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-   -   Zanaflex (https://www.neurotalk.org/multiple-sclerosis/177138-zanaflex.html)

KittyLady 09-28-2012 12:03 PM

Zanaflex
 
Anyone taking zanaflex for spasms? Neuro is switching me from baclofen to zanaflex. Wondering if it will really help with the spasms. I was taking so much baclofen each day and it still wasnt stopping my spasms.

Catch 09-28-2012 05:15 PM

I take zanaflex and it definitely helps me. Taken regularly, I hardly get the hug, though the back spasms usually are relieved better by taking a zanaflex and a nap. They can make me sleepy if I'm already tired.

Good luck, let us know how it goes.:hug:

JTwin 09-28-2012 05:25 PM

Response to KittyLady
 
I have taken both Baclofen and Zanaflex for spasticity. Zanaflex worked quite well for the spasticity but I couldn't continue to take it because it caused my blood pressure to plummet. Watch out for that. Otherwise, good luck. :)

SallyC 09-28-2012 07:38 PM

I've never taken it but good luck with it. Hope it works for you.:hug:

tkrik 09-28-2012 08:07 PM

I haven't tried that one. Let us know how it works for you. :hug:

daisy.girl 09-28-2012 08:49 PM

I am on zanaflex....it will make you real tired at first. My script is for 4mg 3x a day; and that is way too much. I can break the 4mg tablet in half.

A whole one at night really helps me to relax and go to sleep, too bad it wears off after 4 hours.

Good Luck, let us know how it works for you!

Mariel 09-28-2012 09:18 PM

I was weak on the very first Zanaflex dose, which must have been small, since my neuro usually started things small. It too so much spasticity out of my legs that I could barely drag myself from the car to the house, and in those days I was usually walking well (not so well now, many years later). So I had to quit.

KittyLady 09-29-2012 12:54 AM

Thanx everyone. I took my first dose tonight which was a 4mg, cut in half and no drowsiness at all, but it did help with the spasms. Took another half 6 hours later and my amitriptyline and Im STILL awake!! But... no spasms :D This is going to be another all nighter I think.

Debbie D 09-30-2012 06:19 PM

I had been on baclofen & it didn't affect the spasticity at all. When I switched to my present neuro he switched me to zanaflex & I was on the maximum dose...til I ended up in the ER a couple of times with low pulse/BP. I was taken off completely. My spasticity is increasing after 6 weeks of remission...but I don't want to end up ack in the ER. I miss not having spasms...:(

KittyLady 10-01-2012 12:33 PM

Update
 
Ok, I took zanaflex for a few days and wound up having hallucinations from it. I was so freaked out I called my dh and almost crawled into the phoone for my protection. He couldnt leave work but he tried to talk me down and I wound up staying awake ALL night waiting for him to come home. It was horrible. Im sad this happend, because the spasms were better controlled with the zanaflex. Im back taking baclofen for now until I can get ahold of my neuro Wednesday. I had split the 4mg tab in half like he told me too, so I wasnt taking the full dose. I wish I could go backwards by about a year, when my MS didnt hurt. I had this my whole adult life and part of my teen years. Im so frustrated with all this bloody pain!! :mad:

Debbie D 10-01-2012 04:23 PM

It's one of my worst symptoms...hard to believe docs didn't believe til recently thatMS patients were really experiencing pain:rolleyes:


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