neurontin questions....
 

Anyone have any luck with it? Side effects? Dosages? My doc wants me to try it... I'm hesitant.... :confused:

neurotin issues
 

I have been on it since feb. 2012. It makes me very tired and loopy. I am unable to work or drive while on it. It does control some of the pain and tremors. So I have been off work since feb. Have tried pt but did not help. Got RSD from flu shot in left arm.:mad:

I have been on Neurontin for over 2 years. It takes some time to build up in your system. The first few weeks I do not recommend driving until you know the effects and your body gets use to it. Side effects is weight gain, tiredness, stuttering. but for me it helped.

It is my primary drug for CRPS. I take 1800mg daily, 600mg three times; once in the morning, mid-afternoon and before bed. It is very often the first drug prescribed for CRPS.

It has been an absolute godsend for me. To test the effectiveness of it, the doctor tried weaning me off of it and things got rough quickly. So back on it.

Most of the side effects pretty much went away for me after a few months. The remaining side effects are a little bit of grogginess and lack of concentration.

I certainly wouldn't be afraid of it. Whether it will work for you? Only one way to find out. The doctor will titrate your dosage slowly.

Good luck to you and keep us updated!

Neurotic
 

I have been on neurotic for about a year, 800mg 3 times a day. It works great for me

HI,

My daughter has tried both neurontin and Lyrica which are in the
same class of drugs. They are anti convulants. Both may calm
down the excitablity in your brain. Like in the case of others comments
these meds made by daughter both tired and loopy. A lot depends upon
the dosage. I don't think you need to feel hesitant about taking either
but with all meds used for RSD you either have a good response to them
or you don't and if you do not, don't hesitant to tell your PM doc about
it. You are the expert on your own body and how it does and does not
react to various treatments. Everyone is different meds affect everyone
in a different way. Best of luck :hug:

My concern is that I have heard it can increase anxiety... I certainly dont need that!

Hello all, hope every one is well:)
 

My dr. put me on it a few weeks ago but recently wined me of our cause we noticed a large increase in swelling in my left foot/ankle which is the area of my rsd. she said it was a rare side effect.go figure I would be one of the few but since then the swelling has decreased so I would say its worth a try. I've tried several things and I'm sure I'll keep trying things til I find something that works. Its th nature of our rsd I guess. No two people are the same. Good luck to you. I hope you find relief.

I was on neurontin for several months a while back. It did not help my pain too much...I had a much better response to the Lyrica. The biggest side effect was that it knocked me out and it would come on very suddenly sometimes...like I would blink and be asleep...even if I was standing up. I tended to zone out very quickly and could not concentrate on anything without taking a nap (not good when you are in a meeting or driving a car). I think because of the strong side effects I experienced I never got up to a proper dose that would have helped with the pain because after a couple of months I went off it and switched back to Lyrica. I did also gain about 20lbs after I went on it (same thing happened with the Lyrica when I first started that).

I never had anxiety issues on neurontin. Like others say you don't have good concentration and until you are use to it you maybe groggy. You may even find that you have less anxiety. I say go for it. :Good-Luck:

thats funny my spine dr put me on and said that it doesn't cause the issue I complained about..( no memory, massive swelling, Inability to keep food down, increase in urination,and sleepy all the time ) but my Pain management dr said yeah all are a common issue they see with neurontin and they took me off.(by end of week I was more coherent, my swelling disappeared in belly hands and left leg. and i wasn't sleepy all the time) I guess its who you speak with. during my research of it as well I found that the makers of neurontin were sued by the govt for saying it helped with pain, as it had FDA approval only for seizures... as far as how it works.. I've seen its like RSD it works different for each person.

Gabapentin is great for me. I started on a low dose and continued to increase it. Sleepiness was terrible at first but went away after just a couple weeks.

It interferes with my ability to make connections but I don't notice this side effect until I discontiue it and start seeing the connections again.

*edit*
 

4 and half months into diagnosis..and tramadol given only..dr says pain mangment needs to be talked through with rhumatologist..and i dont see her for another month..meanwhile im looseing the battle day by day with this ..in the other ankle now..very scared..and am hearing neurontin/gaba works..for other.. not sure if this is in high doses or anything..*moderator edit*.lol dont want to be taking rat poison..hear these stories..but dont want to wait for the health professionals i have already had a couple of incidences where substantial mistakes are being made to my detriment..like i say very scarey..help me take control..6 months since the broken fibula and alone with a daughter of 15, house taken away cos unable to work..cant pay mortgage or bill..and cant drive car so gave to son..getting round house on a office chair..moan moan moan i know..goto get my head around this..thankyou for just letting me do this..:hug:

If your pain is out of control, please call the dr. There are numerous prescriptions out there for nerve pain, chronic pain, etc. Most doses of Neurontin are started low and increased over a period of time to allow the body time to adjust to it.

In the mean time, try soaking in epsom salts. This sometimes can give you a little relief.
God bless!