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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Are there any books out there on just RSD? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/18276-books-rsd.html)

dreambeliever128 04-25-2007 01:21 PM

Are there any books out there on just RSD?
 
I have Dr. Hooshmand's book but I have been looking for more on just RSDS. Most deal with Cronic Pain. I have even checked at the local library and they don't have any listed on the computer.

Have any of you seen any out there on RSDS alone?

Thanks,
Ada

carose 04-25-2007 04:15 PM

RSD book
 
Ada, Paul R. Charlesworth, president of RSDSA recommends the RSD book LIVING WITH RSDS by Linda Lang and Peter Moskovitz, MD I get the book at Barnes and Noble $16.95 I found it easy to read with helpful information. There are other books, but I can not remember the titles. Hope this helps.Take Care, Carose

countblessings 04-25-2007 07:15 PM

Positive Options for RSD
 
Written by Elena Juris 14.95 at BN. Not sure I love it yet though--it was recommended somewhere--haven't read through it all, keep looking up things as I go--How's that for not very helpful? :eek:

dreambeliever128 04-25-2007 08:56 PM

You are both very helpful.
 
I have been looking for months to find some new books on RSDS. The Libraries around here couldn't come up with any but now that I have the names I will walk down tomorrow and find out if they can find them for me through another library.

Thanks again,
Ada

JOAN_M 04-26-2007 08:29 AM

are you looking for books with information on the disease, or for books that are giving you support in dealing with RSD? Or are you looking forbooks with inforamtion on how to deal with family, friends, or legal issues? i find books with information are repetitive and usually not up to date.

dreambeliever128 04-26-2007 08:38 AM

Hi Joan,
 
I'm ok with my family and friends. I just want books with more info. I just like reading books on these medical issues like the RSD and Fibro. I feel like the more I learn the better off I am .
They might be competitive but some are more up to date then others because some have been around longer.

Ada

JOAN_M 04-26-2007 09:20 AM

i have ordered one book and seen a few in the book store but never found one with anything i had not already read on line. i do have a great book that a woman with rsd wrote ... i have it downstairs and it is my favorite because she talks of her struggles and you can really relate. i will check the name and author and post it on my next trip up here. joan

Jomar 04-26-2007 12:22 PM

I found some that say they are online books about RSD-
http://www.wrongdiagnosis.com/r/refl...e/allbooks.htm

carose 04-27-2007 04:03 PM

Here are two more books that looked interesting--Positive Options for Reflex Sympathetic Dystrophy Self Help and Treatment by Elena Juris and Lessons from a Washing Machine by Ruth LS Miller Ruth was a RN for 25 years before RSD I have some B&N gift cards I will order these if not in stock. if they are any good I will mail them to you. When I first developed RSD I could not read ,so the book Living with RSDS was all I cared to get. RSD started in my left hand and for so long I could not even pick up a book, plus my mind was so out of balance so I could not read for any period of time. Even though I feel awful today-had to really think about how to spell awful, typed it three times before getting the correct spelling, I am so much better then I was two years ago when I had an auto accident. I can now read for about an hour before my hand gives out, plus many other positive things. I at least have some good days now,my mind does not wander into areas I don't care for it to go as often as it did in the beginning. I will take every positive minute I can get and pray it turns into hours and days, maybe someday years. :hug: Carose

Jomar 04-28-2007 12:17 AM

Carose
About the spelling problems -
the FireFox browser it has a built in spell check -I love it!
you guys don't know how many things I misspell either by not hitting the right key or just not being sure of the words- but if i get the word halfway close it will underline it and then I right click and a list of word choices pop up, saves me a lot of frustration and retyping.
just a click and it's fixed.

high rated for speed and safety too
http://www.mozilla.com/en-US/

Sandel 09-20-2007 10:11 PM

an online book.. or part of it..
 
http://books.google.com/books?id=rpe...jhkE#PPA100,M1

Desi 09-20-2007 10:55 PM

Hey, Now this will have me here reading this!! thank you, Sandra!!!

Auberon 09-20-2007 11:12 PM

CRPS book
 
Hi,
I don't think I'm repeating anyones input:

RSD UK......contact Barry Swallow (really nice chap & helpful).
This will need to happen if it is an international purchase.

Book "Insights into Pain & Suffering. A guide to Neuropathic Pain and Complex Regional Pain Syndrome, known as Reflex Sympathetic Dystrophy"
David R Blake, Jenny Lewis, Candy McCabe, Catherine Taylor.' ISBN - 1-905553-14-5. Printed for Book PrintingWorld in the UK.

PROCEEDS GO TO RSD UK
http://www.rsd-crps.co.uk

233 pages

To quote from the back cover:
I hope they don't mind:

"Insights into Pian and Suffering is a much awaited book which explores the fascinating research in this bizarre and confusing condition.

This little book describes the most painful of all recognised chronic human pain conditions, CRPS/RSD. It has been compiled from patient dialogue, cutting edge research and medical perspectives. It is a book about pain, suffering, anger, rejection and fortitude of patients - it is about the dedication of the researchers involved in unravelling the mysteries surrounding this condition; it is about the journey towards understanding and treating Complex Regional Pain Syndrome, known as Reflex Sympathetic Dystrophy.

"...when I actually saw the psychiatrist he asked what was wrong, I was still using the term Sudeck's Atrophy then...." "as soon as I saod 'Sudeck's Atrophy he asked me why I thought it was a psychological problem when it even sounded 'Pseudo'".

It goes a long way to explaing this & their website is well worth a look.
I have found them extremely good people & I don't live in England.

My impression:
It goes a long way to explaining heaps of the questions that come up on our website.
All the best Auberon

Sandel 09-21-2007 01:09 AM

aww.. sold out
 
And RSD UK is going outa buisness read about it here:

http://www.rsd-crps.co.uk/RSDUKClosure3.pdf

Wow too bad this is not good.


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