Roll call
 

Hey Pooh,

I'm here.. just lurking lately as well ;)

Hi Pooh! I am here, lurking mostly, but here :)

I'm lurky lurky, also. I cant do much am very discouraged right now. :(

I was told I have some serious frontal lobe abnormalities and I had that seizure in April, one Friday and oe today. I can't get a neurologist to care. Right now since I'm no longer working for my former job, I have insurance with a 2400 dollar deductible. So, tats been terrible.

Just not a good time for me. I'm worried and lonely. Have a great day. Hope everyone else is okay.

TK

:hug::grouphug:

Here!!
 

Yep am here too lurking. But keeping in touch with whats happening.

Review coming up 30th Sept. feeling the leads 'pulling' a lot in my back when I bend over. Never used to. Have the stim 3 years now :eek: and love it.

Hi Tk
 

Hopefully things will turn around soon Tk. :grouphug:

Hi ya Pooh
I'm here but of course.
I check in a couple of times a day.

I'm here mostly
For my promise to
Remember to count
my blessings
Only I don't have to
ever count them
I am blessed to have
witness DEVINE INTERVENTION
OVER AND OVER
I have shoulders I extend to
lean on
Only God knows
but I'm here
BLESSED TO HAVE cyber friends
who really demonstrate remarkable
courage
In Jesus name
Lord hear our prayers

someone who cares

Doing pretty good
 

Living. Crps - el bizarro disease. I am doing well with stim. Work easier, but i still get TIRED!!! The fatigue of neuropathic pain and insomnia - it's different!! Something hard to explain to normal folks. I've got a good job so i tell my wife pleaaase hire some help - i can't so the chores like before. Im either working out or passing out - doing laundry - nope. No thanks.

Got a carbon fiber upright bike. Best u can get in that configuration. Rode up old la Honda in the sf bay peninsula in 26:30!!! It's a good time. Nobody passed me. I passed like 6 people. Had i been out early with the hardcore set i woulda been crushed. Trying to cross train swim 2x hike2x bike2x per week. Hiked like 7 miles fast last week - that hurts.

Causes friction at home. I tell my wife Paxil Zoloft blah blah doesn't do anything. Let me work. Let me workout. Let me play with kids. Get help with chores. I am NOT LAZY!!!!!!!

I don't really fit in anywhere - super healthy for a "pain patient" but I'm young and very determined. That's why. First sniper lesson on Monday unless i get killed at work tomorrow.

Hope y'all are doin ok.

Ucla
 

Btw hope you're not a big husker fan. Ucla put the hurt on!!!!! No offense - in laws from NE. I'm a PAC 12 backer.

Here and There
 

I am around. Just been pretty occupied otherwise. Life is blessed. So am I. :hug:

Be safe Mark...really scary pictures from your part of the world. :grouphug:

..............fashionably late ?? http://dl9.glitter-graphics.net/pub/...l5e9y2e4mo.gif

My heart is here every DAY, unfortunately my physical being isn't. Too much to explain here, I'll use the "This is the place to vent" thread for that. :o

Thank you SO much, Pooh, for doing these roll calls!

Rae
:grouphug:
.....TK, I am so sorry that you are going thru such a rough time. Your family here is always in prayer mode when one of us is down and out. Hang on to Faith and Hope. I ask that the Lord grant you Peace Of Mind during this time, so that your worries can take a back seat. :hug:

present & living a dream
 

Hello pooh_ac…..and everyone
Johanna Banana checking in. I am enjoying the cool ocean breeze brought in by a late summer storm. I am thrilled to be at the end of the summer heat and great prospects of a no land fall hurricane season.

April & June were absorbed with home renovation work….I became stronger every day. By July I have closed out the sun and closed up the house to hibernate thru summer heat…I swam most every afternoon for a golden tan …stronger...down on my meds….all good. In Mid-August while boarding for a cruise I lifted a suitcase onto a conveyor belt and schlepped it and 3 handbags to my room….getting lost twice. In my own defense I did have friends set up to do this for me and they abandoned me in favor of the bar.

