TTwitches
 

I was diagnosed with MG last Oct and I am experiancing muscle twitchhes sometimes its my fingers or toes. has anyone experience this?

Twitches
 

I didn't mention that I am on 50 MG of Prednizone and 90 MG of mestinon every 4 house for 3 times and 180 sr mesttinon at night

I have a lot of muscle twitches. I am not sure if it is the MG or something else. Mestinon will cause them if your dosage is not exactly what your body wanted at that moment.

http://en.wikipedia.org/wiki/Fasciculation

Sorry, when I read about "twitches" or fasciculations, I always think about ALS. (Sadly, I've known some people who had this horrible disorder.)

I don't want to scare you. It MOST likely IS the Mestinon. Check out the link. But, "sometimes" docs get MG and ALS confused. There have been cases where people with MG were misdiagnosed with ALS and visa versa.

HOW were you diagnosed?

Your Mestinon dose seems really high for a newbie. It really is MOST likely the Mestinon, I think.

yes!
Mestinon really helps with my double vision but can cause some twitching in my wrists and ankles.

I learned a great tip HERE just a few weeks ago. Mestinon can help some muscles feel better but can over stimulate other musles that don't need any extra acetylcholine.

So, now if my ankles get twitchy I just get up and walk around for 10-20 minutes and problem Solved! :-) Or if my wrists start to twitch I start doing stuff.... like house work, cooking, or laundry...lol.

Every time I hear the letters "ALS" it gives me the heeby jeebies. I read that it is a rapidly progressive disease and that it causes severe muscle atrophy. I've been having this crap for at least three years and it is not all that much worse. I'm thinking that lets me off.

http://en.wikipedia.org/wiki/Amyotro...eral_sclerosis

Mesty def gives me twitches. It helps the muscles that need it but for those that don't they get very twitchy.

That explains why my muscle most severely affected by MG, also are the ones that twitch - thighs and upper arms. Usually before a dose not after

thanks
kathie

When I first started mestinon, my tongue twitched a lot. I still get occasional twitches, in a variety of muscles, but I really think it does have a lot to do with some muscles not needing the extra acetylcholine at the moment it is made available.

My left eye is fine but my right eye crosses inward (esotropic starbismus) which causes terrible double vision (diplopia).

Sometimes, if I'm not using my eyes to read, then my left eye will start twitching. If I start "using it" by reading something I notice the twitching stops after about 10-20 minutes!

I'm still trying to figure out my Mestinon 'sweet spot.'

For the past two days, I have been taking 60mg // 3 times a day // 10am, 2pm, 6pm. I have had zero side effects besides the occasional twitching.

The positive side effect I LOVE, thus far, is that I used to have chronic constipation and now I do not :-D {{LoL}} (sorry for TMI)

Hi, Ron. Welcome.

Please ask your primary doctor to test you for a B12 deficiency. When you experience twitching in your hands and feet, it could be a B12 deficiency.

It could also be a circulatory issue, but that's not as likely.

Because you're on Prednisone, you might have a calcium or Vitamin D deficiency, and those two things can cause twitching.

Also, if you are retaining fluids on Pred, that can give you an imbalance of electrolytes as well.

A high school friend of mine died of ALS. It's scary because most people die of it. They are finding different forms of ALS, some that are faster and some that aren't. There are usually other reasons for muscle twitches of fasciculations.

Ditto on what Limpy said.

Annie

I have had muscle twitches for almost 8 years - years before I had any symptoms.. They did get quite a bit worse when my symptoms initially flared 3 years ago.. the dr's never even bat an eye when I mention the twitches - they say everyone twitches... I do twitch worse when IVIG is wearing off.. i'm so used to it know though!

Thanks I cut the Mestinon to 60 mg 3 times per day and it seems to help. I am not twitching very much now.
Thanks for the replies

Ron:

Yay, Ron!!

Yep, I'd make a HORRIBLE doctor. "When you hear hoof beats, think horses, not zebras!" Zebras ALL the time for me. ;)

As a favor for others who may stumble upon this, the twitching and ALS connection is blown way out of proportion. Muscle fasciculation usually doesn't develop until someone is well aware they have ALS. Additionally, ALS twitches would be picked up on a needle EMG before they were even noticeable to you.