Meds
 

I was just wondering what pain meds your drs prescribe for your rsd on a daily basis to help manage your pain. I just want to compare notes if you don't mind. I would really appreciate it. I'm just wondering if I should try a different route in controlling my rsd pain, if there is one. I take advil, percocet, neurontin, zoloft, xanax (and voltaren gel as needed). Again any input would be greatly appreciated. Thanks.

every person is different when it comes to meds but this is my meds.

morphine liquid 2ml every 3hrs
morphine oral 30mg every 3hrs
fentanyle patch 200mcg every 72hrs
lidocain patch 1500mcg ever 12 hours
ketamine nassal spray 100mg every 4hrs
ketamine lozanges 30mg every 4 hours
valium 10mg every 6hrs
keppra 1500mg 3x a day
mexilitine 250mg 3x a day
meclizine 25mg when needed for vertigo

and I have more meds but they are for other medical conditions I have

Hey Mike (oops sorry if your name isn't Mike don't know where I got that).. I was wondering how effective mexilitine is for you? My doctor just prescribed that while we are waiting approval for the lidocain infusion, I understand the two do the same thing? Does it help you? If so in what ways?

Hi Alaska. I'm so sorry you have to take all those meds. I see in your profiles you have full body and internal rsd. I'm so sorry about that too. I thought maybe I was taking too many meds, but can see that you take alot for your pain too. They are different than what I take, but still strong. I had to increase my meds for the first year and a half but have been stable on them since then. (Which has been for about a year knock on wood.) Anyway, thanks for your input and I hope you go into remission soon someday and feel better. My thoughts and prayers are with you. From your friend, Renee.

my name is samantha but thats ok mexilitine helps with my nerves in trying to keep them calm and its supposed to help with repairing i have been on it for 4 years and I believe it helps me alot.

Sorry I called you Alaska too. Thanks for clearing up your name Samantha. Take care.:)

Samantha (love that name!!) and I too am sorry you have full body!! I see from your profile that you are a pastry chef :). are you able to enjoy doing some baking? I'm no pastry chef but I sure enjoy eating it!

Thanks for the info on Mexilitine - that is also the goal for me to calm the nerves where the injuries are which is right in my groin crease since even breathing makes these nerves fire.. They also say that lidocain and Mexilitine help with cold induced electrical shocks & sensitivity; has that been true for you? Assuming you have those same symptoms when cold air hits your body or your limb gets cold from the lack of blood flow? Sorry if I am being to nosy, its just that my doctor mentioned very few are prescribed this particular medication so I was happy to see you were on it so you could give me your personal feedback.

Thank you so much for sharing!
Tessa

Meds CRPS II
 

Lidocaine patches 3-4 12 hours on then 12 off per day
Voltaren Gel use 3x per day during off hours of the patch
Medicated Compound Cream 2-3 times per day on each affected limb

Gabapentin 900mg. 3x per day
Amitryptalene 50mg per day at bedtime (working up to 75mg)
Celebrex 200 mg daily
Butrans patch 5-10mcl hour (change every 7 days)
Oxycodone 5mcl for breakthrough pain
Mexilitine (haven't filled this one yet)

I also have my spinal cord stimulator running 24/7 which helps a ton.

I take Vitamin D3, Calcium, Vitamin C, B6 & B12 daily. I also follow the Four F's diet almost to a 'T' except the coffee part :( which has helped me stomach issues immensely!

Oh and I've been given the go ahead if I want to use MMJ but haven't yet done that yet either.

Cymbalta 120mg 1x day
Tegretol 100mg 2x day
Valium 5mg 2x day
Flexeril 20mg 1x day
Percocet 7.5mg 2x day
Lortab 1-2 every 4-6hrs
Lidocaine patches 5%
Ketamine compound cream
Metoprolol 25mg 1x day

ya thats true mexilitine actually has lidocain in the ingredients thats one main reason I am given it.

