Leg and body pain @ nites
 

How do you control MG the pain in your body and specially in your legs during the night. I believe that is from all the walking and errands done during the day. What should I do? How much aches or pain can you or I tolerate? I take mestinon only twice a day.

Thanks for posting this topic! I have just been a very interested observer on this site so far but I had to comment on this one!

I suffer leg pain at night. It's so frustrating. Mainly the lower leg and usually when I've done a little bit of walking. I'm lucky unless I'm really fatigued I can walk about 1/2 hour without problems. My symptoms are upper body, mouth and eyes. But my problem is that while I can walk ok without problem I seem to pay for it at night. Why??!! I try and walk as its good for me mentally, keeps my weight stable and as I'm on Prednisolone other nasties away. I used to love long, long walks and accept that maybe I won't be able to do that again but I so want to walk at least 30 mins a day.


**

I too have leg pain, especially at night. It seems to be more pronounced when i lay down, as if gravity is somehow lessening the pain (maybe blood flow issue?)

Re dealing with i use hot and or ice compresses and i take 2 alleve everyday for aches and pains in general

I take one or two Arthritis Strength Tylenol EVERY night or my legs keep me awake. :( My pain is always in my lower legs, too.

I was taking 2 ibuprofen tablets every night, but my neurologist got all worried and said that it was horrible to take that much. Does anybody know if ibuprofen will kill you?

Leg aches or pain
 

I assume that is from what you did during the day. Walking or any activity done cause the issue. That it is my personal opinnion. To Southblues, I am not sure but is not bad for your stomach? I take neurontín @ nights. But I have read is bad for MG. Even with neurontin I can have a strong pain that wont go or let me sleep.

It doesn't bother my stomach. He is convinced that daily ibuprofen will cause kidney failure. I have never had any bad kidney tests.

My leg pains are inversely proportional to the amount of liquid I have absorbed during the day...
Maurice.

More liquid, less pain or opposite?

Leg Pain-aches
 

I do not know, my pain is related to Myasthenia Gravis. Do you have Myasthenia Gravis? I gained lots of weight from some medications including prednisone, and since I am losing weight dieting I am not swelling in my legs. Also I used to have swelling from sodas, specially diet coke.

Leg Pain-aches
 

Do you all know that if you have Myasthenia Gravis you can get support from Muscular Dystrophy Association. I found out last week. The web http://www.mdausa.org I have an appointment with them nov. 5 and I am going to ask about what medicines I should not take.

I would be nice if you would share with us what they tell you about medications.

Do you take mestinon? They increased for me so I got more energy to walk and do things, but BUT @ night I pay with the pain. I told my doctor that not even a shot of toradol has worked, so I tried flexeril (which is strong and you can buy it here without prescription in Puerto Rico) now my doctor prescribed to me but I can't take it in weekdays cause I take my son to school and it's hard to drive all drowsy. I am using neurontin @ night even that some people with MG say that it's a blocker.

Hi Steph C and PRgirl53,
Yes, I'm beeing treated for MG since 2007, presently with 5x60 mg Mestinon and 8 mg Pred every day (still tapering), stopped Cellcept 7 months ago for lack of results.
The more I drink during the day, the less leg pain I have during the night.
I drink preferably water and cranberry juice (Ocean Spray) plus one glass of wine (french of course!) every day...
Maurice

Interesting, i usually try to drink 3/4 to close to gallon of water day but never noticed if correlation. I will pay attention to that

Neutro, prednisone causes cramps every where in your body plus I was swollen and I gained 60 pounds. I have lost 33 with a doctors diet and I keep going because I know I would be on pred again someday cause I have a lung disease too. My ache/pain is like when you are having a bad bad "flu" or when you are running fever. I am just trying to forget until I fall asleep, since I cant take pain killers during the week.