Anyway….I violated BLAST and WOW was I one sorry mess. Pain like…well you all know the monster….I was down for two days straight and when I did get up ready… set…make up on… let’s go look at this ship…..I could not get that darn door open!!!!…back to bed….tears; cursing; meds; threats to God, etc etc…the next morning I woke up and just knew I was on the mend….put my bathing suit on and went for a swim at 8 am…walked that ship and did all the basics…sleep/rest….before the cruise was over I found the lounge and had the greatest joy of dancing as if no one was looking for 2 hours. Doctor took a look ….SCS is fine….I aggravated my original nerve injury…so I am back up on the meds…back to basic BLAST…swim.....all will be well…

Last week I made a batch of habanero pepper jelly from peppers in my garden. I have two new baby birds (Cockatiels) this summer that have teamed up to be my jet pilots thru the house.

I am enjoying a wonderful sweet spot in my life….ever so grateful
Hannabannana.

Hey JOHANNA
 

Get some wet noodles......the swimming pool kind and beat those friends who abandoned you about the head and shoulders! :( How could they DO that??

Glad you are back to BLAST and managing the pain monster. I pray, yes I do pray, the pain monster be banished from you forever more.

Save me some of that Chili!!! I am hooked :Dancing-Chilli: :Dancing-Chilli: :Dancing-Chilli: :Dancing-Chilli:

:hug:z

Hey TK
 

Now you know.... I woulda come by to say Hi when in Dallas for the Bar. So sorry you felt so poorly as not to have been able to have visits. I was able to meet Fiona's hubby, and a fine gentleman he is!! That was way cool.

Anyway TK, back to you, I am prayin all will be well with you. Your events sound so heart wrenching. I am sorry this has happened in your life on this plane. May all of these things be well.

:hug:z

[QUOTE=tkayewade;1014279]I'm lurky lurky, also. I cant do much am very discouraged right now. :(

I was told I have some serious frontal lobe abnormalities and I had that seizure in April, one Friday and oe today. I can't get a neurologist to care. Right now since I'm no longer working for my former job, I have insurance with a 2400 dollar deductible. So, tats been terrible.

Just not a good time for me. I'm worried and lonely. Have a great day. Hope everyone else is okay.

TK

:hug::grouphug:[/QUOT

TK- if you are having seizures, you need a thorough evaluation and treatment - forget about the deductible. If you don't get this controlled through medications or rarely surgery - yuk - you could have a seizure severe enough to have permanent brain damage. Get seen. If you can't find a neurologist who will see you, just go to the ER. It will be really annoying but they can't say no.

Here but lurking
 

I am lurking also. School full time and family keeps me way busy. I'm feeling great though, need to get myself exercising more. I've gained so much weight since I got RSD almost 5 yrs ago.

Just been busy with work. Peripheral SCS is working good. Hope and pray all is as well as can be expected. Down to 30 mg opana ER and 3-4 roxy (15 mg) which is over 80% reduction since peripheral SCS! This group has a blessing going through my 2 SCS surgeries this past year. Thank you all!

[QUOTE=MDinpain;1015159]dearest TK
HEED TO THAT ADVICE
MY CHILD 32
suffered her first seizure April 30,2003
since then walking through it all with all
she has gone through every test imaginable
in the end 19 days for her being hooked up to
leads as a graft was put on her brain
to find exactly where her seizures emanated from
in the end of it all and i mean many thing happened
including brain surgery having part of her occipital lobe
removed as the culprit lay there her neurosurgeon known
to be part of the Gama Ray Knife and a awesome epileptologist
who has been with her from the beginning to date
i do not tell you any of this to scare you but to educate you
sounds to me in order for such results you were hooked up
and monitored how did you get this information frontal lobe problems
and most certainly take yourself to the hospital as many
times you need to i plead seizures are not to be messing around with
there are all kinds of seizures did yours go into a
total brain seizure known as a grand mal are or rather was
one or more than one in what we call an episode
i will stop here if i can direct you to my daughters suggested
go facebook go on "the epileptic network (ten) for short
my daughter is updating her Experience Strength and Hope
and how it brought her to her bliss
Saraeve is a self published poet
so so very proud and inspirational
and beautiful inside and out
there needs to be more like her and they are
out there but NEED more of them Angels
with wings cause she is flying in her bliss
"words"
she is a poet
coming into her own
making a difference in the world
all my children are beautiful and smart
the kind of smart that comes along with
pain in one form or another
just to name a few mental illness that
ranges from addicts to schizophrenias
we are somewhere in the middle
this be my belief
not selling anything
i happen to believe
my granddaughter sooooooooooo smmmmmmmart
odds against her just genetics alone
wow did i go on
just out to help
seizures
no joke

someone who cares

Mark
 

Mark, just seeing pictures on our local news here about Colorado and the awful floods that you have experienced over there.

