pain with limited meds.
 

well I am at witts end..I had meds. that were helping take the edge off,but now new insur... will not pay for it..I cannot afford it..So they have me try something that I had before..Made me have heartburn bad,and my stomach was knotting up and burning.so went off that..trying to get old meds..back so far no..I had to go back to work today..All sorts of pain..could not take hydro.. because I had to drive my-self..Felt like crap..Pain level 10...felt dizzy,and sick..Went home called PM ,,no call back..So I take hydro..Still feeling about 9 right now,and Guess What??? get to go back and do it all over again tomorrow..My skin on fire,pain in hip and knee and bottom of my foot..Right side,,but then it started in left hip too..I am so tired of these waiting games and meds..I am waiting for appointment for trail stimulator ..still nothing..waiting on 3 weeks..I hate going to work like this..I feel like I am suffering to force my-self to go..sorry but had to vent..:mad:

So sorry you are suffering. You are so brave facing work while in pain. I did it for years and understand the challenges. I wish you wellness ~Lottie

Thank you so much..Its hard going when you just want to stay in and try to feel better..I have to go because I will need my sick time for the stimulator ..I sure hope it works..Were you able to get disability ?I wonder if I use up my sick time,I wonder if I could get disability ?Anyone know???Thank you

Hey moosey! So sorry you are having such a rough time. To have meds that helped and now not be able to get them...that has to be awful! Have you filed an appeal with the insurance company? Have your doctor submit a letter with the appeal listing the meds you have tried and failed. Insurance companies can be such a pain (pardon the pun) about medications.

It shouldn't take so long for an appoointment for the trial stim...I would be calling them and bugging the crap out of them.

I admire you for still working. I know it is especially difficult working when you can't take anything. There is nothing I can take that helps my pain, so I worked through it all too. I stopped working at the end of Dec 2012 because I just could not take it any longer. Work had short-term and long-term disability insurance. I was denied several times and finally won my appeals in Dec 2013 (took a year!). I was approved for SSD on the first application and within three months....thank goodness! Does your employer have short-term/long-term disability insurance?

My doctor had tried before,and is again..It seams like I am going in circles..I spoke to the lady today,still nothing..I am glad you receive it..Thats great..I will have to do some reseach on that..Thank you ..I sure hope things get better soon for all of us..I know that we all are here for the same reason,and I wish it was for a better reason..BUT,,you know I think we should be greatful its this ,I know it sounds funny,but it could be much worse..Bless God..and Everyone..

The nurse never did call me back..The A.M. nurse said well you can come in later in the day..I told her I cannot drive nor have a ride..So I wanted a new med..or call back about other meds..nothing..I sure hope tomorrow will be better...I go to primary care Thursday,I will speak with him..Its hard just holding in there..Have to recheck BP...its been too high..ha ha who would see that coming!!!!!!

Good luck with everything. Try to remain calm (haha...yeah right huh?) so your BP doesn't keep going up!

That's a good one..Well went to work after 4.5 hours of sleep..Felt like crap..You know its so weird..I go and then about 45 minutes down the road,I feel light headed,sleepy,and almost a high feeling..I wait and take my meds.When I get back home..See I work 6:15-8:45,,then 1:25 -3:30..My husband drive us to work in pm..So I can take my hydro..my BP is aliitle better..Could still come down more..You know the more things bother me,the more it hurts and the bP goes up..so I try to stay away from some people that bug me..
I hope you are doing ok..Anything new with you?hows the weather treating you???Thank you

Hey moosey :) hang in there me old mucker, I know this is a really tough time for you, but I just hope that something changes for the better soon and you can get some control back over this little cripsy monster...

Glad you are keeping away from as much stress as you can, the BP thing is horrible on top of everything else. Do the deep breathing exercises and try some nice candley calm time with some soothing music and positive drifting type thoughts.

I'm not sleeping well at the moment either, I chuckled in a slightly insane rueful way when I read your post on the lightheaded feeling. It comes over you in drifts doesn't it? Really disorientating and almost makes me feel dizzy. I'm in bed a lot at the moment with my back, and sometimes my husband will gently have to remove my book or iPad or cup of tea from my hands where I've just zonked out. No disasters yet, but it's a close thing lol. I admire you still working moosey, good on you. it's so hard at times, but fighting to keep that independence is good for your own sense of worth and morale I think.

Here it comes again....so weird....like a weight dragging my head down all of a sudden, and those heavy heavy eyelids just don't want to stay open...crumbs I'm fed up with it. Hang in there moose. I'm thinking of you and hoping for better for you.

Bram :hug:

moosey2me, if I may ask, why is your insurance denying you your doctor's prescription?

they wanted to make sure I tried other meds first..and the med I take is costly..sounds dumb right..you know you really got me thinking though..like why????? doctor called tonight and going to try morifeen must of spelled it wrong but you know what I mean I hope..thank you for asking,because I should be asking them more questions like that..

sleeping is so hard for me..so do you think its because of rsd or not enough sleep?i cannot figure it out..one minute fine,then I could just fall right off..dizzy too..the working thing really hard for me.. I wish I could stay home..i feel so terrible..this afternoon I was moody wanted to get back home quick..the kids were loud and I had enough..tomorrow getting morifeen spelled wrong ...this just seems so terrible to deal with lately..the doctor said no approval yet from insur..either for meds..or stimulator..
are you any better?it sounds like you have been going through a lot too..i read your other post..sorry to hear that..i have one real positive you all are real good people:grouphug:

Hi Moosey! If you are getting Morphine, then I can tell you it is a very short acting. Meaning the effect doesn't work long. It is most appropriate for short term use! Not chronic pain. It does come in a long acting pill called Avinza, but still not great. Maybe a Fentanyl patch? Ask the pain mgmt doc! Also, you mentioned being limited becase you don't drive.....who can help you out? So you can get to these important appointments? Friends, neighbors, people from your place of worship? My church keeps a list of names of folks willing to drive. I

Wow! You're dealing with a lot of pressure with work, pain , need for rest , healing, desire for ANY compassionate pain relief and getting no medical support etc, fighting insurance.. phew! :holysheep: I really hope that you have some GOOD time out away from this or some good distractions to help lower the pressure, lessen the pain if possible..and can be as good to yourself as possible.. I am doing some Adaptive Yoga once a week,tai chi learning meditation better and mindfulness all to help lessen the stress. . It doesn't fix anything but I think it is keeping me sane. RSD is fueled by stress of about any kind and pressure means less healing. We will say our prayers that you get relief soon! :hug:

Moosey,

I have to agree with Lottie about the Morphine. It does not do much for very long. I had it for one of my surgeries; just saw bugs on the ceiling; but it never touched the pain. My doctor listed as I am Alergic because; although I knew there were no bugs....it's still hallucinating. The worst part; didn't even touch the pain.

I myself am on a pretty strong list of meds, including Oxycontin, and Percocet for breakthru pain. The Percocet at least can give me some relief with the pain gets out of control. The Oxycontin is time released and I take it around the clock. I still do have 24/7 pain; but usually tollerable. With all the pain you have; I can't imagine having to work. I really feel for you. Wish you could stay home.

Don't know if you previously mentioned; but are you seeing a Pain Management doctor? They sometimes are better at getting Prior Authorization for meds insuranace companies are decliniing.


Gerry

Moosey - feeling any better today? Are you the beautiful bride in the pic?

Where to begin
 

you all are so kind..I took my first one today.I have had it in the past for hystroctomy..It did not do anything for me..but have to try something.The funny thing is the med.I was taking was helping some,but they will not approve but get moraphine ..I have a okay PM doctor,,he does try..His office has been fighting tooth and nail for me..I hate going to work,because the pain starts right back as soon as my feet hit the floor..
my husband works 3 shifts,but tries his best to take me locally because he can get here and back to Amsterdam..but the other one would be hard for him..And I do not have anyone else..most of my family has died.One son barely see or hear from,and my other son works 10-12 hour shifts..I do drove some,but only local..when I do not take strong meds..very careful about that..
Saturday nights we go to a auction.We call that our night out..we love it..
I was married Dec.22,2012 even though I was going through a big bad battle with RSD my Hubby still wanted to marry me.It was wonderful..he gabbed me by the hand and got the mike,and sang I CROSS MY HEART to me..I started to cry and so did other guest..It was the best..He is my rock..my best friend and my honey.I am truly Blessed in other ways..
Oh also we go to a small church which most of the members live about 25 to 30 minutes from me and most are older with illness of there own..But I really could use prayers..
Again you ALL are the Best..Thank you from the bottom of my heart..Please remember keep me posted on you all too.I will continue to pray for all my NeroTalk friends..Hope you are doing your best..:grouphug:

Still in a lot of pain..Yes that's me..Thank you..how are you doing?Hows the weather?here its only 7 degrees but morning calling for 3 below..not looking forward to thatAnd where are you located?I try to look up to see whom I am speaking with and where,if possible just for giggles because you never know you could be close by..take care..

Some meds..I guess can do funny things to us..Thats really freaky.I have been on so many,its hard to remember lately what I am on,how about you ?Working rotts but I am saving my hours for hopefully the stimulator..I do go to pain mang..His office is trying to help me.waiting back for there call.So how are you doing?I take it you do not work?did you before RSD?

I am glad it helps you.Being on here helps me..So Thank you all for being so caring.I try to keep up with house work too,which helps keep me calm ,plus busy.I also putter with things.Going to put a dollhouse together soon.But right now working on a old composition doll that was my moms.I am glad you can do yoga..I think if I tried that I would be in bed 3 days later..ha ha..But thank you..Hows the weather effecting you?

Actually I deal with a lot of spine pain (fusion/laminectomy L5-4), as well as Peripheral Neuropathy (spine, leg and burning feet) and a combination of many other issues, but not RSD. One thing we all have in common is pain.

I am retired; but even if I weren't; I can't imagine trying to hold a job. Pain is 24/7 even with narcotic meds. It's been a few years since I have been able to sit behind the wheel. Tooo painful. My drivers license comes up in a little over a year. Pray I do not have to take a test. Would never be able to pass.

I am glad you are able to at least discuss painful issues, as well as SCS information. This is a wonderful site with very compasionate, caring people.


Gerry

Sounds very painful.I wish there was something to take it away.its really hard going through day by day.I here you driving is hard..I do not drive much.Only to work one way.Its 5 minutes up the road .Sometimes to walgreens,5 minutes from my home..Using curse control..What a terrible thing to have happen to all of us.Today the wind is roaring ,snowing and white outs,cold too.you should be okay,unless someone else says different..I hope you will be okay.There are a lot of great people here.Glad you joined.Stay intouch..I am glad to talk any time..Vent or anything..God Bless