NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   broke my foot today :( (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/172872-broke-foot.html)

RSDcandice 07-07-2012 11:15 PM

broke my foot today :(
 
My question is, my er doctor had no clue what i was talking about when i say rsd. so im scared when i find a new ortho doctor they are not going to know what is going on. I am new to the rsd thing and i dont know what questions to ask. Any advice would be greatly appreciated.

I have rsd in my right arm. I have had some issues with both my legs the last couple weeks, and today my ankle just rolled right under me. (my left foot is broken now)

LIT LOVE 07-08-2012 12:32 AM

Well the bad thing s immobilization is not good with RSD. You might want to see if you can get a series of sympathetic blocks as a preventative measure to combat spread. As soon as the cast is off warm water PT would be ideal.

nalakity 07-08-2012 12:32 PM

Question
 
I got Rsd 3 years ago. I had a series of 3 sympathetic nerve blocks, and immediately after the first blco my RSD spread to my right hand, arm, and shoulder. So all I'm saying is be careful with the blocks! Warm water PT will be a very good option though...it helped me :) Good Luck! Sorry to hear about your foot :(
Quote:

Originally Posted by RSDcandice (Post 895511)
My question is, my er doctor had no clue what i was talking about when i say rsd. so im scared when i find a new ortho doctor they are not going to know what is going on. I am new to the rsd thing and i dont know what questions to ask. Any advice would be greatly appreciated.

I have rsd in my right arm. I have had some issues with both my legs the last couple weeks, and today my ankle just rolled right under me. (my left foot is broken now)


RSDcandice 07-08-2012 01:29 PM

i am currently uninsured so i cant get nerve blocks now :/
i will ask the doctor about it and about the therapy. thank you, this is so scary :(

alt1268 07-09-2012 05:48 AM

Candice

First I would print off the er and hospital paper work from the rsds website. Second would you qualify for Medicaid. Sometimes when you have a proven disease they will pick you up know matter what your earnings are.

Sorry about the broken foot.

Koala77 07-09-2012 05:58 AM

So sorry about your broken foot. :hug:

I don't have RSD but I have had a lot of broken bones over the past 10 years. Considering that you don't have insurance, I thought I'd mention that I got great pain relief from ice. I broke 4 ribs, my pelvis, sacrum, ulna, radius .... and each time the pain responded much better to ice than to the Morphine I was given by the hospital doctor.

Give it a try, it certainly can't hurt. I hope that you feel better soon.

4-eyes 07-09-2012 10:23 AM

Ice is absolutely contraindicated in RSD. The good thing...pain meds are usually inexpensive!

LIT LOVE 07-09-2012 10:54 AM

Most of us with RSD can't tolerate ice, but it can damage those that don't feel it as well.

http://www.rsdhope.org/ice-and-crps.html

RSDcandice 07-09-2012 02:19 PM

Yes, unfortunantly ice is not a comfortable thing.
Thank you for the article!

thank you all

ElyseHart 07-09-2012 03:11 PM

You poor thing. Hopefully you will not have a spread. Please research RSD and vitamin C. There was one or more studies that showed a reduced chance of initial and spread of RSD after carpal tunnel surgery if the patients took 500 mg of vitamin C for 50 days, starting with the day of the surgery. It may be a waste of money, but it might help and it is cheap. Maybe someone more familiar with this will chime in here. And wiggle your toes. Any movement is a good thing.

Good luck.

ginnie 07-09-2012 03:21 PM

Hi Candice
 
[Most of the good orthopedic doctors DO know what RSD is. I just had a consult with one as my ankle is in bad shape. Was advised not to do surgery to correct it because of the RSD. I do believe your orthorpedic specialist will know what to do to help you, without making the RSD worse. Sorry your foot is broken, hope they can set it, and make you as comfortable as possible. I think my RSD developed because of the injury to the ankle. I had some ganglion cysts removed, which have nerves in them. Hope all goes well for you while you heal. I will keep you in my thoughts and prayers. ginnie

Koala77 07-09-2012 05:10 PM

Quote:

Originally Posted by 4-eyes (Post 895918)
Ice is absolutely contraindicated in RSD. The good thing...pain meds are usually inexpensive!

Sorry..... I got such good pain relief from it that I hoped it would be a an inexpensive alternative, but thanks for letting me know.

RSDcandice 07-10-2012 02:50 PM

Went to the ortho today, and apparently the er doctor is a complete moron. No broken bone. Just a major sprain. Doctor said the pain shouldnt be this bad and that i was exaggerating it. He also was a believer that rsd doesnt spread and it will just go away with exercise. What an idiot :(

He also proceeded to grab my rsd hand and move my fingers. In which i cried and yelled at him.

i wish more doctors in my area were knowledgeable about rsd.

ginnie 07-10-2012 03:51 PM

Hi Candice
 
Any doctor who tells you that you are exaggerating the pain from RSD is not worth your time. He is Moron. It is as good as calling you a lier. My first Neruo did that, and I left the practice period. Hope your spain gets better soon. Wish the RSD calmed down for you. Sorry that happened Candice. ginnie:hug:

alt1268 07-10-2012 03:55 PM

Here is a suggestion. Print off the materials about spread and RSD and mail them to him. (what an idiot!):Bang-Head::Bang-Head:


All times are GMT -5. The time now is 08:07 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.