What a "great" night.
 

This is gonna be a great night. I am hurting so bad and really can't take anything for it. I did moist heat with the heating pad, epsom salt soak, and finally broke down and took a norco. I hate pills. I hate pain. Its worse than being tied spread eagle naked over an angry ants nest, with the mean little boogers gettin you :eek:. My leg from mid thigh down to my toes except my toe nail beds is red and swollen, my toe nail beds are blue, I itch but it hurts to scratch. So its gonna be a long night then a long day tomorrow with hopefully a nap when goober goes down for his. This sucks. Shoot I cant even put lotion on cause it hurts to touch. Besides lotion wouldn't help my scaly drynes lol. I know Im venting and I'm sorry. Its tough to be positive all the time. I just wish they would find a treatment for preggos like me for times like this. Now Im gettin the tar kicked out of me by my newest goober boy. Barometric pressure is dropping as Vrae knows. She's hurting too. Good thing is I finally filed for ssd benefits tonight.

Well I got a gramd total of 30mins sleep before this damn thing woke me up 6hrs later and there is still no chance of me sleeping

I wish they would find a treatment for all of us preggo or not! :/

I'm sorry again youre having a bad night too. I take voltaren gel for my wrist when it hurts becuase of the weather changes and it seems to take the edge off. I don't know if you can take it though while pregnant. My pm has to prescribe it for me. Maybe you can ask yours if you can take it while pregnant. I feel so bad for Vrae too. I hope she has a better night tonight. And good luck with your ssdi benefits. I can't drive because of all the pain meds I take and I can't grasp the steering wheel with my right hand so I don't drive anymore. I can't work because I'm in too much pain and too drugged up and my right hand doesn't function well. After my rsd started, I was on disability for 6 months and then my dr thought I should apply for perm disabilty. I've been on it for a few years now, but am just getting worse because of the spread and also emotionally its taken its toll on me. I found a lawyer when first applied, who specializes in SSDI when I received a big pkg of forms from SSDI to fill out and he helped me and worked on contingency. I received SSDI shortly thereafter. Good luck with your claim and I hope you have a better night.

Sorry it's been such a bad night for you Allanira, times like that this thing is just hell and makes you completely miserable. I hate that feeling of powerlessness and hopelessness, where nothing can help and you just want to be spark out of it until the storm passes...

I hope you feel a little better this morning and things have calmed down. Hang on in there :hug:

Bram.

I think I freaked my cats out lol. I was walking from the kitchen to the bedroom and they all three scattered like bugs when the lights come on lol. It just sucks. There isn't a treatment so we suffer. Most drs don't know what this is. Or what to do aboit it. Ugh I'm whining now. I feel like im doped up right now. I guess I'm not made for night life anymore lol. Keep smiling and stay positive guys.:grouphug:

Hi Allanira,

I hope you're having a better day today and that your cats are too! lol.
Hang in there. I know it's frustrating that most drs don't know what rsd is. Its bugs me too.
But try to hang in there and don't feel bad for venting. It's better than keeping it bottled up. That's what we're all here for.
Hope your night is little better tongiht.

Hi Allanira,
I sure hope you have a better night tonight! I can't imagine how brave you are to deal with and be pregnant!! That would sure lead to a ton more questions to pose to your Doctors huh?
How far along are you?

Yes, it does suck for you not being able to have meds. Would a topical Ketamine cream help or does that still get absorbed by your body?

For RSD in general, we should all start calling the Pepsi "refresh hope" number to raise awareness! I think it runs until Nov. 30th. I put a post on here about that and need to pull it back up.
Wishing you some relief! :hug:

Im 26 wks. 14 more to go, unless I decide to breastfeed. To day has been a booger. I hope its better tonight. I tried calling mental health here on base and they wouldn't help. Just told me to go to a psychiatrist on my own dime. Its like everyone is afraid if my baby has 2 heads its their fault somhands off. Don't touch the pregnant person. I feel like a pariah. I even called the crisis line because of how I feel and the lady kept saying your pregnant they don't want to be sued. Im not a sue happy person. Ive never even threatened to sue anyone. She tried to tell me it isnt as bad as im making it out to be. My pain isnt as bad as I say. I know I can't take the meds right now. I wish I could get away from them permanently. She didnt even know what I meant by suiside disease. Just kept saying its not that bad. Shes a paraplegic and her pain is the worst in the world. Even amputees have higher pain levels than I do. I tried to explain to her about the studies done and that rsd is the highest one besides terminal cancer. She said dont believe everything you read. So I try to reach out for help and get slapped down. Its kind of like a child asking for comfort and getting hit. This is why I don't trust Dr's. I even told her about drs telling me its all in my head and all I wanted was a free high. She said well they might be right. Why do I still put myself in this position. Expecting help and get slapped down.

I'm sorry the doctors are doing that to you. I don't trust them either. I've never sued either in my life except for this rsd because a doctor told me he thuoght my dr who did surgery on my wrist might be the reason I'm like this. so I looked into itwith lawyers but they said he met the correct std of care for me. My wrist is freakin crooked and I got the rsd right after, but I had let it go. The statute was up (2years) and the stress from it only 4 months in was making my rsd flare up and I thought I would have a breakdwon from the stress of interogartories and an oncoming depostion. I don't like confrontation. I think they should raise the std of care, but no one will listen to me. They just keep doign what they want and I am permantly suffering for it. And they don't give me opinions anymore either for fear of being sued. Its ridiculous. This was my first and last lawsuit. the drs and lawyers both stunk to me. I feel that sometimes their all out for money. The dr you saw for your mental health was so out of line inmy opinion.
She had no right to tell you its in your head. It is real. I know it as well as everyone else here who suffers from it. They are ignorant anddon't know or want to take the time to understand what you have to help you. That makes me so mad. I had drs who thought my spread was in my head until I started showing more physical symptoms. Then they got really quiet and didn't say anything. If I were you I would check online for other mental health professionals. and check their healthgrades for any malpractice lawsuits. The one who did my wrist had a suit that he lost before me. I found out too late though. And the one who did my hysterectomyhad two suits that he lost before me.I knew that too late too. (but so far have had no problems with what he did for me). Also , check rsdhope.org. They mayhave a list of drs who can help. My husbands insurnace covers most of my shrinks bill, but I have to pay some. And in the meantime, ,try to get some rest andnot stress. I know its hard. I"ve been stressed and depressed all day, but I cried it out and am feeling a little better now. Even my stomach finally feels a little better after 8 days of pain. Not taking advil is helping it. I hope you have a better night tonight with your babies and don't give up hope. There still are good drs out there who really care. You just have to keep searching till youfind them. I"m sorry you're going through this and pregnant no less, but I am always here if you need a freind.

I don't know if this might help, others have said it did, you've got nothing to lose and no risks by trying it.
http://www.openfocustraining.co.uk/exercise.html

This is totally unrelated to rsd, but this poem popped into my head after seeing this bird today, and I wanted to share it with all of you. I know it stinks and please don't think I'm crazy for it's probably just the drugs speaking. lol. thanks.

Ode to a Blue Jay

I saw a blue jay today
It took my breath away
It was pretty and blue
and a nice sized one too
And then it burst into song

A song that inspired me
The hurt and the tired me
A song full of love and of joy

A song of the good things that happen in life
A song that we all could enjoy

I get like this sometimes too Renee lol, you're not alone....:winky:

Very nice little poem, never be ashamed of anything from the heart. It's fab.

Bram.

Thanks Bram. You're so nice and you make me laugh. I loved the elk picture yesterday. And I also loved your idea of having an emergency rsd flare up kit. I'm going to definitely do that. That is an excellent idea! Thanks again and I hope you have a good night tonight that is painfree. Take care.

PS - Just wanted to be clear. I thought the drs and lawyers on the other side of my suit stunk and were trying not to get sued so they wouldn't lose money. My drs and lawyers were great and I appreciated everything they did to try to help. I believed they worked based on principal not for money. And I thank them for that. I'm saying this so you know that you know that there are good drs and lawyers that care and that you can trust. You just have to keep searching until you find them. Don't give up hope. And forgive me, I meant to say psychaitrist, not shrink. He's a good doctor too. Take care.

Bluejays are cheeky little buggers, aren't they?! and so pretty!

No dr wants a malpractice suit pending on them. Lawyers are payed well to be skunks. No offense to anyone in law here. I've never had to contact one but was kind of thinking about it after the last ortho surgeon put the trough from my resurfacing in cruked.:eek: Didn't do it though. He retired and shut down before I knew it was cruked. Well I hope everyone keeps smiling and thinking positive. Im thinking its only 13 1/2 weeks till I meet my new goober boy even though I hurt.

You are immensely brave
 

Hi Allenira, I can not even imagine being pregnant and having RSD. I struggle so much with getting through most days that all of you who have children amaze me. I can't imagine being able to be there for a child with the amount of pain we are all in. Seriously, it's amazing to me. I had only gotten married 4 years prior to RSD and we tried unsuccessfully to pull it off in the last quarter (I was 38 when we married) so I didn't give myself much time to even attempt children, though a mother is the one thing I always wanted to be. We had already decided it wasn't safe for me to continue, at my age after two losses. I Still can't imagine social services or any agency allowing us to adopt with my RSD, so family was not working out for us. The sacrifice you are making to have a healthy child is very impressive. Forgoing the drugs that are dangerous, that would give you pain relief. You are a brave one.
Keeping you in my thoughts, Sylvia

Finally got moremthan a couple hrs sleep. I am still in a flare but its starting to calm down. The bad thing is I need to do some shopping and get boxes to start packing lol. So of course Im gonna hurt lol. Anyone want to go shopping and do my packing for me lol?:D

I sure would if I were there.

I went and did it. Im paying the price for it too. I didn't get much but got some of the essential stuff. Like bananas and yogurt for goober boy. I even unloaded and reloaded the dishwasher. If I can keep up this streak and work through the pain I will eventually have a clean house before we move lol:D

I'm so proud of you!:hug: I hope you are feeling better these days. You are such an inspiration to me, because you not only have rsd, but are pregnant too. Your positive outlook on life gives me strength to deal with this disease. Thanks for that and I hope you have a great day.

Its hard. When your running after a 2 yr old and the dog and wanting to scream because you hurt its really hard. I did my temporal thermometer onmy knees and legs then compared them today. My left is running a lot colder than right. Is this normal? Or just me?

I'm not sure if it's normal, but I do know that my right (rsd) hand runs alot colder than my left hand. And now my right foot is running colder than my left foot. My pm dr told me it was because of the rsd, so I would think it's normal, but everyone's different so I'm not completely sure. Maybe ask your pm dr to make sure. And I hope you get a chance to rest so maybe you feel a little less pain. Take Care.:)

Thanks Renee, I am being a worry wart I know but my left (rsd leg) usually hotter than right. I think its the weather and this stupid disease morphing. My PM won't touch me while I'm preggo. 13 wks 2 days till I meet my newest and start the rounds of treatments. I can't wait to meet him.

Hi Sylmeister,

I've been wanting to text you to tell you how sorry I am that you couldn't have kids. I know it's not the same but dogs are wonderful companions. They are like kids with fur coats on. Anyway, I'm not trying to interfere with your personal life, I just wanted you to know that I care and am always here if you need a friend. P.S. One of my babies was my son Ryan who is 20 years old now. My other baby was my furry son Coby (my sheltand sheepdog). I had to put him to sleep two years ago-He was only 10 years old. He had lupus and was very sick. It broke my heart, so I got another furry child. Her name is Sarah and she is a rescue dog. She is a big love and I'm crazy about her. Well, I hope you don't mind me talking about this, I just wanted you to know I cared. Hope you are doing okay and have a good night.:hug: