylactic reaction, including laryngospasm, were reported after intravenous LA administration (40). The most frequently reported side effects to oral LA supplementation are allergic reactions affecting the skin, including rashes, hives and itching. Gastrointestinal symptoms, including abdominal pain, nausea, vomiting and diarrhea have also been reported. Malodorous urine has also been noted by people taking 1200 mg/day of LA orally (60). "

burning mouth syndrome
 

You certainly gave me a lot to digest. Thanks.

Billye

I know this is an old post, but since I too suffer from this greatly misunderstood condition (BMS or Burning Mouth Syndrome) as a dx'ed MS'er, it greatly interests me and I wanted to add to it to share my experience.

Before the MS dx, I was being treated for TMJ (tempomandibular joint disorder). I was wearing plastic crafted splints in my mouth, day (bottom) and night (top). About 2 weeks after I began wearing these, I woke up one day with a faint burning sensation in my mouth. By nighttime, this burning was out of control.

I've now lived over a year with constant burning sensation in my mouth. Many things were checked blood wise during my MS dx, 11 vials worth covering autoimmune, vitamins, minerals, diabetes, thyroid, you get the idea :).

I've known for years that drinking a glass of orange juice results in a canker sore. So I don't drink orange juice. However, I recently decided to start taking vitamin C supplements thinking I was not getting enough C in my diet. I didn't think it would cause any harm in doing so. I wasn't getting cankers.

What was happening however, in starting these supplements, was my geographic tongue and fissured tongue (yes, I have both these since childhood) came back in wicked force. My BMS was through the roof (I am trying Neurontin/Amitriptyline to control the pain and agony from BMS).

So I stopped the C supplements 3 days ago. No surprise, the geographic patches and fissures have almost completely healed up and disappeared.

The burning is still there, but I woke and ate a banana today. Perhaps I am now thinking that Vitamin C could be the cause of such agony with my mouth? I have no doubt in my mind as far as the BMS is concerned that it is partially neuropathy. That's been determined. It's worse when I'm full of anxiety and stress. Better when I'm calm. I am now thinking however that controlling my intake of C could actually result in reduced BMS agony.

It's worth a shot right? The meds aren't helping as I expected. There is the option of trying Klonopin instead of what I am on now. I'll bring it to my neurologist's attention when I see him in August, but I am in the meantime going to try a vitamin C free diet for the next 2 weeks to see if the BMS calms to a dull roar again.

When I did the Candida diet last January, before MS dx again, I was able to almost completely get rid of the burning mouth sensation. This was without drugs at the time.

I really do hope however, that this is something that for me, I will find the key to, and be able to control to get relief. It's horrible pain that I live with daily.

Thank you for this
 

Thanks for reviving this thread. My mouth has gotten worse but I'm sure right now it's the increased medication for the pain caused by the sacral breaks (they won't heal). I'm sure that the moving cleaning out is aggrevating the breaks. (Stretching the muscles and that in turn stretches the bones)

Everything is a nightmare right now. Trying to find a house that is dog friendly floorwise. I have one little dog that has an issue with leakage. I have to make sure everything is washable. Getting rid of the dog isn't an option. I've had him for 7 years and he's a rescue.

We thought we had found a house but the airconditioner and heating unit failed the inspection and it's a real issue with trying to work out a deal. I'm ready to call it all off.

Stress aggrevates your mouth. A lot of pressing the tongue against teeth when you are stressed.

When things settle down I'll try some of the suggestions here. I don't do acids of any kind. Or spices. They aggrevate the mouth.

Billye

Silverlady, glad you didn't mind the bump. I think it's a topic that needs more attention. The recommendations to treat this are all over the board. It seems like many complain about it, but you usually don't hear the resolution end of things (did it go away? what worked for them? etc).

Stress and anxiety do play a major role. I was aware of Klonopin as an option for BMS. I didn't want to try this one right away, and chose Neurontin/Amitriptyline first to try as a paired treatment plan. It SEEMED to work at the start, but at 600mg of Neuontin, 10mg of Amitriptyline, it's not seeming to help anymore.

Moving and buying/selling as I found out are extremely stressful. I actually had a relapse with my MS selling my house this past May. I recently (July 2nd) moved into my apartment. That was a lot of intense physical labor and working in the heat (hottest day this year so far) was not helpful with the MS either!

So I am considering Klonopin, but I'm unsure which of the 2 others (Neurontin/Amitriptyline) my neuro will remove from my routine when I do this. He did discuss the Klonopin with me as well, but we agreed to try something a little 'lighter' before going with K. Has anyone with burning mouth syndrome (BMS) had success with Klonopin? I forget the generic name in Canada. Begins with an R. I've read some say that Klonopin is the only drug that's helped with burning mouth.

