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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Which muscle relaxer do u find most beneficial (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/184385-muscle-relaxer-beneficial.html)

debbiehub 02-21-2013 11:28 PM

Which muscle relaxer do u find most beneficial
 
I don't do we'll w muscle relaxers but have to get on something due to severe spasms and tightening ,,,really at the end of my rope. These r the ones I have at home,,baclofen , neuro flex flexoral roboxin skalaxton,da toluene, Valium. Didn't like tizidine. I take Xanax at night which help some and don't want to give up

Someone just tell me which to make myself get use to...I do we'll w the Xanax type effect

Thanks

Debbie

kejbrew 02-24-2013 06:07 PM

Baclofen works for me
 
Quote:

Originally Posted by debbiehub (Post 959366)
I don't do we'll w muscle relaxers but have to get on something due to severe spasms and tightening ,,,really at the end of my rope. These r the ones I have at home,,baclofen , neuro flex flexoral roboxin skalaxton,da toluene, Valium. Didn't like tizidine. I take Xanax at night which help some and don't want to give up

Someone just tell me which to make myself get use to...I do we'll w the Xanax type effect

Thanks

Debbie

My personal experience has been that baclofen is most effective for controling spasticity and relieving cramping. I have been on it for over five years now at various dosages. So far so good!

Best wishes to you,

ginnie 02-24-2013 06:14 PM

Hi Debbie
 
I take clonazepam, generic for klonopin. This got me through withdraw from morphine, PN, sleep issues, and spasms in my neck. Very mild medicine, that seems to help at multipal levels. I wish you all the best. ginnie

yiisd 02-25-2013 01:58 AM

Quote:

Originally Posted by debbiehub (Post 959366)
I don't do we'll w muscle relaxers but have to get on something due to severe spasms and tightening ,,,really at the end of my rope. These r the ones I have at home,,baclofen , neuro flex flexoral roboxin skalaxton,da toluene, Valium. Didn't like tizidine. I take Xanax at night which help some and don't want to give up

Someone just tell me which to make myself get use to...I do we'll w the Xanax type effect

Thanks

Debbie

Hands Down THE BEST MUSCLE RELAXANT IS "SOMA"! I have taken all of the ones you mentioned, and found "Soma" the be far superior. It is also a very old drug an relatively inexpensive compared to the others.
NOW .... Doctors don't like to write for "Soma", they say people abuse it by combining it with "Ambien" & "Vocodan" to make some form of "Cocktail" that, I GUESS, people get off on.
I've never done this & never had a problem with "Soma". I personally do not abuse medication & my doctors trusts me.
Like many muscle relaxants, you may have to build a tolerance for it .. Some people find it makes them dizzy when they first begin.
GOOD LUCK finding a doctor to write this very tried & proven Rx.
(BTW: I stopped taking it, cold turkey, and stayed off one year to prove that I did not become "Hooked" on it. I never had a withdrawal sptom one.)
I've taken Soma for over 20 years!

ginnie 02-25-2013 06:55 AM

Hi again... about muscle relaxants
 
I also have tried Soma, I was given this right after my spinal fusion for muscles spasms. It worked very well I have to admit. I don't know why I was not given this later, but changed to klonipin. Both seem to do just fine. ginnie:hug:

debbiehub 02-25-2013 09:22 AM

Thanks
 
Thanks for you responses. Does. Anyone know how far apart u have to separate soma and Xanax ?l

painman2009 02-25-2013 11:59 PM

Quote:

Originally Posted by debbiehub (Post 960375)
Thanks for you responses. Does. Anyone know how far apart u have to separate soma and Xanax ?l

hey deb.. I take amrix. it is one of the staples of my meds. i really feel it when I dont take them. it helps with the spasms alot .

alt1268 02-26-2013 02:52 PM

Soma is usually every 8 hours. So I would wait at least 2 hours before taking a xanax. But check with your pharmacy. Personally, I prefer Soma also. The rest does not do it for me.

debbiehub 02-26-2013 09:35 PM

Ty
 
Quote:

Originally Posted by painman2009 (Post 960640)
hey deb.. I take amrix. it is one of the staples of my meds. i really feel it when I dont take them. it helps with the spasms alot .

