first time I've opened up to anyone
 

Hello, my name is Sarah and I am at a point in my life where I need support and understanding when it comes to my conditions. I have chondritis in my rib cage which causes nerve damage flares at any given time. I also suffer from an autonomic dysfunction that causes my blood pressure to suddenly drop without warning. Does this possibly relate to anyone? I appreciate your time and hope all is well out there for you.

Nice to meet you!!
 

Hi Sarah:

Welcome to Neurotalk. I see you have been given the correct forums and please do check us out and we also have other forums that you might like to visit and relax in.

Nerve damage is no walk in the park. And the blood pressure dropping, well that must be so scary.

Please know you are not alone.

Hang in there.

take care,

Melody

Welcome Sarah,

your in great company here at Neurotalk. Feel free to look around and join in to the forums. Here you will meet friends who are experiencing similiar issues.

I hear you girl!

I have a chiari 1 malformation. A lot of times my heart rate just randomly drops...or explodes. It's insane.

It happened to me in the grocery store once. Had to be taken to the hospital because my heart wouldn't beat properly and I kept collapsing.

Stay strong! You can message me or add me on skype if you want!

T.o.s - not fun
 

Hello, my name is steve. I was injuried at work over 1 year ago, and the pain is becoming more and more every day. Some of my symptons are: Can not raise my rt arm over shoulder, collar bones / upper chest / neck are very painful, rt arm can not extend out fully, can not lay on right side, can not lift over 10pounds, arm goes numb when sleeping,. I'm going to see the thoracic doctor at the ending of april. Does anyone have any tips for me. Thanks steve

Nice to meet you!!
 

Find a doctor
 

Find a doctor who is knowledgable about Thoracic Outlet Syndrome. Read up on it as well. You sound like how my story began.

Our Thoracic Outlet Syndrome forum
(Thoracic Outlet Syndrome/Brachial Plexopathy.)
http://neurotalk.psychcentral.com/forum24.html

Hi Sarah

I have small fiber neuropathy so suffer from nearly constant pain. And with it, I have damage to autonomic nerves. My blood pressure drops suddenly upon standing, or leaning over, etc. I am trying lyrica now after no success with gabapentin for the nerve pain. They didn't really give me any advice on the blood pressure stuff other than to stand up slowly and be careful. The recent warmer weather here in chicago seems to be better for me than the cold, which is a real trigger for my worst burning pain. The bad news is I live in Chicago, not many warm months! But I'll take what I can get. I'm sorry you are suffering, but I can relate, and hope you have some better days ahead.

Hello smc
 

Welcome to Neuro Talk. You found a good place to be, where there is support and friendship. I am not familiar with your condition, but there will be others who may know more. Explore all the boards and answer anyone you wish to. Make yourself at home, and know that we will support you here. ginnie:hug:

I'm a SFN Girl too
 

[QUOTE=SFNgirl;979896]Hi Sarah

I have small fiber neuropathy so suffer from nearly constant pain. And with it, I have damage to autonomic nerves. My blood pressure drops suddenly upon standing, or leaning over, etc. I am trying lyrica now after no success with gabapentin for the nerve pain. They didn't really give me any advice on the blood pressure stuff other than to stand up slowly and be careful. The recent warmer weather here in chicago seems to be better for me than the cold, which is a real trigger for my worst burning pain. The bad news is I live in Chicago, not many warm months! But I'll take what I can get. I'm sorry you are suffering, but I can relate, and hope you have some better days ahead.[/QU


I am a SFN girl as well. I have had it for 5 years now and am interested in finding someone to talk with on this site that is dealing with the same things as myself. How long have you had it? What treatments have you tried?

[QUOTE=why?;980474]Hi, I have had SFN for only 7 months but feels like has changed my whole life. I'm told there is nothing to do but treat the pain and that it's not curable. It's really unbelievable to me that I will have this forever. In my case, they cannot determine the cause so call it idiopathic. Have done tons of testing, my neuro still testing for rare autoimmune type stuff. I did 2 months of steroid infusions (solumedrol) w no luck. Also tried gabapentin up to 2700mg per day. I am now taking tramadol (300mg) and lyrica (300mg). The tramadol seems to be the only thing that makes some difference. Going to try the lotion mrs D has recommended, posted on other threads. Have an appt at johns Hopkins in October, amazing how long it takes to see some of these people. What have you tried? Do you know the cause?