Scared
 

I have been waking up feeling beat up, breathing problems, and hiccups. I got a EEG done month's back when I got the diagnosis and everything came back fine. I ask a higher power to please not let it be what I am thinking. Guess I have some more work to do to find out.:grouphug:

try not to be scared
 

I am scared a lot too. I have you symptoms plus 20 or 30 more. caused from brain injury. caused by a doctor who I now hate. follow up with your doctor and keep us informed. hopefully, tomorrow will be a better day.

I seriously cannot handle this!
 

I believe I am having seizures in my sleep and have been for awhile!I confirmed with my neurologist that I need to go get another EEG.I thought I was at the point where no more diagnosis!

Well I been doing my research and reading my body really good.My severity of TBI and lack of medical direction has most likely landed me another diagnosis.I do not know how to handle ANYMORE.

I was doing really good and then my brain has it's own agenda! I will be trying to find answers if I have a form of epilepsy!I think I will be admitted as inpatient in July because my hope is crushed.:rain:

HI!
Wanted to share this. I woke up one night completely disoriented my sister had found me. I went to ER, they said might be seizure, but what to see if it happens again. I thought this must be a seizure because my whole body ached the next day and I slept for a very long time after. I went to my PCP and he said it probably was, because it was around 1 year mark and he had a history himself of this.I was told if you develop epilepsy it is usually soon after the injury or around the 1 year date.

I freaked out and was so depressed. I was terrified to be alone, didn't go swimming, etc. I know the EEG is not always right. When I got my EEG I had extreme pain and screamed out. My PCP said that is not normal.

So over months, I woke up more times disoriented didn't know my name, where I was for a few seconds. Years later I go another neurologist. He said "oh that is just a panic attack at night".

I did not believe him at all! I had a few bad panic attacks in daylight under major stress with whole body shaking, couldn't breathe, horrible chest tightness next day. This was different.

But it has now been over three years. When I do have extreme stress I get this. I have over time believed the neuro. I also would drink juice or eat a snack before bed because if I was hypoglycemic I would get it too. I do believe that it was my overworked/ fried brain, stress,anxiety, and I think it has to do with my severe neck injury as well.

I do believe that sometimes the oxygen gets cut off and contributes to this waking up disoriented (sleep apnea). Mark in Idaho helped me years ago and said check your o2 sat. Well, by the time I reoriented it never worked but I did get it one time and it was low.
There was one other poster who also had this. Of course yours may be different, but mine was not seizures. It is so hard to carry such a stress. Not to mention my first huge panic attack was the day after my doctor said I could have seizures. I would place pillows around my bed and be scared to go to sleep. It was such a hard time.

I think it is good to have another EEg for peace of mind. I know that you have a really severe neck injury as well, you would always help me before, thanks. Don't know if this helped you, just thought I'd share my experience.
Take Care!

Postconcussion thank you so much for the response.Your response did help me and I appreciate your comforting words. I do have a severe neck injury Bulging C1-C5 as well.

It seems like I have noticed it since January really since I got on medication (antidepressants,valium,headache meds)to calm some of my other symptoms down. I noticed it the first time in January after I was going to the non certified vestibular therapist and stopped that therapist for this reason and got a certified one.

This morning I woke up fine....It only happens during the night and maybe once or twice a month I will wake up beat up and usually the breathing thing happens a few times a week.

When I got the first EEG I could not go to sleep it was before any medication so I was with insomnia,neck & back pain laying on a hard table Etc trying to go to sleep.Which was a fail, with that being said I am going to get another EEG set up just to make sure.

You have helped me out a lot to respond to me and I appreciate that greatly.
I will keep this thread updated in the future.:grouphug:

it is tough living with tbi/pcs. people don't understand us or think we are making things up. who would make up this nightmare? I too have the problem of confusion and other things when I wake up. it is very scary but I guess thing is to take one day at a time and find ways to feel better. I know neurologist can't really do anything else for me but I have appointment anyway for my myriad symptoms.

Sounds to me like you need a Central Sleep Apnea oriented sleep study. Lack of O2 during sleep will cause these seizure like activities. I finally have an appointment with a sleep pulmonologist next month. I sometimes wake from sleep with a startled feeling and feeling like I am suffocating. The mini-anxiety attack is the brain's reaction to the need for oxygen, at least in my understanding.

