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-   -   flare meds that dont require you taking them EVERY day (https://www.neurotalk.org/thoracic-outlet-syndrome/182425-flare-meds-dont-require-taking-day.html)

mspennyloafer 01-15-2013 10:48 AM

flare meds that dont require you taking them EVERY day
 
i only flare up really badly once a month now, if that

what kind of meds would help me calm my nervous system down that don't require you take the pills daily?

i like lidocaine patches but my flare was too widespread :( id have to use a whole box

nospam 01-15-2013 11:46 PM

Quote:

Originally Posted by mspennyloafer (Post 947693)
i only flare up really badly once a month now, if that

what kind of meds would help me calm my nervous system down that don't require you take the pills daily?

i like lidocaine patches but my flare was too widespread :( id have to use a whole box

Injection of Medrol or Toradol. Valium or Ativan. See your doctor of course.

mspennyloafer 01-16-2013 07:35 PM

Quote:

Originally Posted by nospam (Post 947875)
Injection of Medrol or Toradol. Valium or Ativan. See your doctor of course.

Thank you.

I have some old klonopin I take. I wonder if I should ask for more of it or Ativan or valium

nospam 05-30-2013 04:10 PM

I am learning more about benzodiazepines. Klonopin and Valium are long acting while Ativan is short acting but takes effect quicker. I believe this makes Ativan best for flares. I took someone's Ativan when I forgot my Valium at home and it worked great.

jkl626 05-30-2013 06:11 PM

Quote:

Originally Posted by mspennyloafer (Post 947693)
i only flare up really badly once a month now, if that

what kind of meds would help me calm my nervous system down that don't require you take the pills daily?

i like lidocaine patches but my flare was too widespread :( id have to use a whole box

There is something new called DM/Q that is supposed to help desensitise the nerves. The DM is same stuff thats in Robitussin DM. The Q is Quinodine. I cant take the Q so I am trying to just get the DM from a compounding pharmacy, but they are having trouble getting it. My nerve flares are rare now too-usually exacerbated by certian pt or massage, so avoiding those now.I am also taking Alph-Lipoic acid (natural) which is supposed to help dull the nerves also.

16rhonda 06-01-2013 11:09 AM

Dm/q
 
Quote:

Originally Posted by jkl626 (Post 988054)
There is something new called DM/Q that is supposed to help desensitise the nerves. The DM is same stuff thats in Robitussin DM. The Q is Quinodine. I cant take the Q so I am trying to just get the DM from a compounding pharmacy, but they are having trouble getting it. My nerve flares are rare now too-usually exacerbated by certian pt or massage, so avoiding those now.I am also taking Alph-Lipoic acid (natural) which is supposed to help dull the nerves also.

Iwas wondering if u know exactly what u call this med., did u spell it wrong? I cant find it in drug library. Do neurologists know about this drug?
I'm desparate., I have Peroneal n. Comp., Tarsal Tunnel, Bilateral Carpal Tunnel & TOS.
Thanks For any Info.!!

nospam 06-01-2013 12:10 PM

Quote:

Originally Posted by 16rhonda (Post 988451)
Iwas wondering if u know exactly what u call this med., did u spell it wrong? I cant find it in drug library. Do neurologists know about this drug?
I'm desparate., I have Peroneal n. Comp., Tarsal Tunnel, Bilateral Carpal Tunnel & TOS.
Thanks For any Info.!!

I think it's Zenvia. But I haven't found much info at all on it and I doubt it will work just taken occasionally for flares. Possibly not for TOS or spinal neuropathies at all.

Quote:

Originally Posted by mrsD (Post 89533)
About Zenvia:
Quote:

About Zenvia

Zenvia is a combination of two well-characterized compounds, the active ingredient dextromethorphan, and the enzyme inhibitor quinidine, which serves to increase the bioavailability of dextromethorphan. The first-in-class drug candidate is believed to help regulate excitatory neurotransmission in two ways, through presynaptic inhibition of glutamate release via sigma-1 receptor agonist activity, and through postsynaptic glutamate response modulation via uncompetitive, low-affinity NMDA antagonist activity.
It is only dextromethorphan... DM found in cough preps in this country. Some studies show high dose DM might help PN but
results are conflicted. I believe Nide44 tried it without success.


jkl626 06-02-2013 04:45 PM

Yes, Marc is correct. Zenvia. My Neurologist had samples of it. It is supposed to help prevent flares, but I dont think it would help once you get the flare. I am waiting for my compounding pharmacy to make it without the quinidine for me-if I ever get it I will report back. You can also get neurontinin cream at a compounding pharmacy. i use a neurontin and flexeril cream with an anti-inflammatory in it too.

nospam 03-05-2014 02:18 PM

Quote:

Originally Posted by jkl626 (Post 988776)
Yes, Marc is correct. Zenvia. My Neurologist had samples of it. It is supposed to help prevent flares, but I dont think it would help once you get the flare. I am waiting for my compounding pharmacy to make it without the quinidine for me-if I ever get it I will report back. You can also get neurontinin cream at a compounding pharmacy. i use a neurontin and flexeril cream with an anti-inflammatory in it too.

Anyone tried Zenvia or plain old Dextromethorphan yet. I stumbled upon the link below and recalled this thread.

http://bpainfreetherapy.hubpages.com...r-Chronic-Pain

jkl626 03-05-2014 06:03 PM

Quote:

Originally Posted by nospam (Post 1055010)
Anyone tried Zenvia or plain old Dextromethorphan yet. I stumbled upon the link below and recalled this thread.

http://bpainfreetherapy.hubpages.com...r-Chronic-Pain

Thanks for posting the article. I had trouble getting it because it has to be compounded. So I decided to go on Neurontin instead. Its worked well for me and also helps with Hot flashes. I only take it at night but am thinking about starting it during the day too. Plus I hate the way cold medicine makes me feel. I am not ruling it out eventually. Also some one mentioned Claritin to me for nerve pain.

DiMarie 03-07-2014 06:30 PM

Quote:

Originally Posted by nospam (Post 947875)
Injection of Medrol or Toradol. Valium or Ativan. See your doctor of course.

Flare is tòradol shot, manage the escalation with Valium as muscle spams will wrap around the nerve and start big flaring. if you can use Valium as the muscle relaxant you are on top of it.

My maintenance is Endocett as need up to two a day, most days I try just Alieve, tòradol 10 mg pill once a month to get on top of the pain it is a kick butt anti inflammatory. You have to not over due it, it can cause bleeding if over used. No more than 5 days in a row. But if I'm at the second day I run to an urgent care and get the tòradol shot.

Near daily Valium keeps me in check, either a half or the whole. I can take daily but hate taking meds.
Ugh even my thyroid I occasionally miss.

If I am ER level after all else fails, shot of Valium, Tòradol and morphin. This has been very rare since I maintain with Valium and Endocett and reduced work schedule. This is often the head pain flare of cervogenic spasms. When I have tears running from the pain.


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