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Im Falling But You All Need To Know There Has Been In Injugry To My Son At School
I just would like to let everyone know Im still here and if you have emailed me or I have said I was going to get back to you so what is happening so everyone knows......My son got hurt bad last monday at high school. He got droped on his sdoulder from some kids we have had problems with since 5th grade and nothing ever happens and it really still didnt IM FALLING I HAVE NO HELP AND i WASNT WELL BEFORE THIS THINGS WERENT GOING GOOD BUT THIS IM FALLING VERY FAST I dont know I have to keep it together on top of full body RSD no sleep for days pain level is I cant even tell anyone and yesterday he y son saw our regular dr she sending him to an shoullder surgeon I spent hours the first day in the hopsital Xrays dont look good he is in a sling on two different pain meds and still not sleeping and he has never been on pain meds and he has a heart condtion that they are finally trying medication for to help and he has finals soon its his right shoulder and he is right handed and he was helping me because I was well emough to hardly type.MY EYES HAVE BEEN SEEING FUNNY IM GETTING STIFF AND MY BRAIN CANT PUT THINGS TOGETHER WTO EMAIL TYPE WRITE ANYTHING I GOT VERY SICK AT HIS 15TH BIRTHDAY the end of last month iM FALLING VERY FAST AND VERY HARD NO NO NO NO NO HELP HELP !! ! ! !! ! ! I will be back I didnt want people to think I didnt care and I am falling..........Thank you I WILL BE HERE SOON I WILL TRY IN A COUPLE OF DAYS .EVERYONE HAS BEEN HELPFUL FOR ME IM FALLING TO THR POINT I FIND MYSELF BREAKING DOWN I CANT HE COMES BEFORE MY HEALTH NO MATTER WHAT...............
thank you eveyone and InHisHands, and well you know who you are thank you for all the help last time I couldnt of kept going IM TRYING TO KEEP FIGHTING |
Bless your heart, we are here for you. I swear the hardest job i've ever had is being a parent. You and your family are in our prayers.
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Karen,\
Hang in there. I know easier said than done. From a parent who had kids that did everything possible to kill themselves (or me from heart attacks)lol that it wil be ok. the joys of having the youngs ability to recoop. My one daughter took a fall after we moved to germany, (I told her she couldn't get some candy from the top of the frige, she did anyway, and slipped off the counter). I had a 2 months old baby I was breast feeding, and son taking the bus to get home from school, and hubby had just left 1:00 am for field manuivers) took her to the local base clinic and they said ruptured spleen and bleeding internally. had to drive to american hospital, (I didn't know how to drive in germany or where I was going). got her to the american hospital, the examined her, sent her to german hospital for test. the german doc gave me the results in a folder and said I'm so sorry. Went back to american hospital, surgeon looked at her again and said no surgery. the blood was being absorbed back into the body. If he takes spleen out there is a 50% chance she would die of an infection before she hit 13. (she was 9)..everything Ok. during this time, I left my son locked out of the house, and my new baby with a neighbor I didn't know with no milk or anything. didn't even know how to get ahold of hubby in the field. He made it in late that nite by stilling a jeep and driving himself to the hospital. (no he didn't get in trouble) move to 1st day of college. doing a play, playing she was dying. I thought WOW..she's awsom. She comes home because her belly hurts. doctors next morning.....back and forth 3 times due to pain. Poc finally thing append. get her to hospital...open her up..no append. rutptured Ovarian cyst, and her belly is full of blood. they cleaned her up, kept her in a light coma for 3 days. that's just one of my kids. I've got two others...lol they have all made it to adult hood. Just want you to know that they do heal fast, and even with surgery, it hurts us more than it does them. Hugs Mary :grouphug: |
Hang in there Sweetie!!! :hug: :hug: :hug: :hug:
I know you have been having a really rough time. I am thinking of you and praying for you, and I am glad I have been a small help to you! Sending many (((( pain free hugs )))) :hug: :hug: :hug: :hug: Keep going, you can do it! :hug: |
((((((Karen)))))),
I'm so sorry about your son. I pray that the surgeon is able to repair his shoulder so that there's no lasting problems and no pain. You talked about 'time' in one of your other posts -- 'time' and not wanting to know. Have they told you that you're eligible for hospice care?? I got involved with hospice when my Mom was sick more than 2 decades ago. After her final steps, I wanted to repay in some way the gifts that had been given to me so I worked for a year as a home health aide. I was the only full-time aide. I had 25 patients that I rotated through over a 2-week period. All but one were elderly. Most were cancer patients. Because of your work history, you know what a gift it is to work in hospice care :hug: Karen, I recognize the fear and the panic in your voice. Please try to get more of your family members and your local community involved -- your Mom, your son's father, your boyfriend, local church workers. Your son sounds like he'll grow into a fine young man. Caring, thoughtful, loving. You've done a fantastic job of raising him My son was 11 when my Mom (his grandmother) was preparing to take her next steps. A wonderful man, Rabbi Earl A. Grollman, helped me get my Mom moved from out-of-state (South Carolina) to hospice care in Massachusetts, He was on the Board of Directors of the hospice at the time. Rabbi Grollman is a writer and helper. He's a wonderful, caring man. He helps people deal with losses of every kind -- losses through divorce, death... It might help you and your son if you can get some of his books from your local library. I would not have been able to cope without his help. ((((((Karen)))))), a lot of the pain and turmoil that you feel now is because you're fighting. We can accomplish more when when we stop fighting and allow The Universe to enfold us and guide us and teach us and show us how to teach others. Death is not some great hulking monster waiting around the corner to devour us. It's only a letting go of the pain. We don't have to let go of the love. I pray for you, precious lady. I hope you find the strength to do what you need to do. I hope your family and friends come together to help you. BIG HUGS (and blessings for both you and your son, healing prayers for your son, and prayers for no pain for you, Karen). Barb http://chocolate-moose.p5.org.uk/MIN...ding-hands.gif |
Hi Karen! I am fairly new here, I want to add my (((Hugs))):hug: I also am lifting you and your son up in prayer. I am sorry to hear about your son's shoulder and you having so much going on. Love, Desi
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Do you have any one coming in to assist you?
I know your son has been helping but it sounds like you need more help now esp since he is hurt too. Hospice or a county, state nurse or care person? I hope you have a case worker, adult friend or family member to help you plan and prepare all the paperwork and applications for assistance. |
Thank you ,InHisHands, You are his age, and with RSD I dont know how you do it .You have helped me so much everyone has. I dont want to fall anymore. I know I can fight but Im so tried and have no one here but you and everyone here. That helps alot knowing all of you are here thats why I come here and if I can help someone like everyone has helped me but you are wonderful Im 39 and alone really alone .Im happy one minute next Im not I know that depression Im just so tried but I think of and I keep going you can I can .I just want to go under my sheets and sleep but I cant I have to help him my son The mosy important love but Im so tried and hurt so bad its something everyday and during it alone with me in a chair and cast June 14 th we be 4 yrs maybe thats whaat is going on to and the pain in and out everyday Im tried my body I have no control of my insides anymore and have no adult to touch scream at hold talk in person no help in person and Full Body RSD on and on and on how long can it go ? its 12:00 calif. time we just got up But its not enough sleep because the pain I get my strenght from all of you and you are just wonderful I just want it to stop but I want everyone know I will be back and keep going and holding on to every word Im just so tired not even 100lbs my body cant eat because of another medical problem I just dont have it but Im trying. Thank InHisHands I love you girl,
Thank you everyone Karen |
Thank you everyone for eveything
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Barb
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Desi
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Hugs Karen |
Jo55
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Karen its just me and my son ...................... |
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GENTLE HUGS KAREN |
((((((Karen)))))),
http://chocolate-moose.p5.org.uk/MIN...bears-mini.gif Some financial 'thingies' to think about and maybe to apply for: Local welfare office: - apply for SSI, Medicaid, food stamps. If you get the SSI, you'll automatically get the Medicaid. If you're denied Medicaid coverage, apply for Free Care at your local hospital. Hospitals are required to take a reduced amount of government funds for a certain number of people. I have Medicare. But my secondary insurance goes back and forth between Medicaid and Free Care -- it depends on which government bean-counter did the calculations this year. I'm losing my Medicaid coverage because I'm receiving $1 too much in SSDI. So, they're throwing me back into the Free Care Pool again. Social Security Administration: 1-800-772-1213 - Apply for SSDI. I'm assuming that some of your doctors will state you are considered 'disabled'. - If you get SSDI, in two years you'll be eligible for Medicare (I'm praying for MORE than two years.) In the meantime, Medicaid will usually cover you until your SSDI application is approved. I learned a huge lesson when I was taking care of my Mom. She was feisty :D to say the least. My son didn't know how to help. So, I had to show him how to do certain things that would really help me -- like feeding his Grandma. Your son is much more experienced and older, so he's more knowledgeable than my son was at that age. He's going to need to feel really useful while he's watching something happen that he doesn't want to happen. One of the things that he can do that one of my friends from my hospice recommended is to pull together a list of everyone that you want to call and place it near your phone. These could be emergency workers (doctors, nurses, hospice helpers), friends, neighbors, church workers. Since your boy doesn't seem to have the support from your Mom or his Dad that he should during the next period, he should make sure that he has at least a couple of close friends that he can call if he just needs a hug or an attentive ear. You mentioned having a hard time getting past the pain to be able to focus your thoughts enough. I have fibromyalgia -- it's pretty much stabilized now. I remember the huge all-body flares. I can't even imagine... From what I understand about RSD, it's like fibro in that it moves around and it comes and goes and flares, but, it's worse because it's more painful and it doesn't take much to flare it up. Your son will be a good resource to keep you organized. He needs to do this and it'll help you. You know something, Karen, people like you and I who've worked in the health care field have a slight 'quirk' about us -- we don't like to accept help from others. During times when your health is not the best, you need to learn how to ask for and how to accept help. When my Mom took sick in South Carolina, I saw such examples of kindness and caring and loving from some people that I did know and a lot that I didn't. A small Southern town -- that's what they do. Help. I saw it with one family during my work at the VNA. A 95-year old man with stomach cancer. Thank G-d, he had no pain at all. He was very blessed. He had me coming every day to help him bathe and dress and change his bed. He had a female housekeeper who used to play in his front yard when she was a little girl. She knew all the old Italian recipes. He might only eat a bite, but, he got the memories and the feeling of being part of his culture just from that one taste. The man's family (and he had TONS of them, grown children, grown grandchildren, great grandchildren, and more on the way :) -- not to mention his friends). They put a calendar on the refrigerator. Everyone wrote down something to do. Even the grandkids. Someone would take him to the barber. Someone would purchase the bread for the week. Someone else the paper goods. Someone would take him to his eye doctor and his oncologist. No one got overwhelmed. And that dear, wonderful, special man got to stay at home until the end. He was surrounded by people that loved him. He slept in his own bed. It's a blessing to live and to die that way. And that's a life that's possible for everyone that allows The Universe to send the help to your door. Oh, try to get off of that Cobra insurance as soon as you can. That thing will break the spine of your checkbook -- nasty program with good intentions behind it. BIG HUGS. If I think of anything else, I'll write more. You can send me an instant message any time you want, Karen. I was just preparing for an appeal tomorrow on my own Medicaid coverage -- that's why all that "crap" was still fresh in my head :D Barb http://chocolate-moose.p5.org.uk/MINIS/knuddel.gif |
Kitti,
have you called or applied for any of the county resources yet ? your county website- social services- http://www.slocounty.ca.gov/dss.htm http://www.slocounty.ca.gov/dss/Food_Stamps.htm http://www.slocounty.ca.gov/health/p...lefinances.htm ***************************************** http://www.slocounty.ca.gov/dss/adult.htm In-Home Supportive Services (IHSS) The In-Home Supportive Services Program provides homemaker/chore services to over 2,000 seniors and disabled residents through the services of over 1,400 caregivers. Domestic care such as meal preparation, laundry, shopping and personal care services are provided to enable elderly, blind, or disabled persons to remain in their own home, to help maintain and strengthen capability for self-care, and to safeguard functioning in their own home. You may be eligible for IHSS if you are a current recipient of Supplemental Security Income (SSI) or would otherwise be eligible for SSI except for your level of income. IHSS is provided through Individual Providers who are hired by you, monitored by the Department, and paid by the State. How to Apply for Adult Services If you are elderly, blind or disabled and concerned for your own safety or if you are concerned about the safety of an elderly or dependent adult in San Luis Obispo County, please call (805) 781-1790. Any person has the right to apply for In-Home Supportive Services for aged or dependent adults. Certain conditions must be met to qualify for the program. It is important if you or an elderly person you know needs help to contact the Department of Social Services and speak with a Social Worker. To Apply Please call telephone number (805) 781-1790 to apply. ************************************************** ** If things ever get to a certain point where you cannot be at home - is there a plan in place for your son to live with a caring & supportive adult? |
How are you doing, Karen? Please let us know, when you feel up to it.
Hang in there! :hug: Sending much love and many prayers your way!! :hug: :hug: :hug: :hug: |
Barb
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Thank you so much there is so much I want to say but my hands are in so much pain right now I am going to put you on my friends list and as soon as I can I do want to talk .You have great ideas I just dont have people here but I need to somehow someway.I have been here almost 15 yrss but everyone is not here anymore because Im not the same karen shopping driving doing things like that but I will try to Eveyone is on line.I have asked my dr to get homehealth now that I know that Im covered I need to pull people back if I can. Thank you I hope everything goods well for you to I will be thinking and sending hugs for you. My Birthmom I meet a year ago she told me she has fibro. She called me after my birthday crying because he felt like its here fault I said NO ITS NOT full body RSD stge 3 its affecting my breathing Im 39 yrs old and I hope you dont mind I read the part about my son wil feel like this and he said yes I need to do these things that would help he said he didnt wnt anyone to touch me when I pass only him first that his time and he wants to and he problly will find me passed away he want to hold me in his arms and hug me and talk to me and tell me he will be ok and I was a great mom and he wants me to know that..............He is super kid He is mine. But I do want to talk somemore I was just reading I read two and had a good happy cry because you all are great Thank you Barb very much Lots of hugs karen |
P.S. BarbI love Beaaars I collect them I have a 4 bedroom home one room is art room Teddybears and guest the other is an office libary for my son he reads 6 books at a time so I made him a special room but he is with me in my room or his or livingroom but usually very close So I love the hugging bears I smiled when I saw that...................
Gentle hugs Karen |
jo55
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With my son thats one thing my mom loves in this world more than anything and before I had my will and trust gone I talked to my son agan and asked again because I have a great loving Aunt and Uncle not here but he wants to go to my mom and then my aunt and Uncle But he would be here if he was with mom and he would see me then. She would do anything and see goes for my son but its not that way with me growing up was like that her job was more (TEACHING) I wasnt raised with my dad we started getting close and knowing each other when i got RSD or alittle before he had is still going through thoat cancer for the last 9 or 10 months he didnt tell anyone specail me he said because of my health he said its hard I dont talk or see him he is in Palm springs about 8 hours away. but the rodatiion burnt his voice. But where my son wants to be is here and my step dad is great with him . and that having a man in his life thats good would be great they spend time together now but its coming Im trying to make it to Adam my son is 18 out of high school 3 yrs but I dont think I will But Im tying . I told my mom after he goes to college she said fine if thats what I want I said that is what I will do I told my son he said he will stay home and go to college at Cal Poly University Which everyone wants to .Its one of the top schools for vets or computure desisgn. I dont want him to live here He needs his live too.I would love him to but he needs to move on. There are two nice assist.living places here. Thank you for asking me that .Its not just me its my son to....Thank you again I will let you know............ Gentle Hugs to you Karen/ kitti |
Thanks, ((((((Karen)))))),
http://chocolate-moose.p5.org.uk/MINIS/ccbear13.gif You know that old man that I told you about?? I was with him for almost a year. He had a story that he told me almost every single time that I saw him. He had a dear friend that was sick for a long-long time. Every time a birthday came and went, his friend's family wondered ... how much longer?? The friend kept saying I knew someone that lived to their 85th birthday and passed right after their birthday party. I'm going to do that. My dear old man told me this story almost every time. And he laughed uproariously. I could never understand what the laughter was for. My dear old man reached his 96th birthday. He had his family and friends over to his house. After everyone left, he went to bed at night and just took his next steps. There are skills that are available to everyone if we just don't fight The Universe. What you need to do is visualize what you want to accomplish -- see your son in his cap and gown, see the party afterward, see him starting his first year of college, see him coming home on breaks... Don't 'fight'. And don't 'try'. Just get a real strong image in your heart and in your head of what you want to accomplish -- the gifts that you want The Universe to give you. It's worked for others :cool: Sleep tight, Karen, don't let the bedbugs bite. My Daddy used say that to me every night when I was little girl. I went to bed every night knowing that I was loved and cared about. You've got that, too, Karen. Just open your heart and feel the love and the prayers and the blessings surrounding you and your son and the rest of your family. BIG HUGS. Barb http://chocolate-moose.p5.org.uk/MINIS/teddybear.gif |
InHisHands,
Thank you not well the same but I knew I could came here and people would help me and mental Im doing alittle better, but the pain is so overwhelming you know..So remember I said I use to get headacks to I hadnt had any for a very long time they are there staring enough to bug me stress I think with my son the school no help my worse pain I have ever felt I keep thinking it cant get any worse and then something will start it. I trying I know you are all their I goin to make some calls tomarrow after I try to deal with school first day back for my son I hope. I need to break some kind of break not away from my son just stress ,pain,someone to help and my health to stop not now I dont want it to keep falling . I think about you so much I'll write back sson............Karen |
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