never heard of abdominal rsd
 

So I talked to my pain mgt. dr. and they tell me they have never heard of abdominal rsd and to keep having test to see if anything comes back.

Ugh! I have been with my dr. for almost 4 years now and hate the thought of going somewhere else, but I just don't know how long or how many test a person should go through before they throw in the towel and say "yes, it is abdominal rsd."

Any one with any suggestions welcomed!:confused:

Hey Alt :)

Sorry your doc is refusing to see the blindingly obvious here.....if he knows the criteria for diagnosing CRPS, he should know that the most of the diagnostic evidence symptoms (ie burning skin, temp changes, blood flow issues, thinning of skin etc) would not be visible internally. But the biggest one as far as this goes is that a diagnosis of CRPS can be given in the absence of any better explanation of the patients symptoms. When you can't see what else is going on, and they've done every other test possible, and nothing else is going on (but the pain is persistent and crippling), and most importantly THE PATIENT ALREADY SUFFERS FROM WIDESPREAD CRPS (duh), then a diagnosis of CRPS in your abdominal area seems perfectly logical. To subject you to any more testing just on the basis of a refusal to diagnose something he hasn't done before seems ludicrous.

Maybe someone else on this forum has had a diagnosis of abdominal CRPS, in which case it might be possible to contact their specialist and ask if they have come across abdominal CRPS, and would they be willing to advise your specialist of that fact, along with the symptoms they recognised.

I hope someone can help you soon. Hang in there and don't give up. I hope you can enjoy some of Christmas despite what this disease throws at you.

Bram.

I'm so sorry alt. Changing doctors is a very difficult and hard decision to make...the bottom line is that you need to make sure you give yourself the best opportunity to get the best care and treatment. You don't have to leave your current doctor to get another opinion...hopefully someone can suggest a doctor you could see who is more knowledgeable about CRPS in all its forms (internal and external). You deserve the best care you can get...and you are clearly not getting it right now.

Take care of yourself and I hope you have a good holiday.

Thank you for the reply. I agree with what both of you are saying. I meet with my pcp tommorrow to discuss any other solutions I have. I will discuss getting another opinion as well.

After I had two surgeries on my stomach for endometrioses and an oopherectomy and hysterectomy, I believe I got abdominal rsd. Rsd can spread internally and I have crippling stabbing and burning pain in my stomach that never goes away. I've had it ever since I got my surgeries. I've spoken to my endometriosis surgeon and he said he can't explain the pain and told me to see my pm dr. So I did and they can't explain it either. So I went to my neurologist and she can't explain either. So I went to my gp after going to ER one night a few months ago for severe abdominal pain and a rash and they said they couldn't explain it. The catscan only showed gall stones. So I 'm going to an endocronologist(sp?) to see if I need my gall bladder out. My pm dr said rsd can spread internally as well as externally, but there just not sure. I believe my rsd has spread because I had two surgeries which aggravate rsd. But I will see my endo dr on Jan 22 and am scared to death because of what they might find. I was told I may need to have an endoscopy and will ask to be put under for that. Maybe the gallstones are causing the pain but I believe the rsd is also causing the pain because I have pain in the side of my surgeries and pain under my ribcage and middle of my upper chest too. It feels like pain I have in my other rsd areas. The pain meds I take for rsd help numb the pain a little with my stomach but the pain is constant. A heating pad also helps, though mine just broke on me. So I have to get another. I hope you can find a dr who can help and that you feel better soon. If I were you I would see an endocronologist(sp) to see what they think and maybe another neurologist and pm dr for a second opinion. My thoughts and prayers are with you. Take Care.

Renee,

I am sorry you are dealing with this. I know gallstones can cause similiar pains as you described. I have the exact same symptoms also, but they have found nothing. It seems to be more aggravated after my endoscopy.

I was laying in bed, when my stomach pain woke me this am, and I was thinking maybe i should ask the dr. to see if the radiologist will relook at my ultrasound.

Something is definitely wrong. I also had endometrios, with 2 ablations and then a hysterectomy. but that was 07-09.

I just don't know, just hope it is not rsd or cancer. Both would suck!

