rsd and cyclic vomiting related
 

I saw on the RSDSA website they found that rsd type I and cyclic vomiting have a Mtdna match. And CoQ10 with other B vits are being used to treat.

alt,
Pain begets all kinds of other things, and nerve pain certainly triggers nerves that cause nausea and vomiting.
If, perhaps I have a little too much tea, and my diazepam doesn't work, I keep 'Promethazine" rx, on hand, and it does the trick right away, it's cheap too!

Pete

I have crps 2 and get sick every month. This last go around I was sick over 6 days with nausea after every meal. I see the GI dr. tommorrow. Hoping for zofran.

I just wanted to post the finding for type 1 because I am experiencing the cyclic vomiting but a type 2.

Well saw th gi dr this afternoon. I took with me dr. Getson and H info on Rsd and gi problems. He told me but yours in ur foot. I tried to explain that it is the sympathetic nerve that is in dissray but he didn't want to hear. Started me on nexium and scheduled an upper endoscopy. We will see!

Ok. I got to know everyone's opinion. In april I started having over 40 hotflashes a day. (started estrogen) better now. Now I have nausea and/or vomiting everyday. According to Dr. Hooshmand, this can be internal rsd.

No med. changes since oct.

Does anyone have internal rsd? what are your symptoms? could this be rsd or am I just having other issues?

HI.. let me speak my mind on this.. 1 your dr.. the dr you just spoke about your crps/RSD dr.. you know the one that said yeah but your RSD is in your foot??? .. if so.. I suggest you say this very plain as day.. If he had any thought 1 in that melon of his he would visit the scripts you are on as for most pain meds.(especially the ones taken for long periods of time ), cause damage to the stomach and cause nausea.. and RSD can cause hat flashes . well from what I've heard from other RSDers any way. when I got nauseous I knew it was the neurontin.. don't know why I knew . I just knew, and I was taken off... guess what .. nausea ended. now with all the drugs I'm on I take vimovo.
this is like naprelan and nexium mixed..( ok not like "is") and since this no real stomach issues.. .. go over every thing with this dr. and if HE,SHE treats you like a child again . or like you are a hypochondriac. smack him and give him/her the web sites that all of us "had " to search so we could know what is going on with us . as most of us cannot rely on our Dr,s knowledge alone. (sorry that aggravates me) look what I really want you to trust is your own knowledge of your own body.. pay attn; to it as it speaks to you.. I am having issues with the itch on the RSD and I know when it started just not how yet. but I am fairly sure it isn't allergies. also now I don't want to pry or embarrass . but I know my next door neighbor has these same symptoms. and its on a schedule.. she is fairly young. and she is going though menopause . now I know you are on estrogen.. is it possible this is causing nausea . who knows but everything is worth checking out. and leaving RSD as reason for last. lord know none of us want RSD to be the cause of another thing.. I wish you well and lots of luck with finding your answers. and never let your dr,s make light of your situation.. and remember we all love you here and are here to listen and support you. godspeed.. or like Mork says... "NANOO, NANOO"

I had to giggle at the first part of your message about the dr. using his mellon. I am scheduled for an upper Endoscopy on the 18th, if it shows nothing according to Dr. "H"he needs to do an emptying (which if it is rsd related will be delayed.)
I started estrogen after I started having hot flashes. They were just to much to handle. I would sit and try to read and I would just started dripping sweat. Horrible. Also, I had a hysterectomy several years ago because of endometrosis (sp) but up until April, have never experienced a daytime hotflash. Then boom 40 plus in a day.

anyway, you are right I know my body and I also know something just isn't quite right. I found 2 dr.'s who deal and are well known for dealing with rsd who both said these symptoms are not uncommon for us to have. But like you said, lets hope its something else. (its still scary to think this monster could be affecting my organs, and everything else.)
Thanks.
Anita

QUOTE=painman2009;893490]HI.. let me speak my mind on this.. 1 your dr.. the dr you just spoke about your crps/RSD dr.. you know the one that said yeah but your RSD is in your foot??? .. if so.. I suggest you say this very plain as day.. If he had any thought 1 in that melon of his he would visit the scripts you are on as for most pain meds.(especially the ones taken for long periods of time ), cause damage to the stomach and cause nausea.. and RSD can cause hat flashes . well from what I've heard from other RSDers any way. when I got nauseous I knew it was the neurontin.. don't know why I knew . I just knew, and I was taken off... guess what .. nausea ended. now with all the drugs I'm on I take vimovo.
this is like naprelan and nexium mixed..( ok not like "is") and since this no real stomach issues.. .. go over every thing with this dr. and if HE,SHE treats you like a child again . or like you are a hypochondriac. smack him and give him/her the web sites that all of us "had " to search so we could know what is going on with us . as most of us cannot rely on our Dr,s knowledge alone. (sorry that aggravates me) look what I really want you to trust is your own knowledge of your own body.. pay attn; to it as it speaks to you.. I am having issues with the itch on the RSD and I know when it started just not how yet. but I am fairly sure it isn't allergies. also now I don't want to pry or embarrass . but I know my next door neighbor has these same symptoms. and its on a schedule.. she is fairly young. and she is going though menopause . now I know you are on estrogen.. is it possible this is causing nausea . who knows but everything is worth checking out. and leaving RSD as reason for last. lord know none of us want RSD to be the cause of another thing.. I wish you well and lots of luck with finding your answers. and never let your dr,s make light of your situation.. and remember we all love you here and are here to listen and support you. godspeed.. or like Mork says... "NANOO, NANOO"[/QUOTE]

ok. so I had my egd yesterday. Shows medium hiatal hernia with gastritis. Dr. says this would not explain the nausea and vomiting that I am still having 2 times a week or more.