Please let us know that all is well with you and your family and we will pray that all those people missing will be found safe and well.

Our thoughts are with you all at this time.:hug:

Jackiey.....HI
 

Interesting it is when the news publishes a story saying the floods were of BIBLICAL proportion.....hmmmmm........

Imagine twenty foot walls of water washing down frontrange/foothill canyons..... all of them. Houses which just disappeared. People who did the same. Communities cut off from the world because roads do not go there any longer. Over 19,000 homes seriously damaged or destroyed. We do not get hurricanes, and have not known the scope of such trouble suffered by our coastal friends. This is just a taste of their pain.

Our family is just fine. We remained high and dry.

Friends of ours had decided to celebrate 50 years of marriage this coming weekend in a little mountain community called AllensPark. It is quaint. It is pretty. It is remote. There is now only one road there by a circuitous route. But campers have been turned away by the Highway Department [CDOT they call it]. We are supposed to take our camper, but may not be able to do so and will thus not have a place to stay. This will have to be figured out. Maybe tomorrow. :)

So, for a picture on the situation, take a look online at the picturesque community of Estes Park, Colorado. It is beautiful... People vacation there from far away. All roads to Estes Park are GONE [and there were five rising up from the plains] save one. This particular road is called Trail Ridge Road, check it out. It travels through Rocky Mountain National Park and rises up to about 12,000 feet on a narrow ledge road going quite a ways above timberline. THIS is the only road into the town of Estes Park now. No one except emergency vehicles are allowed to use it as it is the only lifeline for supplies to provide the needs of a community of thousands. We had hoped to take our little car along this weekend and motor over to Estes Park, but were told there is no longer a road. We are not talking road damage here, but the scouring of roads from the face of the earth as though there had never been a road. :eek:

So, if we make it up to the anniversary celebration, we may just be there and sit a spell, then make our way back home. That is if we travel. It does not sound too safe..... maybe I had better get ahold of MDinPain and see whether he could be hired for guard duty over our camper.

Prayin all is well with you Jackiey and every one of our friends on the Emerald Isle and that other large Isle to the East of ya..:)

Glad to see you and your family Mark56 are above water and still sucking wind. Thats always a good thing.

Mark great to read all good with you.

Yes all good here. Minding my grandchildren is a dream. SCS still doing great. Have a review in a couple of weeks. Life has changed for the better and I'm so loving it ;).

Tay safe if you go to the anniversary. It would be awful if you can't celebrate but safety is paramount. :)

Have finally got over the initial grieving that one goes through when the surgeon announces that "You can never have back surgery again" (Yay .. hope I don't do anything else to my back!)

Am mentally good .. am physically OK .. in charge of my meds and have somehow (no idea how) seem to have either lost weight or toned up, so am feeling better about my body image. (Yes, it's sad .. I still care about what I look like).

Have started doing more crafty type things which I aim to take up more seriously once Hollie is back at Uni and plan to sell them at Car Boot sales.

Had an awful time recently.

Hollie's first (she's only had three) boyfriend - who she went out with for over two years and they are still best of friends .. like brother and sister. Well, she had cancer .. had a kidney removed .. was given chemo and radiotherapy and told she had the all clear.

Only .. they didn't scan her head ... Conor went on holiday .. two days into his holiday his Mum was admitted to Hospital having had fits.

The cancer had spread to her brain.

She died less than a week ago with her son at her side. She was able to tell him she loved him .. he was able to do the same .. they squeezed hands, but on Friday 13th, she lay there, peacefully .. and that evening she passed away.

He is her only son. She brought him up on her own.

She re married and her "present" husband is a horrible man .. he not only physically abused Conor when he first married his Mum .. but when Conor's Mum had finished the chemo and radiotherapy, he took her on holiday. When she said she didn't feel like going down to the bar for a drink .. he wrecked a chair in the room and hit her and shook her.

Hollie is being so very strong for Conor ..

I ask for your prayers for Conor in these months to come.

Thank you.

Prayin
 

For Connor, for Hollie, for the horrible man to be overcome with the need to right his life, for you as you support Hollie......

So glad to see you on the board!

HUGZZZZZZZZ :hug: