Having a really hard time!
 

Hello, all my sweet friends...

I am continuously passing out from the pain, and the one time I fell and hit my head on the counter top and twisted my ankle a little. Then I fell down a step... and another time our porch step broke, I got my foot stuck in a board, and to make a long story short- I really hurt my foot/ I was thrown backwards...


I was already having a rough time between headaches (which are somewhat better with the cymbalta) and the dreadful RSD pain!! Add an injury to RSD pain and you are really really worn and in pain! A lot has been happening and my RSD keeps spreading and getting worse.

My walking is going downhill fast... my legs are so shaky and are jerking all over the place. I cannot walk unassisted at this point, because of my falling. I am looking into different assistive devices. Thanks to all who answered my post about them.


Please be keeping me in your thoughts and prayers. Thank you! :grouphug:

Hi there :) Sorry to hear that you aren't doing well, I hope things improve for you soon. It helps me quite a bit to talk to God, He always knows when I have reached my limit and need a break.

But the thing that jumped out at me from your post was the "passing out from the pain" part. I, too, thought I was doing that, for several years. But when it turned into full blown seizures, I was diagnosed with frontal lobe epilepsy. I have been told that the rsd affects my frontal lobe, and may be responsible for my epilepsy.

NOT that I am trying to diagnose you.... I am not a physician. I would just like you to keep careful watch over yourself, and have your family do it as well. Do you ever "nod off", even when not tired? You know, just find your head hitting your chest for a sec, then you jerk back awake? I have hurt my head several times, having that happen while on the potty. It turns out those are just a different type of seizure, at least in my case.

Take care, hon.... may you be happy and well.

Hey Nessy...

did that stuff help? Passing out from pain sucks - I really suggest that you start bumming around the house - at least short term. When I pass out it is either because of pain, blood pressure or both - so could be worth getting your bp checked - especially as you are worse when upright than when flat (same as me). What does idiot PM say? it's your anxiety, right??? :p

Hope she is doing something :(

Love ya

Froggsy xxxxxxxxxxxxxxxxx:hug: :hug: :hug:

:eek: oh sweety! this is awful.

:hug: :hug: :hug: :hug: :hug:

mega gentle hugs and my continued prayers.

I'm so sorry to have this happening to any of you, you're all so nice!

As Rogue mentions it might be due to some other causes or condition, so please follow up these sx with your dr - just so nothing is missed.

:grouphug: :grouphug:

I had to finally break down and start using wheelchairs. It isnt fun, but better than falling.

That passing out should be told to your DOC ASAP!!!


Got ya in my prayers :hug:

Fainting
 

I am so concerned about you. Passing out can be very serious or maybe nothing. The most common cause is an abnormal circulatory reflex. A lot of us do have circulatory problems. Also an electricial problem to the heart, arrhythmia, can cause a person to faint. I get opital migraines which do not hurt , but cause some eye discomfort, will also cause fainting. There are several other reasons plus PAIN. So to be on the safe side please get it checked out and let us know how you are doing. :hug: Carose

Can relate to your passing out
 

So sorry to hear about your passing out. Are you sure it is from the pain. Others here suggest you should get it checked out - I agree.
I also passed out last Sat. I posted about it and got several responses. I really hurt my back and am still in severe mid back pain - dificult to bend over to do anything - brush teeth, also can't do any twisting, lifting. It just hurts to take a simple jar out of the frig.
I passes out in the kitchen twice abouty 10 AM. I did see 2 doctors. Both seemed concerned at first about the passing out but then dismissed it.
Thus I am not sure how far you would get when you see a DR. They really don't know what to do. Maybe MRI brain scan or something.
Could it be from the medication. I am wondering if mine was from the med. since many say "causes dizzines", Check your med bottles - maybe yours says that also. Check it out.
Best wishes to you - In His Hands/ You are always so kind to respond to others.
Sydney

A soft and gentle hug to you.

