Hi
 

Hi

I've realised that i joined up months ago but havent posted, Have been using the latitiudes forums a lot since my son started vocal ticcing in January after nearly 2 years of very minimal motor tics. He will be 7 in Sept

I Have read Sheila Rogers book and am slowing working our way through diet changes, supplements, allergy testing etc, Possible candida/leaky gut.

Finding it hard being in Australia but we see a Neurologist on June 5th for a diagnosis and also found a nutritional and Environmental Dr who we also go see the same day. We have to travel a fair distance to see them so hope they can help us out.

Are there many families from Australia on here? I'm on the Tourettes syndrome association australia page on fb so that helps a little in connecting with others.

:)

Just wanted to say hi to you too and believe it or not, I'm also in (not so sunny) Qld. :)

My two children are in their 20's now. All grown up and doing fine generally. Things have changed so much regarding doctor's knowledge here in Australia in the past 20 years. It was all so difficult back then. I travelled to the US and Canada and went to meetings and conferences and met the most amazing people and I learned so much from friends in online TS communities. That was about 15 years ago now. There is so much more information available here in Australia these days. That can only help.

Good to see you posting.

Hi logismum :)
Good to see you here!

Hi Lara

Ahh good to hear from another Aussie, We are in Central Queensland! So windy lately.

Very glad to hear your children are doing well :)

Australia is slowly getting there, Long way to go still i feel. It would be amazing to be able to travel overseas and attend confrences, Meet people and learn more.

Hi Chemar :)

I was wondering if you're having to travel to Brisbane for your Neuro appointment? Bring some warm clothes and a scarf if you're heading south. :) I'm a couple hrs north of Brisbane but the nights are really cold all of a sudden. Really cold to us. To many it's probably lovely. lol
The days are great though and we need to strip off a layer or two of clothing. Just letting you know!

The main reason I travelled for info. way back then was that my son was diagnosed with Sydenham's Chorea for a number of years after age 5. That's a movement disorder that sometimes occurs in some people after having Rheumatic Fever (a Strep. -GABHS - related illness). He was subsequently differentially diagnosed with TS and a number of other comorbid conditions at age 10. I still wasn't sure they got it all correct and they didn't. Anyway, that's a long, long story and feels like ancient history now.

Edited later to add: Don't forget to take a list! Note down all your questions and relevant information to discuss with the doctors.

How's your son getting on at school and with his peers?

Yes Lara we are having to travel to Brisbane to see a Neurologist and then a environmental dr so was wondering how chilly it was down that way. Will definitely wear and pack some warmer clothes incase we stay the night. It's even getting chilly in the morning and arvo's up our way. Brrrrr

I've been keeping a record of how his tics are in frequency, what exact tic etc since the start of this year and i also have some footage on my mobile phone of him ticcing that he didn't know i was taping.

He actually started at a new school 2 weeks before easter as we moved a bit out of town. It worked well as he had 2 friends there that he has known since he was 2! He is not in their class but he has coped well and his teacher has been great, She talked to the class to explain about why He makes noises and the kids have been good about it. He is doing really well at the moment with all the changes we have been implementing, clean eating, vitamins etc. Only motor tic is a light shoulder shrug and then his vocal tic. Neither are continuos all day thankfully and heres hoping it stays this mild if or even better improves more for him :)

Good luck with the appts! What grade is your son in?

Thanks :) My son will be 7 in September and he is in grade 1

Hey logismom, how is it going with your son?

Hi Hudsmom

My son is going really really well atm, Thanks for asking. I got your msg in my inbox but i have no idea how to reply? lol i don't know why i can't see a msg button to send one back sorry. How is your son going?

Past couple of weeks have been ruff. Yday was prob the worst so far. But that is OK we will get there. Thanks for asking

logismum,
just letting you know you can reply to Visitor Messages if you click on your own name. It'll take you to your own profile page. e.g. near the top right of the screen after you log in here at NeuroTalk it will say "Welcome, logismum". Click on the underlined logismum and that'll take you to your Profile Page and Visitor Messages will show up there. There you can reply by just typing in the box and then you need to click Post Message.

There are also Private Messages. If you need a hand with anything let us know and myself or someone will help you out. There's a really comprehensive FAQ up the top of the page as well. It might help explain some of the settings and such that may be unfamiliar.

You don't have long till your big trip south. I hope all is well! {Bring an umbrella!} ;)

Hi there Hudsmom,
I'm sorry the past couple of weeks haven't been so great. I hope things are improving soon. What's been going on?

He has been having panic attacks daily. The least little thing sends him over the edge. Some days several in a day.

Hudsmom, that doesn't sound very good. What does he do when he has the panic attacks? Are they actual panic attacks or does he have meltdowns which seem to be out of the blue? I'm just trying to understand what's happening to him. Any noticeable triggers to these episodes?

I guess you're all on school break now. I was hoping he'd start to feel more relaxed.

The panic attacks he starts having a hard time breathing and complains of chest pain. But then he is having meltdowns as well. Arriving places on time is a huge factor so we have to leave early. He wants me with him at all times. Even wants me to lay with him until he falls asleep. Had a field trip yesterday and his dad had to attend because he was paniced at the thought. I've read the worry wise kids and he is really like a poster child for GAD. We have our second appt w therapist next week.

Hi logismum,
Have you left for your trip down south yet? I know the appointments are for tomorrow the 5th so just wondered.

Hi Lara

No we haven't left yet, We fly out at 6:45am tomorrow morning and won't get back home until 8:30pm so it's going to be a very long day especially for DS 6 but he is very excited to be going on a plane!

Have a safe and fun trip, logismum.

Looking forward to hearing from you on your return. I'd really love to hear how you get on with the nutritional doctor too.

Take care!