Motor Neuropathy
 

My Neurologists said that I have Motor Neuropathy. Does anyone have info about this condition? I haven't seen that term in any of the posts.

Itis true that the majority of neuropathy sufferers--
 

-seem to have greater sensory than motor symptoms, but there are plenty of people who have more motor than sensory effects, especially with many of the autoimmune neuropathies, such as CIDP (chronic inflammatory demyelinating neuropathy) or its variants.

CIDP itself is thought to be the subacute/chronic version of Guillain Barre syndrome, an acute onset paralyzing motor-sensory neruopathy that is usually self-limiting, but can have many longer-term residual effects.

There are a number of autoimmune or compressive motor neuropathies; there are also many genetic/hereditary motor syndromes, and it often involves extensive testing to determine exactly what is happening. Have you gotten a more specific diagnosis? And, do you have any sensory symptoms?

Take a look at:

http://www.neuro.wustl.edu/neuromusc...y/proxmot.html

http://www.neuro.wustl.edu/neuromusc...mdem.html#cidp

http://www.neuro.wustl.edu/neuromusc....html#motorddx

I have had neuropathy for several years. Pain is minor. My toes are numb and stiff and feel uncomfortable

I have met many....
 

who have multifocal motor neuropathies while we were receiving IVIG at the doctors' office or at the hospital. For most it is the muscle pain, weakness and cramping that are the worst..when it is at the worst.

Check out the resources at www.immunedisease.com for some of the basics. It is a very close relative to many neuropathies, GBS and CIDP. That your pains are minor makes you very fortunate so far. Be sure to see your neuro on any regular basis tho, for blood tests to prevent any possible problems. This isn't meant to scare you...I'm talking preventative medicine here only. - j

PS - no pain is really minor tho is it? It's YOUR pain, after all!

It is important also to make sure B12 deficiency hasn't been missed. It can cause predominantly sensory or motor problems, and the damage will increase until it's taken care of. In that case, central nervous system damage can be avoided if enough B12 is taken in time.

It's cheap and safe, so the possibility can be covered without risk.

rose

Hi Herb, does your neuro have any idea why this is happening to you, has the neuro been looking for a cause ?

I visit the Neuro every 6 months for the past 2 1/2 years I had a series of blood tests that all looked normal . My B12 reading was 803. I take a 1000 mg Bi2 tablet daily.

He ran an electrical test on my legs at the beginning and and a couple of years later and it showed no change. He said the right toes were worse than the left, but to me the left feels worse. He bangs my knees and ankles with his hammer . Hw was looking to see if i got a zing in my toes, which I didn't get. He also tested me If could tell when he was raising or lowering my toes. I was able to tell.

This week I asked him what type of Neuropathy I have, and he said motor neuropothy. He based it on the fact that I was not having noticeable pain. He didn't think the brain was involved, but it did involve the spine.

We both have concluded that I did not need any medication.

I do take Alpha Lipoic Acid, 300 mg twice daily, and Acetyl L Carnitine, 500 mg twice daily. I also take a B100 complex once daily, a multivitamin once daily and 500 mg Omega-3 twice daily. I also take Zocor and Coumadin and other vitasmins and supplements for heart related purposes.

I hope I have covered all the bases which people have recommended over the years.

How long had you been taking the 1000 mcg B12 before the B12 test?

rose

Rose,

I really can't remember when I started the B 12 . I think it may have been sveral months before the blood test.

Do you mean Multifocal Motor Neuropathy?
 

Hello, I have had Mulitfocal Motor Neuropathy for 20 years. Ask your doctor if this is what he means. I'm assuming it would be very similiar. What type of symtoms are you experiencing?

hi there

I have sensory motor neuropathy, and my motor symptoms predominate. My sensory symptoms are numbness up to my knees but my motor symptoms are definitely the most annoying. A lot of my muscles have become spastic as a result of being so weak due to the motor neuropathy (they don't get any input from my nerves).

If you have numbnes as well, then I would think that you have sensori-motor neuropathy as well. My nerve conduction studies show sensori-motor axonal neuropathy.

You are right, there are not many on this board with motor symptoms, but there are a few of us.

cheers
raglet

i have sensory motor neuropathy also with numbness now up to my knees. It has really taken off in the last 2 months, previously up to the bottom of my calves. As far as motor symptoms i just feel very heavy in the legs if i walk too fast and forget about running. i also get very heavy in the arms if i try to do something over my head. i get very tired easily also. otherwise i dont think i have any other motor symptoms.

what motor symptoms are you having raglet?

Echoes long ago - I have a bilateral foot drop and wear AFO's (plastic braces that come up to my knee). I also have damage to a peripheral nerve in my hip which means I can't lift my leg on that side and the knee on that side is starting to buckle (which is from the hip thing). I also have a lot of cranial neuropathy with damage to my tongue, swallowing, facial droop on one side, and areas of numbness on my face. Oh, the motor neuropathy has also given me club feet which is rather weird - I can never remember everything that it has done. The latest thing has been atrophy to the tongue, but that is just because I can only use one side of my tongue so the other side has wasted.

cheers
raglet