Now I'm going to get IV steroids
 

Went to the neurologist this morning. He took a couple looks at me and said yeah you need steroids. So he and my regular doctor got together and I'm getting I VSM Tomorrow.

I'm getting four days worth. That's more than they've ever given me for optic neuritis. So this must be the flare from hell. (Pretty much all my flares are "Flares from hell')

Hopefully you will feel better soon. Please keep us posted. :hug:

It better help. I just don't want to be stuck with my hands like this .

really hope that This won't be permanent. If it does turn out to be permanent my Dad will have A lot more room in the basement because I'll be getting rid of all my yarn. Maybe I'll sell my car to my dad and then he can sell my car and his car and get a new car. (And when I say sell my car to my dad, that doesn't necessarily mean that any money is going to be coming my way. I probably just let him take it even though my names on title)

I'm wondering why I'm hungry but not hungry. I'm starving but the thought of food is just not appealing to me. I don't get it, I had some toast today that's it. I'm hungry I just don't feel like eating

hungry and nothing sounding appetizing- I totally get that one. Feel better soon

I'm hungry right now finally decided on something to eat. I wanted ice cream my throat hurts. My dad got down to the place to get the ice cream and they were closed. They were working on the building.

I love food from my favorite Greek restaurant but they're closed too. They're finally doing some very much needed updates to their building (Handicapped restrooms)

I'm also scared to eat anything. you might see another thread in the forum that relates to that fear.

At least I'll probably lose weight. Probably not the right way to lose weight but I'm probably going to lose weight.

Hey Erin,

If you are going to have steroids the IV seems to me to be the way to go. I hope they help you.

Yes, I understand being hungry and not wanting anything. Too tired to eat today.

ANN

I just managed to eat a bowl of potato soup and bread baguette from Panera. My dad put the soup in a plastic mug with a handle and I drank it from there. And the baguette was just the right size that I could actually keep my fingers around it to eat that.

Probably the most food I've eaten in one sitting for the past couple of days. I'm hoping it doesn't make me sick. I just feel like total garbage. At least when I had the optic neuritis flare, I was hungry then. This time around I feel like the flares is hitting the entire body.

Like I've got the flu and it won't go away.

I really hope the steroids work. I'm really getting tired of this.

Did you get tested for a UTI before the steroids?

ANN

hang in there! sending hugs :hug:

Yes. They didn't call in a Rx for abx's so I'm assuming there was no uti

Almost done with the first bag of ivsm. Tired as heck. Annoyed at the girl who s watch The View. (hate that show). She made them turn the volume up on the tv.

Hope she's not here tomorrow.

try not to kill her...

They had another fan of "the view" Today. But I was the first patient there today and mentioned the nurses that I hate "The view" and It was too loud yesterday. So the nurses talk to the person was watching Into letting them turn down some.

I watched "Inspector Lewis" On my iPad and ended up taking a little nap. It helped that I had headphones so that Blocked out the rest of the noise. Plus that way the noise of my iPad wouldn't bother anyone else. But I'm Polite like that.

Good thing I asked about the steroid taper Today, because I finish the IV On Friday. It would be good to have a bottle of Oral prednisone on Saturday, So I just made sure to call my doctor for that. I Would have been very unhappy over the weekend if I didn't have the taper.

Doesn't seem to be working. I'm having a lot of problems getting my fingers to control my computer mouse, so much That I order a Trackpad That is going to be delivered tomorrow to use with my computer to see if that'll work better than not having a mouse.

Otherwise I'll be doing everything totally from my iPad and my Kindle Fire.The iPad the only tablet I can use with dictation software.

This getting really really really really annoying


Edit

I'm switching over completely to my iPad. I can't use my computer mouse I just washed my hair and I had a hard time doing that. Combing my hair was an adventure. Kept dropping the comb and brush Almost broke the hand mirror. Nearly killed myself of the hairdryer but almost hitting myself in the head.
L
I thought those stupid steroids were going to help. This isnt just a numbness problem this is a motor problem. Should the steroids helped by now?

I'm not just worried about never being able to crochet or drive again. Start to think I got bigger problems going on


My index finger and middle finger I'm in left hand feel like they're twisted, this is by themselves, the also feel like they've been twisted together, but when I look at them they're nowhere near each other they're flat like normal as they should be. They just feel like they've been tied together

Am I just not being patient enough?

Sometimes it's weeks after you stop the steroids, before you notice improvement. Please give it more time..

So sorry for you nasty symptoms and I hope it gets better for you soon.:hug:

It can take a while for either the roids to start working or the flare to start subsiding so don't give up hope yet. :hug:

My hand hurts really bad tonight I think it's from the IV

It feels like I sprained my left hand. And all the stress of my mom

All I want to do is drink water eat and figure out how to cool off. I am so hot right now I'm trying to drink more water than doing anything else. X I'm going to bed in a little while.


Could my hand be hurting because they collapsed a vein accidentally?. I've never had a collapsed vein before

It's the hand that's the most numb

not hungry
 

when that happens to me (often) i drink 1 or 2 bottles of Boost. i actually like it.

hang in there dear, sounds like this was tough ordeal for you (and for your body).

When all else fails just keep saying to yourself "In with the good air, out with the bad..." Sometimes it is all we can do till the Monster calms down a bit.
:hug:

My favorite saying...:D