New & life did 360!!!help
 

I was a healthy and active 26 year old that had been involved in a high speed car accident over a year ago and it was not my fault.I had a neck injury and took a hit on face and my jaw was popping on one side but was more focused on neck and all the crazy symptoms of flu, headaches, anxiety all the above for PCS (but did not know at time) I first went to chiropractor and did nothing then.

*edit per OP request*

I am not digesting this very well and I need to get positive to make this happen.I am broke, have a child and my life has done a 360!I am lost and hope I can be found.I have no idea who I have been for last year until I found out I found out about PCS a few days ago!Help :Speechless:

MiaVita,

Welcome to NeuroTalk. I am sorry to hear of your injuries and your year of struggles.

You need the very best attorney you can find. You don't say where you live. If you tell us, we may be able to refer you to some help. It sounds like you still have a long road ahead. Please try to take it slow. I know it is hard when your whole life is upside down. Good for you to have your mother help with decisions.

Five different therapies sounds extreme. It makes it difficult to tell which therapy is helping. You need to consider that some therapists will do anything just to be able to bill for services, especially the large corporate clinics. NeuroCog therapy can be intense. Your brain needs slow rehabilitation over months. Many therapists tend to push to try and measure improvements week to week.

What are all of the therapies you are undergoing?

It may help for you and your mother to watch the YouTube video series "You Look Great" at http://www.youtube.com/watch?v=x9Xso...ature=youtu.be

It takes about an hour to watch all 6 segments but it is worth it.

There is a thread here called Vitamin Supplements that has the vitamins and supplements that support brain recovery. It is not a cure but a good way to support your brain and body's needs.

Feel free to unload here. There are plenty of good people here to help and support you.

My best to you.

Focus on healing. If you have a good support system use it fully, you will need it to aid your recovery. IMO it is good to have a lawyer in this respect. If you fully trust your mother then yes allow a power of attorney. It will take you out of that part of the equation which will help lower your stress. Remember to be kind and patient with yourself. Recovery from PCS is not a sprint but a marathon.

Best of luck.:)

I have to do balance therapy, speech therapy, neurocognitive therapy, physical therapy, and I wanted psychological therapy. I am on supplements called Mannatech and B12 just to name a few.

I am at a relief that I finally got a answer because my behavior amongst everything else was HORRIBLE!I do not know who I am and now I have done my research I got the answer to where I went.

My family is my positive support group.That is all I have and can trust!I told a few long time friends and they never called me back or I had one trying to analyze that I fell playing volleyball 10years ago!I thought what is this?

I feel now that I know it has went more to the mental problems and not so much the physical pain.Is this normal after you find out and your not in denial?

I was calling things out like my slow speech,paranoia,my impulsive behavior,headaches,sensitive to EVERYTHING ETC and doctors would play me like I was already crazy and I would fight with them because I know my body and mind and this was not me.

I got them good because I would refuse any pain meds because 1)I don't like them at all 2)They do nothing for me 3)I needed to keep as much of a clear head so I could fight for myself 4)Why would I want to add an addiction that would not cure me or give me any diagnosis? 5)The doctors could not say I had a drug problem!

I just want to know if after finding out now is it normal to have more intense mental problems?If so why?Please help:confused:

MiaVita,

You reply leaves me confused. Mannatech is a brand, not a specific supplement. Looking at their web site, they are not very forthcoming about the ingredients in their products. B-12 is an important supplement for an injured brain.

It is hard to understand what symptoms/impairments are your biggest struggles. What country are you in? The broad list of therapy is unusual. You sound very decisive, maybe a bit obsessive about the details of your experience.

It would help if you could focus on one symptom/impairment and explain how it manifests. The neurological symptoms can be broken down to:

memory
head aches
dizziness
vision
motor control
speech/word finding
rigid thinking and repetitive thoughts
behavioral outbursts

It helps to try to address each symptom individually. There are usually no treatments that will work for a multitude of symptoms.

There is slow healing and many ways to overcome the impairments. Most of us continue to live with impairments.

Keep in touch. We are here for you.

Mark thanks for the response:It would help if you could focus on one symptom/impairment and explain how it manifests. The neurological symptoms can be broken down to:

memory
head aches
dizziness
vision
motor control
speech/word finding
rigid thinking and repetitive thoughts
behavioral outbursts

***I am experiencing all the above***But since finding out I have PCS^^^^^^These symptoms have got real bad in a week!I NEED TO KNOW IF THIS IS NORMAL IN HEALING SELF PROCESS***OR IF ANYONE HAS ANY FEEDBACK ON THIS***

The Mannatech I am taking is the OSP Optimal Support Packets Dietary supplement
***I AM LOCATED IN THE USA***I AM SUPER PARANOID SINCE I HAVE LEGAL SITUATION***CAN'T NAME SPECIFIC LOCATION

THANK YOU SO MUCH

I had just talked to my doctor and found out why my mental stability had jumped to a major turn for the negative.... that I had not experienced since I been in accident...

The community I live in was doing maintenance on trees all week from 8am to 5pm M-F...I told doctor about this because I am now a stay home mom I listened to it all week and I was not mentally functioning like I was the week before....

This is why!!!No peace and quiet that put my mind in craziness!And my best friend washed his hands with me today on a negative note....

My dr said I don't need that and if it was not going anywhere to let it go....I can do it!Just kind of sad because he stood bye my side the whole time.

Even though, we argued that I said I had noticed all the different stuff happening to me while I was in unknown status and he argued I was fine and I was still the same....

And now I just want a pitty party and called me hostile names and then left the state!Thank God for him going far away!

I need strength to get myself ready for what I am facing....I guess this is a cry for help :grouphug::circlelove::lookaround:

My wife is the same way with me... Try to remember that you are looking out for # 1, and remain focussed on your recovery! After many years, now that I know about this head stuff, I can see that I am improving in ways I never thought I would. Your brain is most wonderous, and it will adapt.

Dude,
Thank you for the kind words and positive response.I truly appreciate it greatly!Most of my family is associated with the medical field so they know what this all about!

Anyone else besides my family and doctors have left me in a condition that I have a daughter to live for and If the person does not know all the symptoms then they do not UNDERSTAND PERIOD!

That is why I am soooooo happy I found this board and people can relate and help me understand that I'm not just "crazy"!

My Dr told me info about a week ago and when I talked to him today about my mental change in a week.

He said he is so proud of me for reaching out and doing my research, signing up with a support group, and signing up with a psychologist on my own.I don't know when I can start though.

Until things start rolling for me I have to work on me and all the people that want to have nothing positive to bring me have to go their way!Me,Myself, and I!:winky:

Yes all the symptoms you are feeling are normal. They are real and may have there root cause in different areas depending on the injury. Many PCS suffers have short term memory issues. This will cause memory, speech, confusion and other issues. Short term memory is used extensively by the brain for processing much of the immediate processing requirements.

Emotional lability is common. So having mood swings and overwhelming emotions just complicates an already difficult moment. Inner ear issues, vision issues and some damage to certain areas of the brain can cause dizziness. Headaches are common and frequently can be treated by medication.

I understand your need to not become an addict. With such a strong position against addiction I do not think you are a risk. Potential addicts frequently do not understand dependency and are prone to excessive behavior. You do not exhibit any of those indicators. Headaches can also be caused by vestibular damage. Neck and C spine damage often can be the cause.

I just started Myofascial release therapy today and the relief I got brought me to tears. I have not felt so much improvement so quickly. I am still having difficulty realizing I really am feeling this good with no narcotics.

