Aubegio
 

BG-12 and then Aubegio has FDA approval. Waiting to hear from those who try either.

I have a neuro appt in November and I am going to ask about the bg12

I didn't think the BG-12 had been approved yet. The Aubagio was just approved and I think they said October for commercial release.

AO - Atlas Orthopedic: Anyone hear of or doing that? This Interests me. (CSF interests me)

I started Aubagio
 

It took me about 2 months to finally get my starter kit for Aubagio. I've not taken it for two days. The first night gave me horrible diarrhea, prickly feet, feelings of nausea and it has made me fall because I am having a very hard time with walking now. I took my second dose and am waiting to see if my body can tolerate it better tonight. We shall see...

Doc, do you take 7mg or 14mg? Maybe the lesser doseage may lessen the sides?

I read about it and personally, don't like the possible unhealthy sides.:eek:

All that being said, I hope it works for you with minimal side effects.:hug::hug:

Hi Sally,

I'm taking the 14. My neuro wanted 14 based on the comparisons but I really cant remember him saying 14 has a better outcome than 7. I thought he said they are about the same. I'm guessing he must have said 14 is better than 7 but really cant remember what he said. 7 is a good idea. I've had more prickly hands and feet, numb right hand all night and nausea. Walking has been harder and I'm super cranky.

For some people More is not always better.:hug:

I agree Sally and I'm such a light weight with meds. I'm nauseated all the time now

OK, I got my liver test back after only take it for about 7 days and it was much higher than the baseline reading so I stopped Aubagio this weekend. I still cant walk and my neuro will be upset with me for stopping, because as he said, "It cant help you if you don't take it." My opinion is "It was not helping me when I was talking it, in fact it made me worse" so I hope to stop being nauseated soon, very soon, and I hope to get my walking back to the way it was. I know my neuro wants the best for me but I know it is important to listen to the patient and don't tell the patient "that med can't do that!" when I'm the one living it and I know my body... Anyway, I am happy to be off.

Sorry you're feeling bad from the med...I had a similar reaction to Ampyra-so nauseous. Neuro said "that's not one of the side effects." ask me if I care--I discontinued it against his advice.
Hope your walking is back soon-let us know how you're doing:hug:

Anyone else on this med?
This is from the NMSS:
"Of two different doses tested during the TEMSO trial (7 mg and 14 mg), the higher dose also slowed progression of disability. Both doses also had a favorable effect on several MRI measures, including a smaller increase in total lesion volume and fewer new and actives lesions compared with placebo."
"Note: Aubagio remains in the blood for an average of eight months after a person stops taking the medication, but may remain in the blood for up to two years after the last dose. If necessary, for medical reasons or because a woman has become pregnant or a woman or man wishes to conceive a child, the medication can be eliminated from the body in 11 days with the use of cholestyramine or active charcoal."

I have been waiting on BG12 for what seems like forever!! However, my neuro doesn't want me to continue waiting as I am having increase visual issues (decrease visual field, and continued RAPD) So, he want me to start the Aubagio and change to the BG12 when it comes out.

I've been on Gilenya for about 8-9 months or so and having a pretty bad relapse now. So the neuro wanted me to stop immediately especially since my WBC was low at 2.0. Something in my blood tests also showed lack of protein or low protein but I have a lot of protein in my diet so I'm not sure what that would be caused by. I don't have the copies of the blood tests yet but the neuro had them faxed to him from the PCP. I go for an MRI on the 13th then he might want me to have steroids. He is suggesting Aubagio as the next step but I don't know what to think. :confused:

I get lower back and tailbone pain, a dull ache, then my legs start to give out. I'm still too stubborn to use my cane at work which I really need to do. I called off last Sunday because of the walking problems.

So sorry Wiz. Hope Aubagio works for you, if you decide to take it.

Feel better soon.:hug:

Aubagio 3 years now
 

I have been on Aubagio for 3 years now with no new lesions on MRI's and no terrible flare ups. I think my symptoms have gotten worse and there are new ones but my doctor says I am stable.

There have been no bad side effects either. But I can't tell if something is a side effect or just MS so I'm not sure. It's worth a try, I think.