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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Dr Schwarzman? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/173112-dr-schwarzman.html)

tos8 07-12-2012 11:30 AM

Dr Schwarzman?
 
My nuero refferd me to Dr Schwarzman in philadelphia because there are no Rsd specialist drs in Maryland, and to hopefully try IVIG befor I would try ketamine. Has anybody seen him? My nuero sent me his information and he seems like a good dr.

Jimking 07-12-2012 11:41 AM

I think most folks with RSD in the US have heard of Dr Schwarzman. Supposed to be one of the best in the world. I believe it may take a two year wait just to see him. Better book that appointment now.

alt1268 07-12-2012 01:15 PM

FYI there are many rsd specialist in Maryland and DC. I don't know what IVIG is, can u enlighten me?

Also as Jimiking stated it takes several years to get into this dr. I know Dr. Chin, DC is doing ketamine and Midatlantic spine and pain in Newark, DE is also doing it.

Just a thought if you don't want to wait.

tos8 07-12-2012 01:35 PM

Yeah I just called and he doesnt have any appts until 2015!

tos8 07-12-2012 02:01 PM

Quote:

Originally Posted by alt1268 (Post 896863)
FYI there are many rsd specialist in Maryland and DC. I don't know what IVIG is, can u enlighten me?

Also as Jimiking stated it takes several years to get into this dr. I know Dr. Chin, DC is doing ketamine and Midatlantic spine and pain in Newark, DE is also doing it.

Just a thought if you don't want to wait.

http://en.wikipedia.org/wiki/Intravenous_immunoglobulin thats about IVIG. And Dr Swhwartzman does it. Im not ready to try the ketamine infusions yet. I did just call this drs office and gave them my info and if my dr calls him personally my wait wont be "as long". And maybe even my current dr can cordinate with him.

alt1268 07-12-2012 05:38 PM

IVIG is also used when you can't keep your antibodies to such things as Hepatitis B, MMR. This is very interesting I looked it up on medscape since wikipedia is not a realible source.

I don't know if any of the dr.s I mentioned do this. But if you can't get in sooner, give them a call and see.
Good luck!

Quote:

Originally Posted by tos8 (Post 896882)
http://en.wikipedia.org/wiki/Intravenous_immunoglobulin thats about IVIG. And Dr Swhwartzman does it. Im not ready to try the ketamine infusions yet. I did just call this drs office and gave them my info and if my dr calls him personally my wait wont be "as long". And maybe even my current dr can cordinate with him.


betsykk 07-16-2012 09:50 AM

We love Dr Chin! She is pretty easy going and much easier to see. She is also willing to try other things...my daughter tried a magnesium infusion at one point with her consent. Much easier to get to. We waited over 2 yrs to see Dr S and he has trained enough people across the country at this point that you can find others who are just as good. Especially if you are considering ketamine which is what he specializes in.

Liz

AintSoBad 07-17-2012 04:44 PM

Dr S. is Great!
He Dx'd me a couple decades ago.

Find a teaching hospital, and call their Neuro dept. ask for the 'Chief Neurologist'!
Ask if they treat RSD!
Ask the tough questions!
Ask if they Know Dr S!

He's great, but not God!

Get your self some help!
Quick!

Pete

alt1268 07-17-2012 05:09 PM

check out the midatlantic spine and pain website. It says they do platelet rich plasma as well as ketamine. It is a little different then IVIG but the same principal.

debbiehub 07-17-2012 09:17 PM

Ivig
 
I did ivig bc I now have small fiber neuropathy thanks to the rsd. It did not work

Debbie

pg2005 07-20-2012 02:50 PM

I used to see Dr. Raja at The Blaustein Pain Treatment Center at Johns Hopkins. Highly, highly recommend him. They are very research based and it doesn't take forever to get an appointment.

Indea88 08-21-2012 07:31 PM

Dr. S has been my Doctor since my injury, 1994. He has helped me tremendously but I won't do Ketamine, just me:eek:

Jenknits 09-02-2012 10:44 PM

Quote:

Originally Posted by tos8 (Post 896820)
My nuero refferd me to Dr Schwarzman in philadelphia because there are no Rsd specialist drs in Maryland, and to hopefully try IVIG befor I would try ketamine. Has anybody seen him? My nuero sent me his information and he seems like a good dr.

I have seen Dr Schwartzman. He recommended the IVIg infusion for me as well. I've had 2 inpatient, 5 day, continuous, central line ketamine infusions and 1 inpatient, 5 day, continuous, central line lidocaine infusion, none of which helped me. Dr Schwartzman has to review some of my test results when he gets back from vacation on Tuesday, and my insurance has to approve the IVIg infusion. Assuming the test results look good to Dr Schwartzman and my insurance conpany approves the procedure, I may be having the infusion this month (September). I am not putting all my eggs in 1 basket or counting my chickens before they hatch. With fingers crossed, we will wait and see what happens. Dr Schwartzman has recommended I go for a ketamine coma as well.
Be well,
Jen

tos8 09-05-2012 04:13 PM

I dont think Hopkins will work since the RSD was caused by a botched surgery from a VERY TOP surgoen there. So they would very much most likely deny it. But what did Dr Raja do for you?



Quote:

Originally Posted by pg2005 (Post 899218)
I used to see Dr. Raja at The Blaustein Pain Treatment Center at Johns Hopkins. Highly, highly recommend him. They are very research based and it doesn't take forever to get an appointment.


tos8 09-05-2012 04:17 PM

Where is Dr Chen at? Is there anybody else in Maryland that you know is open to try anything?

Jimking 09-06-2012 09:10 AM

Quote:

Originally Posted by tos8 (Post 912041)
Where is Dr Chen at? Is there anybody else in Maryland that you know is open to try anything?

GW Hospital, Washington DC.

debbiehub 09-08-2012 10:04 PM

Ivig
 
I had ivig infusions by my local neuro, the rsd has caused small fiber neuropathy which is what ivig is used for. It did nothing for

debbiehub 09-08-2012 10:06 PM

Cont ivig
 
Me. I did it 4 days a week once a month for 5 months.. U don't need dr schwatrzman for ivig


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