Best of luck to you and I hope you feel better.:grouphug:

Such great news, rmschaver. Kudos.
 

rmschaver wrote:
"I just started Myofascial release therapy today and the relief I got brought me to tears. I have not felt so much improvement so quickly. I am still having difficulty realizing I really am feeling this good with no narcotics."
__________________________________________________ ______

Bravo, rmschaver!
So glad to hear that you are enjoying some pain relief through myofascial release.
What good news. Enjoy.

"I just started Myofascial release therapy today and the relief I got brought me to tears. I have not felt so much improvement so quickly. I am still having difficulty realizing I really am feeling this good with no narcotics."


This is great news!I think that is why my pain level was not really the highest in the headache area because I have been going to physical therapy with myofascial therapy while in the unknow phase of conditions.

I also get infrared put on trigger points of my head and neck at physical therapy...I can say that these things probably stopped me from going to narcotics for pain.

I still get headaches but they seem to be more under control.

Wish you the best!:winky:

You are most welcome! Sounds like you are in good hands! However, I'll add that a warning which I got from a web page on TBI/PCS suggests that we should take care obtaining cognitive therapy. The warning suggested that a therapist who is not familiar with PCS treatment may inadvertently cause more damage. For that reason I have been slow to proceed down that path, but in time I will. :hug:

Jamie

Roller coaster
 

Dude

I am waiting still to get the orders to start the neurocognitive therapy. I am trying my hardest to keep positive. I get so frustrated because I find myself not able to do ANYTHING I could do before....and no one can understand this ROLLER COASTER I am on....I am starting to understand it little at a time thanks to this site.

I have people that are on rush rush status when I'm talking and then I hang up the phone or walk away....and realize after I calm down what the other things I forgot to ask or needed.....so I give up!....this only happens when dealing with everyone in life except the last 4 doctors!

My family tends to interrupt me and the whole thought process goes out the door....and then I am angry! I HATE this ROLLER COASTER WITH NO CONTROL!!!!:mad:

Mia,


I just saw your reply to my request for more information. You said

"The neurological symptoms can be broken down to:

memory
head aches
dizziness
vision
motor control
speech/word finding
rigid thinking and repetitive thoughts
behavioral outbursts

***I am experiencing all the above***But since finding out I have PCS^^^^^^These symptoms have got real bad in a week!I NEED TO KNOW IF THIS IS NORMAL IN HEALING SELF PROCESS***OR IF ANYONE HAS ANY FEEDBACK ON THIS***

The Mannatech I am taking is the OSP Optimal Support Packets Dietary supplement
***I AM LOCATED IN THE USA***I AM SUPER PARANOID SINCE I HAVE LEGAL SITUATION***CAN'T NAME SPECIFIC LOCATION"

The symptoms you are experiencing are all common PCS symptoms. You sudden increase in symptoms is likely due to a few common causes. The week of excessive audio stimulation is extremely stressing on the brain. This has fatigued an already weak and sensitive brain. Learning about your symptoms being due to PCS appears to have added additional stress to your life. Stress is by far the worst thing you can do to a brain with PCS. The stress hormones and neurotoxins released are counter to good brain function.

The additional stresses you have in your life just add to this stress load. I can understand how you need location privacy for the security of yourself and child. Knowing basic location info helps us understand the possible health care systems available.

The most important concept for you to understand is simple. Nobody can predict your future regarding your PCS. How you can moderate stress in your life will have the biggest impact on any possible recovery. Understanding that your current symptoms are real and not a sign of craziness can be a first step toward lowering this stress level. The second important concept for you to understand is that quiet rest is very important to your recovery. Plenty here can explain quiet rest.

Your dizziness and vision symptoms are the most likely symptoms to respond to treatment by a professional. Sensitivity to light will require slow healing and use of sun glasses and hats to protect from strong light. A vestibular assessment will be good plus an exam by a neuro-ophthalmologist for the vision issues. Many have had good results with both treatment modalities.

By observing your posts, it is obvious you need help reducing your emotional stress levels. This will be your toughest challenge but the challenge with the biggest payback.

My best to you.