IV Therapy
 

I went to the pain management doc today and she scheduled me for 2 more nerve blocks. They are only going to be a week apart, little nervous I have had one done already, with no relief. She is talking about IV Therapy, she said we would discuss more at our next visit. I was wondering if anyone has done this and can tell me what it consists of? Do I have to stay in hospital or is this an outpatient procedure? Was it successful for you?

Iv
 

She has to be more specific...iv of what? I had ivig but that is bc the rsd has given me a neuropathy...so find out what kind of iv!

Hi Debbie, Did the IVIG help? and why did they use that as treatment? Im looking into treatment for myself and im not seeing very much optiones.

Ivig
 

No.ii did not. The only reason we tried is bc I have neuropathy and that's a tx...what have u tried?

Ive done a TON of PT. pain meds, desensitizing, lidocaine patches and estem and none of it works besides the pain meds easing just some of it. Right now im looking into ketamine infusions and i just saw some stuff on IVIG and wonderd how much it helps. I have bad nueropathy, but i also have the autonimic issues. So i need to find the best course of treatment.

Try
 

I would try ketamine first. Ivig is a big commitment ..one week a month for like six months....


Deb

Can you explain what ivig is? I have not heard of this, but of course this is a new diagnosis so lots of things are being throwen out there!

Have you tried the ketamine?

no I have not it has not been recommended to me yet and i first heard about it on here the other day. This is still very new to me, and i had a team est. but then had to move so trying to re est. do i have to be hospitalized for the ketamine?

From the research ive done on it, its outpaitent and its over a period of 3 days. This is all still very "new" to me too, ive known ive had it for the last 3yrs but i finally talked to my dr and he right away dxed me as soon as he heard my sympthomes, which then in return i started researching right away to see what i can do to get it in remission instead of just "managing" it.

Try it all!!
 

Hello, I am a mom of a 14 yo daughter with RSD in both of her legs. She has had 6 ketamine infusions without much success, as well as nerve blocks, epidurals, lidocaine infusions, IVIG, IV steriods, meds and I know I am missing something, but we have tried it all. The best thing is for us was the Sciatic Nerve Block. It has given her 6 weeks of life back. I know it sounds crazy but right now we will take what we can. Good luck:D

Where is her RSD at?

Children
 

Have you looked into the children's program in Boston...I can get u info if u want....they do great things!

So I found out she was talking about an iv lidocaine infusion. I was really sceptical at first especially because the lidocaine patches didnt do anything for me. But I have to say I had this done yesterday and today I feel GREAT! I was at a 10/10 on pain scale and before I left I was down to about a 7, woke up this morning and I have very little pain maybe a 2. I can live with that for sure. Now to wait and see how long relief lasts before trying another one. Hope this helps others as much as it has done for me! I do notice that if I stand for long periods of time I do increase pain level. But its such an improvement!:)

Hi
 

Yes you r...you should look into the Boston's children hos. I can put u in touch w someone who had

Great success

Debbie

Dear TOS8, I also have related bad neuropathy and autonomic nervous system issues. So has anything worked for you for these 2 specific issues? thx!