Wow, I'm so sorry many of you have to take so many meds....that's rough in many ways. Must be difficult to tell the symptoms from the side-effects at times :confused:

I used to take a few, but my list is now only:

Lyrica 50mg twice a day.

I feel very lucky compared to you guys :o My pain can be pretty bad, but I'm mostly coping ok at the moment, and I've deliberately chosen a clearer head over pain relief, purely for work (cash) reasons. Some days I wonder if that's wise :rolleyes:
Things I've used but largely given up on:

Amitriptyline (effective for two months only, very dry mouth)
Gabapentin (terrible stomach problems)
Tramadol (only worked a few times, now just get a woolly head)
Lidocaine patches (only use for protracted bad flare, not v effective for me)
Codeine (kept for bad flares only, works a bit, regular use gave me digestive problems)
Diazepam (made me very sleepy and confused)
Various lesser pain meds. They work a bit for a headache or whatever, but don't touch the CRPS pains. Very strange pain type we have to deal with!

Good luck everyone and I hope you have a better day :)

Bram.

I'm glad you can manage without meds and wish I were in your shoes to do so!! Regarding it being difficult to tell the difference between symptoms and side effects.. well at least for me any side effects have been primarily; headaches, nausea, fogginess, sleepy, and dry mouth and agitation from some. The pain of CRPS for me, is the feeling that my muscles are being cut or torn down my thigh, like two hot wires are being touched together from my groin to just below my knee's, random extremely painful lightening bolt pain throughout my legs and never ending burning.. my right leg has been swollen since the day I awoke on the recovery table, it is cold and blue even though it burns and even the slightest cool air to hit my leg causes the hot wire pain to get substantially worse as does the swelling. The skin is so sensitive to the touch that I can't even lightly brush a piece of lint off my thighs etc., and these pains are constant every second of everyday .. So YES, I can tell the difference between the side effects and the pain of CRPS. I am still battling the shame I feel for relying on them - if I didn't I would need a padded room!

No one medication takes the pain away and in fact many of them don't do much to dent the actual CRPS pain. Some allow me to sleep a little longer and others allow me to enjoy intimacy or do a couple of chores, do my PT etc., without being in tears doing it. Sometimes the tears still come.. but not everyday like before.

Some of the side effects go away after our bodies get used to this new medication and very slow increases also prevent the side effects from popping up again due to the increase. Some side effects like dry mouth is annoying but the benefit of the medication might make it worth it to continue using it. Obviously that is individual and thankfully with that particular side effect there are remedies. For me, I will try a new medication only if there are 2 goals of the medication, and if any side effects subside given enough time or through dose adjustments. Like with the Butrans patch.. I vomited daily for over a week and then that finally went away, now I don't have a single side effect from it and it does two things: reduces pain intensity and it allows me to do more which in turn elevates my overall mood. When I tried Lyrica I was so agitated and suicidal this was not a good one for me.. very scary.

So glad you don't require so much and I hope this continues for a very long time!

Just like the symptoms of CRPS are different for everyone our medication choices and tolerance are all also very unique and it takes a ton of patience and trial and error to get a good combo in place.

Thanks for all of your input on this question. I forgot to add a few things so am doing that now so that you can also compare notes with what you're taking to if you want. The whole list is as follows:

Advil-200mg 2pills 3x daily
Percocet - 5/325 one pill 3 to 4x daily
Gabatpentin (Generic for Neurontin) 600mg mg 3x daily
Gabatpentin - 100additional mg taken 1x daily as needed for extra bad pain days
Alprazolam - (Generic for Xanax) 0.5mg 3x daily
Zoloft - 100mg once daily
And the two additional ones I forgot to list earlier are:
Dexilant DR 60mg once daily and
Vitamin D 50,000IU Softgel once a week
And Voltaren Gel - apply 2grams to wrist four times a day as needed

Thanks again for all of your input and I hope we can all maybe take less someday soon. It's starting to flurry here and is freezing out! The snow's coming I can feel it!!!

Hi all! These are my medicines that I take.

Cymbalta 60 mg 1x a day
Lyrica 200mg 2x a day
Trazadone 150 mg 1x a day
Lorazepam 1mg 3x a day
Baclofen 10 mg 2x a day
Exalgo 12 mg 1x a day
Hydrocodone 7.5mg as needed
Oxycodone 7.5mg as needed

If you ask me, this is way too much medication! I just wish it didn't take all this medication for us to fell only a "little" better.

I don't like that I have to consume so much medication & I still can't stand for anything to touch my foot & the bottom part of my leg as it is spreading up the leg now. I haven't worn a shoe in 6 months, let alone a sock. It is now getting cold & I can't put anything on my foot & my meds only help a little bit, but not enough for a shoe......ugh!

Thanks Tessa. It certainly does take a while to get things manageable!

I want to just make it clear that although I don't have the pains you describe every minute, I do have them on a regular basis and daily, and they are hellish, as you know :rolleyes: My problem is that my limited meds are to do with the fact that nothing I've tried so far has had enough effect on the symptoms to make them worth taking. All were tried under supervision of my pain doc and all given a chance to build up and get past the early intolerance issues. Last time I saw her we discussed the fact that my choices for meds are very limited now unless I go the route of opioids - and given my limited experience with them, and with the way my body has reacted to other meds, they would almost certainly rob me of the ability to work in the way that I can at the moment, and more importantly the ability to be the kind of mum I want. I can't bear the thought of that so I have the pain and a clearer head. When my kids have reached adulthood, I'll probably give the opioids a try.

I'm not offended, and I'm certainly not comparing my pain with yours or anyone's. It's not that I don't require much - I wish it were! Although I hate taking meds, I must confess to wishing I could take something that actually helped more. Ironically the low Lyrica dose does more for me than when I was on a high dose. This is a strange disease, and as you say, we (and our bodies) are all very different ;)

I don't think me taking little meds makes me lucky or brave or mad or anything else lol, it's just the way me and my CRPS have worked out for now. I live in hope that me and my doc will find something that works better for me! I'd take that like a shot :p

Good luck everyone and have a peaceful night x

Bram.

Meds
 

300mgs Gabapentin 2in morn 2at lunch 4 at night
50mgs of tramadol 2in morn 2at lunch 2 at night
20mgs citlophram 2in morn
losec in morning

Natural
Meditation by Dr Jon Kabat-Zinn Ph.D Great book of his Full Catastrophe Living
Well worth a look if your open minded

And Cannabis when the pain is real bad which has been proven to help
neuropathic pain Rock on Peace out

Hi
 

No i Dont take that never heard of it i just wrote my list sorry i cant be of any help.

Hi Bram, I understand what you're saying. Everyone's different and Lyrica is a medication. It is similar to the Neurontin that I take. I take meds that don't help others and visa verse. The fact that you don't take as many other drugs as some of the rest of us, doesn't mean you're not suffering as much as the rest of us. You just can't tolerate certain drugs, plus the cost of some are hard to afford. My husband has a good prescription plan thank goodness or I would be in big trouble. I've tried some drugs others take like cymbalta and morphine that make me feel worse. I also am afraid to try the SCS because of fear of infection and my scoliosis. It helps some, but my neurologist and gp said not to do it. After my two surgeries I was given morphine and it didn't help and made me feel worse. Demoral seemed to help me more. Some people prefer morphine. We are all different, but not matter what we take or how much we take for our pain from rsd, we all have rsd and rsd is painful and stinks no matter what we do to try to relieve it. It is one of the most highest ranked chronic pain conditions in the McGill Pain Index. I understand how you feel Bram. Hang in there my friend and take care.