Hi Alt, I'm sorry you are still suffering too. Maybe have that ultrasound checked again would be good. And then maybe a catscan. That can detect things clearer then an ultrasound. And then an MRI gives the clearest picture of all. Maybe it's small gallstones or endometriosis, though if you had a hysterectomy, I don't think that is it. Maybe it's abdominal rsd. I'm afraid that the endoscopy I may get will aggravate my stomach more too. I worry about that it's rsd spread or cancer too, but I just got bloodwork done and it seemed that my red and while blood cell count were both normal. Maybe try getting bloodwork done too. Hang in there my friend. I know it's hard not to worry. I cancelled my first endo appt because I got so scared of what they might find that I got more sick from worrying and had to cancel and reschedule. But it's not something you should ignore. It's better to find out what it is so they can treat it then to suffer the pain it's causing and have it get worse. I will pray that you'll be okay and you will be. Just keep the faith. Take care and happy holidays. Thanks also for your kind words to me. From your friend, Renee.

Hi All,
Been reading this thread & it is so agonizing just how much Dr.'s do NOT understand but yet they can act as if they do.
I fight my own battles with that, just not internally (yet).

I'm so sorry you're going thru that. It must be a very scary feeling.
Everything I've read saysthat RSD/CRPS can spread anywhere in the body.
Please keep us posted on how things are going.

Well my primary care says anything is possible. But for now he his starting me on topamax (migraine med) says his brother has irritable bowel syndrome, and his pain dr. Started him on it and it worked. So he wants me to try it.
Also I am to stop taking Zantac and bentyl since they are not working.
I hope it works. Tired of being up at night because of stomach pain.

I hope it helps too. But just be careful. I was diagnosed with IBS many years ago before I even had rsd and found out that I had endometriosis that was found out after my rsd and was let go for so long because my gyno and former gp didn't do the right tests on my stomach, that it ended up spreading to my ovaries, causing cysts and abscesses and years of extreme abdominal pain only to find out after rsd from a new gp who bothered to take a abdominal and pelvic ultrasound and catscan and mri, to find out that I had all of these problems. These problems led to two surgeries over a two hours surgery and a over a six hour surgery on my stomach and a medical bill I don't know how I'll ever pay because my drs misdiagnosed me as having ibs without further investigating. I am still suffering from it because, I believe my rsd has spread to my stomach because of my surgeries.
My new gp couldn't believe that my other drs never did tests to check when I first complained about my extreme stomach pain. I don't want to scare you, but I do hope that you get more than one opinion on your pain just in case it's something more than ibs. I don't want you to have to go through what I did and still am because my drs didn't take the time and didn't take me seriously enough to do their job properly. I hope this dr can help you. My thoughts and prayers are always with you.

Remeron
 

Sorry about your stomache issues,yes there is rsd stomache issues ,I know I have it ,I have full body rsd,it's the inflammation in the body causing all these issues.i had severe stomach abdominal pain cramps bloating ,eating made me feel awful,had gull bladder removed ,stones removed.nothing helped .my syked dr put me on remeron 3 years ago and it changed my life,and I tried every med for the stomache .its a anti depressant but it has a chemical in it for tge stomache .i hope you try this immediately cause I believe you will feel so much better.it works immediately.remeron will give u an appetite after taking it and you won't feel lousey after eating.also makes you sleep,hope it works for you,I know it will :)

No answers still sick.
 

Well still no answers about my tummy. I have been watching and documenting everything that I am eating and drinking.
I have found I can't tolerate rice, deer, wheat. So far . Gi dr. Says he feels I have ibs, rsd and food allergies all giving my gi track a problem. So I meet with my pain dr on the 7th and I'm in the process of getting scheduled for allergy testing. Oh yeah! Can't do beans either! Lol.
Anyone have to go through this process?

Hi alt, so good to see you!! Sorry you are still having such problems! They told me many times that I have IBS. I have so many food allergies (have gone through testing several times) and am gluten intolerant. I went gluten free several years ago and noticed a big difference. Also, one GI dr I went to did the stomach emptying study on me and said I had gastroparesis (slow digestion). With gastroparesis, it is hard to digest high fiber foods, raw fruits and veggies, and high fat foods. Those things tear me up. Have you been tested for this? From what I have read, it tends to be common in those with RSD/CRPS. Now I have interstitial cystitis (painful bladder syndrome) and that causes lots pain and issues too.

Glad you are going to your pain dr soon and that you are getting scheduled for allergy testing. IF you haven't done it already, ask you GI dr about gastroparesis.