An EEG with a sleep session may help. It is how I learned I have Central Sleep Apnea.

~Thank's~
 

I appreciate the feedback greatly!I take my Valium before I go to sleep. I thought valium helps with anxiety,muscle spasms?I will be sleeping in the same room as my daughter for the next week on a trip. She is a teenager and I am going to ask her if she see's or hears me doing anything while asleep. Because most likely she will be up later than myself.

I am going to call tomorrow to get some M.D. appointments set up for when we return for this health concern.This morning when I woke up I noticed I do not just wake up by opening my eye's and stretching in a relaxed way! I jump up and no stretching etc.

I cannot tell my mother right now about the *new health concern because she will not let me and my daughter take this trip that we need SO VERY BAD!We need to work on coming together because I have been so messed up for the past years that I could not take care of her. My mother is already really worried about us going because of my health. She does not want us to go at all.

I am having this problem with this thought "why stay alive when I am suffering so much?" The only thing that is keeping me alive is my daughter and I am the only living parent for her. I am now every week getting new stuff thrown at me. Yesterday I got a letter from my car insurance and they are dropping me in September.

Why am I getting punished so bad for someone else's wrong?????I am emotionally shattered!I do not know how much longer I can deal with this Fing new pos life. HEEEELLLPPPP:grouphug:

I don't have this but I hope your fear is put to rest and you feel peace soon!
Jace

I feel the same way sometimes. what did I do to deserve this. I keep moving forward because of the loved ones in my life or I might have surrendered by now. we must keep fighting because we owe it to ourselves to get better and live the best life possible. I hope you fin an answer to your problem with waking up.

This is a never ending nightmare
 

I will be in the mental hospital very quickly!Friday I find out that I need another EEG for whatever is going on in sleep,Saturday I get a letter that my car insurance is dropping me, and now the state will not even give me and my daughter food stamps!

I went from making 50k-70k a year to NOTHING!!!!This is a never ending nightmare and I am about to make it END!!!!I am done this fight is over for me.It was great being a part of this support group.This is the honest truth how this TBI has made my life and families life living hell.

woah!! don't do anything you can't reverse. I am six years on from losing a 70k job and everything else for head injury, but you cant give up. please get help quickly from family, friends or authorities. I know it looks really bad but it will be much worse if you do something bad. I really really hope things turn around for the both of us, the first way to do that is to do no harm.

Hang Tight
 

I know how it feels to be facing financial hardship and the feeling you have to hold it all together for the sake of your child. I too am facing the possibility of no income in a few months when my insurance runs out.

Try some new avenues - maybe a social worker or reach out to family, friends or some charitable organization. I know it is really hard when you don't feel well and you don't feel like you can take one more blow.

REST but don't quit......you are going to have to reach out and find some help.

I am hoping and praying for you.

All my best.

Normaw

Thank you soooooo much
 

I am sorry for such a negative post.I had to go re ground my self!!!The PCS with PTSD,chronic pain etc is a hard one because I have so many different avenues to go down all at once when I get overwhelmed,stressed, and frustrated.

Also my mother was not morally supporting me and was emotionally abusive last week to me.Well when the morning came for my daughter and I to go out of town my mother apologize and told me that she went to dentist a week ago and now has an abscess on her tooth and is in pain.I told her that it would be best if she told me from the start she was in pain because than I can relate to pain and how it affects our behavior.They had to live with me in pain and HORRIBLE behavior for a year and half.

So peace was made between us and I found out that me and my daughter will be eating still because we got approved for state assistance that I need any help I can get in this severe hardship.I also worry that I might lose my house before something good happens.Sometimes the compulsive thoughts just won't go away or there is times I find some thoughts harder to let go.I am truly sorry for the negative post and I will continue to fight!I know I have a lot of people with my monies in the future that would like to see me do something to be gone.I will not let them win.

Everyone try to have a good week. Mia:grouphug:

Peace to you Mia
 

Here's sending you love and peace via the computer.

Wishing you all manner of rest.

Sincerely,

pm