![]() |
Stomach issue .... rsd?
Wow, so just when I think I have a grasp on my symptoms, I do not.
[a little history to get to my point] RSD started in right lower limb after discectomy L5 S1 (2004), eventually it moved to the left limb, followed by moving into my arms, hands and everywhere else you can think of. I also have felt signs of internal involvement as the lightning strikes inside places in my torso randomly too. So I know it’s everywhere. For many months now I have been dealing with tummy issues. I have felt like I have had an issue with my gallbladder. Even had an ultrasound of my intestines / gallbladder and they tell me the gallbladder and all looks fine. But I continue to have bad indigestion, and lots of burping (sexy huh?), etc. So I have been taking antacids as needed and trying to eat well. Now to my point. The strangest thing happened the other night. My tummy was not right, and I had eaten some soup and crackers. I felt like my digestive system had stopped after I ate and all the food was just sitting at my throat. I laid down. My RSD started a rampage. I began tremors like I wasn’t even on meds. My clothes were uncomfortable, my everything was uncomfortable. I was exhausted. My ears ringing so loud and yet I was trying to just sleep, when then I’m like “oh crap, I’m going to puke”, and so I did. The minute I was finished with this gross and violent act, it was amazing, ALL my rsd symptoms calmed WAY down. It’s like the nervous system KNEW I needed to get rid of whatever was inside me, and the closer it got to doing just that, the more severe my RSD was. This doesn’t sound like much, but I assure you it was the WILDEST (and most painful) thing ever. The next morning and throughout the day I had bouts of diarrhea, extreme fatigue, but no more vomiting (thank God). For a moment I thought, maybe it was food poisoning or some sort of virus, but now I’m back to indigestion issues, and I am convinced one has something to do with the other. My rsd has been seriously progressing for months now. All the joints on my right side (shoulder, hip, knee, ankle) are (what I feel) being attacked by rsd. My pain levels are increasing and it’s trying to immobilize me, and some days it succeeds. So I am thinking maybe the rsd is causing this indigestion problem? Is it causing problems with my digestive system that I just can’t see? On another note, in recent weeks, I have had a spot… one spot, about the size of a hand, in the lower left side shoulder blade that is like a “spot” of rsd that tingles, and gets numb, and worsens with rsd flares. I know, without a doubt that I have full body rsd with some internal involvement; with the worst of my symptoms from the waist down. The only med I take daily, like clockwork, is gabapentin. I take other drugs PRN. Thoughts? Suggestions?? Thanks in advance! |
I know when my body is bringing on a super bad flair or if im in a flair, I cant eat. Because it makes me terribly sick. And so yeah if i try to vomit, its almost like its giving me "relief" but i think its because its just the pain is so bad that it causes you to get sick and of course you feel more relieved if you vomit. Do you think because your pain is higher its causing your stomich and what not to bother you? exspecially since you are on no meds. Or yeah of course the RSD can spread, have you talked to your dr about that?
Quote:
|
I'm no doctor and have never experienced the symptoms you are talking about; however, the vomiting and diareah (sp?) sound very familiar.
HOPEFULLY IT'S ONLY A BUG!!!! Have you had a colonoscopy? I'm not asking to frighten you but back in august while my mother was preparing for hers she vomited up all pf the the liquid and what passed through was diahreah. They did a CT scan first and a blockage. Then a colonoscopy revealed a tumor--- cancer. They got it all, no chemo or radiation needed. Like I said before...I'm not a doctor but you may want to think about it. I'll be thinking about you and praying it's only a bug!!!! Gentle hugs! Abbie |
Quote:
No I haven’t yet talked to a doc about this, other than when I had the ultrasound to rule out gallbladder. |
Quote:
Ps.. no worries, I don’t freak out too easily. And if this keeps up, I will have to bit the bullet and start to pursue further with a doc. Thanks again and your prayers are appreciated! |
I have RSd that affects my stomach, along with gastoritis. I get severe pain like someone is squeezing my stomach. They have detected issues with my gullbladder before with sludge going through it. My pain gets so bad that even my shirt touching my stomach hurts. I get horrible spasms and my digestion is very slow it takes my stomach nearly 3 days to digest the food I had eaten that day so it just gets backed up.
The meds I get for them is Prilosec for the heart burn Reglan for nausea dycolosiclomine( not sure of the spelling) for the spasms I have to eat very soft and easy to digest food and eat small meals every so often instead of a few big meals. Sam |
I dealt with this for years. Several random episodes per month. Rantindine (sp?) helped. It was very unpredictable and happened several times per month. There were periods where the only thing that didn't hurt to eat was ice cream. Ugh. Sparkling water also helped calm my tummy.
I've found that once I got serious about the 4 F's, while following a Paleo food plan, the issue resolved itself. It's been 2 years now since I've had this issue. If I start feeling like I'm getting the "flu" (and it's not flu, but very close) I get very strict with my diet (Paleo style, not regular dieting) and I can always head it off. Maybe I have gluten intolerance and the RSD exacerbates it, I dunno. It's worth checking out if food choices make a difference if this becomes an ongoing issue. With the holidays you probably were eating differently than normal. And yes, it hurt for fabric to touch my stomach area as Alaska posted above. It felt like wearing skin tight jeans for 12 hours. Like my insides were bruised. And not just after vomiting, it went on for days or weeks at times. Then I'd feel fine, have no warning, and start throwing up again. |
Quote:
|
Quote:
|
Please check out MarksDailyApple.com
It made my journey so much easier and completely changed my concept about what's healthy to eat and what's not. ;) |
Quote:
|
My RSD caused gastroparesis, which makes me vomit daily. Lack of circulation from rsd causes stomach to not contract like it should to digest food. May be worth looking into. Kind of common w rsd'ers. Hope u figure it out n feel better!!
|
Quote:
|
Quote:
Iam with you...I have been having digestive issues for quite sometime. Almost three years now. I have had all the scans up to last friday I had my second endoscope.I feel my foox stick in my throat and chest too. With my major complaint of burning in my throat and tummy. All scans endoscopes have been normal and all antacids have not helped. Which makes sense with internal RSD it is nerve pain not acid typical pain.I have not vomitted. Yet due to thiz trouble but very close at times. Gastroproesis is very common for us RSDERS... just no answers on yummy issues..its awful painful as the rszt of our RSD affected areas. Im sorry I couldnt help you...take care Kathy.. |
Vrae -
So sorry, as I was stumbling to bed at an unholy hour, I decided on impulse to check NT and see there are a couple of threads going for which I've been remiss in not responding earlier. Yours is own of them I'm aware of one new paper suggesting a direct link between gut-bacteria and CRPS, Establishing a Relationship between Bacteria in the Human Gut and Complex Regional Pain Syndrome, Reichenberger ER, Alexander GM, Perreault MJ, Russell JA, Schwartzman RJ, Hershberg U, Rosen G., Brain Behav Immun. 2012 Dec 18 [Epub ahead of print]: AbstractThat said, I'm intimately aware if a small pilot study that was done a few year ago at USC (wherein I was a study participant) that strongly supported a hypothesis that chronic opioid use plays havoc with gut fauna, revealed both through the spectroscopy of little Mylar balloons I inflated every 15 minutes over for hours, but also in the fact that patients - included myself - got remarkably better alter an unusually intense course of the anti-biotic Xifaxin, subject to relapsing, in my case, roughly a year later, whereupon I get another (and fairly expensive) round of Xifaxin. (Sadly, without matching industry money, the researchers were unable to secure NIH funding for the larger study they sought, and the work died on the vine.) Which bring me back to the above-referenced study by Reichenberger et al. A friend was kind enough to send a copy of the full article to me, and I was dismayed to see that no effort was made on the part of the authors to control for opioid use among the CRPS study patients. Accordingly, I would be inclined to discount any sweeping statements arising from their study. That said, I've found that my prescribed extended course of Xifaxin (200 mg) [2 tablets 3/day for 10 days] worked remarkably well. And I would urge you to consider it, if and only if you have in fact been using opioids on an extended basis: and if need be , I'm know that one if not both of the principle researchers who ran the study I participated om are still at USC and would be happy to discuss this with your physician. That said, there's a litany of information on gastroparesis and autonomic dysfunction, on account of which I pulled up 177 abstracts just running those terms on PubMed. See, e.g., The enteric nervous system and neurogastroenterology, Furness JB, Nat Rev Gastroenterol Hepatol, 2012 Mar 6;9(5):286-94: [ AbstractAll of which is to say, it appears to be something of a general consensus among folks who have successfully used tDCS as a maintenance for any length of time has been in the remission of those symptoms most associated with sympathetic dysrythmia - at least when the signal is applied to the dominant motor cortex, rather than pain relief per se. (Although I've also heard of phenomenal relief from fixed dystonia.) And this is, of course, in addition to cognitive improvements that may had through the separate stimulation of the "dorsolateral prerfrontal cortex" . . . Accordingly, in the untoward event that uncontrolled vomiting becomes more than a passing fancy, I can easily put you in touch with Dr. James E. Fugedy, a pain specialist initially trained in psychiatry nut is now perhaps the leading figure in the clinical use of tDSC. (You fly out on a Thursday, spend much of a Friday with him, and fly home that night or the next morning and thereafter maintain contact with him through phone and email, kinking your own treating physicians into you hopefully coordinated care along the way.) I mention this only for what it's worth, hopefully without "too much" of in way of hucksterism on my part. ;) Hope you're feeling better soon, Mike |
Part of my diet change was to stop drinking milk, and to start eating full fat high quality Greek yogurt.
Not to be gross, but here it goes: I used to have to use a tongue scrapper as part of my oral hygiene care. It happens rarely now that I get that white coating, and when I do I know I need to have a yogurt. Just letting a spoonful sit in my mouth for a minute dissolves it. I do recognize that I have often stumbled upon what works for me by either trial and error, just getting lucky, or following tips from online sources like NT. Probably not the best approach always... ;) My ways are imminently less scientific than some others. |
Quote:
I hope you find comfort and educational information from the may friends here on this site. loretta:) |
Quote:
|
Quote:
Hi VRAE, frustrating to hear your stomach is adding trouble to your RSD, it's not uncommon for your nerves to be hypersensitive from all the activity going on in your body. How is your stress level dealing with RSD, our stomach seems to receive a ton of stimulation whether we are conscious or not of our "coping with the pain". My friend who had MS, every time she would go to the ER, the ER doctor would assume it was "gallbladder" problems which it was not. A different female was battling stomach problems, "It's got to be the gallbladder" doctor and ER doctor thought until they found something totally different. In our overly communicated world, our stomach is under siege by all the stress and all the toxins in our environment. The gallbladder is the first part the doctors look at, even if your pointing at your belly button, why, I have no clue. Did you have a HIDA scan used to check the refraction rate of your gallbladder, another test served with the abdominal ultra-sounds test. Some ancient stomach calming (My great-great grandma ideas) work like eating oatmeal for breakfast with good yogurt (little sugars asap), organic apple-cider vinegar to "balance your stomach pH level" daily, it's good for heartburn too. Can you change your cooking style to use extra-virgin olive oil, it's better on the liver and helps the gallbladder according to great-great granny and modern research as well. Great-great-granny was ahead of her time, life never slowed down in the mountains of Kentucky and Missouri, so those folks were always looking for "folk remedy's" to help their bodies. Stomach pain is debilitating and wicked, it feels like your body has betrayed or revolted against you, so what are you doing to negotiate a peace treaty with it? |
Please try this
I've had rsd for 6 years,it really effects my stomache severely , I took all the different meds nexium and many others ,plus gull stones removed , gull bladder removed. Nothing helped. My stomache symtoms were severe cramps , gas pains , sweating ,bloating exc. my dr tried this drug called remeron.and let me tell you if u still have problems with your stomache and u have rsd .i think this can really help u as soon as u take it. The drug makes u tired ,so u take it at night . After u take the pill it makes u hungry ,the only time I really can eat without having pain or nausea .it is also a nuro med to I think. I would really recomend this to all of you.i think it will change your life, without sounding two dramatic.without this pill I'm bed riddin from the pain and cramping and cold sweats. I hope this helps you ?........"remeron"
|
Thank you!!
Thank you all so very much for all of the comments, suggestions, and as always... for all of the support! I really do appreciate it and will be mindful of all that has been said as I move forward. :wink:
|
Sorry to bring this up, but I have been having right upper quadrant pain for 8 weeks. So dr doubled nexium, performed an endoscopy and colonoscopy. Since then. Pain is worse, lots of gas also. Ended upin er last week and started on Zantac along with nexium. Ultrasound and hidda scan show gallbladder normal. So now dr is thinking ibs and started me on bentyl. Between us I stopped taking my neurontin I'm hopes I would loose weight and I've been doing really well with my foot.
With all this being said, last night I took my 1st dose of bentyl and also took 1200 neurontin, which helped. Haven't took any neurontin today and now pain coming back. Do u guys think this is rsd? |
Quote:
I'd love to be off gabapentin too but I tried that once under doctor supervision and it wasn't very long until I found out that even though gabapentin has side effects, life is MUCH better on gabapentin than off of it. And it can help prevent spread in my opinion by keeping the nervous system in check. Are you taking at least 500 mg of vitamin C daily? That has been shown to help prevent spread as well. I personally think everyone with CRPS should be taking vitamin C. 500 mg is far from a dangerous dosage, it's inexpensive and if your body doesn't need it, it is excreted very quickly; it doesn't stay in your body long. Good luck to you! (and all of us.....) |
issues
Quote:
|
I appreciate the feedback. I am taking vitamin C. Only 1 tablet. Not sure at this moment what mg's. I hate this. But am so thankful for everyone here.
Quote:
|
The bad thing about mints and candy is that they are a big no no for people with GERD and a hiatal hernia. So is carbination and straws. What a dilemina.
Quote:
|
Quote:
|
hoping you're feeling better quick!
Quote:
I wish I had something more definitive and knowledgeable to offer. I sure hope your feeling better soon! Please let me know what happens, keep me/us posted. |
Hi Alt,
Sure wish I had a clue. I've had some of these symptoms too & thought it was due to extra Magnesium Dr. "prescribed". I never could tolerate neurontin anyway. Like most everyone here I too take at least 500 mg. vit. C daily. So frustrating, wish I knew. :hug: |
Quote:
I cannot take Vit C either. I was recently diagnosed with interstitial cystitis (IC) and supplements irritate my bladder, specifically vit C. From what I have read, IBS is common with IC. My PM dr thought it was RSD in my bladder, but it isn't. I also read that IC is common with RSD patients...all I know is that it is painful and another incurable condition in which I can't take the meds for it either :( Sorry to go on about myself :rolleyes: I hope you can get some answers and relief soon! Nanc :hug: |
Since getting this "oh so wonderful disorder" I've gotten gastroenteritis, and have bad bouts of diarrhea, nausea, and vomiting. I don't know why it's effecting my stomach/digestive tracked when the disorder is in my legs, but it does. This is even when I'm not on any treatment I get the stomach thing going. Just out of the blue, and eating like normal I will have to run to the restroom and vomit, and have diarrhea. It got so bad I have a specific trash can in there for it. Isn't it just wonderful what this disorder does to us?
|
sick
Quote:
|
This is a regular thing since getting CRPS. It doesn't matter what I do my stomach just out of the blue will start tearing up on me.
|
Hi Vrae and everyone :) don't know how I've missed this thread :rolleyes: I blame a brainless CRPS duh moment...
I have had some gastro problems for ages both before CRPS and after. I had my gallbladder removed not long after my second daughter was born (10 yrs ago eek), was diagnosed coeliac about 6 years ago, and have had various issues with meds affecting my stomach. Gabapentin was the worst and most dramatic - I was very ill twice on it, sickness, diarrhoea, cramping pain, dizzy etc and the doc thought it was a stomach bug first time, second time hit less than 2 weeks later - and no one else was getting ill, I wasn't eating anything weird or different to the family. I'd had to stop the Gaba while ill because I couldn't keep a thing down, and after the second time (thought I was going to die at one horrible point :( ) we decided to stop it and see. Well I got better so fast it wasn't even funny. Scares me to think what I might have gone through if he'd insisted I persevere... I went onto a low dose of Lyrica and it's been much better, but the last two weeks I've had that upper left shoulder blade persistent ache/pain thing almost constantly, and it's worse a few minutes after I take my tablet... I'm so scared that I've started reacting to that too. It's not awful yet, but it's getting me down, especially so close to Christmas...:rolleyes: I need to get tougher on my diet again as it has slipped a bit recently with so much going on and me having a bad flare, but this ache hasn't happened before. I did think at one point that it was part of the CRPS aches and pains, senstivity and weirdness I've got going on in my left arm, side, chest and shoulder...but the last few days I've wondered if it's actually more gastric in nature - and reading this thread it makes more sense. Vrae, I hope you are feeling a little better and doing ok today. You've had rough trot recently and deserve a break....as do we all! Take care all x Bram. |
I am so frustrated. I have more pills to take then there are hours in a day. And nothing is touching the pain in my stomach. To give you an idea, within 15 min. of eating it is extremely painful in my stomach. (were my ribs split from each other) way up. Then my chest hurts, then my stomach cramps, then the nasuea, the the right side pain.
Had ultrasound, chest ct, and hidda scan. No gallbladder problems no aneruysm's. Yes had endoscopy which shows gerd and medium size hiatal hernia. This is not the same feeling as indegestion though. Had a colonoscopy, benign poyp in the cecum. Having a stress test in January. (dr. is away for the holidays.) Pain dr. says he has not heard of abdominal rsd. I almost went to hospital again last night. I got hungry today, ate, and now in tears from pain.l wtf. sorry for the upset. But with my foot I could take pain meds and get some relief. I am not getting any relief with this. I need a new tummy for xmas please.:grouphug: |
Alt that sounds so crazy :( I'm sorry things are so bad...
Just wanted to say hang in there, and I hope you get some kind of relief from the stomach pain soon. It's bad enough to watch every mouthful in normal times - at Christmas it is so mean. Hope you can have a few things that don't make you feel so bad. Take care of yourself and try to enjoy Christmas as much as you can. I'll be thinking of you :) Bram. |
I've had stomach problems for a while. I think part of it is due to all the pills I take and part of it is due to the fact that I have gallstones and have had endometriosis. I rescheduled my appt with my endocrinologist (sp) for Jan 22nd to confirm. Maybe it's the meds you're taking or an ulcer. I would see a endo dr to see if they can find out. I hope you find out what it is and feel better soon.
|
Thank you for the kind words. I am trying to enjoy the holiday's. Lord knows I love to eat. lol. I guess it is time for a diet.
Quote:
|
Hope you feel better. I had something similar. It took 3 years but just dxed with celiac. No more tummy pain or rib pain as long as I am super careful with gluten.
|
Quote:
|
All times are GMT -5. The time now is 04:09 AM. |
Powered by vBulletin Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise (Lite) -
vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.