Wishing you the best!
Nanc
:hug:

Hi alt, well done on keeping track of your food and working out some things that are causing you problems...it's half the battle. I went through something similar when trying to convince my docs I had an allergy to gluten. Took nearly two years to get diagnosed coeliac, but once I was and followed the diet carefully, I felt so much better. I'm hoping things will work out for you once all the tests are over...and then you can start feeling a bit better :)

Keep going, it does get easier. Hope you're having an ok day.

Bram.

Nanc
Thanks for the reply. I haven't talked about gastroparesis. I want to get the testing done and talk to the pain dr. Then talkative gi about all the conclusion . I am staying away from gaseous foods and Fiberous foods. I take 2- stool softness daily, lots of protein, probiotics, Greek yogurt, almond milk, fruits, green beans and salad. This is been my primary diet. Very limited starch. Very limited bread. I was eating multigrain bread but my stomach was still hurting.

Bram, I have been down since Thursday with stomach pain. Went all day today with nothing to eat. Then I had a little popcorn around 230 did ok. So about 515 had some almonds (just natural) a little uncomfortable but tolerable. Hubby came home wants to go for pizza. I figure I can order something else . Of course they were out of this and that. So I just figure I will eat a slice of pizza. 20-30 minutes Lower stomach pain. Is it the nuts or the pizza. (2.5 hours from eating nuts)
Ugh! I just want to scream. Even the BRAT diet says everyone can eat rice. Not me.

Anyway. I'll keep u posted. Thanks so much. Any help is appreciated.

Just forget about about it!
 

So we are on our way to church and I'm reading an article (sumarizing) for my husband about leaky guy syndrome. When he says why don't you just forget about it. If I complained about every little ache and pain.
After all this time he still does not get it. I really want to cuss him out.

:hug:

I'm so sorry alt...I know how frustrating that can be. My boyfriend is VERY supportive of me but my mom can be rather obtuse at times. I love her to death...she's my mom...but she has rheumatoid arthritis and she seems to think that all these things that trigger my pain can't hurt THAT bad. I mean...you don't see her crying about every little pain she has...right?

It can sort of rip you up when people say things like that...but the honest truth I think is that unless you have RSD then they really CAN'T "get it" in the full sense. It's nothing that I could have ever imagined before experiencing it...and given the choice between people I love not understanding and wishing they could (assuming you have to experience it to understand it)...I would choose them living in ignorance every time. I wouldn't even wish this on my worst enemies (and since some of them are directly responsible for the injury that caused this monster that's really saying something).

Unfortunately...knowing these things doesn't make it any easier or make you feel any less ripped up when people say stupid things that are...shall we say...less than supportive.

Take care. :hug:

Hi alt :)

Catra is right....people often don't really mean to hurt you that much, they just haven't a clue, and they really do think a bad back or earache is the worst pain has to offer...unless you are actually in labour or just lost an arm. They can't imagine a worse pain, certainly not one that you have all the time with no obvious wound... We aren't thrashing and screaming every minute. I mean, we don't have cancer do we? :rolleyes:

I try to think of the general ignorance and misunderstanding as just another symptom of CRPS that I have to accept and make my way through as best I can. I didn't ask for it, I can't do much about it, I just have to endure it and hope that it gets easier with time.

It's hard though. You want to change their opinion, you want to educate them, but if someone can't hear what you're trying to say, they just won't. So what can you do? You can go mad trying, reasoning, showing, talking. You can annoy them by going on about it long past any initial interest. Or you can shrug and remember that one day, something will happen to them and they will realise that life just isn't that simple. Maybe they will regret their attitude. Maybe not...:rolleyes:

As far as the pizza goes, I'd steer clear if I were you... The cheese is dairy, which can cause issues if you are sensitive, the wheat is well...wheat, which is a pretty common thing to have a problem with...and the tomato is pretty acidic on a sensitive stomach. Plain foods are best until you know some more, although that's really hard about the rice. I too thought most folk were good with rice. Was is plain rice?

Try not to get completely empty, it's not good for you in lots of ways, and it means when you do eventually have food, your gut goes into overdrive to try and get those nutrients into your bloodstream quickly. Little, regular and simple is probably kinder. Try some softish cooked veg (raw veggies might be asking a lot right now), fish, chicken etc, and steer clear of anything spicy, heavy, rich, creamy, etc. Anything too nice as I used to think of it ;) Processed foods can be tough on a delicate system as they contain so many hidden ingredients and additives.