I never heard of it,,,guess I can goggle it

Ty!

tos8 02-28-2013 11:39 PM

I tried multiple muscle relaxants aswell and it was actually my surgoen who told me soma worked the best and she put me on it and now my primary manages my pain meds and she also thinks it works better then others. I take it 4x a day along with valium because i get severe rib tightning/cramping after TOS surg. and the combo works the best.

Cocoa14 03-01-2013 09:09 AM

Quote:

Originally Posted by tos8 (Post 961640)
I tried multiple muscle relaxants aswell and it was actually my surgoen who told me soma worked the best and she put me on it and now my primary manages my pain meds and she also thinks it works better then others. I take it 4x a day along with valium because i get severe rib tightning/cramping after TOS surg. and the combo works the best.

Please help, my burning and pain is in my arm, usually only hurts when I move it up or away from me. I don't know if I have RSD or not, I posted a thread this morning 'scraped'...please read and reply if you can. I'm not getting answers from my dr and I don't know what to do.

Cocoa14 03-01-2013 09:10 AM

Quote:

Originally Posted by tos8 (Post 961640)
I tried multiple muscle relaxants aswell and it was actually my surgoen who told me soma worked the best and she put me on it and now my primary manages my pain meds and she also thinks it works better then others. I take it 4x a day along with valium because i get severe rib tightning/cramping after TOS surg. and the combo works the best.

Please help, my burning and pain is in my arm, usually only hurts when I move it up or away from me. I don't know if I have RSD or not, I posted a thread this morning 'scared'..please read and reply if you can. I'm not getting answers from my dr and I don't know what to do.

Rrae 03-01-2013 10:10 AM

Thanks for this thread Debbie!

For those who are familiar with Baclofen, do you have to take it regularly every day for it to work the best? I'm supposed to take it 4x/day, but I get busy during the day and forget, until my back spasms kick in.
Some of the other ones, such as klonopin are on an 'as needed' basis for immediate relief. I have this on hand, but no matter what I do, the spasms seem to break through!
So frustrating!!

Thanks,
Rae
:grouphug:

debbiehub 03-01-2013 10:53 PM

Baclofen
 
Quote:

Originally Posted by Rrae (Post 961781)
Thanks for this thread Debbie!

For those who are familiar with Baclofen, do you have to take it regularly every day for it to work the best? I'm supposed to take it 4x/day, but I get busy during the day and forget, until my back spasms kick in.
Some of the other ones, such as klonopin are on an 'as needed' basis for immediate relief. I have this on hand, but no matter what I do, the spasms seem to break through!
So frustrating!!

Thanks,
Rae
:grouphug:

Yes, I believe baclofen should be taken on a regular basis

Kymmie67 03-03-2013 12:44 AM

I just recently started with the spasms and twitching and it is very annoying and sometimes painful. I don't believe mine are as painful as some here.

When I called my pain doc to get a prescription, he gave me Zanaflex. He also told me, and actually really stressed to only take it every other day, as it will become totally ineffective if it's taken too often. I asked him if there was another one that would be better to take more often if I really needed to and he said that was the case with any muscle relaxant.

Do any of you feel that yours has become less effective over time?

I am hoping I won't need it soon....I was just approved yesterday for the SCS trial. It will be happening this coming Tuesday! Totally shocked me that it was only four days from the time it was submitted until the day it was approved! :yahoo:

cfthb 03-03-2013 01:48 AM

Muscle Relaxants
 
Quote:

Originally Posted by tos8 (Post 961640)
I tried multiple muscle relaxants aswell and it was actually my surgoen who told me soma worked the best and she put me on it and now my primary manages my pain meds and she also thinks it works better then others. I take it 4x a day along with valium because i get severe rib tightning/cramping after TOS surg. and the combo works the best.

