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-   -   Just a vent about mopping :) (https://www.neurotalk.org/chronic-pain/196348-vent-mopping.html)

St George 2013 10-28-2013 12:26 PM

Just a vent about mopping :)
 
Dangit I know better......I can see one of our bedrooms from where I sit in the living room. Got so, so tired of looking at that dirty floor. So what did I do yesterday morning ? I swept and mopped it. Does it look great ? Hell yes it does. Can I walk today ? Absolutely NOT !

My son, who is 33 and usually very helpful, sat in the living room while I did it piddling with his phone.

Anyway....just needed to get that out. Thanks for listening. NO one, and I mean NO one knows what we go through daily.

Debi from Georgia (light rain today)

Hopeless 10-28-2013 05:34 PM

Yep, there is just so much we can look at over and over before we have to take action and then pay the price for doing what we know will make us feel even worse.

Glad you have a clean floor (for the moment).

Every day I get so annoyed at the condition of my house and the lack of "housekeeping" but I keep hoping there will be some moments that I can tackle one minor item at some point in time.

Even if I had the funds for having someone come in to clean (at least just once, not on a regular basis), I would be too embarrassed right now for anyone to see my mess.

Hopeless

finz 10-28-2013 07:27 PM

Ouch, Debi.

I feel your pain on that one !

Diandra 11-01-2013 05:36 PM

Hi Debi, I know what you mean...I think we have all done that from time to time. My stupid moves usually involve gardening. As much as I love it, it really takes a toll. Well, at least your son is helpful most of the time. Feel better.
Diandra

ginnie 11-01-2013 06:13 PM

Hi Debi
 
Yep I sure understand paying the piper for activities. I plan ahead. This past week I had to mulch a side yard, so... there I was covered in mulch sitting on my butt, I think my neighbors think I am nuts!. Standing to do it is impossible. I find that my hind end comes in handy. Even with floors, I sit on my butt and wash by hand. I guess we find ways to do what must be done. Have a good night Debi. ginnie

Myelogirl 11-01-2013 07:10 PM

I vacuum and mop from my wheelchair. I used to pay someone to clean but I had to do it again after they left (I have white floors that need to be mopped a certain way). In the end I decided to terminate their services and I just do it myself. I just do a room a day. I find my lounge the hardest room because it's the largest and I have to move the lounge chairs by pushing them out of the way with my electric wheelchair....it's good for some things :D

St George 2013 11-03-2013 09:09 AM

2 days later i did my bathroom floor with my feet
 
Wrong move everyone.....I was standing up and switching out feet.

So stupid of me but the floor is clean :)

I think the suggestion of sitting on my butt would work......but who would help me get up ?.....lol

Had a horrible day yesterday because I went to dollar general on Friday......I made it to the car but was in tears.....had to take pain med and Xanax when I got home and cried most of the afternoon. My sweet daughter in law came in after I got home to see if I needed her to do anything......she has no patience with me when I do something stupid like go to the store.....lol....she's an RN and keeps me in my place. But you know ...... sometimes I just want to GO and do it myself. I live in an extremely small down and the dollar general was only like 2 blocks away.

Oh well......we all find ways to work out the cleaning. Keep the suggestions coming. I do well if I pace myself and just do 1 thing a day. Just had to adjust to that when 6 months ago I was pretty much fine...just coming off chemo and so excited to get my life back.....the good Lord does have different plans for all of us. He gave me lots of patience to deal with this neuropathy and my mom.

Thanks everyone :) Have a great and hopefully pain free day

Debi

ginnie 11-03-2013 09:15 AM

Hi Debi
 
Hi on this nice sunday. I do have help and a way to get up off the floor, or from in the garden. It works! My son is an OPT, and told me how to do it. I carry a small STABLE foot stool. My arms are strong enough, to push up on it, and I have no issue with getting back on my feet. I find that my back side is an important part of me being able to do some of the chores I need to do. If you go to an OPT, they can help you figure out a way. Can you walk a bit? Keep in touch. ginnie:hug:

St George 2013 11-03-2013 10:30 AM

Beautiful sunny day but a little on the cool side :)
 
You know....I think a foot stool is a great idea. I actually have a very light weight step stool for the kitchen that I can use. My arms are good ... I just drop and knock over lots of stuff everyday :) Cutting food up isn't a good idea, causes my hands to ache and cramp up. I can walk but that's what kicks in the nerves on my feet. I do walk everyday.....walk the dog around the yard. Around the house. As long as I take LONG breaks in the recliner or at the dining room where my feet won't touch the floor I do good. My feet touching anything sets them off.

I'm not a gardener but do love to be in the yard. We have lots of bushes and trees and on really good days I go out and clip here and there :)

Someone in my family asked me (I cannot remember who) that if the nerves in my feet are dead.....and they are per my biopsy....like 0.....then why do my feet hurt so bad.....not real sure how to answer them......isn't it a disconnect between my feet and my brain ?

Oh well.......thanks and talk to you soon.

Debi

Hopeless 11-03-2013 07:11 PM

Hi Debi,

Yep, explaining "nerve" pain is very difficult. How does one explain numbness and pain simultaneously when they seem to be contradictory to each other. It is frustrating to even attempt an explanation to anyone that has not personally experienced it.

The good thing is the people here on NT DO understand. We know how you can have nerves that do not work (properly) yet send painful signals. I have NO feeling in my leg except PAIN.

Hopeless 11-03-2013 07:14 PM

The stool idea for getting up sounds good but I can't get "down" without hurting myself in the process. Getting up is not possible without something to pull myself up.

Myelogirl 11-03-2013 11:01 PM

I don't describe my problem as numbness any more. I call it altered sensation. When the Neuro sticks pins in I can't really feel anything other than a pressure sensation (so I can feel it, it's not numb) but if I stand on the smallest speck of gravel in my socks it feels like I've stood on a nine inch nail. When I broke my toe, I didn't know I'd broken it until I mentioned to my Neuro that I'd bumped my toe and it's been really itchy since then. Apparently pain can be perceived as an itch with Neuro conditions.

I looked it up and it's called allodynia (or something like that).

Hopeless 11-04-2013 05:01 AM

Different meanings to various terms make me crazy sometimes.

When I get asked if I have "tingling" my answer is NO. I have electrical shocks. Tingling to me is like the pins and needles feeling you get when something like your foot goes to sleep because the circulation was cut off. A very different feeling than when my nerves are mis-firing and I feel like body parts have been plugged into an electrical outlet.

I find communicating "pain" is a very difficult and confusing matter to both the patient and the physician.

St George 2013 11-04-2013 07:34 AM

Good morning !
 
Same with me Myelogirl.......I can feel pressure but no pain on some spots on my feet. My big toe will itch and when I scratch it I only feel pressure. But if I ever 'rub' my feet it starts the electrical shock thingys and these seem to race through all my toes at once.....ON both feet....lol.....and if I ever step on the smallest thing it sends the worst pain up to my dang knee area.

I tried that cream that starts with a C.....not getting up to find it :) and they said it would burn.....no burn....no nothing on either foot.

And my sweet Hopeless :)

Pretty much all the symptoms listed for SFN happen to me on and off all day long. Instead of pins and needles it's more like a 'shimmering' on the soles of both feet. Like when the sun is glistening off the water.

Just so hard to explain to family much less a dr. About the only dr I've seen that truly gives a damn is my PCP Amy.

When you go to a new dr do you ask them if they want you as a patient ? I'm tempted to do that tomorrow with the neuro :) I've only seen him once and wasn't thrilled. I know a lot of them have absolutely no personality, that they concentrate on what's wrong with you, but I need a neuro who has a personality....a nice personality and doesn't mind actually 'talking to me'.

Going in for the 2nd cup of coffee :)

Debi from Georgia (pretty darn cool this morning)

Dr. Smith 11-04-2013 12:29 PM

Quote:

Originally Posted by St George 2013 (Post 1026745)
When you go to a new dr do you ask them if they want you as a patient ?

That's an interesting question. Medicine is, and has always been, a sellers' market—there are more patients than there are doctors to adequately serve them.

shortage of doctors

This suggests that they certainly don't need us (as patients) and that a strong motive for wanting us is increasing their income. More complicated cases mean more doctor visits, more testing, more treatments, etc. A doctor once confessed to me that he wasn't concerned about losing his job because of the money his (kind of/particular) patients brought in to the entity he worked for.

OTOH, as "Doctor Rob" wrote (paraphrased and oversimplified) in his Letter to Patients With Chronic Disease, some doctors want patients that they can help rather than those they cannot.

This isn't to say that doctors don't care, or are totally mercenary, but the economics & prestige cannot be denied.

In searching highest paying professions, careers in healthcare invariably dominate every list (aside from CEOs).

Quote:

The 10 Highest-Paying Jobs In The U.S.

...It’s important for us to note that many of the highest-paying jobs in the U.S. include various positions within the medical community. To avoid this list looking like a half-dozen or more reasons you should’ve saved up and gone to med school, we’ve omitted some of the redundant medical careers; for example, we’re grouping all the medical doctors together for the sake of simplicity. And if you really want to know just how profitable a career in medicine can be, take a look at the unabridged top 25 list, which we’ve included at the end of our list. Here are the top 10 highest-paying jobs in the U.S. as published in 2012 by the U.S. Department of Labor.
I cannot imagine a doctor responding to the question, "Do you want me as a patient?" with, "Yes, but only for the money," but sadly, that may be the reality of the situation for some.

I've always advocated an interview as part of the vetting process for selecting a new doctor—I do it myself—and many articles are available on that very subject.

interviewing a new doctor

I think the question is a good one, but may not even be necessary depending on how other answers/things go in the interview(?) :Dunno:

Doc

Myelogirl 11-04-2013 04:05 PM

When my old GP retired and I was looking for a new one I looked up the Medical Registration Board for any previous complaints and or conditions of practice.

When I first went to my current GP, I told him I was interviewing him because I needed a GP with specific interests and ethics. He appeared to be a bit confused at my forthrightness but he answered my questions. I had some reservations but overall his answers were just what I was looking for. Importantly, he agreed to be my advocate in the event that I was unable to speak for myself. He is a devout Muslim and I thought that might conflict with some of my wishes but so far we have had a meeting of the minds and I think we have developed a mutual respect.

Now, I just have to find a Neuro with the ability to string two words together and the personality to communicate those two words and I'll be ahead of the game.

St George 2013 11-04-2013 10:53 PM

Thanks Dr Smith :)
 
I guess what I'm trying to figure out is this.....I made an appointment with this neuro 'out of the blue' (which most patients usually do) but what I really want to know is if he gives a damn about me as a person/patient and would be interested in trying to help me. I know that sounds simple and I also know some relationships don't click automatically. I'm sure it's going to take numerous visits to find out if I want this guy to treat me for a longer length of time.

Thanks for your comments and info as always.

Debi


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