I know it's a nightmare and must be driving you mad, but keep plodding on - hopefully between you and your docs, you'll be able to find a diet you can eat safely. At one time I couldn't eat any wheat, barley, bran, gluten etc, couldn't tolerate anything dairy, and couldn't eat anything processed. It was awful. But in time I found things I could eat without the pain and other nasty symptoms, and it's been worth it a hundred times. I'm never tempted to 'cheat'! I'm lucky now to have got some dairy back, still not milk or cream though...

I'm thinking of you and have my fingers crossed for some better news. Take careof yourself.

Bram.

Bram, at times like these I am quick to be reminded who and where my true friends are? The ones who understand me, the only problem is I can't pick up the phone or come over and complain to you all. Lol.
But thank you guys for being there this forum.
The rice was paraboil and white. Tried 2 times in one week. I know I should not be doing dairy but I am not ready to give up my coffee and half and half.
I started gathering some information today about fodmods diet. I will also have to add in hiatal hernia and rsd.
As I stood in the store today at the little gluten free section, I read the back of ingredients. If it was wheat free it had rice in it. So I I feel I'm in trouble .
Biggest thing; coffee and dessert. Love both!

Thanks for being there I will keep you posted. In the meantime I will keep plugging along.

Hi alt :)

Just been reading up on rice allergies. Turns out its rarer but perfectly possible to have a sensitivity to rice. This page has baby pictures on lol, but it's a mum whose son is allergic to a few things, and the lists are helpful and definitely not aimed at kids!

http://multiplefoodallergyhelp.com/?page_id=439

Take care today and hang in there. You'll find a way through...:winky:

Bram.

Oh my goodness
 

Well I'm reading these posts and now I'm wondering. I was about to go onto one of the other sites and ask if they thought my taking of increased OxyContin as demanded by my PM and NS last week could cause me gallbladder problems.

Then I read these and I started thinking.

I had polycystic ovarian disease syndrome and after 11 emergency ops throughout the 80's yet another cyst imploded this time directly into the ovary and blew my right ovary to smithereens, they had no choice but to remove it doing a partial oopherectomy, taking the right Fallopian tube as well in 1989. The remaining ovary developed another cyst in 1993 and damaged the remaining Fallopian tube so they had to remove the left Fallopian tube leaving the left ovary intact.

I developed a tumour in 2001 and required a total hysterectomy removing the remaining ovary, uterus and cervix. I nearly died on the operating table the first time she operated, she botched the surgery and nicked the bowel, but didn't own up to it. Subsequently I developed an infected hematoma followed by peritonitis, regular temps of over 103 extremely ill, rushed in and out of hospital and even her anaesthetist came to me on the ward and said get out of here as soon as you can. Then I developed MRSA, I haemorrhaged twice and the ultimate kicker a fistula between the bowel and the vagina cavity with faecal matter oozing from there. That gave me third degree burns from the faecal acid, I finally had to have 12 inches of my bowel removed.

Blow me the ovarian tissue grew back again the following year and I had another gynea go in and attempt to remove it a 2nd time in 2002 and by 2003 I developed a mass that blocked the right kidney, so they put in a stent in the kidney tract until they could remove the mass. That year I required further surgery to remove it. After that he put in a zoladex implant and nuked any possible tissue. End result, I now have a dodgy bowel and since 2005 have suffered 8 extremely dangerous bowel obstructions. The specialist has said if I have any more intestinal injury that requires surgery I run the risk of losing my bowel completely, it shutting down and face high probability of death. I work hard to manage my bowel obstructions taking movicol sachets daily.

In 2012 I had a grand mal seizure attributed to acute headache pain, and during the seizure fractured 3 thoracic vertebrae, 2 ribs and had an s1 stress fracture.

So now I'm here in 2014, I've got failed back surgery syndrome, from a double spinal fusion in 2013 to L4/5 and S1 and suffering extreme and constant chronic pain in my lumbar, thoracic and cervical so after Rhyzotomy difficulties that caused the seizure in 2012 we opted to have had a SCS implant put in December 2013. Once again they again had trouble and could get only one lead in so it's not working and now I'm waiting for a paddle or yet another spinal fusion to L2/3. For sure they intend to do another nerve block next week.