So I told him the next step should be a gastric emptying which I will discuss in my f/u further with him.

I did start zofran and nexium. Thank GOD!

I have CRPS II and issues with nausea/vomitting ever since diagnosis. It has only gotten worse over the years. Taking Percocet daily probably does not help. I'm on Zofran right now awaiting SCS placement. If the SCS doesnt allow me to get off some of these meds I'll have to see what's really up with my GI system as I've never had a work up before.

According to dr. H are gi system slows down and this causes the stomach upsets. So my next step is a gastric emptying

Well I got good news and bad. Good news first. Ultrasound was normal and my daughter in law had a beatiful baby girl last night.

Bad news, saw pcp today says I got rsd in left foot as well as right and more then likely internal. He says this is the only thing that makes sense. PM on the 8th. Will discuss my options.

I have had both vomiting and full body temperature regulation issues since maybe a year or two post RSD??? I am on Estrogen, but alas, this has not solved "hot flashes". I still get chills as well, but not with as great of frequency as the earlier years. Meds can be a factor for both, so it's tough to know what is always going on.

My stomach pain and vomiting made me (additionally) miserable for years, because it was frequent, but not constant, and completely unpredictable. For me, changing how I eat, had resolved the stomach issues. Last week, for a variety of reasons, I started eating more bread and generally less well, than I had in the past year and a half. Sure enough, I started vomiting with almost no warning. Maybe my issues are not RSD related... Maybe my meds aggravate an underlying issue? Following the 4 F's diet closely isn't always fun, but my stomach, energy levels, swelling and pain levels are definitely better for it.

Congrats, btw! Grandma Alt? ;)

I was doing real well on the 4f's diet and lost alot of weight but then when back to stress and depression eating and gained it all back. So Monday I am back on the diet. Thank you for the congratulations.

But did you notice a difference with your stomach with the 4 F's?

No, I still got sick just not as much.

[QUOTE=alt1268;899305]According to dr. H are gi system slows down and this causes the stomach upsets. So my next step is a gastric emptying[/QUOTE

Please note I am sharing my experience with the following information- I offer only suggestions if anything. four years ago I started vomitting severely. I could not hold down food no matter what I ate. I lived on protein drinks. I lost much weight. I was seeing two expert physicans whom treated my rsd. I was told that rsd had spread internally.

In order to verify this...I was hosptialized in patinent and recieved barrium cat scan w contrast to make sure there was no anatomical issues w/ viable organs ect.

I followed up with a local top GI specialst whom was familiar with RSD since his anestiologist treated patients. the gi dr ordered ALL GI tests relatively quickly. Things such as upper endoscopy w biopsy to rule out celliac disease (wheat allergens), gastric emptying study which is needed to see about the stomach motility, and other imagings such as MRI's. Everything came back negative, except the fact that my constipation was still prevelant, and I was put on a medication to help regulate my bowels more. As per advice from GI dr: start eating. I learned to eat sweet potatoes, and bland items.

I changed my diet drastically- all healthy, it took a lot of time and years but it was worth it, and the diet change was small steps I took on my own.

When I was very sick, with the vomitting, I was getting full dose iv bags (like chemo patients) of zofran. or running to a local pcp dr to get intra muscular shots of zofran.

I was prescribed medications such as Marinol - works great synthetic thc, but expensive for nasuea and vommitting. as well as zofran pills and a medication called campabarzine or something like that.

My vomitting slowly disappered and than would re surface. I was given the option a few times to get botox injections via upper endoscopy to my stomach, and slow down the motility. I refused to under go an invassive procedure every 6 months. I also met a woman who had rsd whom proceeded w/ the botox injections and it failed her. she was living on special blended protien shakes from the dr, and reciving an iv infusion additional to treat the pain.

I was going under iv infusions at the same time for pain mangement, and with an additional infusion my vomitting subsided.

Every patient is different, and I rigourously changed my diet- including no cofee ect nothing acidy like tomatoe sauce.

Many patients wonder about the gi issues including vomitting. But the nerves really innervate the stomach and intestianal area, rsd affects the nervous system and nerves. For me although told it is internally I dont believe it to be accurate. I believe that the nerves where more affected so in the surrounding areas- nerves line the stomach ect, that was what was more affected. this is just my experience that i am sharing.

Ok. Good news is I do not have gallstones. Bad news RSD related along with left foot.