16 hours
 

Until I find out my MRI results.

So there you go.

Good morning christobelle :)
 

It is so hard waiting for results isn't it ? I have small fiber neuropathy and I can remember the agony of waiting for the skin biopsy results.

I have you in my thoughts and prayers. Please let us know the results.

Debi from Georgia

Thanks Debi.

Less than 9 hours now. It is SUCH a long wait.

Hoping that all is well with you, and thank you :)

yes, it's very hard. to wait for appts, then wait for tests, then wait for results.
good luck and let us know.

best of luck! what are you hoping for?

Here's wishing you the best and truest results. :pepsi:

Well that goes down as one of the most humiliating days of my life.

The neurologist who was oh so helpful when he saw me a few weeks ago in the midst of my arm muscles operating independently of my direction, and who was oh so sure that the MRI would show something up, today, when it came back clear, essentially told me that there was nothing he could do and he couldn't give me anything or offer any help whatsoever and was I sure it wasn't in my head.

Unbelievable. I am just mortified.

And still stuck here with all manner of crap going on with my body and no reason as to why. And nothing I can take to ease it.

Devastated doesn't even scratch the surface of how I feel after today. And I am still stuck with all the horrid crap and zero idea on what the hell to do now.

i'm so sorry that nothing could be resolved based on the mri.
i would keep in touch with your neuro. you may have to give things more time.
keep track of your sx's in a sx journal with dates and descriptions. it may help your dr over time.

sometimes it can take more time for lesions to show up on an mri.
don't give up hope. MS can be hard to dx and may reveal itself more over time.
please keep us posted on how you are.

Doctors are people who prescribe medicines of which they know little, to cure diseases of which they know less, in human beings of whom they know nothing.

With love, Erika

Thank you both.

I have opted to seek out a second opinion, from an MS specialist (the fellow I saw was a general neuro).

I shall see how that goes.

I really just want to know what I'm dealing with so I can actually deal with it. But I need someone who is willing to actually look further than just some film. There is more to a disease than simple pictures of one aspect of a person's being.

That's a good plan. Sometimes the generalists, and sadly, even some specialists will discount what patients tell them is happening unless the lab data backs it up.
I for one, wish that medical practitioners who are like that would stop seeing people as collections of data.

With love, Erika

Cristobelle,

I am sorry that this happened to you. It has happened to many of us. Hey, maybe you do not have anything- that would be great- but your body is telling you different.

Whoever you see next should follow up 6 months later to see you "over time."

So sorry for your treatment.
ANN

Hey christobelle- get your mri on cd & study it yourself. You'll figure out what you're looking at trust me.

i think that is very wise. a 2nd opinion plus the specialist.
get copies of your test results and start keeping a medical file on yourself.
it will come in handy. i've learned a lot from reading my own records and have even had to correct my drs who included incorrect information. who knew?

Hi christobelle,

Have you had your appointment to discuss the MRI results?

Oops! Sorry. I see this question has already been asnswered.

That's ok Snoopy. Yes, question answered.

Now just waiting to hear back from the other specialist with an appointment time.

Ridiculously at least my physical symptoms reassure me that I am not going insane lol. And people that witness them too. Stupid hey?