I, too, have tried many muscle relaxants over my 15 RSD years, and agree that Soma works very well. Its use has been declining since most clinicians know that it's metabolized by the liver to meprobamate (Miltown and other brands), a C-IV drug whose use has been virtually curtailed in favor of the benzos.

Valium works really well, but there are many examples of folks (like me) developing intense tolerance even at fairly low doses. I took 5mg qid for four months, and when I stopped, I didn't sleep for eight continuous nights. I was young and inexperienced and did not taper, which is nuts. Still, the degree of tolerance was amazing.

For general safety, lack of psychological effects, and long-term efficacy with no development of tolerance, baclofen works great for me.

HB

fbodgrl 03-03-2013 10:49 AM

Interesting thread. I've been on Norflex twice a day an flexeril at night. Flexeril used to work pretty good for me years back when I would be put on it occasionally for muscle tightness.

I don't think either are helping my issue now. I get horrible muscle tightness in my neck and shoulder. My PMD has been giving me 2 injections in my neck every month when I go in. It works great, but is short lived and it comes right back a few days later. I see him in a couple weeks and I plan to discuss trying something else.

Kymmie67 03-03-2013 07:16 PM

take note of my mood aboveBelieve it or not, I really am interested in a response. I've responded in a couple of threads and I'm beginning to feel ignored.

I don't feel an every other day muscle relaxant is working for me. I have muscle spasms [B]every[B] day. I really do want to know if anyone's muscle relaxant is losing effectiveness over time. I want some responses. I need relief every day. Please.

ginnie 03-03-2013 07:35 PM

Hi kymmie
 
I do hear you Kymmie. I know you are frustrated. I am here to listen too, just didn't respond because I only have PN. Your situation, is going to require a doctor who will actually listen to you. If you need help with the pain and spasms every day, taking a pill every other day isn't going to do much for you. You need adequate pain control with a muscle relaxant so your quality of life is better. Do you see pain management? do you keep a journal to show your doctor exactly what you are experiencing. do you let her or him know just how bad it is????? The sqeeky cog gets the greese, and you may have to speak up a little louder to your doctor. RSD and CRPS HURTS I know it does. I have a friend who has it, I see the pain and hear his cries. Soma is good for spasms, especially combined with some kind of narcotic. You may want to invest your time and seek a physiatrist. This is a pain management doctor who also specializes in the "whole" person on a cellular level. This is the kind of doctor I go see. In fact I go tomorrow to address my own pain issue. I will listen and try to help in any way I can. You are not alone, and you can talk to me any time. You are in my thoughts and prayers right now. ginnie:hug::grouphug:

Kymmie67 03-04-2013 01:18 AM

Thank you for your reply and for your help, Ginnie. I'm afraid I don't know what PN means.

To answer your questions, yes, I do see a pain management doctor. I really, really adore him and trust him. I'm hoping after Tuesday that I won't need a muscle relaxant. Hopefully this SCS trial will be a success and then the permanent also.

He must have some reason to tell me that every other day is better, but I have to admit, years ago, I was taking soma, multiple times each day. I don't get it.
I have not been keeping a journal. I don't know how to go about organizing it or anything.

As far as a physiatrist goes...my insurance will not cover it, except at an outrageous copay...I simply cannot afford it. We have been having serious financial problems lately. It just won't happen.

Thank you again.
You are very kind...I have noticed that, thru reading all of your responses over this board, and I will remember that kindness. :hug:

ginnie 03-04-2013 08:53 AM

Hi Kymmie
 
If you love and trust your pain doc. thats great! Now just ask him outright for more help. To journal is simple. Just use an everyday calander. Everyday, in some way, mark your pain levels 1 - 10, say where the pain is, and what it is doing to you and how it effects you at that moment. Can just write it simple.
Most doctors do not know just how bad you are, until you show them how your daily life is effected. I go see my pain management doctor this afternoon and will bring my callender. She will get to see just how my month went.
I hope the Trial helpes you. For some reason the neurologist didn't think I would be a good canadate. I wish you the best Kymmie. I hope your pain goes down, so that you can have a better life. ginnie:hug:


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