But my big question, is do you think I've got CRPS, the Rhyzotomy to the thoracic region in 2012 left me unable to wear clothes on my back for months as the burning pain was excruciating, my pain seems to be spreading and I think I'm at the end of my tether. I told my husband the other day I had this strange pain to just below my right rib cage and it's getting worse, I told him today and I fear we are in for another round of hospital merry go round. I wrote my PM this morning telling him the nerve block he did on two weeks ago gave me relief to my left hip for 5 days but the pain has returned. I want them to either fuse the L2/3'or put the damn boston paddle in and remove the once lead as it's not working but when I had the SCS trial I'm sure I had relief.

At this stage I think I'm cracking up and I'm losing my identity, my life revolves around pain, I'm a prisoner in my own home and I'm over it. I've been doing 30 to 45 min walking exercise 4 times this week, first time in ages but it's caused me to set back. I can't test if the one leads working if I don't do anything can I.

Anyhow, now I have this gallbladder pain or maybe it's liver. I'm just so frustrated I'm going from bad to worse by the week. The left hip pain has returned and the right hip pain, thoracic pain, cervical pain and left arm/ hand pain has remained unchanged. The increased meds helped but I fear another bowel obstruction is around the corner.

Any suggestions? :confused::(

Crumbs. What a hellish journey you've been through PamelaJune. I'm so sorry.

Firstly, it sounds as though you have a case against your first surgeon who messed up your op and nicked your bowel, etc. that seems to have set so much else off...it's appalling how much damage she did. I'm not one for advocating the legal damages process, but for something that devastating and just atrocious in terms of poor surgical skills, I'd explore it if you haven't already. Sounds like you need all the help you can, and sadly money is everything with medical treatment.

I'd get another opinion on your pain for sure - a neurologist or pain specialist who has experience of CRPS and can give you more of an idea. In the meantime I would note down any symptoms and photograph any visible things that you think might indicate CRPS (rashes, colour changes, blotchiness, hair/nail differences). Doctors like any evidence you can help them with in making or excluding a diagnosis.

The new pain in your liver/gallbladder region certainly needs investigating, but make sure you feel very confident in the specialist before you let anyone cut into your poor body again, and if possible get a second opinion on whatever they suggest. I hope it is something that can be sorted out without too much more stress for you.

Just keep fighting to get some treatment that makes your life a bit better. You deserve better than what's happened, and hopefully you'll get some answers and be able to find treatment that gives you some peace from the pain.

Take good care of yourself, and let us know how you get on.

Bram.

Alt,

I just wanted to let you know that I do have CRPS in my gallbladder region after my gallbladder was removed. I couldn't eat for 5 years. Every time I did, I was in sever pain. The only thing I could tolerate was broth, noodles, potatoes & toast. That was my diet for those 5 years. It took me going to Mayo Clinic to find out what was wrong. They put me on Lyrica & Cymbalta. It helped me enough that I can eat normal foods. I had CRPS internally first then developed it after my ankle surgery, so I was kind of backwards.......My family always said I wasn't normal!

I will answer any questions you might have if I can about my experience. Just ask!

Melissa

Melissa could you just eat certain things or that is just what you wanted?. They dx me with ibs, hiatal hernia and rsd. I don't meet criteria for ibs. But the gi doc and pcp both have said it. I say upper stomach. Ins def. says lower. It says bowel problems I don't usually have problems.
I just know that I have found I can't eat certain foods.

I could only tolerate those foods. Anything that I ate caused me pain & those foods were the foods that cause me the least amount of pain. Anything high in fat content I stayed away from as that caused me the most amount of pain & the pain would last for days. I now know that it is CRPS & the meds they put me on helped it.

What types of food can't you eat?

Rice in any form is a major player ( I use to eat rice all the time and love it) I found out today creamer (so I guess that means dairy) , nuts, cucumbers, deer jerky,. All this is still fairly new to me. I guess I didn't want to admit there was a problem or that certain foods actually could cause the problem. So I'm really paying attention now.
Can u tell me how did you ever sustain urself on such little food? U must have been skinny as a tooth pick.

