my doctors say never have seen someone like me
 

Hi!:)

Yep, it's me again! But this is kind of important right now. I am having a neurologist appointment tommorrow!
Today my vestibular theraphy therapist(30 years of experience) and me were discussing my symptoms. I am not having any cognitive damage at all. My balance improved to normal trough theraphy.

Visual snow, Dream Feeling, Flashes, Light+Sound Sensivity, lightheadedness, Ice pick headaches and ear ringing, Tingeling+electric shock feeling
are my symptoms.
It's gets worse trough stress and concentration. The symotinms are there all the time, not just coming and going. It's like being trapped in that migraine aura all the time.
She told me, that she, in her 30 years of working with concussed clients, has never seen anyone like me. She talked with another doctor of mine. They both agree I might have Post Concussion Migraines.
They are kind of helpless! It's no upper neck issue, I asked because of that.

So, I really want some kind of meds that will decrease my concussion level. I never have rested so much in my whole life but there is no improvemnet. Not even a single symptom improved a bit.
All the symptoms occured after I stopped playing sports with a concussion.

So, there are a lot of question I am gonna asked tomorrow! Did anyone went trough that too, or knows any medications for that? Or any question I could asked my neurologist? Is it possible to heal from Post Traumatic Migraines, or did I damage my brain?
Thanks and sorry for spamming!:winky:

Lui,

I have looked through your past posts, and may have missed a few:

- what medications are you taking?

- are you on the supplements suggested on Mark's listing?

I understand your anxiety when you hear such news from your health providers but there are still avenues of therapy available, hang in there.

:grouphug:

Best Wishes.

well yeah, my neurologist just told me that I have probably damged my brain for my wohle life. They gonna check my eyes and my spine.

I doubt it. They just have not found the problem yet.

Often, when doctors can not fix a problem, they either say the problem does not exist or that they can't help.

i think so too. they gonna do an mri of my spine and eveluate my eyes.

Lui,
Don't stress too hard. The doctors told me that I would die and do not know how I lived. They just do not know everything for fact. They make their best guess but sometimes they are wrong. Prove them wrong!
Let us know what happens. Good luck.
Brain :hug:

So I should lay back and not worry becasue it's gonna go away wih time? I mean I'll have a lot of time!

No. That is not what I am saying. What I am telling you is that no matter if your brain is damaged for life, you still have a life and you will have to find ways to work around the disability. It is a new kind of life but all hope is not gone. I know it is hard hearing what the doctors are saying. I too have a brain injury that looks like it is for life. I also had liver and kidney failure that they told me I would die from and am almost 100 percent healed from that. Do you have a fighting spirit? It can go a long way.
Brain

Yes! I have decided to prove them wrong! I will do everything to show them that there is a way. I haven't given up yet! I am super positive that this will heal with time! Even if not, I'll learn to live with that! I think the most importasnt thing is, to NOT get depressive about it. I think everything is possible with a positive attitude. :)
The worst thing are my parents. They just can't deal with the fact that I'll come back not as healthy as I used to be. They shout at me, that this is all my fault and that I am just imagine that.
The last time they told me that, I started spoert with a concussion...:winky:

Yeah! Good for you. That is what I was looking for. :hug:
Don't worry about the family. They will come around. Ultimately, they do love you and just do not understand how life changing your injury is. They are trying to push you and probably just thinking you are having anxiety. You will need to educate them. Even with that you may still have some family members who just don't get it. Don't worry about them. You don't need the negativity.
That is the thing too is to fight the depression with all you have got.
I believe in you.
Brain

Thank you so much! You don't know how much you're helping right now! I needed that!:)

Very well put , Brain Patch.

btw, i asked him in panic if there is any chance of recovery. he said yes, but vision problems are hard to fix. he said i am having good chances to actually heal because i am young. but it's gonna take a long time. beside that, he is really clueless.
if i will ever be ok again, i would appreciate life like never before. I think everybody with pcs would...
then he prescribed me a migraine medicin with caffeein in it?! tought that would be bad for concussion?
the funny thing is, my mom won't let me take it if it causes any serious side effects. If she would have my migraine headaches...:mad:

Just wanted to say
 

That I have a few similar remaining symptoms and that mine are vision-related. I'm doing vision therapy. Visual snow, Dream Feeling, Flashes, Light Sensivity, and Ice pick headaches are likely related to vision issues from the concussions. Do the headaches start above or behind your eyes? Anyway, you have a good attitude. Did your neurologist recommend seeing a neuro-opthamologist? If not, I'd look into it on your own.

Yes, I told him that I want to see one and he gave his ok! How is vision theraphy working out for you?
The heaches are on top of my head where the ball hit.

What do you mean your mom won't let you take it if it has any side effects? She is not taking your medication away from you? I have had the kind you are talking about with caffeine. It actually works really good. Actually, extra strength excederin works really good and you can buy that at the store without a prescription. Just remember not to take more than 4 pills a day EVER. The Tylenol in it is bad for your liver. This is how I had liver failure. If you think PCS sucks, you won't like liver failure at all.
Brain

Vision therapy
 

What I'm doing right now is a combination of vision therapy and sensory integration therapy. As of today, knock on wood, it seems to be working! I'm trying not to get my hopes up too high, but I just feel different today, less dizzy. I'm seeing more depth in things that looked flatter previously. I'm pretty excited. Yesterday, I was just miserable and concerned about not seeing any results yet, but today is just so different. I will post about it after I am done with this intensive part of the therapy.

Got the medication today. I lied to my mum(sorry mum)! I just can't stand that headaches anymore. It's called Esgic or so. I won't get any liver problems when I am just taking one every six hours right?
Beside that I got all the supplements Mark wrote down.
@DFayesMom, what are your symptoms? My best for your recovery!

Good girl. Nope you won't get any liver problems if your not taking too much. Take only as prescribed and you will be good. I took my regular medication and added extra strength excederin on top of it without realizing they were both jam packed with Tylenol. This ended up in Tylenol overdose and boy was it painful.
Just remember to rest when needed instead of just pushing yourself and taking more medication so you can keep up your normal lifestyle. That is where the problems begin. We must listen to our bodies and not just keep pushing at all costs. Because the costs are high.
I am so glad you are feeling so hopeful and I see you are tough and a fighter.
Be kind to yourself.
Brain

I won't let this ball I headed ruin my life!:winky:
Thanks for the help man! When do such medication usually start to work? Right after the first tablet?
That sounds horrible! I hope you're gonna feel better soon! Don't give up either! I am so sure that evrybody can heal!:)

Yeah. Medication should kick in fast. Usually within 15 to 20 minutes. You have to learn when to take the medication and it will work great. If you wait too long, it may not work so good. Your going to have to get to know that yourself.
Glad to help you! Hang tough.
Brain :hug:

Support!
 

I'm pretty much going through the same thing. The worst symptom for me though is headaches. REALLY bad ones. I'm suffering from post-concussion symptoms and nobody I'm friends with relate to me or can understand. It's sort of one of those things that you can't really understand unless you've been through it. What I need more than just recovering & rest is support and someone who gives a ****

I hear you loud and clear about the support. I hope your friends and family are better at giving you some then mine. I have not had any support only criticism from them in fact. That is why it is good to come here and speak to others who understand the situation. I guess it is one of those things that others cannot understand unless they have experienced it. They think you can just snap out of it or you are not trying hard enough or you are crazy etc. don't worry about it or let it upset you. You have support here. I am so sorry that you are going through this along with the rest of us. :hug:
Brain