Exacerbation over one month now
 

Hello all. I've had an exacerbation for over one month now. I cannot walk at all, I can't raise either knee, I feel like I'm going down and my legs are getting weaker and weaker. I've tried oral and IV antibiotics to kill whatever infection was going on in my body, I took oral prednisone (500 mg per day for 3 days) and I just started solumedrol infusion today and will do that for 3 days. It used to work phenomenally but toward the end it makes me feel worse and I become much more weak. My whole body is numb up to my stomach. I am able to work because my patients are brought to my office so I'm thankful for that. My mother in law passed away in a head on car accident about a week before Christmas and it was very stressful with my father in law, and my wife with 7 of her siblings really have a hard time with this tragedy. I have not been sleeping well. Ok, enough complaining. Things will get better, that is my plan ok?

Hey Doc

So sorry to hear about your lousy exacerbation - and about your mum-in-law. Hoping there is a bright star on your horizon.

Sleep well - and thinking of you and your family

(((((DocT))))), sending my healing hugs to you. Sounds like you may need
some Rehab time, in hospital. Did me a world of good. See what your
Neoro thinks.

So Sorry for Your Family's pain from the unexpected death of a loved one.
What a sad Christmas you must have had.:hug::hug:

It might be owrth getting an MRI of the spine to see if there is a partial TM (transverse myelitis). That caused similar symptoms for me a few years back.
Epidural steroids helped me with it.

With love, Erika

Doc,

So sorry to hear that you have had a set back. I hope you get some timely treatment.

ANN

Thank you all for your input. GREAT NEWS! I did my third day of sol umedrol today. I took one gram of liquid steroid and as of today my legs are lifting up, my balance is much better and I walked to the bathroom without an assistance! I do not mean to sound braggadocios but I am very grateful for this HUGE improvement. Maybe it was the healing hug Sally. Thank you. I am blessed and God is good! I want to walk more and more but I'm going to try to keep myself from going too fast too quickly. I want to keep you posted. Thank you for listening and supporting. It means a lot to me. :)

Thank you for the follow up! It is always good to hear how something turns out; especially when it is GOOD news!:grouphug:

Following my 3rd days, I was walking, balancing and feeling wonderful. I finished Thursday and was fine on Friday. By Friday evening, I returned from work, ate dinner and could barely stay awake so I sent to bed. When my lay my head on my pillow the pain in my neck, the skill sensitivity really hurt me all night long. The next day I could barely force myself to get out of bed. I tried and tried and finally stumbled into the living room. That day my walking continued to get worse. I am about to sleep because I am exhausted. I'm afraid things will return to how they were before my steroid infusion. Work is coming tomorrow. I will update everyone. Things might settle down. We shall see. Good night all

Awwww good night Doc. I hope tomorrow will be much better.

Doc-

My experience w solumedrol (1 gram a day for 3 or more days) is that I improve and feel great on it. Once it is removed, all of my symptoms- including the ones I was taking it for w old ones thrown in- come back. It takes me about 6 weeks to recover.

Best to you,
ANN

Thank you for the heads up. I look forward to recover!

I hope it happens sooner for you, than 6 more weeks, Doc.:hug:

Hurray! It worked! Today I walked! I walked a whole lot!!!! I will talk about it more tomorrow, for now-sleep.

I woke Friday morning after my baby was awake all night long crying. I wife was very tired and when I woke up I was able to get out of bed, walk to the bathroom, showered, dry off and got out of the shower without assistance. I then grabbed my socks and was feeling good so I actually reached down and was able to put them around my feet and slide them on! That is HUGE for me. It has been months since I have been able to do that. I sneaked into the living room, walked past my walker and used a cane to walk down the hall way. I really was feeling strong and my right foot was working incredibly so I was able to walk outside quietly without falling over. I walked over to my truck that I use for carry my scooter. I looked to my right at my Avalon (A car I have not driven in ages) and wondered if it would start. I got in, turned the key and it started up. Wow I was feeling excited! I walked back over to the truck to start it and when I looked inside I saw my send cane sitting there. I grabbed it, did not want to wake my sleeping wife so I jumped back into my car, drove up the driveway and drove to work! I got to work and thought I would need my walker or scooter, I forgot my lunch and I walked all over the place all day Friday. People were worried as I went to the front desk staff and to my office a few times, all the way to the fiscal department and to the waiting room about 4 times before I needed to ask for assistance. I didn't have a PM dose of Ampyra which helps me walk and my walking got "used up" and was afraid to drive back home at the end of the day but I made it all the way. I was unable to walk anymore that evening so basically ate dinner, talked to the kids and went to bed. A VERY SUCCESSFUL DAY! I thought, "My walking will not continue tomorrow-there is no way" I told myself. In the morning I needed a little help but I WAS WALKNG! I felt the need to share this great news! Thank you all for listening. :)

WoOt wOoT WooT!!!
http://home.earthlink.net/%7Esal.pal...res/family.gif

I second that. This is truly cause for celebration. So happy for you :):):)

With love, Erika