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Medtronic AdaptiveStim Spinal Cord Stimulator
I am thinking it might be a good idea to have a separate thread for this technology. It's very new and patient feedback may be important as time goes on.
Mine went in 8/17 and I was the first patient my pain doctor had implanted with this particular technology. So far the AdaptiveStim (AS for ease) has not been turned on yet - that's supposed to happen later this week. The one thing that really struck me today is - I wonder if there is anything about this new technology that would cause mine to 'stutter' as I discussed in this other thread. I'm hoping others with this device will stop out here and post their experiences, good, bad, indifferent. |
Andy I don't have one of these I have a St Jude model, but are you saying the tottering is actually present without the unit being powered up/on ??????:eek:
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Great idea Andy, to start this thread. That way people's eyes will go straight to this, without having to weed thru a bunch of other threads to get bits and pieces of info on this unit.
I sure hope you'll get some answers real soon regarding the stuttering. Rae :grouphug: |
Nope
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I don't know if I'm being overly hopeful but it seems like maybe it's not happening as much as week 1 post-op ... time will tell. |
I have a st. Jude eon myself andit would be interested to see how each works. I loooooove mine.
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Andy I did have those exact sensations you're describing with a completely different scs. They are gone now. I think scarring helped a lot.
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Thanks TK
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I'll try to be patient...in all honesty I think it might be better now than it was immediately post-op so ... 'hang in there, Andy'! :) |
I'm not much for patience and the day I fell I texted my rep in a panic, but everything was great. Thank goodness! I have cycling programs I really enjoy. Idk if Medtronic does those but they are nice.
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Cycling?
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Hi Andy
I have the Medronic Adapative Stim. I had the surgery in January 2012 and a revision done in April. Medronic just had this type of stimulator approved in December. They "released" the battery after the 1st and still haven't released it from April's surgery. I did like it and I think its amazing that the stimulator knows when you sitting, standing or laying down. You will like it just because you don't get that jolt like you do now when you change positions. I'm just having other problems. They can't seem to program it where I need it. I think its because of all of the surgeries I had and the scar tissue is in the way. I have the pulse set at the highest it will go--1200--and it drains my battery every day. What a pain to have to charge it every day. :mad: Well hopefully you will feel better and like the adapative part of the stimulator. Good luck and welcome to the world of SCS's
:grouphug: |
Well How COOL Is That?
Two adaptive stims in one neighborhood?!? Wow! I was hoping someone was going to be able to give ON POINT responsiveness to your inquiry and BAM Lynn comes in and bats one out of the park!
I sure cannot fathom the stuttering you have been enduring in your stim. Of course, mine being another type of unit, I have not known anything such as you describe. Just pay attention to the warranty on your unit in case that stuttering does not S T O P; because, if you get real close to the push you are going to be running out of luck if the company is not put on notice. Why do I harp on a warranty? Oh, I thought no one would ever ask..... it has something to do with the fact of my remote control having died early on in the life of my unit JUST beyond a year after the implant. I got ahold of the company who manufactured my unit and learned "hmmmmm, seems your remote unit is OUT OF WARRANTY Mr. Mark........" Sobering words to hear when you learn the itsy bitsy remote item markets at $1500 a shot. No one had mentioned an "extended warranty" program, so I bought the extended warranty the second time around. Regarding my stim unit itself and its charger, both are working top notch for me. I am pleased as punch. Now as to the two of you with adaptive technology in your innards, I hope for both of you the stims work Precisely as advertised, that Andy's will settle in if that is what is necessary, and the whole situation will become a good result for the both of you, Andy and Lynn. Adaptive technology, and to think years ago, adaptive technology was this little bit of mercury in a vacuum tube with an embedded wire, all strung on a wheel and armature and they called that little bit of adaptive technology a thermostat. What will they think of next? Prayin for ya, Mark56:grouphug: |
Lynn/Mark
Thanks to both of you for your response.
