NeuroTalk Support Groups - Need some advice

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Need some advice (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/201125-advice.html)

Need some advice

Hi, I was diagnose with CRPS/2 last month. Had my injury July 2012 my right foot. The last 18 months had 5 different Dr.'s, 1 surgery (April 2013) told I have nerve damage (Sept. 2013). Have to walk with a cane, can't drive, can't work. I am on gabapentin 900mg 3X daily now & on Nucynta ER 50mg 2X daily for pain. This past week my pain is getting worse, going up my leg some, mostly on the back of my leg. my foot is swollen purple & very painful now. I don't see my pain dr. till March 12, should I call her about my pain? I can't find ways to clam the pain down, can't sleep much getting muscle cramps at nite. confused & don't know were to turn for help. My life is very stressful was in abusive relationship, have depression/PTSD on fluoxetine 40mg daily for that. Last Aug. was put on lisinopril 10mg/12.5mg 2Xdaily & metoprolol 25mg 2Xdaily for high blood pressure/high heart rate. I live with my Mom who has heart problems & parkinson. And my son(34) who has MD & bipolar. I'm the one who is to take care of them, now I have CRPS & can't do much these days. no income going for SSD waiting on hearing I'm just a mess & don't know what to do. :confused: Could use some advice please?????? :( :mad: :confused:

Sounds like a spread don't wait contact your Dr today

Don't hesitate to contact your doctor. March 12 is a long time to wait in pain. If he can't get you in, go to the ER. No sense in hurting more than necessary. The ER usually does treat until you can see your doctor. Hope your pain levels go down. ginnie

Lonewolf,
I completely agree with Ginnie. Go to the ER. When you do; be sure to tell them you have an appointment in March with your doctor giving them his name. This way, they will contact him regarding any treatment, etc.

Gerry

Thank you all so much for your advice. Calling my Dr. on wed. 19 she is in that day (only Wed.'s) Hope she can help me. Gotta take my mom to the DR. on Wed. too. Yea still in alot of pain but I have to go on with life & learn to live like this with pain, which I am not good with pain, LOL :eek: well what ya goin do. :Sigh:
Let ya know what the Dr. tell me. Thank you all :grouphug:

The earlier months with this monster disease can be the scariest and it takes time to wrap your mind around how to cope. There are so many facets of this!
If you're female it's more likely to try to connect with all those facets at once & it gets overwhelming!
I'm glad you can get into the P.M. Dr. sooner. There are more treatment options
in addition to oral meds. I've tried so many of them. It's very individualized
with RSD/crps patients. My best help comes from nerve blocks. I was freaked out by that proceedure at first and they still make me anxious but now I'm going on 22 of them.
I read you'll keep us posted, please do. Hang in there.

Hi Lonewolf,
Ditto to what Ginnie says.
So sorry to hear of what you're going through. This monster that we all are going through really sucks big time.
I hope you find some kind of relief soon....

Hi everyone & thanks again for your replies. Here is a update.
Call the Dr. today I have app. on Monday Feb. 24 instead of March 12. And
was told if the pain gets to bad to go to the ER. I'm to get a call in the
morning to check on me. Hope I can make it to Monday.
:grouphug:

Hope your appt. the 24th goes well, and that you are provided some good pain relief. Hang in there, ginnie:grouphug:

Update dr. App. Today

Hi all, well today app. with PM dr. went soso. good news she upped my pain meds Nucynta ER 50mg every12 hrs. to 100mg every 12 hrs. I don't think she know much about RSD/CRPS ask about the spreading she said could be. ask about spasms, charlie horses, burning,crushing,squeezing, heavy pain she didn't have a answer, other than saying we can't take all the pain away. :thud: I guess it time to find a new dr. gee what's next.......
She couldn't even tell me about Vitamin C. She did tell me the heating pad would help. Well thanks for letting me vent. Back to square one :(

Quote:

Originally Posted by lonewolf (Post 1053259)

Really makes you wonder about these doctors..Some look at us like what???the heating pad is the best item for me..I have tried the salts,but its hard just applying ..Looks like we all get these spasms,etc...Good luck take care..