Hi Freebird, Thanks for your input. I think medical marajuana has become legalized in New Jersey and see you use it sometimes. I am curious about how this may help the pain. I think I may talk to my dr about it if it is indeed legal in the state I'm in. Thanks again for sharing your pain relievers with us. Take care.

lol.. in case it came across differently than intended I was not insinuating that you didn't have pain on a regular basis.. we all do!! What I was commenting on is what appeared to be a question:

I was just trying to say that at least for me none of the side effects compare to the pain inflicted upon us by CRPS so they do not cause for confusion of where the pain is coming from. I know I would trade a bag plum full of side effects over the daily pain CRPS gives me..

For new people fear of side effects can be harmful if what they hear keeps them from trying something that might work for them and that is why I tried to explain a little more about allowing for time and dosage adjustments. It wasn't to question you at all, really.

I would say you are lucky and brave!

Cheers,
Tessa

I asked my dr if the pain I feel when my pills wear off and I'm due for my next does is because of withdrawl symptoms from my meds or because of rsd pain. He told me that the withdrawl symptoms from pills are different than those from the pain from rsd. What I had was pain from the rsd after my drugs wore off and I was due for more meds. Withdrawl from pain meds can include vomiting, chills, headaches, trouble speaking and incoherency. The pain from rsd can include swelling, redness of joints, burning or coldness in affected areas, intense internal pain in the muscles and tissues in the affected areas and limited range of motion in affected areas and disfigurement of rsd areas and spread of pain and physical symptoms. I've been through both, when the hospital I was in screwed up after my hysterectomy and didn't give me the meds I needed for my rsd. There is a big difference and they both stink. I just wanted to let you know my experience and what my drs have told me. Thanks.

Lol Tessa, it wasn't a question, that was just the icon for confused!! :D

Bram.

I spoke to my pm dr about taking percocet along with my neurontin. He said it's fine because it is not a high dose and if it helps my rsd pain then it's ok to take. It shouldn't hurt me in other ways. I've tried to take more neurontin, but have trouble with the side effects. I also only take additional percs after major surgeries because my stomach gets too upset if I take more of them. The combination I take of percocet and neurontin seem to help me cope with pain better and numb it a little. My pm drs are really good and have helped me to diagnose this disease early on. I still have a lot of pain, but they help me cope with it and I trust what they say. My other drs are okay with this combination of meds too. This may not work for everyone, but it does for me. I know Vrae takes alot more neurontin than I do, but I just can't tolerate a higher does than what I already take. I've tried but couldn't handle the side effects. We are all different and react differently to side effects and the pain of rsd. But the one thing we all have in common is the intense pain and stress we feel with this horrible disease. That's why IMO we need to stick together to help support each other and try to educate others so that a cure may someday be found. I hope you all have a good night. My fingers are hurting so I'm calling it a day. Take care.

Hi RENEE
 

Becareful when first trying it
Heres my recipie
Take 2 buds put in pot with water boil to get rid of clorifil
Then remove water and replace with full cream milk and bring to simmer
add milo 2teaspoon and 2 sugers stir
Then strain into cups should get two cups that should give you five hours relief
Try one bud for a start and go from there

You can try smoking it but i know people that it actually increased there pain
Hope this helps it beats taking opiates they did nothing for me.;)

I just wanted to say that the fear of side effects on certain drugs or procedures could be harmful if disregarded. Yes, maybe the side effects will subside and help ease the pain of rsd, but some if tried could cause irreversible damage like paralysis or infection or spread due to our weakened immune system from rsd like with the neurostimulator. I took great thought in deciding whether or not to do the Neurostimulator. Though my pm dr thought it might help the odds were not great and the chance of me getting a serious infection or spread were. I was told that the chance of getting rsd from surgery was rare, though I still got that, so I didn't want to take a chance on getting an infection or spread from a Neurostimulator. I had checked with all of my drs and the majority like my neurologist and gp said not to do it and that some drs just want to do it to make money off of it. Apparently it costs alot of money to do this procedure. I decided against it and am taking my pain meds and exercise instead. Everyone is different and maybe the Nuersostimulator has helped some people, but it wasn't a chance I wanted to take. I also have scoliosis that concerns me too. I don't think that means that I made a mistake for not choosing it because I was afraid, because I think my fears were justified as did many of my drs. I got an infection after the two surgeries I had last year and also after dental work done in my mouth as well as rsd spread, so I don't think it's irrational to feel this way. It's just my opinion, but wanted to share my experience about this situation. Thanks.

I've had this monster since 2008 and I'm currently taking:

Topamax ~ 50mg morning and 100mg evening
Nortriptalyne ~ 10mg in the evening
Tizanidine ~ 4mg in the evening
Norco ~ 1 every 8 hours
Methadone ~ 5mg 2 every 8 hours

I might have a spread coming to my right eye so have been worried lately. Not even sure if this is possible? I have CRPS II in my right wrist, arm, neck and portion of my leg. I can say that of all the meds I've taken over the past few years, I do think that I've benefitted the most from the combination above.

Hi Guys
 

I am always looking for new things or up dates on crps
and i found this youtube video which talks about how opiates dont actually
work crps hard to explain i not that bright so heres the link

http://youtu.be/6_NzhnAXX2c well worth a look

And also this TMJ its a mouth guard thing you put in your mouth
and seems to do wonders for these people with crps

http://youtu.be/FpREpF1Xl-U

Please let me know what you think sorry i should of started my own thread
but dont have a clue how all new to this forum stuff only had broadband for
couple of weeks

anyway hope this helps someone


Rock on Peace out

Renee,

I was in NO WAY insinuating that taking more or less medications by any of us was good, bad or suggested pain was higher or lower .. what I said was that I wish I was in her shoes and could get by with that amount and that she was lucky to be in that place.

Regarding fear.. yes fear plays a huge role in how we perceive any type of treatment whether it be medications, therapy or whatever. If there is fear or worry prior to attempting the said treatment studies have proven over and over that the results of said treatment aren't as good. That is not to say that all of input or research isn't good in fact just the opposite everyone should research recommendations on their own and discuss any concerns with the provider prior to going forward with it. With medication(s) I was simply emphasizing the need sometimes to endure a few side effects or adjustments in dosage to allow for the effects to work.. clearly I was not saying that regarding life threatening side effects but, the kind of effects like nausea, dry mouth, fogginess etc., that we often experience. Neuroodulation or SCS is a completely different story and yes there are risks and those just like anything else should be carefully considered before going forward. I never once indicated that your choice in not going forward with that was wrong or anyone else's choice for that matter. I personally have had great success with mine and although it doesn't free me of all my pain it is the only reason I can walk or stand up straight and so I am very happy it was offered to me. I only mentioned it on my list because like vitamins, I think it is an important part of my pain management/medication list and that is what I thought you wanted in your original post.

I never put you down or anyone else down for the path or scripts you choose. What I did on a few posts was ask you what you were taking because I was concerned that you were hitting several very dark places in a short amount of time and I wondered if you were being offered things that could space these lows further apart. I still question your doctors judgement in having you on percocet for such a long time along with advil and zoloft as the 3 do have deadly side effects. Especially considering you have stomach issues - that alone should be a huge red flag and at the very least switch you from Percs to something without acetominephen or suggest tylenol instead of ibuprofen products.. then add the zoloft to the mix and you are at an even greater risk for problems outside of your RSD. I am certainly not a doctor but, doctors have given me these warnings when I was taking the same things after many orthopedic surgeries and my sister ended up in the hospital with a massive silent ulcer after months of taking the 3 together that I mentioned above.

My comments weren't to offend you or anyone else. Yes, I did think Bram was asking a question and I mentioned that.. I am sorry if you were offended it wasn't intentional my intentions are always with a kind heart and concern ALWAYS.