Lynn - wow, 1200?!? And having to charge everyday?? Bless your heart! These things take hours to charge! And thanks for letting me know you also experienced the stuttering. I'm cautiously optimistic that it'll go away in time. 'Course I TOTALLY forgot about this thing the other day and bent right down to do something on the floor! MAN was I upset with myself. But - I feel no difference in the stimulation so HOPE I didn't cause any migration of the probes. Mark - yes, the technology in these things is amazing. I so remember the part of my dad's business that was the Avionics repair center (he owned both Avionics (radio equipment in a plane) and Instrument (how those guys fly in cloudy weather!) and seeing the inside of those radios...and the TUBES everywhere! I now have the Six Million Dollar Man "running" .MP3 as my ring-tone on my phone! LOL! Couldn't resist. I often think of Daniel 12:4: (NASB) But as for you, Daniel, conceal these words and seal up the book until the end of time; many will go back and forth, and knowledge will increase.” |
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It's great to see you back!! :hug: I'm sorry you're having these problems. Charging every day would be a hassle. I sure hope they can get past the scar tissue somehow and get you fixed up right. Rae :grouphug: |
Sorry Andy, didn't see your question till just now. It's just where it's on for a certain amount Of time and off for some. Right now I'm 10 minutes on/2 minutes off. Saves the baterry lol. I'm a high frequency person I usually charger every day or two. Anyhow, we are still tweaking and I am still not 100% satisfied, but I know it can take up to six months. Hope all is well with you!
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Oh, and Lynn, I go pretty strong, too and I charge every two to three at the most and you should have seen us tearing the house apart the other night trying to find when I lost it!! It looked like a tornado came through the house. It was in my husbands backpack of all the weird places lol. But we found it,and that is what counts.
Oh, and I still try not to bend as 1) my foot is broken at the moment 2) it will be 8 weeks Tuesday and 2 months September 10Th since surgery and 3) I still can't lift. Yes, fun times. I wish I could have recorded it; I prolly would have gotten a tv show out of it lol :grouphug: :) |
Hi Rrae and Mark
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Hope is all well with everyone here. I'm going to try and sign on more often. Take care and hope everyone's weekend was great. The last before we go into the fall--which means damp cold weather --ugh!!! :grouphug: |
Stim-Stutter Woes
I know I started a different thread about my stim-stutter but since this forum is unique to the AdaptiveStem I thought I'd post out here instead...
My Stim seems to be stuttering worse than ever and I have to admit I'm starting to get a little uneasy...and my beloved was in tears last night as she was already "going there" with me having to have another surgery to have the pulse-generator replaced. I assured her it's still too early to tell but in my heart I am really starting to wonder. :( Would appreciate some targeted prayers about this...that the PG is fine and the stuttering will indeed ease up in the coming days. |
Mark ....
I did see your last message in the other thread (Buzzer is stuttering) and I can assure you, I will be pushing back VERY hard tomorrow morning...I'm going to 1. Insist the Rep contact "upstream" and 2. Find out where I can call when I have a "tech support" issue.
Also, just an FYI more than anything, the AdaptiveStim is the first PG that is no longer affected by the external environment. It dissipates (sp?) any low-energy that hits it - it will not react to magnetic fields, metal around it (including the staples that were there), even the hand-held security wands or airport security systems in general. Now, the probes? That's different...Rep said in about 2 years they will finally get that puzzle resolved and patients with the new technology will finally be able to have full-body MRI's again. Right now this device does allow for head-only MRI's (he said it's the first to be certified for that, don't know if it's true or not). All this sounds so nice and wiz-bang but if this P-generator is really is defective I'm not going to be a very happy camper! Now, I certainly understand no company can make a perfect product every time...can't tell you how many times I've unboxed brand-new computer equipment and found something faulty right out of the box - it happens. But when it involves another surgery they need to take EXTRA care to ensure everything is working. |
Andy
Hi Andy
This needs to be addressed asap I feel. It doesnt sound right at all. You need to get answers and get them now!!! The last thing you want is another operation and to go through all that not long after having one already. I do hope you get the answers and its just a technical 'glitch' and nothing too serious that renders surgery Take care Jackie :) |
Prayers on Target as Requested
Hi Andy!
