Nervous
 

I was up off and on last night nervous about the Jaw MD appointment coming up very soon....I do not want to relapse!I am literally Scared!I know I should not be worried because the MD knows my situation...This MD had seen Me @ what I consider my worst of this roller coaster!!!I do not know what to do I need this fixed but I think about my progress and I get VERY SCARED!:confused:

Thinking of you. Sorry that you feel so stressed. I don't think any of us escape that feeling much. I hope all goes well.

MissingMe

Thank you for the kind words...I been taking advantage of this by indulging in all the great foods before. I know I will be put on soft food diet and after the impressions etc are studied I may need to be wired shut...because my TMJ is totally displaced!!!:(

I don't have experience with this, however I know of friends who have had TMJ without head trauma. They have experienced similar sypmtoms and issues due to their TMJ. I know you are worried about what trauma having it fixed may have on your brain, but in the long run, you may see a huge positive change in symptoms, because your not adding pressure to that area of your head.

Wish you the best! When is the appt?

Hey Smilin~
I did not have this dislocated TMJ until 9months after this accident....The specialist needs hours with me for impressions and then will study them to get a resolution of what we are going to do....And get back with me after doing the studies of impressions.....I am thinking worst scenario:Manipulation of jaw and put back in place and wire shut to keep in place?I don't know...but will find out by mid week probably....So all my rehab has been put on hold till this is resolved:hug:

Update
 

Went to TMJ specialist and had to get impressions,models, and measurements done that will be required with the MRI I need of jaw and a CT scan of one arch joint.I am waiting for certain hospital to call me with date of MRI and then I need to go pick up models to take with me to these appts.

I had a panic attack on the way to Specialist and was told I was not to take any my anxiety meds before coming, so I show up with muscle spasms all in jaw,face and upper body. I suppose it was the anticipation of everything had made me go panic. I felt ok after just wore out of 2hours of opening and closing and doing all kinds of jaw things.I was kind of sore to eat the rest of day.Then the next day I had a full blown melt down from I don't know where or why? Now I am just waiting to get MRI and this CT scan of joint.

I think I got upset because my rehabilitation is on total stand still until this jaw thing is fixed and this is a very expensive ordeal that I need to pay for...how?I don't know....I really wish this could all be over I am losing strength with not much to hold on to anymore.:(

Dear miavita2012,
I am really sorry to hear what you going through. It is a roller-coaster from what i read.
I know it is difficult to deal with everything you going through but the best you can do is to remind yourself that you need to take care of yourself first.
Take a deep breath and try to relax a little. Things will unfold, just make the best of it.

Praying for you.:hug:

Thank you Savas for the comforting words.I am trying to do the best I can and keep this head up!I can't smile well because my jaw I look funny lol...but I am thankful I got this chance at life but sometimes it really drains us threw the roller coaster.:hug:

Update on TMJ
 

So I have completed a CT scan of TMJ joint with impression and got MRI of TMJ now I am waiting....I had talked to a few people that had known family members with dislocated TMJ and they had to get broken, realigned, and wired shut....hmmm so my days are ticking I think that I will be back in house more rest status....but after I can move on to the cognitive therapy while I am still in vestibular therapy...I will find out soon what the plan for jaw is soon:eek: Very tiring week I had MD appts everyday this week and I am going to bed.

Mia,
Just wanted to tell you that I am thinking of you. Hope your jaw thing works out with minimal problems. I am sorry you are going through so much. Hope you get feeling better real soon.
Much love, :hug:
Brain

Thinking about you!! Keep your mind off what happens after surgery and just enjoy the fact that you are continuing to move forward with all the right medical people :)

You are doing a wonderful job advocating for yourself and continuing to push forward in your therapies. You ROCK!

Hope it goes okay. I had very bad TMJ about 15 years ago, was told I needed to get my jaw reset and wired, and then I met a physiotherapist who specialised in the jaw, and I was treated by her with various things and did home exercises, and it got all better! My jaw is more stable, I don't need to wear something at night, and th searing jaw pain is gone.
Everyone is different, of course, but just to encourage you to make sure you get more than one opinion!

We already tried the exercises:(but yes after we get everything together I will go get a second opinion before any surgery.But my thing is the pain has went away but my bite is off and my jaw constantly pops when I open and close and can feel it like jerk on alignment....I don't know if that makes sense...but I also need to consider in future arthritis of jaw:eek:

Update on TMJ
 

Well I finished CT Scan of TMJ and today I had did a 2hour MRI without impressions and with impressions....with my mouth open for whole 2hours that hurt my whole head and could feel muscle spasms popping up all over my body while I could not move:eek:When I got up from table the vertigo was horrible!!!
Now sore and icing...Probably know the deal next week sometime:thud:

Until then I am asking myself am I ready for this???:girl(sad):

You are ready
 

Mia,
Good job! You are so brave. You could come out looking really pretty. After my daughter had braces and they moved her jaw forward it really changed the shape of her face for the better. She is gorgeous. So there is that.
Hoping you are feeling ok today. I know your jaw is sore. So sorry. I am thinking of you.
Much love and healing vibrations are being sent your way,
Brain :hug:

Brain thank you so much for the kind words they are greatly appreciated. I was actually sore a little last night but not today at all.Maybe it was a stretch that my jaw,head,brain needed?I will find out more after 24hrs and then 48hrs but I'm thinking NO PAIN NO GAIN LOL:D:hug:

I just realized
 

I just realized it has been a year to date that my jaw locked and dropped!Wow it's kind of crazy to look back and think what or where did the last year or two or three years etc GO?I DON'T KNOW BECAUSE MY SHORT TERM MEMORY IS SHOT!LOL!Ask me about 15 years ago I can tell you details:grouphug:

Results for Jaw
 

My TMJ MD had called and said after going over
MRIs/CBTC Scan of jaw that he has came to a decision. The decision is split therapy for 6-8months because my muscles are very hyper.I would go in once a month and get the splint adjusted to tighter fit because my jaw will change positions.With this being said I suppose it is better than being wired shut.This is a pricy ordeal still.I have done my research on it and there is people that stated it does work and people that says it does not....Seems to be a out of pocket expensive trial and error.FRUSTRATING

I need to ask second opinion now and one of my impairments is problem solving so I do not know.:confused:

While I Am in Waiting Process
 

I am in a wait for the jaw M.D. to get my medical stuff back from another jaw M.D. that is out of state that is doing a second opinion. The second opinion is for split therapy to correct my jaw movement.I also have hyper muscles in my jaw from being displaced. My jaw is on edge of locking up on me and I have a great deal of ear pain and facial muscle spasms.

I am scheduled to go get some anti inflamation shot today in TMJ I guess.I don't know but I think it is going to hurt. I guess anything is better then locked jaw right?My mom is taking me, it is a hour drive away from me.Hope this is a good pain after all the pain I been threw I now have a very high pain level.:grouphug:

Thinking of you
 

will pray for you Mia.

Take care

Poetrymom

No More Steak for Mia
 

Thank you for the kind words PoetryMom, I greatly appreciate them.

I ended up not getting any shot because jaw M.D. said it would be a waste and my jaw would continue doing same thing. So I got a temp night equalizer that I wore last night and already feel relief. I am also on a soft food diet. the soft food diet will be long term the M.D. told me at least 4month's.I guess I need to figure another work around on food.Any suggestions would be great!I do not eat dairy, soy, eggs, MSG, artificial coloring, and limit sugar.:grouphug:

Hiya,

I'm wondering how the TMJD treatment went?

I ask because a series of ear infections has led my primary care doctor to conclude I have Eustacian Tube Dysfunction and possible TMJD. How did you pick your specialist for TMJD?

She suggested I go to the dentist to get a thorough evaluation.

It is just one diagnosis after another, isn't it?

I am hoping you are doing well-one day at a time is my new mantra.

best,

Well I did not get any treatment after all except the acupuncture in jaw amongst the other places. With having to wait so long i am getting arthritis in my left TMJ:mad:The TMJ specialist suggested a expensive splint therapy that I cannot do at this time.I have not had much problems with it since I started Element Acupuncture.

If I were you I would get a thorough exam and then get a second opinion from the TMJ Specialist. I picked mine out of pain lol looked up and did research for best TMJ specialist in my area.

Yes the never ending diagnosis....I had to get everything diagnosis and calmed down with head, neck, jaw, and back injuries to move onto mental illnesses, cognitive impairments, and now food sensitivity and food allergies!I am very close to vegan and no gluten.

I dislike to talk about my past but I went from an anxiety diagnosis to now about 10 diagnosis and mostly mental illnesses now.I was neglected by M.D.s so I did not get proper care from the beginning of concussion so I have made a total 180 in past and present life.

Yes one day at a time that's all we can do!Hope it all works out for you and a speedy recovery:hug:Mia