I get this too, but for me it doesn't seem to be part of my PN, it is just that I need some extra B vitamins. My daughter gets this sometimes too, and she doesn't have PN. We just take some Vit B complex for a few days or weeks and it gets better.

Supplementing just one type of B Vit can be problematic, as they are synergistic. If you increase the dose of one vit B, you really need to increase the intake of all the rest otherwise you will cause deficiencies.

hth

raglet

Hi Billie

I just noticed you have Sjogrens - I do too, and have for many many years. It mainly affects my mouth and eyes. I eat a normal diet, just chew things well and drink water with meals (it can help with swallowing chewed food). Actually my biggest problem is caused by damage to my tongue (nerve damage) which makes it difficult for me to move food around my mouth and position my food for swallowing, My swallowing can be pretty uncoordinated.

You can get saliva pastilles, but they are pretty ickky really. But they do help.

Do you have any other CTD's ? I also have lupus and antiphospholipid syndrome along with my sjogrens.

cheers

raglet

I know this was addressed to another user, but I wanted to respond.

Someone suggested this to me, but I don't have dry lips or dry eyes. My mouth's dry however, but I wonder if this could be something else, or because I'm a mouth breather? I also have TMJ.

I think it would be pretty unusual to have sjogrens without dry eyes. Sjogrens pretty much causes all the mucus membranes to dry up. Mouth breathing can definitely dry the mouth (I know, I am one, along with the sjogrens), as can many medications used to treat PN.

I have very dry lips, but the main problem there for me is my nerve damage to my tounge means that I can't lick my lips which is very annoying. I never noticed how often I licked my lips to moisten then until I was no longer able to do it.

cheers

raglet

Yeah, I wasn't thinking Sjogrens myself Raglet. I don't exhibit the dryness anywhere but the mouth, and no dry lips even.

Yes, I lick my lips a lot to moisten them, so I can just imagine what it is like to not be able to do so regularly.

Update!

After nearly 48 hours not consuming 1 bit of Vitamin C, I am sitting at my PC just before bedtime, and my mouth is barely burning.

To put it into perspective, at this time of night, my mouth would feel like a raging wild fire. It's a dull roar right now. It's there, but it's much improved.

Even the roof of my mouth, where the normal 'bumps' that are on the palate felt as if they were 'swollen' have decreased in size.

This may very well be simply Vitamin C allergy after all. I almost forgot to take my regular Neurontin/Amitriptyline that I take at bedtime. That's the reduction I have felt in the pain factor thus far.

So this may not be PN or MS related after all! But now the question, how do I deal with avoiding Vitamin C? I can't. It's essential for the body!

To carry on the mystery of this condition...

I don't actually now believe C to be the culprit. I'm thinking more about the acidity of foods. Or foods that cause me heartburn.

For example, I had eaten a few garlic flavored crackers just shortly before bed last night. I woke up halfway through the night with burps, garlic taste in the mouth, and burning mouth. Even this morning, still garlic, still burpy, still burning mouth.

I don't usually eat right before bedtime. Perhaps that's why I wake up burn free on most days? It's normally nighttime before the burning comes on. I noted that it doesn't burn on days or nights when I haven't eaten something that makes me gassy.

So next experiment. I'm going to try taking a 24 h antacid tablet daily when I wake up before eating. Going to see if this helps. I noticed that all through my time on steroids before, my mouth was much much better. I was taking 1 of these 24h tablets daily upon waking. I also noted that the mouth was better as well when I did the Candida cleanse diet for a month +, and during that time I was eating such a strict diet of foods, I was avoiding things that caused me stomach upset.

I'm now curious... while I do believe that I have partially PN caused by MS contributing to this mess, is it possible that I have a bacteria in the stomach that's adding to it as well? Hrm!

Boy oh Boy
 

Do we have problems with or teeth,and the burning is awful,I'm sorry Billye
I read everything these wonderful people wrote,but agree with you it
burns and just get dryer..My Eye Dr, should help he has a mother he adores
who has SS and answers more questions then Dr. I need to see him will
ask. hugs to all Sue

new member
 

:circlelove:
Hello to all members, I just registered to this community, since I too have issues with buring mouth syndrome. Somedays it gets so frustrating in coping with this problem and it is nice to be able to come to this community and tell it like it is. Reading the problems other members have makes me realize that I am not the only one in the world with this problem.

A little bit about myself:
I am a born canadian, living in Edmonton, Alberta. I am of a mature age. My biggest passion is dogs. I only have one dog but if there was a way to take in all the unwanted dogs to love and care for, I sure would do this. I love many crafts, sewing, gardening, walking, and walking and oh yes did I mention walking. Lets not forget a large variety of music.

It is a pleasure meeting everyone in this community and I hope I can be supportive as you all have been to me in the past.

Thankyou
sunflowerlc
Thank you

Welcome. :)

I also share your passion for dogs. I try and help as many as I can at the shelter. I was planning on going back to school to become a vet assistant, but with PN I don't know if this is no longer possible. :(

burning mouth syndrome
 

i have suffered from BMS since 1984. i too went to different doctors and they all shragged it of, but because of diabetes 2, the podiatrist subscribed METANX. i have not started taking it, but ohhh i am so hopefull. Reading you all makes me feel better, because anyone i talk to think i am going crazy.
I am very happy i have found you.Also Lyrica was prescribed by the same doctor, but i tried it once and it made me feel strange so i quit.
These medicines are quite expensive, any idea where i could find a better price pharmacy?
i love you all, thank for happening into my life

Regarding dry mouth: I do not have antibodies for Sjogrens but I do have dry mouth and dry mucous membranes in general. Last time i was at my Rheumatologist, he prescribed a drug called Evoxac. It does help me tremendously and I have not noticed any side effects. I believe it is prescribed solely for the treatment of dryness associated with Sjogrens.

Mouth burning: I have never had burning, but after particularly bad flares of neuropathy (with severe autonomic dysfunction), I have had mouth numbness. It is horribly uncomfortable. It feels like I have been to the dentist and have had lidocaine. At that time, it took about two months to resolve. I still have some degree of numbness in my mouth (feels kind of like a wad of hair is in my mouth at times). I know that sounds kind of gross but that is what it feels like.

Mere

Silverlady I know what you mean...
 

I too have the burning mouth and am almost 100 percent sure it is small fiber neuropathy due to my Sjogrens. My problem began this past May 21 when I was in Washington DC with my daughters class...field trip..of all places. My mouth began burning..every inch of it. It felt like I burnt my entire mouth with hot coffee ...it was horrible. It has been a year since that day and I have not had that extreme of a case since, but I still have migrating burning pain in my gums, and the roof of my mouth. My dentist has had enough of me coming in there all the time because he says it is not my teeth..he can't see a problem with them. He said last time...maybe your regular doctor should give you steroids for times like these...when you are having weird pain he meant...LOL. I also get an occassional numb tooth/gum combo thing that may last for a day or two then go away only to show up in a different spot in my mouth. The roof of my mouth mostly hurt/burns right behind my top front teeth. The weird part is that when I touch the area with my fingers it does not hurt when I press on it. I feel that my face is partially numb especially my upper lip. Drives me crazy!!! There is research out there by Dr. Birnbaum at Johns Hopkins in Baltimore connecting peripheral small fiber neuropathy with Sjogrens and other autoimmune diseases...so we are not crazy. They are just now starting to find the connection. Sorry for ranting on and on..hopefully this has helped some...Mary

burning mouth syndrome
 

Has anyone tried GABAPENTIN or PRIMIDONE or CARBAMAZEPINE?
i have BMS and Lyrica is so expensive

Ciclamino

I am currently trying the Neurontin (GABAPENTIN) route. It is an inexpensive drug. I am ramping up to 900 mg/day; apparently I can go up to 3,600 mg if necessary. I feel sleepy with the neurontin, but Lyrica made me narcoleptic... I could not take the side effects at all.

Mere

Hi, Billye -


I referenced an abstract in a post here a few weeks ago that was written by the Cleveland Clinic neurologist who did my skin punch biopsies and found non-length dependent small fiber neuropathy. The abstract explains SFN better than any other piece I've read. It actually says that there are three causes for this type - one of which is Sjogren's, and I don't have the other two as evidenced by testing.

The abstract says that mouth/lips burning can absolutely be a component of SFN, so if you have it - I'd bet that's the cause. I have it, too, and in the absence of everything else, believe that's what causes mine. Certain foods would exacerbate it, but it didn't last it would quickly stop.

Oddly enough, haven't had this for days now. Don't know why, except that the general discomfort (skin sensations) have also diminished at the same time - not gone, but diminished.

Am doing only some of the supplements recommended at this forum, and no Rx meds whatsoever except the levo for thyroid and pilocarpine to stimulate saliva and tear production (Dx'd clinically withSjogren's although unsupported by bloodwork/lip biopsy).

Sheltiemom

Has anyone with BMS tried glosso? also, would love some support with it, that would be wonderful!! thanks!!

lyrica and outer burning lips tricks
 

Hi- I am new to this...please help.....has anybody had sucsess with lyrica and if so at what dosage...plus any tricks for rlief of burning outter lips?? please help, thanks!!

help
 

new here, does anyone know of a trick to help burning outer lips....anything????? also, does anyone tried lyrica and at what dose? thanks....very worried!!

I've had burning mouth syndrome a couple of times in the last year and too Diflucan for a week and it went away. Even though my mouth didn't have the classic Thrush look, my dentist still tried treating it like a yeast infection, and the Diflucan worked both times I tried it.

Help any tricks to relieve a little for mouth and lips?????

jannaw- did the lyrica ened up helping? thanks!!