To Annie,
 

Just wanted to thank you for helping me understand quite a few things.

:Thanx:

And I believe I am not the only one who feels that way.

Ditto that - again glad you are back!

Steph

Yep, I agree. GREAT to have you back!!

Love the way your mind works.

Still marveling over the absolutely logical statement you made a week or two ago..................something along the lines of docs saying MG is a progressive, debilitating disorder WHEN they are doing research, but the rest of the time telling us and the world it easily controlled and allows for a "normal" life. WHY didn't my stoopid brain ever "catch" this??????

Again, LOVE how your mind works!!!

Also, SOOOOOO appreciate how you give of yourself to help others. Typing long replies with lots of info cannot be easy -- but, you help more than you'll ever know. I'm sure that there are MANY who visit, learn from you, and never utter a word in the forum.

To Annie
 

I may have read this wrong, but I have a question. Did I understand you folks to say that MG is progessive, and that we are told it is not, or did I get that wrong. I am fairly new to MG and had not heard that. I always read and heard that after about 3 years or so, it was usually as bad as it would get. I have had symptoms for 3 years or so, and mostly mild compared to what I read here that some of you go through. Only confirmed about 6 mos ago. So, just a question about what to expect.
Thanks for any answers
FREDH

Yes! Annie, I am one of probably many who has been learning from you without you knowing it. Thank you.

Fred, I hope somebody answers that. I am in the same boat that you are in. I can live like this though I wish I were better. I don't want to go on if I am bedridden on a respirator.

What my understanding is this:

Some people get better.
Some people stay the same.
Others get worse.

I hope that it won't get worse.

Celeste, I hope you get better!

My (limited, I know) experience over the last 2 years has been:
better, worse, better, worse, better, worse

And today:
better, worse, better, worse

And maybe that won't come across right. It's kind of a joke... kind of. I'm having one of those months were if I don't laugh I'll cry, and I've been doing plenty of both.

Fred, here is a previous thread that may answer your question:

http://neurotalk.psychcentral.com/thread163420.html

BTW, I was diagnosed in 2005 with bulbar MG -- probably have had MG since at least 2003. I just developed severe double vision this past year (Fall of 2011). So, the 3 year time limit of progression certainly didn't apply in my case. :confused:

Thanks jana,
That was a lot of help. It backs up what I had heard, but, also leaves it a little open ended. I do not feel that my symptoms have changed, but suppose there could be a least some periods of worse symptoms. Hope Not!!!
Thanks FREDH

Where´s Annie?
 

Hey Annie :)

If you are on holiday I hope you get sunshine.....:sunchair:

If you are sick I hope you feel better soon......:Sick:

If you are having fun can I join you?........:Trapeze 2:

If you are writing a new book can I get a copy?......:Writting:

If you decided to go back to school can I copy off your notes?.....:Clever:

If you are not loosing weight could I join you?.......:pizza:

If you are grumpy can you forgive us with your prize winning sense of humor?! :Crazy 2: :winner_first_h4h:


Many hugs from Anacrusis

Alice, I'm not sure what prompted this thread but I certainly appreciate your intent. I have to say that I think everyone here deserves those kind of thanks. So thanks to everyone for being here too.

Fred, MG is a progressive disease but how it progresses for everyone is different. In women, for example, estrogen fluctuations can have an adverse effect on MG. There really is no way to predict how your MG will progress. Sorry, there are no easy answers with autoimmune diseases. Just take the best care of yourself that you can.

Jana, You so sweet. :hug: I love how your mind works too. Here is how I put it in my book, under the "MG Experts' Crisis" vignette.

Do you guys have times of the year when a load of family stuff happens all at once? This is that time of year for me. My MG has stunk because socializing uses way too many muscle groups all at once. And now I'm "trying" to rest up in order to carve pumpkins tomorrow. Yeah, we'll see.

So that's why I've been AWOL, Anacrusis. Love the many thoughts about that. ;) And icons. I laughed when you thought I might be back in school. I wish. Although I learn something new every day, like how bad I am at being consistent at anything, even though I'm tenacious as H@!!. MG should be ashamed of itself.

:grouphug:
Annie

Oh I SO needed to hear someone say this ´out loud´ and at this time of year :hug:.....my muscles are so looking forward to January :rolleyes:

Thanks!

Annie, I completely forgot about your annual pumpkin carving!! May we see some pictures?? Pretty please?? IF you have time and energy when it is all over!

I'm really looking forward to reading your book! Are you gonna use a "catchy" nom de plume like Myra Green? (Initials for MG?)