Small Fiber Neuropathy From Left Over From A Virus
 

First off, I apologize for making so many threads. I just wanted to try and keep everything separate so as many people as possible could see the specific questions and respond.

Okay, having said that, does anyone know anything about Neuropathy being caused by a virus that is not HIV? I ask only when I first got my EMG done, the doctor performing it said that he thought there was a virus going around that was causing these symptoms.

After thinking more about it I have self diagnosed (until my next neuro appt.) myself with small fiber neuropathy. But, everytime I try to search for neuropathy caused by a virus I normally end up with something connected to HIV. So, does anyone know of viruses that can cause this? And more importantly, how to stop it.

Thanks!

Check the thread about specialists in Rhode Island. I found one for ya.

Now here's some information I just got off the net about viruses and neuropathy:

"Viruses and bacteria that can attack nerve tissues include herpes varicella-zoster (shingles), Epstein-Barr virus, cytomegalovirus, and herpes simplex-members of the large family of human herpes viruses. These viruses severely damage sensory nerves, causing attacks of sharp, lightning-like pain. Postherpetic neuralgia often occurs after an attack of shingles and can be particularly painful."


Don't go diagnosing yourself. That's scary. Wait for all the tests okay?

Take your B-12.

Melody

Please
 

Please Mel has gone to a lot of trouble.please stop the self diiagnosing.
Look we all do it but get your self to a Neuro Dr.make sure he-she knows
What PN is..And once again it's the drugs that treat HIV infection and Aids
that cause PR.
Icould give you so many other things but it's about to storm like crazy in Mo.
Nice going Mel,please get the to the Dr. ;) Sue

I understand it's the drugs that cause PN in HIV/AIDS patients. And I know that's not what's going on with me. That's why I asked if anyone knew of other viruses that cause this.

To clarify my last post: I mean that every time I ran a search engine for info or something like that, all that was thrown back at me was HIV related stuff. So, obviously, that wasn't too helpful.

Sorry,i live to close to Kansas not to take storm serious. The small nerve
nerve fibers transmit pain signals as well as sensationd of hot and cold.
Damage to small fibers results in burning and acking sensations which are
usauallly persisstent.Your going to recheck

1 Vitiamin deficiencies b12 or vita excessess b6
2 Kidney failure
3. liver failure
4 rheumatoid artrisities
5 adnormal blood (proteins)
6 shingles
6 cancers and treatment
Now you asked about a virus,i don't know,but honest i wouldn't doubt it.
Also if you are overweight it could be Diabetes pre 2 or full blown Diabetes.
I believe on other posts you have also had your Tyroid checked do it again.

When you check the Dr.s make sure you ask for a Neuro Dr. who specialices
in PN of all types and you mube patiet..Sorry again was hiding from storm.
Really s. Manny Blessings :hug: :hug: Sue

As Melody pointed out--
 

--there are a number of pathogens--viral and bacterial--that can cause neuropathy by direct infiltration of nerve.

This website gives a good rundown of the possibilites--and there are a lot of them:

http://www.neuro.wustl.edu/neuromusc...her/infect.htm

Probably more often, though, infectious-related neuropathies are not the result of the infection directly, but result from an autoimmune molecular reaction. This occurs when the body fights off an invading pathogen, but the structure of the pathogen was sufficiently similar to that of some body tissue that the now activated immune system cannot differentiate that tissue from the pathogen and attacks it.

This mechanism is supected in many so-called "idiopathic" syndromes--it's hard to identify specific mediating antibodies as they may be unique to each person--and is thought to possibly underline a whole host of autoimmune conditions, including Type I diabetes, myasthenia gravis, and others.

Thanks for all the great links guys...I'm going to a neuro tomorrow and hopefully will come back with, well...something.

Before I came down with SFN, I had a very bad bought of bronchitis. I was very ill for about a month with the worst cough I ever had. As the cough was finally resolving,i started to experience the first symptoms of PN.

Simultaneous to that but, I had some stomach complaints as well, it wasn't until significantly after the Pn came on bodywide, that I saw a gastro who did an endoscopy and diagnosed me with a a pretty significant case of H.Pylori infection in my gut.

My illness has been diagnosed by a SF specialist as post infectious autoimmune SFN due to a process of molecular mimicry. It's more or less a GBS variant. There is ample information online linking GBS to helicobacter infection, especially the axonal form which is different to demylenation.

Though the docs beleive that mine was a reult of the brochitis.

I had bronchitis this past february again, and I had another attack of it, though much milder. After each attack, I seem to feel better and find more resolution.

glenntaj
 

Great site i had Siogren's syndrome first,nurse friend with Hepatitites C
a brother-in-law with ITP as well as oldest son,and also forgot Tuberclosis
My son is the only one not complaining.I hope he never does.. WOW we lost
at least half the shingles off our roof what a storm!!

Well over 90 Tornado's since Friday in Kansas,Mo,Ok. right back to stress,
anxiety and the such. Thanks again, Sue Columbia,Mo

A 99
 

There is another one,my brother and i got Bronchitis when we were very
young and what seems like 100 years later,still getting it,your right last
year broke 2 ribs coughing. Made it through this year.. :( Sue

Do NOT PANIC!!!!!
 

That is the forward in Douglas Adam's 'Hitchhikers Guide to the Galaxy' [and, also a member of Monty Python - golly I date myself?

For your neuro visit tomorrow: Read the following - www.neuroexam.com
It's all about [the short version] of what neuro's 'exam' you for, ask you about, then test you on...and why..Since you are probably away from home...be very clear and ask for COPIES of any and all tests and summaries in writing...so if things change...YOU can bring records around with YOU...YOU have copies?

NEXT got to www.lizajane.org and take a peek at her worksheets. LJ is a member here [who's be quiet lately-hope all is well] who has had both spinal and severe neuropathy issues.. LJ put together these sheets, and I know other members have contributed to what all possible tests could be done to diagnose the over 200 kinds of neuropathies. Consider it a 'roadmap' of sorts, BUT don't get swamped down in details just yet. I believe you have been really doing your homework tho...Save that energy for when more tests are done. Oh, don't expect all the tests to be done in a week or the like...it often takes months. Be cool about it.

One thing you've not touched on is whether you mite have had a bad cold or flu about 3-5 months ago...not the kind that goes away in a couple of weeks, I mean the kind that just kept hanging around... Did you? If yes, it could lead to some routes, if not, to others.

The most important point for you when you see this new doc... Is to be as clear and simple in explaining to him what YOU think is going on with you. Try to be factual ...'I feel numb' is one thing...'I feel numb, first in my toes, now up to my knees.'..starting 'X' date and moving 'up' to Y on 'z' date...etc..For now you don't have to be precise, just accurate in what's happened...and, about when. No matter what, it's scary. Rightfully so. But the less emotional you present it all.. fear tho can be included and with cause. The more likely a doc is to pay attention to YOU.

The next issue, is don't start looking for a cause of the problem rite now. Just look for what the PROBLEM IS, start treating it, THEN worry about the other stuff later. You are way too young to have this kind of thing... Hopefully it's something that can be simple to fix! IN the meantime, I'm going to wait to hear from you about what the doc has said and done... - j