Praying regarding your PG and the stuttering, AND the ESCALATION the company needs to seriously take regarding your implant. You put the finger right on the center of the target with the illustration since this technology is live implant into living beings the product itself should be out of the box perfect from the get go. There is no easy switch out of video cards or monitors on your bodily application, so there should be NO ROOM FOR DEVIATION ON SPECS OR APPLICATION, if the company requires a disclaimer signoff among your surgery papers [pull them out and rifle through them looking to see whether they required you cut them loose on the dotted line], then before the implant began, a serious indication was given how they would stand behind it. This entire scenario is beginning to resound with a clanging of bells in my head as I contemplate personally the means by which each of us is "asked" to sign off on the forms. My experience now that I contemplate it seriously?? First one is gowned in the Reveal All 2012 hospital attire, one size fits all sizes and genders; followed by the "here is an IV with saline" so there is a rockin ready way to easily administer meds and anesthesia; followed by a shot of antibiotics then a "little something to help you feel more at ease;" followed by a last "please sign here, here and here" before one is whisked to the OR. Why did I go through all of this? Because I presently remember absolutely nothing other than taking pen in hand and scribbling...... not the kiss goodbye with my wife, not being wheeled to the OR, not arriving in the OR, not the awakening in the recovery room, and not the travel thence to my beautiful private hospital room [it was very nice, and so were the attentive nurses]. First thing I remember is awakening "sort of" to the motion of spooning soup into my mouth as I sloshed it all over my brace because I was so "out of it." I do not remember one whit of what I signed. Does this ring true with anyone else? How about that? I cannot remember things. I realize this is part and parcel to the phenomenon of general anesthesia...... but going back a couple years into my past then to attempt recalling whether I signed anything for Boston Scientifc, I have absolutely no clue...... and this is from one who has been a litigator and litigation manager senior partner. ARGGHHHHH! There goes that pirate in me again.... Huh, so what if??????????????? Even so Andy, I pray for you and your sweet wife regarding this issue, and I am so hopeful your issues will all abate, the stuttering stop, the Pulse Generator do its thing properly, and your Rep make an about face and "go over their own head saying 'folks we have a need to fix a problem for Andy here' " as such are my prayers for you, brother. Prayin, Mark56:hug:zzz:grouphug::smileypray::smileypray::s mileypray::smileypray::smileypray: |
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all in chronological order beautifully reminded wow it is probably the same in all but i do remember the papers being signed by me have no copy without my glasses when i was ready to be taken in the or thanks for the memories first surgery i heard my butcher say while so called under "look at this mess" that he did someone who cares |
Yup - Mark's back!
As usual, brother Mark, you have quite a way of really touching the hearts of those you write to. You truly have a spiritual gift there. Thanks so much for sharing that gift with the rest of us out here.
I had quite the opposite experience with my implant procedure. I was way to AWAKE for the entire process up to the surgeon actually cutting me open to tie-down the probes and implant the buzzer. I was quite miffed about it then and still am. There was no reason for me to be that alert during that nightmare. I have very vivid memories of her 'sticking me', then inserting one probe and sending it up my spine...then the other. "Take a deep breath, Andy" ... Yeah, I'll give you a "deep breath" ... how about I give the anestheologist a right hook! No, I don't think I signed anything that I will regret later...but I am wondering what will happen if this thing proves defective. Another surgery - who pays for it? Surely they won't expect my insurance to pick that all up - and I'm sure not going to! I would think Medtronic would have to eat that one but...I don't know. This whole thing is so new to me. I'm not looking forward to the upcoming battles...and I know I shouldn't concern myself with the 'what-if's' and things I don't have control over nor do I even know what's really going to happen. It's just not fun to contemplate so ... I'll think about whatever is true whatever is honorable whatever is right whatever is pure whatever is lovely whatever is of good repute and if there is any excellence and anything worthy of praise.... these things are what I will endevor to allow into my mind. (For anyone wondering that was the NAV (New Andy Version) of Philippians 4:8) |
Wulllll Andy
May I send off for one of those NAV to go with my Study version? I feel as though you paraphrased quite well!!! Yes, I strive to live in the Word, for it brings solace to know we are always accompanied, even when we are without the presence of others of our brothers and sisters.
