Neurontin and Shot?
 

I went for a second opinion to a neurologist. Anyhow some know I was on a cymbalta,lyrica,and a higher dose of neurontin which was 300 and then went to twice a day. All gave me horrible side effects like dizzy,what I call out of body,jittery. So then we tried elavil which does nothing. When I went to the other neuro she wants to try neurontin again but start at 100 and the 100 twice a day since so sensitive. I'm scared as I hate that feeling and also I'm in so much pain still basically in bed after more then 3 months so will it even help. Also she was talking about a steroid shot which I said I would wait for since I had two shots in my inner ankle already which may have been different but made me way worse. I'm going to call my other neuro about the shot but any feed back?My pain is mostly in left inner ankle/foot/calf but also sometimes in right.The left is unfunctionable though. All my tests which have been everything and now am sending all info to Chicago and Mayo has said inflammation and the ssep and nc did show pn so the neuro said now to tweak meds but it seems like my pain is so much worse as still in bed most days but now in a shoe no more boot. So I still feel the every test imaginable is not showing.I have an apt with a pain clinic that I keep putting off but they seem to only do things like epederal etc.Thanks for any feedback.

Questions
 

Daniella,
Do you have the written report of your test that the neuro did? Can you post what the report actually says? And I'm sorry, but I've been out and did not see your original post giving your history. Can you direct me to it?

Billye

I couldn't take Neurotin either, it made me feel awful, what really helped me was Tramadol Slow Release [no groggy feeling], 300mg x 2 per day, i think the max is suppose to be 400 mg per day but the extra 100mg at that time did really help.
Have you tried " the rebuilder or a TENS machine ? i have read good reports from them over time.

Brian :)

Brian,
Wish my docs would up my Tramadol to 600.
Maybe then my 2-3 would go to -0-.
But 400 is the max around here.
You mates 'down under' must have more flexible docs.
Lucky blokes! :)

Daniella, have you tried the Fentanyl patch?

Yeah Bob, it probably would make a difference, i know it did for me, at that time i was on Tr - 200 SL just wasn't enough, but after the extra 100 mg tab it really helped it get down to a comfortable level.
I don't know if all doc's here would perscribe the extra, but i convinced my GP that 200 mg was not enough and i wasn't prepared to take any others like Neurotin, Oxycontin etc, so i suppose it left him in a position that he had know else to turn, my neuro thought it was ok as well to take that amount , so i guess we are lucky or just may be just lucky enough to have 2 doctors that were not scared to perscribe higher than normal recommended doses.
May take some convincing to your doc's that you need the extra to make your pain bearable, at least, rules are made to be broken :)
good luck,
Brian :)

Ah ha! So maybe you can help me with a question as well. I posted in Jack's thread as well as he also mentioned Tramadol. I have some here my surgeon gave me after my CT surgery. For me it didn't play well with the Gabapentin which I no longer take. I'd rather be in pain than suicidal. The B-vitamins are helping as the pain is much less severe than it ever was. I had about 6 weeks of little or no pain. Now I seem to be in a plateau where the pain is back, though nowhere near as bad as previously. The worst part is that this pain only comes on at night and interferes with my sleep. The other night I don't think I slept at all. It was that annoying. At any rate, does Tramadol work immediately? In other words, on a bad night could I take a Tramadol and expect it to give me at least enough relief to get to sleep?

Are the ones you have "slow release" or the ones that last [i think,not sure ] 4 hours ? with the Slow release, taking every 12 hours there are no laps in times where the pain increases, i am not sure about the others though, asking Bob would be the shot, though.
Brian :)

I have the regular 4 hour tabs. I tried taking one last night. I was picked for jury duty yesterday and spent most of the day from 8:30 to 5:00 sitting. My feet were bothering me before I went to bed so I took a Tramadol and it *worked*! I was able to fall asleep no problem. Thank goodness! It's not every night that my feet bother me now but I had a night earlier in the week where I don't think I slept at all. It seems once I'm actually asleep they no longer bother me and they're always fine when I get up in the morning.

Hi and thank you. I am on tramdol but as needed as a sub for vicadin unless in horrible pain. I don't have the report back yet just the doc told me and the written will be ready next week. I'm trying to get all my records to send to chicago and mayo. I talked to my neuro yesterday and the shots were the ones we tried which made me worse. I'm going to try again the very low dose of neurontin and if not increase Elavil. I think in the start I tried the patches. I'm very fearful of everything tests and meds because my syptoms always get worse. I'm still confused on the b supplement. I have high b12 still on last weeks tests at 1500. I want to try the b12 pill though as everyone here said no harm but also was taking b complex but not consistent. Sorry I'm not much help to all of you but thank you for your suuport. I don't know if any of you have tried sleep meds seperate from what your taking. I'm trying to stay away from as many pills as possible since I have weird reactions but sometimes aside from pain the anxiety of possible pain keeps me up.

Do you have specific questions about the B vitamins?

rose

Daniella
 

I have no advice at all. I just want you to know your thought of,it's
so hard when you don't know what's wrong and sometimes scary when
you do. You are in my thoughts and prayers. Just keep posting and
when you get your Neuro report give us a chance at it. Now a days
they rush you though everything and make you wait far to long for those
blasted reports. Take care honey :hug: :hug: Sue

Thanks. I'm just so nervous about another med. I hate how I feel overall with that spacy and dizzy. Has anyone went med free not pain meds but like neurontin etc and still see progress in recovery or are meds really essential. Maybe I just need to keep trying till I find the right one. I guess for the b I'm just nervous making things worse and the side effects of added things making me dizzy/spacy even supplements. Yesterday I did take my b complex and magnesium,multi,glucosamine.I guess I will try the b12 I bought 1000. I had another set of blood work but just got the written and have to discuss but they said though some off no real concern in the report. My b12 is now 1500. I have high liver enzymes that I knew in the past,low white blood count and bun. Like I said in the past my blood work though never shows even when I ended up in the cardiac unit for a week it was pretty good so I'm not that trusting. Especially I'm dizzy,nausea,so thirsty,always stomach problems,and then this. I had tests of diseases of all kind auto,systemic,blood sugar,celiec. So frustrated. For long time I thought I had celiec but in these blood results no. I have the high liver,bloating but constipation but when I do go its explosion,nerve issues. Sorry to go off so long but thank you again.

Lots and lots of B12 is a very good thing when trying to heal. The only danger is in having too little.

rose

Thank you. I really read all about the b12 and am going to take them. I know I asked this in the past but has anyone seen any other natural things that help like diet or supplements other? I'm going to start my neurontin but still wonder is everyone on a med like this or alternative? Is it practically a must for pn relief?Does sometimes the pain just stop or go away like an injury with time?

The vitamin forum has lots of information about supportive supplements.

rose

idiopathic peripheral neuropathy
 

I was diagnosed this disorder abut 3 years ago. Initially my symptoms presented as a more serious disorder as the peripheral nerve in my left arm and hand had been destroyed by the disorder. It grew back about two years ago and now I am left with this disorder all over my entire body which according to my neurologist is an unusual presentation. I am currently on a reduced dose of cymbalta as the usual dose affected my thinking. I find that at any dose it will work providing you live in a geographical area where the barometric pressure remains above 1005 and is rising. If it gets beyond 1040 bp then 60 mg of Cymbalta will work to the degree where I was able to snow shoe about two miles without symptoms. When the pressure falls I prefer to do as little as possible. Has anyone else had this experience with barometric pressure and Cymbalta.

I react to barometric pressure with increased pain too.

But I don't take Cymbalta or any other antidepressant or Neurontin.

I get more misery with rapid changes esp to LOW.

Wow this is a post from me from a long time ago. Anyhow I am on Cymbalta increasing to 120 and on neurontin. I am impacted greatly by the weather when it is cold,snow,etc I am in such high pain but this was before I started these meds as well. I don't see the connection between the meds though with myself but that is not saying it is not with you. I have been told though the pain dose of cymbalta is 120. I used to be on 60 and it did nothing and then was told that it was the depression dose. Feel better

I react to pressure changes as well. No medication involved. I'm not sure the Cymbalta would have anything to do with that. What does your doc think?