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-   -   Ophtamologist appointment (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/187942-ophtamologist-appointment.html)

anon22217 05-03-2013 03:04 PM

Ophtamologist appointment
 
Thank you everyone for your support.
I have an ophtamologist appointment at Stanford this Monday. My main symptom is chronic headaches and light sensitivity in my left eye and I also feel that my left eye doesn't focus properly in conjucntion with the right eye. I've had my eyes examined before and they did say that I still have 20/20 vision.

Can you guys give me some tips on questions to ask my Ophtamologist on these particular issues? Do you think wearing prisms in my glasses will help me? Thank you.

DFayesMom 05-03-2013 05:09 PM

Neuro OPthamologist?
 
I just wanted to make sure you are seeing a neuro opthamologist. I'm guessing so, but I just wanted to be sure, as a regular opthamologist cannot diagnose you. Anyway, if your doc is like mine, he/she will be exceedingly thorough and will ask you everything under the sun, as well as run all kinds of tests. I was there 2+ hours on my first visit. It was a bit taxing, so don't make a lot of plans for the rest of the day! Good luck!

NormaW 05-04-2013 12:12 PM

Neuro opthamologist gave me hope
 
I went in april to See a. Neuropthamologist just outside of Toronto. There are only Three neuropthamologist in ontario and i had to travel five hours to get there. It was well worth the trip. I have been diagnoised with post traumatic. Vision syndrome, vision mid line shift syndrome and convergence insufficiency. She prescripted prisma glasses and i was able to try a pair in her office, what an amazing difference. I never realized how unbalanced i was until i tried the glasses. I am also going to be taught how to do vision therapy at home since it is very far to travel for a one hour appointment. I also went twice prior to the Ottawa eye institute and was told there was nothing wrong with my vision. This doctor knew exactly what my problems are. It was really nice to be validated, sometimes i would think i was going crazy. She also told me this process could Take anywhere from six months to Two years. Good luck.g

anon22217 05-04-2013 01:15 PM

Thank you! My hometown is Toronto. I miss it a lot. I"m just curious what were your symptoms?

Quote:

Originally Posted by NormaW (Post 980651)
I went in april to See a. Neuropthamologist just outside of Toronto. There are only Three neuropthamologist in ontario and i had to travel five hours to get there. It was well worth the trip. I have been diagnoised with post traumatic. Vision syndrome, vision mid line shift syndrome and convergence insufficiency. She prescripted prisma glasses and i was able to try a pair in her office, what an amazing difference. I never realized how unbalanced i was until i tried the glasses. I am also going to be taught how to do vision therapy at home since it is very far to travel for a one hour appointment. I also went twice prior to the Ottawa eye institute and was told there was nothing wrong with my vision. This doctor knew exactly what my problems are. It was really nice to be validated, sometimes i would think i was going crazy. She also told me this process could Take anywhere from six months to Two years. Good luck.g


anon22217 05-04-2013 01:16 PM

Unfortunately its just an opthamologist. I'm hoping from there she will will refer me to a neuro opthamologist or do I need to search one out on my own? Thank you.

Quote:

Originally Posted by DFayesMom (Post 980479)
I just wanted to make sure you are seeing a neuro opthamologist. I'm guessing so, but I just wanted to be sure, as a regular opthamologist cannot diagnose you. Anyway, if your doc is like mine, he/she will be exceedingly thorough and will ask you everything under the sun, as well as run all kinds of tests. I was there 2+ hours on my first visit. It was a bit taxing, so don't make a lot of plans for the rest of the day! Good luck!


anon22217 05-04-2013 01:19 PM

Oh, as well I will be scheduled to do a visual field test. Will this test help me to determine if I have convergence insufficiency or need prisms? Thank you

QUOTE=bluehiroko;980669]Unfortunately its just an opthamologist. I'm hoping from there she will will refer me to a neuro opthamologist or do I need to search one out on my own? Thank you.[/QUOTE]

DFayesMom 05-04-2013 03:55 PM

It could be helpful but
 
I don't think the visual field test will be able to catch the kinds of problems you might be having. I think it's used to diagnose other problems, but I'm no expert. Hopefully you can get a referral if they can't diagnose you properly!

DFayesMom 05-04-2013 04:10 PM

Also
 
If I were you, I would call them and ask if they can diagnose things like convergence insufficiency. If they can't, I'd cancel the appointment and research it on your own or ask your PCP or neurologist if they have a referral for you. It could just be a waste of time for you. I should know! My PCP accidentally referred me to a retina specialist instead of a neuro-opthamologist and he said I was fine, except I needed bifocals. (And at the time, I didn't realize he wasn't a neuro-opthamologist! It was only later that I sussed that out!) I went tO the optometrist at the local mall, and she spent two hours trying to get a read on my eyes. She was very frustrated! Eventually she gave me a prescription for a very weak bifocal but when I got them, they just made my vision blurry, so I sent them back. Months later, my physical therapist finally referred me to the right doctor and he has been able to helP me. Anyway, I just am encouraging you not to waste your time like I did! The only reason to go would be to see if you could try prism glasses, but they don't work for everyone. If you can call and talk to someone about what they can do for you, that would give you an idea if it's going to be worth it. Good luck!

DFayesMom 05-04-2013 04:22 PM

Stanford university?
 
If that is where you are going, it looks like they do have doctors who specialize in neuro-opthamology, so if the person you are seeing can't helP you, they should be ablE to refer you to someone whO can! Best of luck to you!

berkeleybrain 05-04-2013 06:46 PM

I would cancel the appointment if it is just an ophthalmologist. You will go through several exams, but it will not specify convergence insufficiency or binocular vision or accommodation issues that are common after mtbi.

At Stanford the have a neuro-ophthalmology department, and you can contact the following for appointments:

http://ophthalmology.stanford.edu/pa...ics_neuro.html

Byers Eye Institute at Stanford
2452 Watson Court
Palo Alto, CA 94303
Phone: 650.723.6995
Fax: 650.723.6619

Best of luck!

NormaW 05-05-2013 07:53 PM

Quote:

Originally Posted by bluehiroko (Post 980668)
Thank you! My hometown is Toronto. I miss it a lot. I"m just curious what were your symptoms?

I can't read or watch t.v. for very long. If I do my eyes start to water and I can either get a headache immediately or the next morning. My vision is blurred and will stay like that until I recover. It is really hard because without t.v. or reading there is not alot to do. I listen to the radio alot. I also can't navigate through large crowds, when a group of people walk towards me I have no idea how to navigate through them (I was told this was an issue with depth presception). The doctor told me I had all the classic symptoms, it was really nice to hear someone say they understood my issues. I also have balance issues, which I did not think were that bad until I tried on the prism glasses and my world was righted for the first time in a long time. It is almost like walking drunk or offbalance. My prism glasses have been approved so I am just waiting on them to be sent to me. You really need to see a neuro opthomolgist alot the the regular doctors have no idea what this is all about. As I said I went twice to specialist to be told there is nothing wrong with my eyes it is the concussion. Try googling Post Traumatic Vision Syndrome and see if anything rings true for you. The thing that I find most discouraging is without reading or being able to use a computer for any length of time I will not be able to work. Where are you located?

Gettingbetter31 03-12-2014 01:26 PM

Neuro opthamologists in Ontario
 
Quote:

Originally Posted by NormaW (Post 980651)
I went in april to See a. Neuropthamologist just outside of Toronto. There are only Three neuropthamologist in ontario and i had to travel five hours to get there. It was well worth the trip. I have been diagnoised with post traumatic. Vision syndrome, vision mid line shift syndrome and convergence insufficiency. She prescripted prisma glasses and i was able to try a pair in her office, what an amazing difference. I never realized how unbalanced i was until i tried the glasses. I am also going to be taught how to do vision therapy at home since it is very far to travel for a one hour appointment. I also went twice prior to the Ottawa eye institute and was told there was nothing wrong with my vision. This doctor knew exactly what my problems are. It was really nice to be validated, sometimes i would think i was going crazy. She also told me this process could Take anywhere from six months to Two years. Good luck.g

Are you able to tell me the three neuro opthamologists in Ontario that you found? I live west of Toronto & need to get referred to one. Thanks

NormaW 03-14-2014 10:49 PM

neuro optometrist
 
Hi it is actually a neuro optometrist. I went to the Vaughan Vision Centre. They diagnosed me with post traumatic vision syndrome, vision mid line shift syndrome, tracking issues and convergence insufficiencies. The neuro optometrist is Angela Peddle. (1-905-303-9775) I found she took alot of time to go through everything. I was there for about 2 hours, however I was unable to complete all the test due to fatigue and headaches.

Angela Peddle is also a contributor to the Ontario Concussion Guidelines and was recommended by the physiatrist who diagnosed the Post Traumatic Vision Syndrome.

They recommended vision therapy and prism glasses. There are only 9 neuro optometrist in Canada, there is one in the Hamilton area and another in Belville.

Good luck

Glacier Guy 03-15-2014 11:47 AM

Further on the subject to neuro-optometric rehabilitation, there is Dr. Cheryl Letheren in London, Ontario. She specializes in behavioural optometry. I too had an examination that took about 2 hours, and followed with a prescription for a prism lens as well as ocular-vestibular therapies at home.

RunWriteMomHeal 03-18-2014 08:40 AM

Quote:

Originally Posted by NormaW (Post 1057059)
Hi it is actually a neuro optometrist. I went to the Vaughan Vision Centre. They diagnosed me with post traumatic vision syndrome, vision mid line shift syndrome, tracking issues and convergence insufficiencies. The neuro optometrist is Angela Peddle. (1-905-303-9775) I found she took alot of time to go through everything. I was there for about 2 hours, however I was unable to complete all the test due to fatigue and headaches.

Angela Peddle is also a contributor to the Ontario Concussion Guidelines and was recommended by the physiatrist who diagnosed the Post Traumatic Vision Syndrome.

They recommended vision therapy and prism glasses. There are only 9 neuro optometrist in Canada, there is one in the Hamilton area and another in Belville.

Good luck

A neuro optometrist can help, but many neuro ophthalmologists do not "believe in" convergence insufficiency or vision therapy.

My visit to a neuro ophthalmologist was a waste of time. He gave me a cursory exam, treated me like a stress case and was patronizing. Best bet is to find a behavioral optometrist in your area maybe by searching for therapy or convergence testing or have a vestibular rehab center refer you.

LauraM 03-18-2014 03:18 PM

try calling th vision institute I googled vision therapy .........and read the website a bit.....

York Mills Centre
16 York Mills Road
Suite 110 (Ground Floor)
Toronto, ON M2P 2E5
Canada

Tel: (416) 224-2273
Fax: (416) 224-9234
Send us an email
Show Map

LauraM 03-18-2014 03:23 PM

or call your regular eye doctor for a referral that is what I did. The the concussion clinic had sent me to see someone an hour from home I hated. It was like walking into a kindergarden room and the drive made me sick. So I called my eye doc, they had a binocular doc there, did a 2nd opinion and refered me to a vision therapy place 5 miles from home and I LOVED her. 35 visits later I was better. Needed maintenance therapy for home but could not pay for it so they gave it to me, proof there are still good business people out there.

Eowyn 03-19-2014 08:09 PM

http://www.braininjuries.org and http://www.nora.cc both have listings for Canada as well as the USA.


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