Life toils are so often troublesome. Goodness, all one must do is casually peruse the pages of this particular thread to arrive at the realization God created some VERY tough people here who live through things one would usually pick up with a pooper scooper. It is interesting, for at work I am variously referred to as the Lion or the Bear or a Comforter..... depends upon the need, but when Righteous Indignation and Battle are called up, the Lord showed us in the Temple how one deals with "moneychangers" or with David how one steps up to a Goliath. Sure, any one of we who are minnows alone are but protein a whale may strain through its baleen, but together the whole of us could just as easily choke that whale. Think for a moment..... I have groused and groused about political folk who secure an elected post in D.C. and vote raises, guaranteed retirement after a single term of office, oh, and my favorite- exemption from the so called health care reform. Together we could all throw off the yoke of oppression with our votes if we would but awaken as Japan realized after Pearl was bombed. We take awful circumstance, and if for the sake of our health, our family finances, the well being of others as with you, we seek a class action counsel so as to choke the proverbial whale. This is the maneuver for redress when numbers of people are provided mal-ware-widgets and one need not die in a pinto fire to have redress. Advice thus sought can provide answers to the questions am I at risk of having to pay to fix the problem? Will the provider/manufacturer take care of this? What is next? I cannot advise what is best here, only deliver generalities with pointers to professionals who may opine regarding specific situations. As for me, when I have needed legal help I went and secured it so those responsible would ultimately pay, and they did...... Christ never told me I had more than two cheeks when it came to turning.... Yup, Mark56:grouphug: |
Re: Prayers on Target as Requested
Thanks, brother!
Long visit this morning. Jason (Rep) is 99% positive it's not a defective PGen...said so more than once. "There's a 1% chance it's bad". He then goes on to give this explanation of how he talked to his coworkers, one of which has 20 years in the field, and said, 'No one has seen anything like what you have going on'. I'm not sure how this was supposed to help but I told him, "As a technician, Jason, all that does is tell me I got the one out of a million bad PGen's. Now if you had told me your coworker has seen it a dozen times and 'this' is what he did to fix it, then I'd agree with your assessment that it's probably not bad." Doc walked in and he rehersed the entire conversation to her. I told her the same thing - if he's never seen it before that tells me (etc) and she nodded her head. Having said that Jason also said, "We have a lot we can do with this thing to narrow down what's going on" and he removed ActiveStim, added the ability for me to control both the width of the pulse (he said they don't do that unless they feel the patient is technical enough to handle all those settings - not bragging, just letting you know I have a L O T of work to do) and he wants me to start ramping up one program, by itself, document what it's doing (the stuttering), mess with the pulse-width, amplitude (etc) and see what it's doing....then move on to the next, and the next (a total of EIGHT programs, each one with multiple variables to work with and document....) I got my work cut out for me. So far it's doing exactly what I knew it would...stuttering whether the width is set to 'comfortable' for me (450) or if I turn it all the way to minimum (210) - the stuttering continues. Now, back to my doctor: She said, "Give me a week...I'm going to write to my guru's and ask them if they've ever seen this. These 6 guys are my go-to folks when I have a question." I thanked her profusely. She's really something and seems to really "get" what's going on with me. She knew I hadn't had this during trial. She remembered I had this problem right at post-op with the implant. I think if I were to point-blank ask her, she would agree she suspects the PGen is bad. Onward and upward...one day, the 'upward' will be a reality... Thanks for caring so much - EVERYONE. While I don't look forward to all the 'fuss' I have to go through it's not all that bad, really. Yes, I'm having to endure more pain than I was with Trial because, bottom line, this thing isn't working as well as it's supposed to! |
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and who better than you to tell them about what you feel on the inside i Love it that you took CHARGE of your body and convictions YOU GO someone who care |
Grrrrrr......
Ugghhh....how frustrating this must be for you, Andy! I sure hope you or your doc can find a resolution to your stuttering SCS very soon! Hopefully it can be fixed and you can get back to that wonderful level of pain relief that you experienced previously!!
Meanwhile, I'll keep praying for you! Hugs, Jan :hug: |
Andy.....andy.....andy.....andy!!!!
Can you hear those CHEERS from the sidelines and the stands brother???? They are for YOU!!!!
Run that ball all of the way to the goal line!!!!!! Then SLAM it!! You know the real deal. You argued your way into programming. I understand from my doc I was the first on planet earth to be allowed to program myself [so he invited me to write an article for a medical journal he is still trying with a collaborative doc friend to publish] and it does work, that is if the unit is worth the material out of which it was fabricated. This thing has never stuttered ONE FLICK, never hesitated ONE MOMENT, never BURPED!! Play it hard and play it long as you know you can until you wring the best out of it. Document, document, document...... WHY????? Because that documentation becomes called Evidence in the proper circles. MAYBE, just MAYBE even after all of your hard labor on this you will discover programs which actually work for you! If you do discover them, you will have achieved that which Coral Toe and I have come to know for real in our own bodies, and God will have smiled upon you with GRACE. It is a blessing your rep was willing to listen. You are so absolutely correct, if the unit does not work, your rep will have become the expert witness, albeit an adverse witness, who can tell the story you ARE the 1%. If you are ultimately delivered from this misery which brings tears to the caring eyes of your wife, you will have achieved an wondrous end game. The rep listened. That is good. You are in the pilot's seat, and as one who has sat in the co-pilot seat at 41,000 feet, I know that is one great space to occupy. YOUR DOC??????? IS IT POSSIBLE she is related to my pain management doc? I mean, their demeanor is so so similar! Taking the case to her gurus, a great thought. A great admission. A demonstration of true compassion for the patient. Brother, I am praying you through this, and if you need any more cheering, thoughts, stuff....... I am here, and you have my PM, my number, my willingness to do anything to help with the stuttering which could drive one MAD [not angry.... mad with unrelenting pain topped with the crazy making pulsations]. I guess I had better shut up now, before I become a babbling brook, Praying for ya, Mark56:hug: |
"Babbling..."??
You just keep right on babbling, my friend! Your "babbling" really brings a smile to those that you write to AND to anyone else reading your interaction with everyone. You're one, caring, TRUE, friend...and there are several others out here that I would absolutely say the exact same thing about...thank you ALL of you.
You're right, Mark, obviously while I'm in all this "documenting" mode I'm also dealing with increased leg-pain because the programs that work the best for me are set by the wayside while I run up and down the gammet of the other ones. Jason called he late this afternoon and informed me he really wants me to test every single program even those that don't work with the pain area. He wants to know if the stuttering affects all programs, both leads. Okay, fine .. except for one, minor problem (NOT minor!): Two of the "B" program set affect my lungs/chest! I don't think so...I have enough trouble with asthma - I don't need a stim messing with the muscles that affect my breathing! I have a feeling another visit with another set of programs will be added. I can assure you, he hasn't let me touch that master programmer yet. All he did was add some additional capabilities to the patient-programmer device. A programmer, I am not - I wish I were. I'm struggling right now @ work with some PowerShell scripts and am pretty lost! They gave me rights to our Print Server and I need to .... sorry, that's WAY off topic! Maybe I'll TM you or even give you a call sometime. BTW, don't hold your breath for that one....I despise the phone! I blame it on being a help desk tech 15+ years ago but ... alas, I think it's just my stupid pride! Anyway, I appreciate everyone's prayers and also want to assure each of you that I pray for you as well. Each person must carry his/her own burden BUT we are also commanded to help each other with that burden. Is that a contradiction? Nope - there's room for both and in this forum we're all about the 'helping each other' portion of that. :grouphug: :grouphug::grouphug: to all! |
Checkin in.....
It's been a few days, Andy, and I'm just wondrin how you're doing?
This seems to be a pretty sticky situation and I'm sure prayin that it will all turn out to be something of an easy fix. All I do know is that Medtronic BETTER see this thru and do whatever it takes to get you up to par, and 'eat' whatever extra cost this may or may not involve. You hit the nail on the head up yonder when you said that these units need to be tested and REtested BEFORE they go into a human body. Good Lord! Yep, I'm prayin 4 ya, Rae :grouphug: |
Thanks, all
I've been extremely busy these past few days and, quite honestly, a little bit 'down', I guess. I am continuing to read the posts out here and pray for each one as I read them, but as you noted, I've been a bit absent. Mark, I did get your TM tonight - thank you. We are really in 'crunch-time' with my two sisters coming down from Michigan to visit in about a week or so. My poor beloved bride has so much on her shoulders with me being so limited. :(
Latest with the stim unit is - I have identified two of the 8 programs where it does NOT stutter. I don't know what this means but have an appointment tomorrow afternoon at 4:00 with the Rep and doctor. I am fairly certain an X-Ray will be shot to see if the probe (s) have migrated, which I highly suspect. My prayer is that even if it has migrated that we'll be able to 'program around' the migration and, thus, avoid another placement surgery. As for the P-Gen - I am pretty convinced it's defective and wait to see what Jason says about the 2 programs that don't stutter and find out what's next. Again, I appreciate each of you! It sure helps to talk with others that are going through similiar circumstances. I do have my church-family and they're wonderful but there's something extra-special about having others that are familiar with this technology and the nuances of it. Get this, folks, I got a statement from the hospital with the total charges. Good grief, the hardware alone was a couple bucks shy of $80,000!! It sure BETTER work and it should be made out of pure gold! Total surgery cost - just under $98k. Good grief, I think I'm in the wrong career field! |
Well......
I have a sharp Sw Army knife I could loan ya, if you are thinking of changing careers and becoming a surgeon Andy, but, I reckon you might have some schooling and a bit of residency to complete not to mention exams, boards, and all of the fol-de-rol of trying to be licensed in that Lone Star place to practice medicine..... then they probably would not allow you to use my knife. But just in case, it is here somewhere.....
I do hope and pray the identification of the troubles with the unit is close at hand and REAL help is only a short bit away. The frustration at being limited when you want to help your bride prepare for family to visit has to gnaw at you, for I know the experience well myself. The Lord be with you in all of this Andy, you answered the TM via your post, save your time for something more needful, Yup, Mark56:) |
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What Mark said. Hang in, hang on, and know that the Great Physician is holding onto you. And enjoy the visit with your sisters! I'll be praying that it will be a blessed, happy time for you all, and that your pain will be under better control by then! Lotsa Big Ol' Texas-Sized Hugs, Jan :grouphug::grouphug: |
Now THAT is One Warm Fuzzy Post!!
Yup, Jan, that was pure warm and fuzzy!! May it be so for sure, and Blessings on you as well!
Mark56:hug:zzzzzzzz:) |
Android-Andy is Back
Wow...so much has happened it's almost a blurrrrrr
Between nearly losing my mother-in-law and all the craziness of getting ready for my family to come down...and my silly Stim unit, sometimes I'm not sure which way is up/down/upside down! So...I'll try to make the long story short. My Rep turned out to be an excellent troubleshooter and he finally got the impedance test to FAIL ... ran a real quick test WHILE it was stuttering. Voila! There it is. TWO contacts are shorting. Yep - out of 16 possible contacts (on 2 leads, of course) two are bad. Nice for $80,000! So...he went to work and programmed all around those two bad contacts and got the coverage almost as good as before. The "before" being when it stuttered...the coverage on that set of programs was truly amazing...the goofy thing just stuttered like crazy. So here we are, my P-Gen is fine, the two leads are fine except those contacts and I have good coverage so - I'm letting it go, for now. He showed me some published statistic that showed when 2 contacts are bad the 5-year outlook showed something like 92% success-rate. Yes, I could force the issue and make them switch them out now but....I'm not interested in repeating the surgery AND in 5 years new technology will be out (he said Medtronic is within 2 years of an MRI safe model). So I think for now I'll enjoy the coverage and ActiveStim (that really is COOL!) and let things go for now. |
Tgft...
...which stands for Thank Goodness for Troubleshooters.....lol! Seriously, Andy, I'm sorry you've had these troubles, but glad that they're maybe getting to the root of the cause. Still, I think it's only fair that they write you a big check for $10,000 since 2 of those contacts weren't working correctly....think they'd go for that? I'm thinkin' probably, um, NO.
I'm just so glad that you now have good pain coverage, and will keep praying that it remains so, Brother! Enjoy the wonderful respite. And thanks for the info about the hopefully upcoming MRI safe model! Hugs and Hope, Jan :circlelove: |
Love the math!
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Oh well, it's all in the hands of the Father of Love and Light. He's always taken care of me and He will continue to do so. I'm just getting around to mailing in the warranty registration for all this stuff - if the unit is going to completely fail I sure hope it does so before whatever warranty is on it doesn't expire. :) :hug: |
Yo Andy-Roid
Realizing a Blessing out of a dismal beginning, so you have SEEN light! Programming around? May it bless you for as long as you need the stim!! Be nice not to have to go there again at all, eh?
Yup, Mark56:grouphug::) |
Doin' the happy dance from the wheelchair. :D
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So Cool
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Mark56:Heart::Dancing-Chilli::Dancing-Chilli: |
Hurray!
Answers do cometh! Good for your Rep to get down to business and good for YOU Andy for pushing the issue until you got answers!
I hope your mother in law is ok? Rae :grouphug: |
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