Seizures? Passing out?
 

I am already epileptic. Recently the seizures have been totally out of whack. It could be from one med., citalopram, or that the RSD is involved.
Get to a neurologist!
In the early stages of RSD I did fall down, not a seizure, but that has stopped.
An EEG will give some answers! And take care! Think of the time of day it happens. How you are feeling right before you "fall". Take notes to take to the neurologist. Check out the meds you are on with your pharmasist to see if they can cause seizures.
Hope this helps!

HI,

Iam so sorry for the problems you are having. I've passed 0ut once that I remember. They said it was from migraines. But now Iam finding out from friends and family that several times I was acting very strange. There are days I have completly lost. After going off the methadone, things got better. You should really tell your Doc about this. Find out what is going on.
God Bless,
Sue

Thanks for all the prayers and hugs. And the advice and experiences!

I am going to update you all on my situation later on. I appreciate the support! :grouphug:

Guess what?!!!!!!!!!!

I am finally going to get nerve blocks!! (after being dx with RSD since 11/06 and not having any). We are starting with my legs, since they are the worst.

I hope and pray they will work... at least short term!

More later- not doing real well, and keep passing out from the pain.

:grouphug: Best of Luck with the blocks!!:grouphug:

I ditto the above post. Love, Roz :grouphug:

Vanessa...You are in my thoughts and prayers...Good Luck sweetie!!:hug:

Big hugs (the non-hurty kind). You are good and you are brave to try something new to fight for your legs. It is so hard to know what to choose when the choices are so not-great. When will you get your first blocks, do you have an appointment yet? and for the pasting out ... everything other cause has now been ruled out, right? (Vitamin B-12, blood pressure, etc etc). Pain does such awful sneaky things to our brains and bodies...
xxxxxxxxxxxxxxxxxx oooooooooooooooooo

:(


Hope you are starting to improve. I have been away from the site for awhile and am just catching up.
I used to faint from my pain but the meds I was on were also causing low blood pressure which didn't help.
Are you taking an anti-epileptic drug, it may help the spasms and jerkyness, I suffer terribly from them but do get some help from Clonazepam.
Thinking of you
Tayla:hug:

Yes, I am on anti-epileptic drugs: Lyrica and Neurontin.

I will start the blocks the week after next! I am so happy that I am going to be able to get them, though I really wish that I could've gotten them sooner.

I chose to start with my legs since they seem to be the worst out of all of my body, at the moment. I really want my legs back the worst, I think! I want to be able to walk, go outside at times, go shopping, etc. without pain from walking! I cannot stand unassisted anymore, and that is really hard on me, I have basically no independence- I cannot go anywhere!

Another question- anyone have weakness from their RSD? My legs seem so weak, and my dr thinks that that may be what is going on and not "muscle guarding". When I try to walk I rock back and forth, my legs are just so shaky!

Passing out: My Dr did check my blood pressure, and it was actually normal standing and sitting. I haven't been tested for the B-12 deficiency, but will look into it. My Dr feels that it is purely pain related and that once I get through this bad flare up things will improve. I am currently taking the pain medicine along with the other medication I am on, though I don't usually take pain medication (just using the ant-depressants and anti-seizure medications), and it has decreased some of the passing out. I have thought about whether this could be seizures, but I really don't think so (though I know it is possible even if you are on anti-seizure medications), as the pain is worst in all different areas when I pass out (it is not like I pass out with a sharp pain in my head every time I pass out), -sometimes the pain is worst in my back when I pass out, sometimes it is worst in my chest, sometimes in my leg, etc, etc, etc...

Thank you so much for the support, prayers and hugs!! I appreciate all the kind, caring words you all send!

Sending my Love,
Vanessa :hug:

Thank you for explaining that all to me! I have basically no understanding about seizures (just RSD!). All I knew was that when my brother had seizures, both times he held his head, screamed and fell over! So, I assumed that it had to be head pain, and not pain in different areas.