One med that I was given when no med was working or was reacting to others was demerol it doesnt work the same as other narcotics I was told but it really did give me great help, its an old med and many doctors are getting out of it.

Hi Freebird, thanks for sharing. I would like to give this a try. I have a question... Full cream, like heavy whipping cream? :confused:

Tessa, I don't think Renee was upset by your comment at all, she was just giving her opinion. You know how apologetic Renee always is if she thinks she's given offence - its the last thing she'd do!

As for me.....I'm not 'lucky', and please don't wish yourself in my shoes - they are darned uncomfortable!! I wish I had meds that worked :rolleyes:

Let's not have another apology thread guys. No one here EVER sets out to deliberately upset anyone else, and surely we can disagree without causing offence. Equally I think we need to think very carefully before TAKING offence...

Just my opinion, and I've got a temperature and flu at the moment so I could be saying anything! :eek:

Hugs to all, remember guys, you're all lovely lovely people :winky:

Bram.

hI Vrae
 

Yes you can use full cream if you want but that will make it even stronger
We have blue top here which is just straight cows milk no additives works fine
for me but full cream would make it stronger because theres more fat in it and
thats what the THC sticks too very small amounts if using full cream otherwise
you could be stoned for days and also only use it when pain is really bad
if you take it all the time your builds tolerance to it very quickly and before you
know it you be using alot and wont help as much

Hope this helps Vrae let me know how you get on if its legal where you live
try to get bubble berry or blue berry from what i have heard these are the strains for neuropathic pain.

Renee,

I respect that you don't agree and wouldn't want you to. But to be clear my mention of the combo's of drugs you are taking wasn't because I was concerned for addiction... that thought never crossed my mind. What did cross my mind based on what you have posted is that A. you have stomach severe stomach pain at times B. that you are still hitting very low places often C. that you have at times intolerable pain that puts you into these low places in between dosing D. that you are on a very low dose of a drug that is normally given for short periods for acute pain and not something that is generally given for long term chronic pain E. there are better substances with less long term ramifications for inflammation and considering the pain increase between doses of your other meds that it would seem beneficial to your own well being to look at other forms of medications that might help you better and still make it so that you can get out of bed every day. I understand the need to take meds and deal with the side effects as many times the benefit of it is better than the side effects. That was not my point.. it saddens me deeply to hear you in such pain and or low spots, so that was my only reason for posting. Doing the same thing over and over and expecting different results is like running into a wall over and over. That is why I asked.. it was out of concern that with your current plan based on your own comments that maybe there is a possibility of improvement with a different combo than what you are currently on. It was just a suggestion or thought provoking comments.

As far as Bram goes -the words luck and wish were said when taking all comments in all threads together that she by her own words is improving and that is where all of us want to be. I don't literally want to be in her shoes or anyone else's nor do I negate anyone's pain.. all I did was think about recent comments and was happy that she was doing better, coping better etc., for whatever reason and for that I am happy. That comment never meant that she wasn't still suffering on a daily basis, we all will suffer if the diagnosis is correct this doesn't go away and only gets worse with time.. but there might be times when it is better and by her posts it seemed at least to me (maybe I misunderstood) that she was in a better place today than she was last year and many times it was said numerous times to hang in there it gets better after the first 6 months.. gosh I am astonished that my happiness for someone who said things were better was turned to make it look like I was saying there wasn't pain or suffering.

I only wish the best for all!

Yes, they are. But.. as I said it wasn't what you were taking that I offered suggestions. It was simply that you aren't getting effective relief sometimes 2 hours before your next dose and in enough pain that you are struggling physically and mentally (at least by your postings) and that you were having stomach issues both of those to many doctors (maybe not yours) if happening frequently (and by your posts they are) should indicate the need for something more helpful to you. Again, it was simply to suggest that there may be a better dosage like the same kind just in a longer acting formula (they do make it in a 12 hour dosage ya know) and maybe one without acetaminophen, so that if it is adding to any of your stomach issues that would help. Several of the drugs you are taking warn specifically about GI issues so I'm not being an idiot in my offers of suggestions.

And just to show you that my comments were out of concern for your overall well being..


On Nov, 10, 2013: 22,944 people reported to have side effects when taking Percocet. Among them, 51 people (0.22%) have Gallbladder Attack.

Linkout: http://www.ehealthme.com/ds/percocet/gallbladder+attack

Oh Tessa. I can't believe you think I 'turned' your comments to look like you meant something else. I don't twist people's words :( and I didn't think I was with this. Yes I'm in a better place physically than last year, but not in terms of the pain. Doing more is helping my mood and easing my pain a bit, and I do try to concentrate on the positives because it's helpful for me and I think for others too. I do find some other things more helpful than meds so i use them instead. I'm not comparing my situation with anyone's because I don't think that's relevant or helpful - I was just saying that my med situation doesn't mean we should draw conclusions. I don't know how to make it clearer :confused:

I've always appreciated your kind thoughts, as I do everybody's. We all want the best for each other, and misunderstandings like this are such a shame. We are all suffering and we can't always pick our words as carefully as maybe we would like. My response to your comments was to try to clarify my situation regarding the meds to anyone reading this thread, not a poke at you.
...

Renee, just a small thought as I'm not sure if I've mentioned it. I had terrible stomach problems on Neurontin and had to stop. It might be because my gastro situation is delicate because of being a coeliac, but my pain doc didn't seem hugely surprised, and said it is hard on the stomach. It's just info, I'm not saying you should quit it or that my doc knows best lol. In the end our decisions are all ours, and we take the responsibility for them, good or bad. Advice is just that, and we can ignore it if we want!
...

I'm tired and I'm a little down. Sorry if this hasn't come across well folks, I've spent ages trying to answer on this thread without offending, but that hasn't gone well :rolleyes:. I appreciate your support so much though everyone, and as always I wish everyone an easier day... I'm quitting this thread now, but it's such a useful topic Renee - thank you.

Bram.

Okay. Again just to be clear. I was NOT saying that your increased pain is from withdrawal - I know it is your RSD pain which is what the drugs are meant to treat. Maybe I am wrong but.. if your RSD is helped by taking a drug that is meant to work for 4-6 hours then even the same medication but in the longer acting formula would seem reasonable and keep you out of pain when the other doesn't get you through. It also seems logical and reasonable that taking less pills would be easier on the stomach. Since you mention RSD Hope you also should look back at it regarding the advice it gives on percocet and how it is for acute pain not chronic pain as with RSD.. since you recommended I do so. Regarding PhD's and Doctorates that is awesome but many doctors have all kinds of credentials and still can't diagnose RSD and even kill people everyday with wrong dosages of medications or not looking at the other medications someone is on so that really doesn't say much. Besides.. it was your original post that asked the question about medications so I guess you weren't really looking for input after all.

Added after posting - Also I am not saying percs aren't working for you or that you should change just that maybe the longer acting formula and one without acetaminophen might do better.. it was simply a suggestion not anything else.

Thanks Bram. I appreciate your comment on neurontin, but I have taken it for over two years and don't have stomach problems with it. When I've tried to increase it though, I get dizzy and have slurred speech. That's why I have stayed at the does I'm at for now. But thanks for your thoughts on this.
I hope you feel better soon and have a better day than yesterday. Take care.:hug:

*admin edit*

Ladies Ladies ladies
 

You all need to chill out we are all on strong meds which
make us have a short fuse and bite very easierly now i just joined here
and think you are all awesome women who are going through hell and back
we are all on different meds and that if it works then primo thats awesome
any sugestions are only trying to be helpful not take a dig at you.

We are all in this together and its up to you at the end of the day what
you do.

Please dont fight like this we fight a horrible prick of a thing which
is hard enough on its own with out the stress that your putting on
each other.

So Chill out please

Rock on Peace out Mike NZ
.