Remeron
 

Sorry you are dealing with soo much pain in your stomache,I have rsd full body internally mostly ,from a two story fall at work,shattered my heel,broke my back and compound fracture of my wrist,now that it spread to my organs ,my stomache is the most severe.i deal with stabbing burning bloating crippling pain in my stomache,there is a drug called remeron that a dr let me try a few years ago,it changed my life,I had 3 surgerys in my stomache befor this,gull bladder removed, gull stones,exc.couldnt find what was causing the pain.tried every medicine from nexium to u name it.as soon as I tried remeron I wasn't bed riddin anymore from my stomache issues,it takes the pain away it allows me to eat,granted I still have problems, but the relief the remeron can give you is a small miracle,it's a drug for depression and anxiety,but it has something in it for the stomache.befor if I ate i would feel horrible ,this allows you to eat,it gives you a big appetite actually,I couldn't eat anything befor remeron,it also makes u sleep.if I miss a day if taking remeron I'm bed riddin,cold sweats,.hopefully you try this,I really think it will help you,hope you feel better danboy :)

It was extremely hard!! I took small bites of different foods here & there. I had to because I just needed to taste something other than broth. My family told me that I looked anorexic. I was overweight when this started & I lost half of me by the time it was said & done. People wanted to go on my "diet". I don't suggest it.....it's not exciting food at all!

Also, check out Sphincter of Oddi Dysfunction (SOD). That is something else I had on top of the CRPS. It is where your Sphincter of Oddi closes off & the bile that digests your food backs up & causes pain, just like a gall bladder attack. I will explain....so, what happens when you eat or you get ready to eat, your body starts to produce bile which helps break down your food. Well, the Sphincter of Oddi closes off & wont let any bile go through so, you are getting backed up with bile & it causes pain. The higher in fat content the more bile you produce because it takes a lot to break down, that is why I had to stay away from anything real high in fat content.

My CRPS started in that area after they went in to cut the Sphincter of Oddi open to let the bile through. So one condition led me to another condition, oh how fun this is......NOT!

If you haven't already, start keeping a food journal to write down what you eat & how it makes you feel. See if there is anything correlating. Also, have your bathroom habits changed? You mentioned IBS, so that is why I am asking. Where is your pain when you eat?

Danboy
I'm sorry for the pain that you must have been in and may still go through. But I'm grateful to have u here on neurotalk with me.
It sounds like u went through a major ordeal.
I am eating around 800-1100 calories on okay days. But I did take a bentyl which is a muscle relaxer for ur small intestine and I'm doing better today. However I'm scared to eat. I'm hungry. But scared of the pain.

I will definetely keep remeron in mind though. Thanks

Alt
 

Yeah atl ,I hope you try my advise.i know what you are going thru .befor remeron I really wouldn't have much of an appetite .when I did eat I would pay dearly,it would tAke me several hours to recover ,it's hard to describe the pain and uncoftarbleness it cause.but it's agony.i still have many problems with my gut.i hardly eat and it looks like I have a beachball under my shirt .i was a body builder befor I got rsd.thats all gone .now my face and stomache is full of inflammation .btw if you do get the remeron ,you tell them you need the 30 mg ,15 isn't enough. I'm now on 30 At nite 15 in morning.alt trust me on this it will make your life so much more comfortable. God bless :)

Went to dr yesterday. He said he does not even want to hear about abdominal rsd. Before I could. Even ask why we were interrupted by a workers comp. case worker. (Wtf) claiming she was there about the status of me getting a stimulator. We haven't talked stimulator in years.
Nor did she understand why I was on my meds. So here I go again battling up hill.
In the meantime, I am also finding that my toes are tingling and going numb even first thing in the am. Well on to the next apt.
Thank you guys for being there.

Oh Alt :confused: what a crummy visit, no wonder you are disappointed. These doctors seem to forget that just living in pain is an exhausting thing, and finding the energy to have to fight for everything against people who think they know everything while knowing so little of what matters....is just too much at times.

I hope the thing with your toes settles, you don't need anything else to deal with :rolleyes: Maybe try waking them up in the morning with a little general foot massage. Mine quite like that if I can't feel them like I should. I massage with a little monoi oil and then put on some warm socks and walk about for a few minutes. It seemed to help when things were going numb sometimes, and now I don't have to do it very often.

Take care of yourself and remember that we are right behind you, and that those medics are the sloppy ones, not you. It drives me mad when docs forget which meds I've tried or ask me to repeat basic stuff they should have in front of them. Wastes our precious and rare time with them. Hang on in there.

Bram :hug:

That really sucks alt! What is wrong with drs these days?? Sorry you are having such a rough time with this and dealing with a WC idiot on top of it. Hope your battle isn't too difficult and that your tingling toes is a temporary thing.

Hang in there,
Nanc
:hug: