Rsd/crps hitting me hard
 

RSD/CRPS is getting and hitting me so hard ,nothing can be able to describe the awful felling,body aching,burning,no relief at all,no scs works for now,no meds,nothing.this is my relief,can anyone imagine,crying as a relief,no,I don't think so.just me,just in my head,you are right,only in my head,get real people,outsiders don't know what pain is not even what is the meaning.
I hated when people,asked what I have because I look ok to them ,like Renee once said ,yahh,and you don't look stupid to me. Yap then right ,no one but us know what pain means ,I'm in pain,if you listened to those words,come on,don't reply with that dome question: are you sick,you look ok to me...don't you find that kind of annoyed,what else than that people want to heard ,sorry I'm in a bad day,many already,sorry don't want to be mean,I'm only want to feel ok,I'm sure none of you will asks me that stupid question or do an annoying comment ,that's why I'm here,crying but feeling some relief,I'm safe here,with friends,nothing else matter now :grouphug:

Oh eevo61, sometimes it helps to give in to the tears and that horrible feeling of hopelessness...gets all the bitterness out for a while. We do understand how awful it can be, and I'm so sorry you're suffering so much right now with nohting working on the pain...

Just hang in there. Are you seeing your doc soon? They need to know how bad it is right now and they need to do something to help you. You have that right.

It won't be like this always eevo, believe that and get through this time as best you can. You're a fighter, you'll be back :)

I'll be hoping that you find some relief very soon. Tears are fine, do what you have to... Have a treat of some kind, anything that gives you comfort for a moment...chocolate is always good... Also try anything cripsy that might help - a warm bath with epsoms? A gentle self-massage? Nice music and controlled breathing? Sometimes they help my pain more than any med...:rolleyes:

Hang on girl, this too will pass...

Bram :hug:

Thanks
 

Bram,is really rough some days ,I know the routine but this time is much worst ,happens and I'm able to handled ,now I don't know why nothing work,might be stress or I'm really tired or both.
I will get over,thanks,i do appreciate you kind words,is really comforting, and yes i cried when I felt that nothing is under control,today and days in the past has not been under control,I couldn't sleep non even a minute .
I will contact my pm dr after nine a.m. And see what he recommended,meanwhile I just trying to cope the best I can and relax.
I used to listen tibetan singing bowls,pure meditation soft waves but this time cero positive effect,well we all have days like this,I have to get over and start again,but is hard to get use to it,how can we get use to feel of pain,non sense,is hard when dr said they can no longer do anything but keep giving you or offering higher pain killers,just to mask the pain,that pain is still there,but made no different now.
thanks and I see you around soon,I will eat some gelato for sure later on and continue with my crochet projects,might help,thanks again,I wil do my best,best wishes and hope your doing much better than me,your friend Jesika. :grouphug:

This might help http://www.openfocustraining.co.uk/exercise.html

Thanks Kevcar,at the beginning did not get any idea of how to open it to read,I'm kind of new using internet links and Facebook and all that stuff,but after few minutes I got it,thanks .
I will definitely try it,like you see,I'm in a rough patch for couple days,never that bad before,wondering what was the trigger this time,anxiety and stress is the only answer I can get.
Well,I know we don't always had good days,I had my own few bad days ,but no this bad,still surprise me how my body reacted so bad,thanks for taking the time,I wil try to get into the focus training more deeper.
I was doing meditation for a while to sleep and relaxing,one of my friends is from Vietnam and practice meditation with the monks around his area,he got me in to,and works but no for this kind of deeper pain. I tried everything with no luck ,waiting to see if I can see my pm dr,but I will practice focusing training first while a waiting for the nurse to call me,is hard you already know.
my scs battery pocket area also gave me such of pain,hot around the area,my back,everything is on fire,funny,is so fresh in the mornings and so hot after couple hours,feel like I will melt down soon,I'm burning ,for real,my hand palms hurt just if my own finger rose then,gosh,worst flare ups ever for me until today,hope soon ended and move on,I'm tired.
Thanks again and I will follow instructions to see how can I improve focus the attention in other stuff,pain won't have to be priority in my life or any life.best wishes Kevcar ,fom Jesika
Ps I wish I can actually get the book,will check amazon or Barnes and noble here in u.s.a ,maybe is here,also helps to fall asleep faster ,nice,thanks.

Jesika I'm so sorry the pain got so bad and wish you all the peace and relaxation in the world

Awww dang.......:hug:

Yap ,want to run and never look back,problem is, my right foot and ankle don't let me :mad: is kind of bitter sweat,spending time with my nephew and nieces at the same time ,flare ups every where,thanks for you support,I mean it,you had been there sharing my world and I learned more from yours,this suck,but will pass,I know soon,thanks Allen. :grouphug:
My family is so thankful for every kind gesture and goodwill you have for all of us,we admire you a lot,I will try to start again to go out,like you,non stoping and move on.that should be my life,everyone's lives.

Thank you for,being such a nice friend ,rsd don't give time off,you might already noticed.
This flare ups are the worst I ever had.i don't understand how a body can experience such of pain,happens sometimes but lately,too often .
I hope your days are better and easy than mine,blessing and thank you again,cry sometimes is a huge relief,but when you cried alone,it's hurtful ,you guys held my hands today,I'm more than bless ,I will still try to get better and leave this episode behind,best wishes to all,from Jesika :grouphug:

Sorry you are having such a rough time Jesika! I hope things ease up for you soon.
Nanc :hug:

eevoo

Soft hugs for you. I am so sorry you are having such a hard time. WE do understand and are here for you. I wish I could send magical treatment right now.

Nanc,thanks I know you are doing a huge effort to be here,everything will be fine soon,thanks I know you are here no matter if you don't reply,don't worry I hope also you get better soon,we both will be, :grouphug: many gentle hugs.

That is the a new phrase I will treasure in my heart,a magical treatment,I wish that so many times,I can even imagine how life will be without your support,being here is relief,thanks and welcome,sorry you are dealing with this condition as well,we are fortunate to know so many great people,but sadly share the same disease,there are days like this,but I want to believe all the time that tomorrow will be a good day,I really need a good day,thanks so much,blessing and also gentle and soft hugs for you as well,Jesika. :grouphug:

I'm sorry things are so bad for you right now.

Some times a good cry helps me get the frustration and anger out.

Aw, Jesika, I'm so much hoping for you that some relief happens! :hug:

Thanks
 

Shelly,Di and every one,I was hoping to be okey today,I was alb to sleep but woke up late ,real late and as the day goes by,my pain increased ,reason is I'm really nervous and have a lots stress on me now,I noticed that and I want to be able to relax but I can't ,I tried but simple can't ,my whole body is on fire feels like knives cutting me and sweat getting up into my skin,hurst,my onwn touch hurts,tomorrow will see my pm dr and see what he recommended to do.so far neither meds or scs helped at all,but I hope got get better soon ,dawn I wish to be ok,at least no burning just the pain,thanks to all,I do appreciate it so much,is bad day but soon the sun will shine again,it was suppose to happen after te rain ,isn't it.thanks.:grouphug:

aww.. Jesika I'm so sorry that you are hurting so bad hon. that is just just terrible. I do know the pain you speak of; when you feel as though your body is a torture chamber. Just know that some how, some way... it will pass. :hug: Hang in there hon! I hope it passes quickly and if not I hope you're PM has something to help you! Try and find some sort of distraction if you can. Maybe even a hot bath? Be good to you! :hug:

Oh Jesika, I do hope you feel better soon. I saying prayers for you. Hugging you softly :hug:

Thanks
 

Vrae and Phaedra ,girls I appreciate so much your concern,yap been rough lately,I'm in so much stress and pain added more stress.hot shower unfortunate is not for me,my scs got my body hot enough if I take too warm water showers,I flare up more,funny story,I take showers to cool down and get rid of sweat and I ended showering on sweat after any bath,so make no sense,weird,I should avoid water and save the planet ,hahaha :D, thanks for lift me up,I always keep you in my mind and also prayers ,thanks to all ,from Jesika .:grouphug:
:rain:
Ps shower but of sweat,

Have you tried Valium?

My PM doctor has me on it as 2 fold. It helps to relax muscles when they tighten up and it helps me with anxiety and stress. I'm on 5 mg once a day twice if needed. I take it in the AM. If I find myself getting anxious and worked up I take more. It seems to help.

I hope you're feeling better today. I'm sorry you're having a rough week and hope your pain level goes down soon. Take it easy and try to get some rest.

I saw my dr ,pm he recommended me to take and extra tramadol am and pm dosage for body aching,use more lidoderm patches,also flector patch,take and extra meloxicam ,use cooling pads for the hot flushes,continue with gabapentin,than gabapentin is the worst for me,make a zombie :eek:,but need to follow my routine meds,with gabapentin I was on different dosage daily,sometimes four caps ,sometimes five,other three or sometimes the whole six,it was as tolerated,now I have take the whole 1800 mg daily until my flare ups reduce its severity,hope all your dr appointment went well,blessings and hugs from Jesika . :grouphug:

No never,my muscle relaxer is either baclofen or cyclobenzaprime ,which ever worked better,for anxiety clonazepan and for sleep lunesta,next time I will ask avoid Valium or diazepam the generic,what ever helps now is the time to asked for it,thanks fbodgrl ,gentle hugs from Jesika :grouphug: